Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 There used to be monthly meetings of a local chapter of a Celiac Sprue Assoc.(GFCF diet originated for control/(no cure) of Celiac Sprue)in that hospital, in Broward,right off I-95(right before Pompano Beach?)(you saw it from I-95--on the right hand side)You can also get info from the National Chapter(My book may be outdated but they provided me lists of even additives and medications that are forbidden--not that I have gone so far.) There is also many websites for Celiacs. There is one that sends a weekly e-mail, on Fridays, I will forward it, later today, when I receive it. There is also an amazing club/organization run by a husband and wife with Celiac that send newsletters re updates/inroads on staying gluten free(eating out/travelling). Here is their info so you can join: BOB & RUTH’S 205 Donerail Court Havre de Grace, MD 21078 (410)939-3218(Phone) (410)939-3219(Fax) bobolevy@... If I am provided a fax, I can also supply info from the American Dietary Assoc. To: sList From: thecohanes@...Date: Thu, 10 Jan 2008 22:48:13 -0500Subject: GFCF Diet Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Get the power of Windows + Web with the new Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 There used to be monthly meetings of a local chapter of a Celiac Sprue Assoc.(GFCF diet originated for control/(no cure) of Celiac Sprue)in that hospital, in Broward,right off I-95(right before Pompano Beach?)(you saw it from I-95--on the right hand side)You can also get info from the National Chapter(My book may be outdated but they provided me lists of even additives and medications that are forbidden--not that I have gone so far.) There is also many websites for Celiacs. There is one that sends a weekly e-mail, on Fridays, I will forward it, later today, when I receive it. There is also an amazing club/organization run by a husband and wife with Celiac that send newsletters re updates/inroads on staying gluten free(eating out/travelling). Here is their info so you can join: BOB & RUTH’S 205 Donerail Court Havre de Grace, MD 21078 (410)939-3218(Phone) (410)939-3219(Fax) bobolevy@... If I am provided a fax, I can also supply info from the American Dietary Assoc. To: sList From: thecohanes@...Date: Thu, 10 Jan 2008 22:48:13 -0500Subject: GFCF Diet Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Get the power of Windows + Web with the new Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 There used to be monthly meetings of a local chapter of a Celiac Sprue Assoc.(GFCF diet originated for control/(no cure) of Celiac Sprue)in that hospital, in Broward,right off I-95(right before Pompano Beach?)(you saw it from I-95--on the right hand side)You can also get info from the National Chapter(My book may be outdated but they provided me lists of even additives and medications that are forbidden--not that I have gone so far.) There is also many websites for Celiacs. There is one that sends a weekly e-mail, on Fridays, I will forward it, later today, when I receive it. There is also an amazing club/organization run by a husband and wife with Celiac that send newsletters re updates/inroads on staying gluten free(eating out/travelling). Here is their info so you can join: BOB & RUTH’S 205 Donerail Court Havre de Grace, MD 21078 (410)939-3218(Phone) (410)939-3219(Fax) bobolevy@... If I am provided a fax, I can also supply info from the American Dietary Assoc. To: sList From: thecohanes@...Date: Thu, 10 Jan 2008 22:48:13 -0500Subject: GFCF Diet Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Get the power of Windows + Web with the new Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hello , There used to be a Biomedical support group held by Beth Vataker at the Broward ARC, it discontinued when she moved to NJ last year so I am not sure if someone else has picked up... but here is another one. I have not attended myself but here is the contact info. Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at Also the GFCF kids Yahoo group, they have tons of knowledge and is a good support group with loads of GFCF information. Sofia Cohane wrote: Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hello , There used to be a Biomedical support group held by Beth Vataker at the Broward ARC, it discontinued when she moved to NJ last year so I am not sure if someone else has picked up... but here is another one. I have not attended myself but here is the contact info. Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at Also the GFCF kids Yahoo group, they have tons of knowledge and is a good support group with loads of GFCF information. Sofia Cohane wrote: Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 I can tell you that after 2 weeks on the diet my son got very aggressive. He even hit us. We went to see our DAN doctor for the first time while this was happening and he said it was normal for that to happen the first few weeks. We are still finding out what foods my son has problems with and as I take them out I do see a difference and if he gets something that he should not I really see a difference. Dawndiaza1973 wrote: Hi,We just began the GFCF diet for my autistic 2 yr. old daughter a little more than a week ago can anyone share with me your stories & tell me when you began to notice changes if any. I have yet to see a difference and don't want to gt discouraged about the diet.ThanksAileenDawn www.shoppingcartblankie.com Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 -Hi I don't kno wwhere you are located but @ Whole Foods in Coral Springs there is an employee by the name of Arlene who has celiac diet and is also the Demo person there. If you bring a list of ALL the foods your daughter eats she will personally take you throughout the store and show you everything that is GFCF. The other nice thing is let's say you purchase something try it and your daughter doesn't like it you cna return it for a full refund or store credit.. I hope the information is helpful. As I know just how you feel . I just began the diet for our daughter a little over a week ago. I have yet to see any changes so let's see how it goes. Good Luck -- In sList , " Cohane " wrote: > > Hi, > > > > I have been planning on implementing the GFCF diet with my daughter for > about 3 months now and have yet to do anything as I know I need support and > have just not followed up on getting the info (probably procrastinating > because I am worried about undertaking such a big change). In any case, I > understand that there is a support group on this topic that meets monthly at > Flamingo Church (I think). If anyone has more info on the schedule of these > meetings, please share so that I can get started. Thanks so much! