Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 I have a myo scheduled April 11. Altho I tolerate pain fairly well(at least thats what I am told) I am nervous about the post op pain. I think part of it is that I've known about it for a month which is too much time to think about it. I ahd a c-sect and really didn't take any pain med- just dealt with it. I have a 9+ subserosal fibroid which seems to be rearranging my insides and growing rapidly. Carla I am glad your surgery went well, but the part about the pain is just making more nervous. myomectomy sucks... I'm home this morning. online for only a few. can't wait to post the anesthesia record of my myomectomy online...I guess I'm just a horse when it comes to stopping pain for me! But myo has UAE beat without any doubt on pain richter scale... is 950 mcg of fentanyl a lot of fentanyl? plus 25 of demerol, plus..... the list is long.... and continued for well over the first 24 hours. Anesthesiologist gave instructions to keep it high because of my tolerance level for narcotics...but nursing staff disregarded him and went with the floor SOPs. Screaming in pain as I woke up and begging for meds occurred with myo just as it did with UAE...only this time my husband stayed with me the entire time and advocated immediately for intervention and paging Broder. Dr. Broder had to do a suspension as well. utero sacral ligaments were attenuated and stretched by about 2 cm. he folded them back and reinforced them into place with stitching. didn't cut them or shorten them by severing them. just folded them and stitched them down on either side of uterus. also did something else that I don't remember right now. still in lots of pain and taking percoset back to back to keep it down some. need to get report and read it after it's written. don't know if it will work but complete prolapse was truly going to occur after the fibroids were removed without some type of intervention -- it was that bad. subserosal fibroid (~8 cm) was soft, very necrosed, and liquified in center. It was posterier pre-UAE. It had completely relocated itself anteriorly and was tipping the whole uterus forward. I told him so. He didn't believe me until he saw it for himself upon pulling the uterus out and did express surprise over this. UTerus was positioned normally -- not turned -- fibroid was anterior and tilting the whole thing downward into the vagina. said he thought he saw PVA in this fibroid and asked to be paged by pathology when the slides are done. curious myself... 3 other, 1 cm or so intramural fibroids removed. will know more in another week or so. got to lay back down. flowers from SCVIR very beautiful. very nice. love you guys. sorry my fibroids didn't cooperate and sit still with UAE -- but I guess that I was meant to have more to say about all of this in the future. BTW, another uterine prolapse reported in Arkansas. Ugh. That woman had a 30+ week size fibroid uteri prior to UAE over a year ago. Normal uterus now as she has passed a lot of submucosal material. Total prolapse of the uterus into the vagina last Saturday. Terrified me reading her email as I was preparing for the hospital. Changed my surgical plans with and gave him permission to do uterine suspension if necessary. It was necessary. Must lie back down. MOre next week. Thank you all for your good wishes. I feel good about this surgery. glad to be rid of the fibroids too. why dit it have to take over 16 years of begging for appropriate treatment, UAE, and prolapse though? why did it have to take screaming from the rooftops of the internet to get any attention or respect for my wishes? why? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Hi , I had a myo on Monday and I'm feeling fine today. Monday after the surgery was rough and I was on a morphine drip for 24 hours. Now I'm on Vicodan 2 every 6 hours and it's fine. I can't lift anything or walk quickly but I'm feeling really fine. So everybody has different experiences. Good luck. Waiting is hard but if you're anything like me, you'll be glad you did it within just a few days of the surgery. > >Reply-To: uterinefibroids >To: <uterinefibroids > >Subject: Re: myomectomy scheduled >Date: Sat, 31 Mar 2001 00:41:09 -0500 > >I have a myo scheduled April 11. Altho I tolerate pain fairly well(at >least thats what I am told) I am nervous about the post op pain. I think >part of it is that I've known about it for a month which is too much time >to think about it. I ahd a c-sect and really didn't take any pain med- >just dealt with it. I have a 9+ subserosal fibroid which seems to be >rearranging my insides and growing rapidly. Carla I am glad your surgery >went well, but the part about the pain is just making more nervous. > myomectomy sucks... > > > I'm home this morning. online for only a few. can't wait to post the > anesthesia record of my myomectomy online...I guess I'm just a horse > when it comes to stopping pain for me! But myo has UAE beat without any > doubt on pain richter scale... is 950 mcg of fentanyl a lot of > fentanyl? plus 25 of demerol, plus..... the list is long.... and > continued for well over the first 24 hours. Anesthesiologist gave > instructions to keep it high because of my tolerance level for > narcotics...but nursing staff disregarded him and went with the floor > SOPs. Screaming in pain as I woke up and begging for meds occurred with > myo just as it did with UAE...only this time my husband stayed with me > the entire time and advocated immediately for intervention and paging > Broder. > > Dr. Broder had to do a suspension as well. utero sacral ligaments were > attenuated and stretched by about 2 cm. he folded them back and > reinforced them into place with stitching. didn't cut them or shorten > them by severing them. just folded them and stitched them down on > either side of uterus. also did something else that I don't remember > right now. still in lots of pain and taking percoset back to back to > keep it down some. need to get report and read it after it's written. > don't know if it will work but complete prolapse was truly going to > occur after the fibroids were removed without some type of intervention > -- it was that bad. > > subserosal fibroid (~8 cm) was soft, very necrosed, and liquified in > center. It was posterier pre-UAE. It had completely relocated itself > anteriorly and was tipping the whole uterus forward. I told him so. He > didn't believe me until he saw it for himself upon pulling the uterus > out and did express surprise over this. UTerus was positioned normally > -- not turned -- fibroid was anterior and tilting the whole thing > downward into the vagina. said he thought he saw PVA in this > fibroid and asked to be paged by pathology when the slides are done. > curious myself... 3 other, 1 cm or so intramural fibroids removed. > will know more in another week or so. > > got to lay back down. flowers from SCVIR very beautiful. very nice. > love you guys. sorry my fibroids didn't cooperate and sit still with > UAE -- but I guess that I was meant to have more to say about all of > this in the future. > > BTW, another uterine prolapse reported in Arkansas. Ugh. That woman > had a 30+ week size fibroid uteri prior to UAE over a year ago. Normal > uterus now as she has passed a lot of submucosal material. Total > prolapse of the uterus into the vagina last Saturday. Terrified me > reading her email as I was preparing for the hospital. Changed my > surgical plans with and gave him permission to do uterine > suspension if necessary. It was necessary. Must lie back down. MOre > next week. > > Thank you all for your good wishes. I feel good about this surgery. > glad to be rid of the fibroids too. why dit it have to take over 16 > years of begging for appropriate treatment, UAE, and prolapse though? > why did it have to take screaming from the rooftops of the internet to > get any attention or respect for my wishes? why? > > carla > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Hi , I had a myo on Monday and I'm feeling fine today. Monday after the surgery was rough and I was on a morphine drip for 24 hours. Now I'm on Vicodan 2 every 6 hours and it's fine. I can't lift anything or walk quickly but I'm feeling really fine. So everybody has different experiences. Good luck. Waiting is hard but if you're anything like me, you'll be glad you did it within just a few days of the surgery. > >Reply-To: uterinefibroids >To: <uterinefibroids > >Subject: Re: myomectomy scheduled >Date: Sat, 31 Mar 2001 00:41:09 -0500 > >I have a myo scheduled April 11. Altho I tolerate pain fairly well(at >least thats what I am told) I am nervous about the post op pain. I think >part of it is that I've known about it for a month which is too much time >to think about it. I ahd a c-sect and really didn't take any pain med- >just dealt with it. I have a 9+ subserosal fibroid which seems to be >rearranging my insides and growing rapidly. Carla I am glad your surgery >went well, but the part about the pain is just making more nervous. > myomectomy sucks... > > > I'm home this morning. online for only a few. can't wait to post the > anesthesia record of my myomectomy online...I guess I'm just a horse > when it comes to stopping pain for me! But myo has UAE beat without any > doubt on pain richter scale... is 950 mcg of fentanyl a lot of > fentanyl? plus 25 of demerol, plus..... the list is long.... and > continued for well over the first 24 hours. Anesthesiologist gave > instructions to keep it high because of my tolerance level for > narcotics...but nursing staff disregarded him and went with the floor > SOPs. Screaming in pain as I woke up and begging for meds occurred with > myo just as it did with UAE...only this time my husband stayed with me > the entire time and advocated immediately for intervention and paging > Broder. > > Dr. Broder had to do a suspension as well. utero sacral ligaments were > attenuated and stretched by about 2 cm. he folded them back and > reinforced them into place with stitching. didn't cut them or shorten > them by severing them. just folded them and stitched them down on > either side of uterus. also did something else that I don't remember > right now. still in lots of pain and taking percoset back to back to > keep it down some. need to get report and read it after it's written. > don't know if it will work but complete prolapse was truly going to > occur after the fibroids were removed without some type of intervention > -- it was that bad. > > subserosal fibroid (~8 cm) was soft, very necrosed, and liquified in > center. It was posterier pre-UAE. It had completely relocated itself > anteriorly and was tipping the whole uterus forward. I told him so. He > didn't believe me until he saw it for himself upon pulling the uterus > out and did express surprise over this. UTerus was positioned normally > -- not turned -- fibroid was anterior and tilting the whole thing > downward into the vagina. said he thought he saw PVA in this > fibroid and asked to be paged by pathology when the slides are done. > curious myself... 