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Re: My mom made it

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I was so glad to hear your mom made it without any additional

difficulty. I am sure it will be comforting for you to have your

husband and daughter with you for support. Our prayers are with you

and I hope all goes well tomorrow for your mom. I also pray you

will stay strong and healthy through all this. It doesn't seem like

you have had a break in awhile. Well just remember God's timing is

perfect even though it doesn't seem like it sometimes.

Joanne (Todd's mom)

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I apologize for not remembering who sent me the info. but my brain is very clogged right now. Soooo much to remember and take care of.

Hi ,

I'm so glad your Mum made it smoothly to St Louis. Looks like they are taking good care of her. I'm sure that once they have treated all the problems she will be much better. Now you must take care of yourself. Besides being ill you have had a severely stressful week and you need to rest as much as you can or you'll end up in hospital to.

Love and prayers

Barbara (UK)

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I apologize for not remembering who sent me the info. but my brain is very clogged right now. Soooo much to remember and take care of.

Hi ,

I'm so glad your Mum made it smoothly to St Louis. Looks like they are taking good care of her. I'm sure that once they have treated all the problems she will be much better. Now you must take care of yourself. Besides being ill you have had a severely stressful week and you need to rest as much as you can or you'll end up in hospital to.

Love and prayers

Barbara (UK)

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...

I know this is all very hard on you...I have been there myself as many of us have...all the advice I can give you is to say everything you need to to her....bring back good memories of the past...and always make sure that you say I love you...

When my dad pasted back in 87....I knew that I had done everything I could have...and also knew that he knew how I felt about him and visa versa....

Hopefully they will be able to make your mom as comfortable as possible...

and take care of yourself...this is really important...you won't be much good to anyone if you get so run down that you can't function....

take care...

prayers to both of you

Luanne Ty's mom

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Barbara,

I am taking the day 'off' today. I sent my daughter and one of my foster

daughters down to see her today so she wouldn't get lonely. I am trying to

get her room ready and take care of some legal things, and of course enjoy

some down time. Tomorrow they are doing the banding and colon., they

couldn't fit her into the schedule today. It's not scheduled until 3:00

tomorrow so I don't have to get up with the sun, and that will help.

Thanks for thinking of me and reminding me to care for myself, I often NEED

that reminder.

Hugs,

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Barbara,

I am taking the day 'off' today. I sent my daughter and one of my foster

daughters down to see her today so she wouldn't get lonely. I am trying to

get her room ready and take care of some legal things, and of course enjoy

some down time. Tomorrow they are doing the banding and colon., they

couldn't fit her into the schedule today. It's not scheduled until 3:00

tomorrow so I don't have to get up with the sun, and that will help.

Thanks for thinking of me and reminding me to care for myself, I often NEED

that reminder.

Hugs,

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,

I'm glad that your Mom is finally being treated

properly. I am so sorry that she can't have a

transplant but with all her health conditions it

probably wouldn't be in her best interest. I hope

they can find things to prolong her life and make her

comfortable. I also pray that she'll get to a point

that she can do some fun living and spend precious

time with you and your family. I also pray for you

and your health as well as the rest of your whole

family. Having an emotional breakdown at this point

is not surprising and don't get down on yourself for

this. I find somethings getting the bad stuff out

helps us to get stronger so we can go on.

Peg

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,

I'm glad that your Mom is finally being treated

properly. I am so sorry that she can't have a

transplant but with all her health conditions it

probably wouldn't be in her best interest. I hope

they can find things to prolong her life and make her

comfortable. I also pray that she'll get to a point

that she can do some fun living and spend precious

time with you and your family. I also pray for you

and your health as well as the rest of your whole

family. Having an emotional breakdown at this point

is not surprising and don't get down on yourself for

this. I find somethings getting the bad stuff out

helps us to get stronger so we can go on.

Peg

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Demwitz2@... wrote:

> The docs have explained to her that she is not a candidate for transplant she

> is 67 and the cutoff is 65. Her additional medical problems don't help her

> either.

I've been told that there is no official cut off age (at Strong), but that

general health factors weigh heavily in determining whether an older patient is

transplanted. Being so much older than many of

> . Please pray that she will get some peace

> and relief from all this pain. We need your prayers desperately!

Your mother and your whole family are in my prayers -- please be sure to take

care of yourself!

>

>

> I will try to post again tomorrow with an update after the endoscopy

> procedures. Hopefully we will know more then. By the way...I don't remember

> who sent the post with info about Zofran, but that is what they are giving

> her for the nausea. And as you said, it is the only thing that has worked.

I'm the Zofran kid. When I'm hurking my bunny slippers out of my mouth, it's

the

only thing that helps. It is a wonderful drug although VERY expensive.

Mel, being both the caregiver and the patient is going to be very hard on you.

Please try to get some good rest and some face to face support too.

Penny

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<I want her to remember why she is fighting>

...you hit it on the most important thing after

proper medical treatment...Staying focused on the will

to live....

Decorating the hospital room with those things she

holds dear will certainly keep her focused on that

fight. I know when I had my colon surgery, I

deliberately took a picture of my husband, my kids and

my dog....because I knew at some point I would make it

to the pity party, but I knew that I needed to stay

focused on the reason I chose the sugery...those I

love. It not only helped me stay focused, it helped

me to stay positive, even when things were at their

worst...at least that is what I remember from my

journal...alot of it is fuzzy because of the meds.

Mike is gone until the end of the weekend...up to get

another hunting spot ready, so I am home, just putzing

around...enjoying the quiet of not having to answer to

MIL, nor anyone else. I made a batch of oatmeal

chocolate chip cookies.....and now I am catching up

and sorting out junk that I need to pitch...and since

I hate that job, I pray for those that need it. Your

family will be in my prayers.

Oh the reason for the oatmeal chocolate chip cookies

is because the only thing that kept me sane at MIL, is

the crocheted lap blanket (formerly called Afghan),

and it's color is/was an oatmeal color, reminded me of

oatmeal cookies...and since I needed chocolate, I

added those too.

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

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...

Sounds like you have all the bases covered....good for you...and don't forget about yourself...I think I read that you are taking the day off...good....

sounds like her room is going to be lovely...she is lucky to have you for a daughter...

Luanne Ty's mom

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Thanks for thinking of me and reminding me to care for myself, I often NEED that reminder.

Hi ,

I do too, so I know what it is like, hope you Mum continues to improve and that the procedures go well.

Take care,

Barbara (UK)

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