Canadian Doctors

[Guest guest]

Hi Pam

Yes, we have a problem in Canada, all our Doctors run down to the states

where they can make big bucks and not have any restrictions on fees or

hours. They can only operate 2 days a week - my Dr got $650 (94) for an 11

hr AN removal....in the states they'd get like $4- 8 thousand. (Wm. House

charged $2000 in 1965, I can't imagine what it is now) There isn't one NF2

specialist in BC that I know of, some very good surgeons,ie Dr.F. Durity in

Van, I have had people talking about Von Recklinhaus, an ancient term for

NF1. I am in a quandary as to what to expect as I become paralyzed but

there isn't anyone who can tell me..We don't have the population to have

very high numbers of cases This is all I have-The Crew It's much more

valuable then 20 GPs When I ask my doctor about something he has this

pat answer, " It's just the end-stage of NF " ,......... just like it took 20

years to find that the source of my pain was spinal tumors, a

specialist would automatically suspect tumors .....I didn't know that we

even got them tell about 10 years ago. For 20 years I was " crazy " and

" a drug addict " to the medical community just because there isn't enough NF

cases to be much money in specializing in NF.

Ron

----Original Message-----

To: NF2_Crewegroups <NF2_Crewegroups>

Date: Monday, June 05, 2000 12:42 PM

Subject: Re: Shirts

>Hello,my name is Pam,why can't we canadians get proper help needed for NF 2

>people.My son has NF2,was hoping for Gamma Surgery,but we were told he has

>to many tumor's.Can'teven get a good response from doc's in Canada.Make's

me

>so angry.They sit on their hands and expect my son to wait. Well i'm not

>gonna wait any more.Hopefully he will be seeing Dr MacCollin in Boston