Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Hi everyone! Sionnan sees Lazareff today - 1st checkup since reconstruction surgery. Sionnan's MRI Flow study is July 3rd at UCLA...hopefully soon after she will be allowed to fly back to CT. They'll be at the Tiverton House for at least another week. She's been in a wheelchair for so long, that now that she can walk again....she'll need PT to build up her leg & neck muscles. Everyday she is stronger, you can even hear the difference in her voice! Good sign - she's got " cabin fever " & has been able to draw again (1st time in yrs!)and her mom has taken her to the nearby gardens to sketch! Kari is doing better too...she has had more of her " FMS trigger spots " leave..... over half are gone now--Yippee! ???...Yesterday she had some popping of something (dissolving-inner- stitches??)in her neck - rt along the incision line, then while sitting, she looked up & back down then one eye saw " stars " little " flashes of lite " ....but she had not bent over or moved anything except her neck??? Does any of this sound familiar to anyone? Thanks Dori mom of Kari 23 y/o Chiari 1 Oct 99 2nd surgery 5-19-00 for lipoma (fatty cyst removal) and laminectomy of c3 & 4 and part of 5 Quote Link to comment Share on other sites More sharing options...
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