I am home

[Guest guest]

Hi all. Got home Friday night after a few problems at the airport. Can't trust

me anywhere. Had a good mothers day with my oldest daughter, new son-in-law and

grandchildren.

Sounds like a lot of people are down. Can I join the group? I have an

appointment with a nsg in June. The first since decompression in 98. I am still

having a lot of trouble breathing. O.k. if I stay seated, but boy when I get up

and walk down the hall I have to sit down with my head almost between my knees

as that is the only way I can breath.

The last time in the er the doctor asked if I smoked and I said yes and he

walked out of the room. My lungs are clear and it feels to me like something is

in my throat just below my neck. I can't believe that is asthma or emphasima.

But what do I know?

To all of you hang in there. I need somebody to talk to. My oldest girl is

pretty good. She is there when I need her but she is in Calif.and I am in Wa. I

think that her seeing me for the first time in a year and saw my changes it has

really scared her. For those new ones I have two forms of terminal cancer,

lupus and Chiari. I am a privilaged person.

I am on Ultrim and and having no problems with it . I don't like taking

all these meds as I have never had to take them before. I am 56 going on to give

my kids h. Right now the meds at least keep me going. Please I am not a strong

person. Just a Stubborn and determined so and so. I am not ready to go just

yet. Hang in there guys as I need as many of you as posibal to help keep track

of me.

Good night to all and may God keep you in his hands. Lou.