3 other, 1 cm or so intramural fibroids removed. > will know more in another week or so. > > got to lay back down. flowers from SCVIR very beautiful. very nice. > love you guys. sorry my fibroids didn't cooperate and sit still with > UAE -- but I guess that I was meant to have more to say about all of > this in the future. > > BTW, another uterine prolapse reported in Arkansas. Ugh. That woman > had a 30+ week size fibroid uteri prior to UAE over a year ago. Normal > uterus now as she has passed a lot of submucosal material. Total > prolapse of the uterus into the vagina last Saturday. Terrified me > reading her email as I was preparing for the hospital. Changed my > surgical plans with and gave him permission to do uterine > suspension if necessary. It was necessary. Must lie back down. MOre > next week. > > Thank you all for your good wishes. I feel good about this surgery. > glad to be rid of the fibroids too. why dit it have to take over 16 > years of begging for appropriate treatment, UAE, and prolapse though? > why did it have to take screaming from the rooftops of the internet to > get any attention or respect for my wishes? why? > > carla > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Hi , I had a myo on Monday and I'm feeling fine today. Monday after the surgery was rough and I was on a morphine drip for 24 hours. Now I'm on Vicodan 2 every 6 hours and it's fine. I can't lift anything or walk quickly but I'm feeling really fine. So everybody has different experiences. Good luck. Waiting is hard but if you're anything like me, you'll be glad you did it within just a few days of the surgery. > >Reply-To: uterinefibroids >To: <uterinefibroids > >Subject: Re: myomectomy scheduled >Date: Sat, 31 Mar 2001 00:41:09 -0500 > >I have a myo scheduled April 11. Altho I tolerate pain fairly well(at >least thats what I am told) I am nervous about the post op pain. I think >part of it is that I've known about it for a month which is too much time >to think about it. I ahd a c-sect and really didn't take any pain med- >just dealt with it. I have a 9+ subserosal fibroid which seems to be >rearranging my insides and growing rapidly. Carla I am glad your surgery >went well, but the part about the pain is just making more nervous. > myomectomy sucks... > > > I'm home this morning. online for only a few. can't wait to post the > anesthesia record of my myomectomy online...I guess I'm just a horse > when it comes to stopping pain for me! But myo has UAE beat without any > doubt on pain richter scale... is 950 mcg of fentanyl a lot of > fentanyl? plus 25 of demerol, plus..... the list is long.... and > continued for well over the first 24 hours. Anesthesiologist gave > instructions to keep it high because of my tolerance level for > narcotics...but nursing staff disregarded him and went with the floor > SOPs. Screaming in pain as I woke up and begging for meds occurred with > myo just as it did with UAE...only this time my husband stayed with me > the entire time and advocated immediately for intervention and paging > Broder. > > Dr. Broder had to do a suspension as well. utero sacral ligaments were > attenuated and stretched by about 2 cm. he folded them back and > reinforced them into place with stitching. didn't cut them or shorten > them by severing them. just folded them and stitched them down on > either side of uterus. also did something else that I don't remember > right now. still in lots of pain and taking percoset back to back to > keep it down some. need to get report and read it after it's written. > don't know if it will work but complete prolapse was truly going to > occur after the fibroids were removed without some type of intervention > -- it was that bad. > > subserosal fibroid (~8 cm) was soft, very necrosed, and liquified in > center. It was posterier pre-UAE. It had completely relocated itself > anteriorly and was tipping the whole uterus forward. I told him so. He > didn't believe me until he saw it for himself upon pulling the uterus > out and did express surprise over this. UTerus was positioned normally > -- not turned -- fibroid was anterior and tilting the whole thing > downward into the vagina. said he thought he saw PVA in this > fibroid and asked to be paged by pathology when the slides are done. > curious myself... 3 other, 1 cm or so intramural fibroids removed. > will know more in another week or so. > > got to lay back down. flowers from SCVIR very beautiful. very nice. > love you guys. sorry my fibroids didn't cooperate and sit still with > UAE -- but I guess that I was meant to have more to say about all of > this in the future. > > BTW, another uterine prolapse reported in Arkansas. Ugh. That woman > had a 30+ week size fibroid uteri prior to UAE over a year ago. Normal > uterus now as she has passed a lot of submucosal material. Total > prolapse of the uterus into the vagina last Saturday. Terrified me > reading her email as I was preparing for the hospital. Changed my > surgical plans with and gave him permission to do uterine > suspension if necessary. It was necessary. Must lie back down. MOre > next week. > > Thank you all for your good wishes. I feel good about this surgery. > glad to be rid of the fibroids too. why dit it have to take over 16 > years of begging