Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Dear Anne and everyone else in the community, I was glad to hear about the little shrinking of your fibroids, Anne. Good luck! I am wondering what might have caused it? what is the RU486? I am trying to find any possible natural way to reduce the size of the fibroid. Did anyone have experience with natural progesterone or with any other alternative way of healing? I would appreciate very much any information about this. Best wishes and very good health to you Anne and to everyone else. Thanks, Nitza. nenaya@... wrote: > Hi everyone, > > I just want to say that, as ridiculous as it may seem, to have to go to > excessive ends to justify our decision to keep our uterus, it's great to > hear that so many of us are refusing hysterectomy as the only option. I too > have gone to doctors armed with lots of info, and ready to change doctors. > > The more of us who do this, the more the doctors will have to research and > develop other treatment options. I would think that the HMO's will > eventually have to provide coverage, as more doctors recommend other > options. What's really needed is a revolution in the hysterectomy mentality. > It's always encouraging to hear about other women who educate themselves as > much as possible, and question their doctors. And to those who got talked > into hysterectomy, and found later that they hadn't been given all the > facts, speaking up about it is both courageous and vitally important. Thank > you, it helps all of us! > > When I first discovered I had fibroids, 2 years ago (I think) I was > initially pretty panicked. Many doctors only make the fear worse! My female > general practitioner discovered them, and advocated 'watchful waiting', but > with the admonition that once they reached a certain size, " something would > have to be done. " (this was proclaimed with a pained, sad facial expression, > almost as if she'd given me a death sentence!) The fibroids did reach that > size, within a year or so after the initial diagnosis. I still have not > 'done' anything, I'm still quite healthy, and I now take the scare tactics > of some doctors with a truckload of salt. No one is going to convince me > that my uterus is the enemy! > > I was sent to a young female gynecologist, who proclaimed, flat-out, that > the ONLY thing she'd recommend was a hysterectomy!!??? i couldn't believe > it. Maybe she figured that, at the advanced age of 44, I couldn't possibly > care about my uterus, sexual function, hormones, or any of that stuff. > Wrong!! Back at the GP, I said NO WAY was I going to have a hysterectomy, > and I was appalled that a young female doctor would recommend one! Needless > to say, I am not a favorite patient of either doctor. I deal with this by > avoiding them as much as possible! I guess you just get sort of used to it > all. No, it's not fun, and it is sometimes scary. But it's been over 2 years > of watchful waiting for me, my uterus is probably about the size of a > honeydew melon..but I'm tall with a large frame, so it's not too > symptomatic. For better or worse, I'm on low-dose BCP's. so I don't have any > problems with heavy bleeding, fortunately. > > In the last few months, the fibroids have reached a size that sometimes > causes discomfort and pressure, and I'm starting to research various > treatments. But in the last couple weeks, they appear to have shrunk > slightly. So I'm hoping I can hold out.....keeping an eye on the progress of > RU486, which seems like a really promising treatment. And I'm also looking > into UFE. Personally, I'd like to avoid that, if possible. But it sure seems > better than hysterectomy. > > Well, I'm rambling a bit. I just wanted to say 'thank you' to everyone on > this list. It's a great support system. Good luck to everyone. > > Anne > > Re: Digest Number 246 > > >Hi Candance and Marsha > >I too reside in Florida and have fibroids. > >I recently found out about a month ago and was initially devastated with > the > >diagnosis. However, I have a doctor that did explain the options but still > >insisted I have a hysterectomy. I refused to accept that option and began > my > >research. > > > >I checked on Lupron and found it to be a quick fix, with no long term > >results. Other surgery didn't seem to fit my lifestyle or age bracket. > > > >I'm 43 today and wish to keep my uterus eventhough I no longer wish to have > >children. > > > >Last evening I have a follow-up consultation with my doctor to talk about > MY > >decision. I was really worried how he may react, (being the good old boy > >doctor in town), since my decision was to opt for UAE. He was very > receptive > >to my decision and even called the local Radiologist to get the best > referral > >for this procedure. He was also very interested in doing my follow-up since > >he has never had a patient have this procedure before. > > > >I went in with both guns loaded with information and ready to find a new > >doctor. > >Just wanted to let you know I found a doctor in Florida that was > informative > >about the options and willing to agree with MY decision. > > > >They are setting up a consultation with the radiologist and will let you > know > >how everything goes. Hopefully I will have the procedure before Christmas. > > > > Beaver > >Naples, Florida > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I would like to know what RU486 is too? I am 34 years old with no children. I had a myomectomy in 1989 - the fibroids have since regrown. Gynaecologists can only offer another myomectomy - a path I do not want to tread again! I am trying to eat healthily, particularly excluding diary products, red meat and alcohol from my diet. I do feel generally a lot better for this and my menstrual cycle has been