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hi Aileen, All children are different, but I have heard that with the little ones, if they are going to respond to the dietary measures (and not all kids do, unfortunately) it is usually pretty quick. I think that for very little kids, the thinking is to give it at least a 3 month try then reaccess. One week is too early to tell, for most people. Are you doing GFCF all at once, or in stages? We atarted our son first CF when he was about 2 and did see results pretty fast, in the first 2 weeks or so. It wasn't like he suddenly started talking or anything, but he did seem happier, more social and interactive. For us, we started the CF due to his terrible sinus and congestion troubles. We started really more for his health than his ASD symptoms. He was sick with colds all the time and had terrible tummy troubles too. It is his physical health that going CF really helped with, and I think since he felt better physically, he could attend better to therapy, IMHO. So once we went CF for a few months, then we added GF. The reaction we saw to that at first was a bit of mild aggression. It didn't last long, a week or so, then went away. The positive results with GF took longer to see and were also gradual. I would say give it time. Are you keeping any data charts? That can give you something concrete to look at to see what foods affect your child, if any. Just something simple, like list a few behaviors across the top and what your child is eating down the side, then check off the behviors that happen each day and see it there is a difference. I have some tips and links on my blog, if you want or feel free to email me with certain questions. The GFCF diet is not for everyone, but for those whom it helps, it really can be a big help. But try not to be discouraged. Even if you give it a shot and it doesn't work out, at least you know you did the best you could and now you have an answer. But I think you should give it a bit more time. www.gfcfmommy.blogspot.com > > Hi, > We just began the GFCF diet for my autistic 2 yr. old daughter a > little more than a week ago can anyone share with me your stories & > tell me when you began to notice changes if any. I have yet to see a > difference and don't want to gt discouraged about the diet. > > Thanks > Aileen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hi, Thanks for the info. I actually did end up finding a meeting – the one in Flamingo Church and am in the process of transitioning my daughter. We have been at it for almost 2 weeks and are just about GC Free. Just need to figure out how to lose the gum which my daughter uses for oral stim. Not sure if there is a GFCF gum that we can substitute to. We also already use chewies but the gum has been so helpful…I hate to lose it. Any ideas? J Thanks for following up. From: sList [mailto:sList ] On Behalf Of diaza1973 Sent: Saturday, March 08, 2008 8:18 AM To: sList Subject: Re: GFCF Diet -Hi I don't kno wwhere you are located but @ Whole Foods in Coral Springs there is an employee by the name of Arlene who has celiac diet and is also the Demo person there. If you bring a list of ALL the foods your daughter eats she will personally take you throughout the store and show you everything that is GFCF. The other nice thing is let's say you purchase something try it and your daughter doesn't like it you cna return it for a full refund or store credit.. I hope the information is helpful. As I know just how you feel . I just began the diet for our daughter a little over a week ago. I have yet to see any changes so let's see how it goes. Good Luck -- In sList , " Cohane " wrote: > > Hi, > > > > I have been planning on implementing the GFCF diet with my daughter for > about 3 months now and have yet to do anything as I know I need support and > have just not followed up on getting the info (probably procrastinating > because I am worried about undertaking such a big change). In any case, I > understand that there is a support group on this topic that meets monthly at > Flamingo Church (I think). If anyone has more info on the schedule of these > meetings, please share so that I can get started. Thanks so much! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hi, My 3-year-old son has been on the gfcf diet for a few months. It did help with eye contact and interaction after a few weeks. However, the biggest improvement came after I tried the elimination diet described in a book called " Is This Your Child " by D. Rapp. (Her name is Doreen or Doris, and she is an environmental medicine doctor). (I bought it used online for less than $10). By cutting his diet down to just rice, meat and vegetables for a week and then adding in foods that people are often sensitive to or that I suspected he had trouble with one at a time (sugar, corn, soy, peanuts, etc) I found out that avocado, corn, eggs and peanuts were causing a HUGE proportion of his tantrums. His stomach hurt and I had no idea what was causing it. He is like a whole new kid now that I know what foods make him feel sick (he doesn't talk so he couldn't tell me he didn't feel good). Plus, he had had skin and blood allergy/sensitivity tests that showed no problems with any food. Now we go out to eat or grocery shopping without even worrying about meltdowns. I never thought I would see this day. If I test a new food and it bothers him, I know immediately what it was. So, if gfcf doesn't help a ton, I highly recommend trying the elimination diet to make sure you aren't missing anything! Good luck! Jen H --- diaza1973 wrote: > Hi, > We just began the GFCF diet for my autistic 2 yr. > old daughter a > little more than a week ago can anyone share with me > your stories & > tell me when you began to notice changes if any. I > have yet to see a > difference and don't want to gt discouraged about > the diet. > > Thanks > Aileen > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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