New To Group

[Guest guest]

I have been in contact with over 300 PLS-people and the information I

have received from them is that PLS is 10-12% familial, inherited from a

blood relative. The large remainder 88-90% is sporadic; it occurs in

the population at random. If you would like more information, please

reply to this note.

Levy

[Guest guest]

I have been in contact with over 300 PLS-people and the information I

have received from them is that PLS is 10-12% familial, inherited from a

blood relative. The large remainder 88-90% is sporadic; it occurs in

the population at random. If you would like more information, please

reply to this note.

Levy

[Guest guest]

Levy wrote:

>>>I have been in contact with over 300 PLS-people and

the information I

have received from them is that PLS is 10-12% familial,

inherited from a

blood relative. <<<<

, thank you so much, I was beginning to think that

I had misunderstood Dr. Strong, when we spoke with him

prior to dad's death. By the way, it wasn't the PLS he

died from but a large cancerous tumour in the core of

the brain!He did have PLS for 20 some odd years.

So how does this work, the 10-12% familial? Is there a

chance that I could get this through my father? And if

so, will I pass it on to my children?

What ever information you can share with me, will be

greatly appreciated!

We would never have believed that my uncle would ever

have the same thing, ut he did, and his twin brother is

worried to death about it as well as his kids.

With the aching of my feet and stiffness of the lower

legs and the stiffness and aching in my fingers and

hands, concerns me, since these were dad's telltale

signs.

I know that I feel these things as well with

fibromyalgia, but the pains right now are so much more

different. I want to see my doctor about this, but I

also want to go in prepared!

Thanks again for sharing your information!

Take care!

Joyce McAllister

Hugs, Joyce <:}}}><

Galatians 6:9 - " Let us not become weary in doing good, for at the proper time

we will reap a

harvest if we do not give up. " (NIV)

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

Levy wrote:

>>>I have been in contact with over 300 PLS-people and

the information I

have received from them is that PLS is 10-12% familial,

inherited from a

blood relative. <<<<

, thank you so much, I was beginning to think that

I had misunderstood Dr. Strong, when we spoke with him

prior to dad's death. By the way, it wasn't the PLS he

died from but a large cancerous tumour in the core of

the brain!He did have PLS for 20 some odd years.

So how does this work, the 10-12% familial? Is there a

chance that I could get this through my father? And if

so, will I pass it on to my children?

What ever information you can share with me, will be

greatly appreciated!

We would never have believed that my uncle would ever

have the same thing, ut he did, and his twin brother is

worried to death about it as well as his kids.

With the aching of my feet and stiffness of the lower

legs and the stiffness and aching in my fingers and

hands, concerns me, since these were dad's telltale

signs.

I know that I feel these things as well with

fibromyalgia, but the pains right now are so much more

different. I want to see my doctor about this, but I

also want to go in prepared!

Thanks again for sharing your information!

Take care!

Joyce McAllister

Hugs, Joyce <:}}}><

Galatians 6:9 - " Let us not become weary in doing good, for at the proper time

we will reap a

harvest if we do not give up. " (NIV)

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

Levy wrote:

>>>I have been in contact with over 300 PLS-people and

the information I

have received from them is that PLS is 10-12% familial,

inherited from a

blood relative. <<<<

, thank you so much, I was beginning to think that

I had misunderstood Dr. Strong, when we spoke with him

prior to dad's death. By the way, it wasn't the PLS he

died from but a large cancerous tumour in the core of

the brain!He did have PLS for 20 some odd years.

So how does this work, the 10-12% familial? Is there a

chance that I could get this through my father? And if

so, will I pass it on to my children?

What ever information you can share with me, will be

greatly appreciated!

We would never have believed that my uncle would ever

have the same thing, ut he did, and his twin brother is

worried to death about it as well as his kids.

With the aching of my feet and stiffness of the lower

legs and the stiffness and aching in my fingers and

hands, concerns me, since these were dad's telltale

signs.

I know that I feel these things as well with

fibromyalgia, but the pains right now are so much more

different. I want to see my doctor about this, but I

also want to go in prepared!

Thanks again for sharing your information!

Take care!

Joyce McAllister

Hugs, Joyce <:}}}><

Galatians 6:9 - " Let us not become weary in doing good, for at the proper time

we will reap a

harvest if we do not give up. " (NIV)

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

Joyce,

Welcome to this rather odd, but supportive group. Unfortunately, we have

all come together for a purpose - PLS. It is a rather unpredictable

disease and can be associated with many other autoimmune diseases, such

as fibromyalgia. Since your dad and uncle are twins, it is definitely

NOT unusual for them to develop the same symptoms. There is also the

possibility that HSP is the culprit here (Hereditary Spastic

Paraplegia). Both have frequent falls and some balance problems. Mine

are associated with spasticity of the muscles, which is controlled to a

great extent by medication. When I fall, my legs get stiff and I just go

wherever, but always down. It's the direction that's unpredictable. I

don't know where you got the 5% number for familial PLS. It's new to me.

