Re: Disturbing conversation with doctor

[Guest guest]

,

Being " clinically " diagnosed with Leigh's as I understand it

means that a person has a certain set of symptoms that are

usually associated with the disease. It is possible to have

Leigh's and have a normal MRI. But Leigh's is a broad term

that does not speak to the specific type of defect. There

is an excellent review of an article by S. Rahman, et al. on

Leigh's--I believe it is available on the UMDF web site. Of

the children participating in the study, 12% had a normal

CT/MRI.

IF (and it is a big if) does have Leigh's, it is not a

death sentence. Kids are living much, much longer and

healthier lives than they used to.

Just a little added info...

, Mom to Adelaine and Baby ?

--

The s

, , Adelaine and Baby?

Ann Arbor, MI

http://www.mich/com/~jaj