for appropriate treatment, UAE, and prolapse though? > why did it have to take screaming from the rooftops of the internet to > get any attention or respect for my wishes? why? > > carla > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 cailleach wrote: > Carla, I had no idea you have been suffering so many pain problems. > You have been very stoic not to moan publically earlier. Especially > when you manage a discussion group which so many women sometimes use > to let off steam about our various physical and emotional aches and > pains. I do hope the myo puts an end to some of the pains, such as the > back pain. It's even possible that you'll be less troubled with > migraines from now on. > > Best wishes for a speedy recovery. Well, there were some people who knew and helped me through this but I was really, really afraid and was concerned that there might be an onslaught of panic over this due to how my fibroids turned out in the end after 2.5 years post UAE. I didn't think my fears over this surgery could deal with something like that. I hope that all understand my lack of posting previously on this. I don't hold my UAE accountable at all -- if anything it gave me the health to actually endure a surgery and recover quickly. When writing out his usual set of prescriptions for discharge, I had cross off iron supplements. Completely unnecessary. With a hemoglobin of 12.1/ hematocrit of 35.5, he agreed. As for my migraines -- hadn't really had too many of them since UAE. They had all but disappeared. So had the back pain until the fibroid uterus did its fosbury-flop into the vagina! Attending SCVIR was quite an effort for me this year and I ended up leaving early because I couldn't sit in the chairs or tolerate the back pain I was experiencing. Also, I have a 4 " horizontal incision in the dermal layer of the pubic area. Longer incision internally a little higher up and I can feel the internal stitches from that incision as it heals as well. 4 " incision. He removed a ~8 cm subserosal fibroid and 3 other smaller intramural ones. Tell me again why a long vertical incision is necessary? I kind of would like to talk to docs saying this so I can figure out for myself what their reasoning is.... from what I have been able to ascertain from talking to doctors about this thus far, a vertical incision is purely a physician preference for access to visualizing his/her work in the abdomen. It has little to nothing to do with the size of your fibroid uterus, your recovery from the incision, or what might be best for your particular situation. Some docs will do a vertical incision on even a relatively small fibroid uterus. If doctors would stop " fudging the truth " to patients (and themselves!) about this, we wouldn't all have so many confusing stories to share on this issue. We'd just know and accept this is a personal preference of the surgeon and if we didn't mind his/her preference or need to have greater visualization or viewing of the entire abdomen, we'd allow the vertical vs. horizonatal incision readily. But the truth is, we DO mind. Most women want to avoid that vertical incision like the plague. Doctors know this so they tell us something that seems a little more palatable -- they simply MUST do it vertically because of its size. Horse pucky. A little honesty from physicians is in order on this issue, that's for sure. carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 cailleach wrote: > Carla, I had no idea you have been suffering so many pain problems. > You have been very stoic not to moan publically earlier. Especially > when you manage a discussion group which so many women sometimes use > to let off steam about our various physical and emotional aches and > pains. I do hope the myo puts an end to some of the pains, such as the > back pain. It's even possible that you'll be less troubled with > migraines from now on. > > Best wishes for a speedy recovery. Well, there were some people who knew and helped me through this but I was really, really afraid and was concerned that there might be an onslaught of panic over this due to how my fibroids turned out in the end after 2.5 years post UAE. I didn't think my fears over this surgery could deal with something like that. I hope that all understand my lack of posting previously on this. I don't hold my UAE accountable at all -- if anything it gave me the health to actually endure a surgery and recover quickly. When writing out his usual set of prescriptions for discharge, I had cross off iron supplements. Completely unnecessary. With a hemoglobin of 12.1/ hematocrit of 35.5, he agreed. As for my migraines -- hadn't really had too many of them since UAE. They had all but disappeared. So had the back pain until the fibroid uterus did its fosbury-flop into the vagina! Attending SCVIR was quite an effort for me this year and I ended up leaving early because I couldn't sit in the chairs or tolerate the back pain I was experiencing. Also, I have a 4 " horizontal incision in the dermal layer of the pubic area. Longer incision internally a little higher up and I can feel the internal stitches from that incision as it heals as well. 4 " incision. He removed a ~8 cm subserosal fibroid and 3 other smaller intramural ones. Tell me again why a long vertical incision is necessary? I kind of would like to talk to docs saying this so I can figure out for myself what their reasoning is.... from what I have been able to ascertain