Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Hi , Not positive here but I think it is because different vitamins work differently depending on the defect. For instance, my daughter was originally put on riboflavin (B-2) and it made her worse. However, thiamin (B-1) has helped her a great deal. Anyway, I know that does not help much but that is the reason my daughter can not go on a B complex because some of the B's make her much worse....not to mention as someone else said. she would need a million pills(well, not that much but it would feel like a million!) to make up for the high dosage of thiamin that she takes. :-) Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Hi , Not positive here but I think it is because different vitamins work differently depending on the defect. For instance, my daughter was originally put on riboflavin (B-2) and it made her worse. However, thiamin (B-1) has helped her a great deal. Anyway, I know that does not help much but that is the reason my daughter can not go on a B complex because some of the B's make her much worse....not to mention as someone else said. she would need a million pills(well, not that much but it would feel like a million!) to make up for the high dosage of thiamin that she takes. :-) Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Hi , Not positive here but I think it is because different vitamins work differently depending on the defect. For instance, my daughter was originally put on riboflavin (B-2) and it made her worse. However, thiamin (B-1) has helped her a great deal. Anyway, I know that does not help much but that is the reason my daughter can not go on a B complex because some of the B's make her much worse....not to mention as someone else said. she would need a million pills(well, not that much but it would feel like a million!) to make up for the high dosage of thiamin that she takes. :-) Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 > > I would think that if you give mega doses of certain B's you will become > deficient in the others. > A regular B complex (just one though) would help any deficiency. Mega doses should only be used when they do something and especially if they can't hurt I would think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 > > I would think that if you give mega doses of certain B's you will become > deficient in the others. > A regular B complex (just one though) would help any deficiency. Mega doses should only be used when they do something and especially if they can't hurt I would think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 99-10-02 22:01:17 EDT, you write: > > I contacted a nutritional biochemist and had Karlys blood sent for an > analyst > and also her fatty acid screen. Then she told me which supplements her body > was deficient in. > > , How did you go about contacting a nutritional biochemist ? They aren't exactly listed in the Yellow Pages <wee smirk>at least not here in Tenn. Please when you get a chance would ya mind sending the " secret " s on making that connection?!! THANKS EVER SO MUCH 10-02-99 21:01Take care and best wishes from an Elf in TN...Romona mom to Tori (age 11, nda ~ 5th grade inclusion), Zach (age 9, multichallenged : acquired nystagmus, strubismus (surgically corrected), excema, chronic sinusitus, Upper Resp disease, ataxia, hypotonia, progressive hypertonia, dev. delays (globally), seizures (treated with Tegretol and " outgrown " by age 6), mild stuttering, oral motor/swallow issues, clonus presenting in right leg only, megaColon~delayed emptying GI issues, ~3rd grade homebound till Oct. then will go back to school in the ERC program), Cory (age 7, multichallenged ditto on Zach's with the exception of GI issues and has not had the estopia-like condition surgically corrected~ 1st grade ERC but currently awaiting M-team to discuss 1:1 aide for full inclusion in reg. edu. classroom) and wife to Tony (my hero) <A HREF= " http://members.aol.com/elf808/ " >Elf 808's Home Page</A> http://members.aol.com/elf808 http://pages.hotbot.com/family/elf808/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 99-10-02 22:01:17 EDT, you write: > > I contacted a nutritional biochemist and had Karlys blood sent for an > analyst > and also her fatty acid screen. Then she told me which supplements her body > was deficient in. > > , How did you go about contacting a nutritional biochemist ? They aren't exactly listed in the Yellow Pages <wee smirk>at least not here in Tenn. Please when you get a chance would ya mind sending the " secret " s on making that connection?!! THANKS EVER SO MUCH 10-02-99 21:01Take care and best wishes from an Elf in TN...Romona mom to Tori (age 11, nda ~ 5th grade inclusion), Zach (age 9, multichallenged : acquired nystagmus, strubismus (surgically corrected), excema, chronic