Guest guest Posted October 24, 1999 Report Share Posted October 24, 1999 , Being " clinically " diagnosed with Leigh's as I understand it means that a person has a certain set of symptoms that are usually associated with the disease. It is possible to have Leigh's and have a normal MRI. But Leigh's is a broad term that does not speak to the specific type of defect. There is an excellent review of an article by S. Rahman, et al. on Leigh's--I believe it is available on the UMDF web site. Of the children participating in the study, 12% had a normal CT/MRI. IF (and it is a big if) does have Leigh's, it is not a death sentence. Kids are living much, much longer and healthier lives than they used to. Just a little added info... , Mom to Adelaine and Baby ? -- The s , , Adelaine and Baby? Ann Arbor, MI http://www.mich/com/~jaj Quote Link to comment Share on other sites More sharing options...
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