Re: ALERT for Tikosyn/Dofetiliade Users

[Guest guest]

I have been on Dofetilide/Tikosyn for over two (2) years. At the

time I began Dofetilide Therapy in the hospital, my EP was more than

adamant when he adised me that I was to take absolutely *nothing*

without checking with him.

My pharmacist, although he cannot dispense Dofetilide, has all the

Dofetilide/Tikosyn information on his computer and he has me

registered as a Dofetilide user.

I was also given a video tape about Dofetilide - which states in no

uncertain terms, not to take anything at all without checking with

the physician.

Recently I was diagnosed with the H-Pyloric Bacteria and starting

with the physician who prescribed the antibiotic, then through my

EP, then to the Phizer Pharmacist and down on to the pharmacy who

would be providing the antibiotic - I was given the go ahead

signal. It gave me such peace of mind to know that all these people

were checking this antibiotic out to be certain that it was alright

for me to take - (reading from the prescription bottle - AMOX TR-K-

CLV 500). My Pharmacist, although he spoke to my EP, actually took

it upon himself to double check with Phizer himself.

My point here is that all Dofetilide patients should be aware that

they must check out *everything* (even over the counter stuff)

before taking anything.

I also had a Colonoscopy a year ago - and we went through the same

proceedure as above. Unfortunately, I can recall the name of the

slop I had to drink.

Sometime back someone, either myself or Codling, posted

reactions, etc. pertaining to Dofetilide. I'll check our Archives

and get back to you on this - or maybe we can hear from .

Ellen

NSR on Dofetilide/Tikosyn

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--- In AFIBsupport , " ccb1115518 <ccb711@h...> "

(snip) talking to CVS pharmacist about drug interactions with

Tikosyn. Seems they have a lot more info than we have on what drugs

to avoid. (snip)

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[Guest guest]

> I'd seen discussions about reactions to antibiotics and other drugs.

> Antibiotics NOT recommended:

> - neuroxin, levoquin, cipro (cipro is the least harmful of that

> family and I've taken it with no problems)

I had a real problem with cipro. After a couple of days it put me

into 2-3 days of multiple pvcs a minute, which stopped a day or so

after I stopped taking the cipro. I've never before or since had

something last for that length of time, and never had pvcs to

anything like that extent, so I am 99% sure it was the cipro.