sinusitus, Upper Resp disease, ataxia, hypotonia, progressive hypertonia, dev. delays (globally), seizures (treated with Tegretol and " outgrown " by age 6), mild stuttering, oral motor/swallow issues, clonus presenting in right leg only, megaColon~delayed emptying GI issues, ~3rd grade homebound till Oct. then will go back to school in the ERC program), Cory (age 7, multichallenged ditto on Zach's with the exception of GI issues and has not had the estopia-like condition surgically corrected~ 1st grade ERC but currently awaiting M-team to discuss 1:1 aide for full inclusion in reg. edu. classroom) and wife to Tony (my hero) <A HREF= " http://members.aol.com/elf808/ " >Elf 808's Home Page</A> http://members.aol.com/elf808 http://pages.hotbot.com/family/elf808/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/2/99 7:07:42 PM Pacific Daylight Time, Elf808@... writes: << , How did you go about contacting a nutritional biochemist ? They aren't exactly listed in the Yellow Pages <wee smirk>at least not here in Tenn. Please when you get a chance would ya mind sending the " secret " s on making that connection?!! THANKS EVER SO MUCH 10-02-99 21:01Take care and best wishes from an Elf in TN...Romona >> I heard about Dr. Kane from some others that were using her testing. So far I am pleased. Here is a number you can call and ask for a free information packet about the testing. . Her company is called BodyBio. She will work with your family physician or any doctor you choose. You will get copies of the blood work sent to you and your doctor. If you have more questions just ask. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/2/99 7:07:42 PM Pacific Daylight Time, Elf808@... writes: << , How did you go about contacting a nutritional biochemist ? They aren't exactly listed in the Yellow Pages <wee smirk>at least not here in Tenn. Please when you get a chance would ya mind sending the " secret " s on making that connection?!! THANKS EVER SO MUCH 10-02-99 21:01Take care and best wishes from an Elf in TN...Romona >> I heard about Dr. Kane from some others that were using her testing. So far I am pleased. Here is a number you can call and ask for a free information packet about the testing. . Her company is called BodyBio. She will work with your family physician or any doctor you choose. You will get copies of the blood work sent to you and your doctor. If you have more questions just ask. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/2/99 7:07:42 PM Pacific Daylight Time, Elf808@... writes: << , How did you go about contacting a nutritional biochemist ? They aren't exactly listed in the Yellow Pages <wee smirk>at least not here in Tenn. Please when you get a chance would ya mind sending the " secret " s on making that connection?!! THANKS EVER SO MUCH 10-02-99 21:01Take care and best wishes from an Elf in TN...Romona >> I heard about Dr. Kane from some others that were using her testing. So far I am pleased. Here is a number you can call and ask for a free information packet about the testing. . Her company is called BodyBio. She will work with your family physician or any doctor you choose. You will get copies of the blood work sent to you and your doctor. If you have more questions just ask. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 99-10-02 22:13:56 EDT, you write: > I heard about Dr. Kane from some others that were using her testing. > > So far I am pleased. Here is a number you can call and ask for a free > information packet about the testing. . Her company is called > BodyBio. She will work with your family physician or any doctor you choose. > You will get copies of the blood work sent to you and your doctor. > > If you have more questions just ask. > > ((()))), Thank you !!!! :::picture a 30+ year old woman doing backwards flips in glee::: Goodness it's not too often I wish away the weekends but oh boy I can barely wait for Monday to make the phone call(s). Thank you so very much )) Romona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 99-10-02 22:13:56 EDT, you write: > I heard about Dr. Kane from some others that were using her testing. > > So far I am pleased. Here is a number you can call and ask for a free > information packet about the testing. . Her company is called > BodyBio. She will work with your family physician or any doctor you choose. > You will get copies of the blood work sent to you and your doctor. > > If you have more questions just ask. > > ((()))), Thank you !!!! :::picture a 30+ year old woman doing backwards flips in glee::: Goodness it's not too often I wish away the weekends but oh boy I can barely wait for Monday to make the phone call(s). Thank you so very much )) Romona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 If that is the case, how does one determine which B vitamins to take? Is