lighter. I do want to have the fibroids treated though as I would like to have a child and would like to look pregnant because I am pregnant not because the fibroids are having a field day! ----Original Message Follows---- Reply-To: uterinefibroidsegroups To: uterinefibroidsegroups Subject: Re: looking for natural way to heal the uterus Date: Fri, 08 Dec 2000 22:30:48 +0200 Dear Anne and everyone else in the community, I was glad to hear about the little shrinking of your fibroids, Anne. Good luck! I am wondering what might have caused it? what is the RU486? I am trying to find any possible natural way to reduce the size of the fibroid. Did anyone have experience with natural progesterone or with any other alternative way of healing? I would appreciate very much any information about this. Best wishes and very good health to you Anne and to everyone else. Thanks, Nitza. nenaya@... wrote: > Hi everyone, > > I just want to say that, as ridiculous as it may seem, to have to go to > excessive ends to justify our decision to keep our uterus, it's great to > hear that so many of us are refusing hysterectomy as the only option. I too > have gone to doctors armed with lots of info, and ready to change doctors. > > The more of us who do this, the more the doctors will have to research and > develop other treatment options. I would think that the HMO's will > eventually have to provide coverage, as more doctors recommend other > options. What's really needed is a revolution in the hysterectomy mentality. > It's always encouraging to hear about other women who educate themselves as > much as possible, and question their doctors. And to those who got talked > into hysterectomy, and found later that they hadn't been given all the > facts, speaking up about it is both courageous and vitally important. Thank > you, it helps all of us! > > When I first discovered I had fibroids, 2 years ago (I think) I was > initially pretty panicked. Many doctors only make the fear worse! My female > general practitioner discovered them, and advocated 'watchful waiting', but > with the admonition that once they reached a certain size, " something would > have to be done. " (this was proclaimed with a pained, sad facial expression, > almost as if she'd given me a death sentence!) The fibroids did reach that > size, within a year or so after the initial diagnosis. I still have not > 'done' anything, I'm still quite healthy, and I now take the scare tactics > of some doctors with a truckload of salt. No one is going to convince me > that my uterus is the enemy! > > I was sent to a young female gynecologist, who proclaimed, flat-out, that > the ONLY thing she'd recommend was a hysterectomy!!??? i couldn't believe > it. Maybe she figured that, at the advanced age of 44, I couldn't possibly > care about my uterus, sexual function, hormones, or any of that stuff. > Wrong!! Back at the GP, I said NO WAY was I going to have a hysterectomy, > and I was appalled that a young female doctor would recommend one! Needless > to say, I am not a favorite patient of either doctor. I deal with this by > avoiding them as much as possible! I guess you just get sort of used to it > all. No, it's not fun, and it is sometimes scary. But it's been over 2 years > of watchful waiting for me, my uterus is probably about the size of a > honeydew melon..but I'm tall with a large frame, so it's not too > symptomatic. For better or worse, I'm on low-dose BCP's. so I don't have any > problems with heavy bleeding, fortunately. > > In the last few months, the fibroids have reached a size that sometimes > causes discomfort and pressure, and I'm starting to research various > treatments. But in the last couple weeks, they appear to have shrunk > slightly. So I'm hoping I can hold out.....keeping an eye on the progress of > RU486, which seems like a really promising treatment. And I'm also looking > into UFE. Personally, I'd like to avoid that, if possible. But it sure seems > better than hysterectomy. > > Well, I'm rambling a bit. I just wanted to say 'thank you' to everyone on > this list. It's a great support system. Good luck to everyone. > > Anne > > Re: Digest Number 246 > > >Hi Candance and Marsha > >I too reside in Florida and have fibroids. > >I recently found out about a month ago and was initially devastated with > the > >diagnosis. However, I have a doctor that did explain the options but still > >insisted I have a hysterectomy. I refused to accept that option and began > my > >research. > > > >I checked on Lupron and found it to be a quick fix, with no long term > >results. Other surgery didn't seem to fit my lifestyle or age bracket. > > > >I'm 43 today and wish to keep my uterus eventhough I no longer wish to have > >children. > > > >Last evening I have a follow-up consultation with my doctor to talk about > MY > >decision. I was really worried how he may react, (being the good old boy > >doctor in town), since my decision was to opt for UAE. He was very > receptive > >to my decision and even called the local Radiologist to get the best > referral > >for this procedure. He was also very interested in doing my follow-up since > >he has never had a patient have this procedure before. > > > >I went in with both guns loaded with information and ready to find a new > >doctor. > >Just wanted to let you know I found a doctor in Florida that was > informative > >about the options and willing to agree with MY decision. > > > >They are setting up a consultation with the radiologist and will let you > know > >how everything goes. Hopefully I will have the procedure before Christmas. > > > > Beaver > >Naples, Florida > > > > > > Quote Link to comment Share on other sites More sharing options...
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