from talking to doctors about this thus far, a vertical incision is purely a physician preference for access to visualizing his/her work in the abdomen. It has little to nothing to do with the size of your fibroid uterus, your recovery from the incision, or what might be best for your particular situation. Some docs will do a vertical incision on even a relatively small fibroid uterus. If doctors would stop " fudging the truth " to patients (and themselves!) about this, we wouldn't all have so many confusing stories to share on this issue. We'd just know and accept this is a personal preference of the surgeon and if we didn't mind his/her preference or need to have greater visualization or viewing of the entire abdomen, we'd allow the vertical vs. horizonatal incision readily. But the truth is, we DO mind. Most women want to avoid that vertical incision like the plague. Doctors know this so they tell us something that seems a little more palatable -- they simply MUST do it vertically because of its size. Horse pucky. A little honesty from physicians is in order on this issue, that's for sure. carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 cailleach wrote: > Carla, I had no idea you have been suffering so many pain problems. > You have been very stoic not to moan publically earlier. Especially > when you manage a discussion group which so many women sometimes use > to let off steam about our various physical and emotional aches and > pains. I do hope the myo puts an end to some of the pains, such as the > back pain. It's even possible that you'll be less troubled with > migraines from now on. > > Best wishes for a speedy recovery. Well, there were some people who knew and helped me through this but I was really, really afraid and was concerned that there might be an onslaught of panic over this due to how my fibroids turned out in the end after 2.5 years post UAE. I didn't think my fears over this surgery could deal with something like that. I hope that all understand my lack of posting previously on this. I don't hold my UAE accountable at all -- if anything it gave me the health to actually endure a surgery and recover quickly. When writing out his usual set of prescriptions for discharge, I had cross off iron supplements. Completely unnecessary. With a hemoglobin of 12.1/ hematocrit of 35.5, he agreed. As for my migraines -- hadn't really had too many of them since UAE. They had all but disappeared. So had the back pain until the fibroid uterus did its fosbury-flop into the vagina! Attending SCVIR was quite an effort for me this year and I ended up leaving early because I couldn't sit in the chairs or tolerate the back pain I was experiencing. Also, I have a 4 " horizontal incision in the dermal layer of the pubic area. Longer incision internally a little higher up and I can feel the internal stitches from that incision as it heals as well. 4 " incision. He removed a ~8 cm subserosal fibroid and 3 other smaller intramural ones. Tell me again why a long vertical incision is necessary? I kind of would like to talk to docs saying this so I can figure out for myself what their reasoning is.... from what I have been able to ascertain from talking to doctors about this thus far, a vertical incision is purely a physician preference for access to visualizing his/her work in the abdomen. It has little to nothing to do with the size of your fibroid uterus, your recovery from the incision, or what might be best for your particular situation. Some docs will do a vertical incision on even a relatively small fibroid uterus. If doctors would stop " fudging the truth " to patients (and themselves!) about this, we wouldn't all have so many confusing stories to share on this issue. We'd just know and accept this is a personal preference of the surgeon and if we didn't mind his/her preference or need to have greater visualization or viewing of the entire abdomen, we'd allow the vertical vs. horizonatal incision readily. But the truth is, we DO mind. Most women want to avoid that vertical incision like the plague. Doctors know this so they tell us something that seems a little more palatable -- they simply MUST do it vertically because of its size. Horse pucky. A little honesty from physicians is in order on this issue, that's for sure. carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 Carla, I had no idea you have been suffering so many pain problems. You have been very stoic not to moan publically earlier. Especially when you manage a discussion group which so many women sometimes use to let off steam about our various physical and emotional aches and pains. I do hope the myo puts an end to some of the pains, such as the back pain. It's even possible that you'll be less troubled with migraines from now on. Best wishes for a speedy recovery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 Carla, I had no idea you have been suffering so many pain problems. You have been very stoic not to moan publically earlier. Especially when you manage a discussion group which so many women sometimes use to let off steam about our various physical and emotional aches and pains. I do hope the myo puts an end to some of the pains, such as the back pain. It's even possible that you'll be less troubled with migraines from now on. Best wishes for a speedy recovery. Quote Link to comment Share on other sites More sharing options...
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