Guest guest Posted September 8, 1999 Report Share Posted September 8, 1999 & Ann and & Reagan & Kennedy, too.... Your account of Kennedy's childhood to date is so well written and so descriptive of the problems that so many families have had in facing the reality of a mitochondrial disorder. I am so sad that you, and others, have had to go through such an ordeal. I wonder if you have thought of submitting your story to QUEST magazine, a publication of the Muscular Dystrophy Association (MDA) which recognizes mitochondrial disorders as one of " their " sponsored diseases. I am including two hyperlinks for MDA pages below. One is for mito references and the other is for the most recent article on mitochondrial disorders. http://www.mdausa.org/publications/Quest/q64mito.html http://www.mdausa.org/disease/mito.html?NS-search-set=/3742b/aaaa0050342b7e5 & NS-\ doc-offset=9 & Please feel free to ask questions or offer information to the group! We welcome you.... With best wishes for all of you... Merril Quote Link to comment Share on other sites More sharing options...
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