Home from trip,tons of mail/medical question (Long)

[Guest guest]

Hello fine people we got back from my mothers day trip with our kids to Ca to

visit my Mom and mini vacation late late Tuesday night. I apologize for any

mail I haven't answered since we left Sat, IM of course wayyyy behind again!

promise I will catch up an write you all back who wrote me and any I can help

in some answers. By the way you are all such tremendously supportive people,

some Ive known for years your consistency in love and support is wonderful

and greatly appreciated, and to those I don't know well or are newer thankyou

for reaching out to this old timer who slips off that cliff now and then in

search and frustrations.

I have a scenario here Id like to throw out, it may be totally unrelated to

my Chiari and Syringomyliea and Scoliosis but its gotten bad and Id like to

wing it by you all.

A month and a half ago I had my GYN check (don't have a uterus) I am prompt

on these yearly visits had my mammo too (IM 40). My Doctor ordered some

blood tests for me like: premenopausal (whihc I dont have) but I sweat like a

pig badly and its gotten worse and owrse in last few months (whats up with

that?), he even did a blood test for liver and gallbladder and also thyroid,

all came back great pap and everything looked wonderful, cholesterol too in

good shape. At that time I noticed about a week earlier (before visit)

swelling in abdomen, not my normal swelling either (partial bilateral

diaphragm paralysis and Hiatal hernia), I swear to God my abdomen looks like

one of those pictures you used to see in National Geographic of a child who

is ill , I eat very nutrisious foiods, Im thin (not skinny) but I look

pregnant at this point and wayyyyy donw low around where I had my c-sections

there is a disteneded pouch on the left side only. I also have developed a

rash on the abdomen

* OK IM LOOKING REALLY ATRACTIVE AT THIS POINT, HaHaHaHa!!!!

My bladder is not fintioning well (cant feell it then go like crazy) and I

have pain in my lower back last few months and pain wayyyy down low, but all

my female exams were complexity normal he did a full pelvic exam and hes good

he's been my doc for a while now (GYN). Ive had a stool thing done when they

thought a few weeks ago we may have had food poisoning and we all had to do

this stool tests 3 whole tests that all came back fine, so what could this

possibly be????, its gotten quite severe even my husband saw it tonight and

he really says anything, the thing here is that all the Gastronoligists where

I go will not see me at this point they want nothing to do with me because of

all my disorders, I just have so much with the lung disease (genetic) the

anemia and all my stuff.

I did have an endoscopy last year but other than my 2cm??? hernia and some

very mild reflux for which my prevacid controls they didn't see anything

outstanding but I didn't have this horrible distention I have now and the

back lower pain, I keep getting nausea, cant be pregnant, no blood in stool

or urine that I see or they so any ideas out there???? I just don't see how

any of it could be related to my stuff even though its all active (ACM SM.

SC) ive never heard of this in all the years Ive seen posts.

Well IM sorry this was so long, I was about to go to ER last week I look like

my entire abdomen is going to explode at any time and its starting to really

get to me, they said they were going to ultrasound my stomach and kidneys but

now they wont even call me we've been calling for 3 weeks, yup 3 and not one

Gastrinologist will call me back we know them all and they have dumped me you

know that feeling you can just tell when they don't want ya around anymore

because your too complicated, I really dislike that feeling, so IM hoping I

don't have to do the ER thing then IM really screwed.

Hugs to all tonight, will catch up on all my mail next few days, IM always

thinking about everyone I really mean that " smooch " .

LOL

Dawn in Colorado