Re: Protopic users - survey

[Guest guest]

Shantala, I have been using Protopic since March 2001

with no problems at all. I use it mainly for my

Lichen Sclerosis. I have not had any side effects

with using it. It has only given me great relief from

my LS symptoms.

Not sure why your allergist said he'd wait until

something less dangerous came out. It is my

understanding that Protopic is not dangerous to use.

They even use it on babies. Also you mentioned higher

risk of luekemia? I wonder where he is getting his

information from??

33

Minnesota

__________________________________________________

[Guest guest]

Shantala, I have been using Protopic since March 2001

with no problems at all. I use it mainly for my

Lichen Sclerosis. I have not had any side effects

with using it. It has only given me great relief from

my LS symptoms.

Not sure why your allergist said he'd wait until

something less dangerous came out. It is my

understanding that Protopic is not dangerous to use.

They even use it on babies. Also you mentioned higher

risk of luekemia? I wonder where he is getting his

information from??

33

Minnesota

__________________________________________________

[Guest guest]

not using it at the moment. Very interested what your allergist has said

about it.

Anja

Protopic users - survey

> Hey guys!

>

> I just wanted to get an update from those of you who'd used protopic,

> and if it's still helping, never did, etc.. I know 'many' women are

> using it, I'm just wondering how many that is. Please write back

> either way. I'm leaving for a week, but I figure that might be

> enough time for everyone to write and then I can compile and publish

> the results.

>

> Dee- Very likely you have what I'm asking for already! Let me

> know!

>

> Shantala

>

> Notes: I obtained a bottle from my father who asked for it since he

> has eczema. But then I talked to my allergist. He said that if he

> were my family, he wouldn't let me use it. He'd have me wait until

> something more applicable and less dangerous came on the market (in a

> few years!!). His reason was that the normal usage is on external

> skin. When put on the mucous membrane, much much higher

> concentrations of it are absorbed into the body than it's intended

> for, making chances of developing it's side effects, especially

> lukemia, much higher. He was very scared that I would do it. He DID

> say, 'Not for a chronic disease'. I take it that means you can't

> have it absorbed in such high quantities for a prolonged time without

> significantly increasing your chances of sever complications. I wil

> most likely try protopic on a temporary basis, just to see what it

> can do for me, and to better pinpoint what I have. I just wanted to

> pass along what my doc said and see if any of your doctors said the

> same thing. He also mentioned that besides the side effects, there

> can be serious repercussions for suppressing the immune system. This

> is much more significant for us since as I mentioned we're absorbing

> it in much higher doses. Again, I think this is only important if we

> choose to use it long-term.

>

>

>

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