there a blood test? wrote: > > > Heidi and , > Precisely. Also the mode of administration makes a difference like I get no > help from from B12 orally but the shots help with spontaneous bruising, > depression, and canker sores/tongue ulcers. B1 by mouth is OK but the shots > are like 10 times as effective and in fact a large enough dose one day > " broke things open for me mentally " as have other nutrient IVs, but again no > one can get nutrient IVs everyday or 2 either. People who first get into > nutrient therapy think if they find the symptoms of a nutrient deficiency > they should just take more of that one, not understanding the metabolic > blocks. > S. > > > Re: Why only " some " B vitamins? > > > > > >> > >> > >>Hi , > >> Not positive here but I think it is because different vitamins work > >differently depending on the defect. > >>For instance, my daughter was originally put on riboflavin (B-2) and it > >made her worse. However, thiamin > >>(B-1) has helped her a great deal. Anyway, I know that does not help much > >but that is the reason my daughter > >>can not go on a B complex because some of the B's make her much > >worse....not to mention as someone else said. > >>she would need a million pills(well, not that much but it would feel like > a > >million!) to make up for the high > >>dosage of thiamin that she takes. :-) > >>Heidi > >> > >>>>Brought to you by www.imdn.org - an on-line support group for those > >affected by mitochondrial disease. > >> > > > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 If that is the case, how does one determine which B vitamins to take? Is there a blood test? wrote: > > > Heidi and , > Precisely. Also the mode of administration makes a difference like I get no > help from from B12 orally but the shots help with spontaneous bruising, > depression, and canker sores/tongue ulcers. B1 by mouth is OK but the shots > are like 10 times as effective and in fact a large enough dose one day > " broke things open for me mentally " as have other nutrient IVs, but again no > one can get nutrient IVs everyday or 2 either. People who first get into > nutrient therapy think if they find the symptoms of a nutrient deficiency > they should just take more of that one, not understanding the metabolic > blocks. > S. > > > Re: Why only " some " B vitamins? > > > > > >> > >> > >>Hi , > >> Not positive here but I think it is because different vitamins work > >differently depending on the defect. > >>For instance, my daughter was originally put on riboflavin (B-2) and it > >made her worse. However, thiamin > >>(B-1) has helped her a great deal. Anyway, I know that does not help much > >but that is the reason my daughter > >>can not go on a B complex because some of the B's make her much > >worse....not to mention as someone else said. > >>she would need a million pills(well, not that much but it would feel like > a > >million!) to make up for the high > >>dosage of thiamin that she takes. :-) > >>Heidi > >> > >>>>Brought to you by www.imdn.org - an on-line support group for those > >affected by mitochondrial disease. > >> > > > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 If that is the case, how does one determine which B vitamins to take? Is there a blood test? wrote: > > > Heidi and , > Precisely. Also the mode of administration makes a difference like I get no > help from from B12 orally but the shots help with spontaneous bruising, > depression, and canker sores/tongue ulcers. B1 by mouth is OK but the shots > are like 10 times as effective and in fact a large enough dose one day > " broke things open for me mentally " as have other nutrient IVs, but again no > one can get nutrient IVs everyday or 2 either. People who first get into > nutrient therapy think if they find the symptoms of a nutrient deficiency > they should just take more of that one, not understanding the metabolic > blocks. > S. > > > Re: Why only " some " B vitamins? > > > > > >> > >> > >>Hi , > >> Not positive here but I think it is because different vitamins work > >differently depending on the defect. > >>For instance, my daughter was originally put on riboflavin (B-2) and it > >made her worse. However, thiamin > >>(B-1) has helped her a great deal. Anyway, I know that does not help much > >but that is the reason my daughter > >>can not go on a B complex because some of the B's make her much > >worse....not to mention as someone else said. > >>she would need a million pills(well, not that much but it would feel like > a > >million!) to make up for the high > >>dosage of thiamin that she takes. :-) > >>Heidi > >> > >>>>Brought to you by www.imdn.org - an on-line support group for those > >affected by mitochondrial disease. > >> > > > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
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