Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi & Everyone: During my permanent Afib days, and feeling pretty lousy day in and day out, with no end in sight, I just had to locate a Support Group. I thought for sure Duke Medical Center, Durham Regional Hospital, UNC, ot Rex would have such a group. After many many phone calls and inquiries, much to my surprise, there was none. At my daughter's suggestion, I started one OnLine - which was the Topica group. I think (and Bobby can correct me if I'm wrong), we had 120 members in the Topica group. Ronnie, one of our members suggested some sort of a database to collect Afib information. Messages were going back and forth from many members as to just how to accomplish this; however, it could not be done on the Topica site. Bobby, our computer wizard, came up with the egroups site and transferred all 120 members over to this new site - this was not an easy task!! Shortly thereafter egroups was taken over by Yahoogroups. We also were very fortunate to have a talented member/moderator in , who created a great database: http://www.dialsolutions.com/af/ Now we had Bobby, and me as Moderators. - I think sent an email to me about you - and thereafter you came aboard. Sandy was a member and also my *Afib Buddy*. She lived only a few miles from me, and occasionally we meet for brunch. I asked her to join our Moderator group. Thereafter Walt joined us as a Moderator. Bobby started the site on October 26th, 2000 - so we have a two year Anniversary coming up and we now have 502 members......again, all I can say is....WOW! If I have left anybody or anything out, please feel free to jump right in here. Ellen (PS) If your name, etc. is not listed in 's database above...please, please consider doing so. This information is so beneficial to all of us........ ******************* (snip) I would be very interested on how this group started, I seem to remember seeing you on the maze board and just wondered on how you got this group going . what made you do it. (snip) C ******************** Quote Link to comment Share on other sites More sharing options...
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