The only things my brothers and sisters have in common with me is the

same mother and father. However, one brother has had a kidney transplant

(from my oldest sister) and a heart attack. My youngest brother has had

precancerous polyps removed from his colon, something that runs in our

family. My oldest brother had tuberculosis about 30 years ago and died

of lung cancer two years ago. My dad died last year of a brain aneurysm

bursting and leading to a series of strokes, which eventually killed

him. His older brother and sister both died of cancer within the past

year. My two sisters are supposedly healthy, but they only talk to Mom.

Mom gave all of us high cholesterol and a tendency to develop diabetes

from her side of the family. So far, I am the only one to develop a

neuromuscular disease and hope to be the only one. It's strange, looking

back and seeing how, when we were young (I'm the oldest.), we thought

the world would go forever and so would we.

This group will answer any questions you have. Most of us have been

happy when we found it! It is a blessing for us to share our

experiences, our humor, our sadness and ourselves. We each have a story

and can tell it to you, but so many of us have heard each others enough

that we would just hit the delete key and might miss something new. If

you want, email me at the address attached to this posting and I will

tell you my story. The others will just laugh if they read it again. Oh,

and I can empathize with your dad. I have had plastic surgery on my face

three times and multiple contussions, hematomas, etc. Even a concussion

and whiplash. All of these from falls.

Best to you and your family,

Mike Gray Logansport IN

Joyce McAllister wrote:

> Hello everyone, I have joined to find out as much info as I can in

> PLS!

> I don't have it, or at least don't think I do!

> My father though did have it and was diagnosed 20 years ago! It take

> a few years before they found out what it truly was, but they did!For

> those years we graudally seen his falls become more frequent and at

> times looking like Rocky racoon, with his black eyes, and we said

> this in a loving way!About 6 years ago they discovered my uncle,

> dad's brother also has PLS. His falls gave him two broken hips and

> later hip replacements and know uses a walker and soon a wheel chair.

> This uncle is a twin, and needless to say, the question my uncle

> has, will he be a candiadate for PLS as well? Can anyone tell me this?

> In PLS I understand that 5% is familial! But does this also include

> the children of those with PLS.

> For myself, I have fibromyalgia, and I have a lot of body aches and

> pains, and the cold weather makes it worse.

> But, lately, I have notice different feelings in the stiffness of my

> legs and it is also in my feet, my hands are becoming sore and weak

> and achyand I can feel it travel up the arm. Now fibro does this as

> well, but because dad and my uncle started out feeling this things as

> well, I wonder what my chances are? Plus I have a sister wondering

> the same thing about herslef, and she says she is just getting

> clummsy!

> We have been told that it isn't likely that we will get it, but there

> seems to be some uncertainty to this as our family arleady has two

> with PLS and possibly ALS!

> Are we just being to paranoid?

> Any help would be wonderful.

> My father had one of the leading neuro doctors in the country and we

> adore him, it is Dr. Strong out of London, Ontario! It has been an

> honour to have him with dad and with my uncle, which by the way

> drives 6 hours just for an appointment!

> I hope to learn much here on PLS and feel I have come to the right

> place for it!

> Thanks for your time!

>

> Gentle hugs and kisses!!

> Joyce

>

>

>

[Guest guest]

Joyce,

Welcome to this rather odd, but supportive group. Unfortunately, we have

all come together for a purpose - PLS. It is a rather unpredictable

disease and can be associated with many other autoimmune diseases, such

as fibromyalgia. Since your dad and uncle are twins, it is definitely

NOT unusual for them to develop the same symptoms. There is also the

possibility that HSP is the culprit here (Hereditary Spastic

Paraplegia). Both have frequent falls and some balance problems. Mine

are associated with spasticity of the muscles, which is controlled to a

great extent by medication. When I fall, my legs get stiff and I just go

wherever, but always down. It's the direction that's unpredictable. I

don't know where you got the 5% number for familial PLS. It's new to me.

The only things my brothers and sisters have in common with me is the

same mother and father. However, one brother has had a kidney transplant

(from my oldest sister) and a heart attack. My youngest brother has had

precancerous polyps removed from his colon, something that runs in our

family. My oldest brother had tuberculosis about 30 years ago and died

of lung cancer two years ago. My dad died last year of a brain aneurysm

bursting and leading to a series of strokes, which eventually killed

him. His older brother and sister both died of cancer within the past

year. My two sisters are supposedly healthy, but they only talk to Mom.

Mom gave all of us high cholesterol and a tendency to develop diabetes

from her side of the family. So far, I am the only one to develop a

neuromuscular disease and hope to be the only one. It's strange, looking

back and seeing how, when we were young (I'm the oldest.), we thought

the world would go forever and so would we.

This group will answer any questions you have. Most of us have been

happy when we found it! It is a blessing for us to share our

experiences, our humor, our sadness and ourselves. We each have a story

and can tell it to you, but so many of us have heard each others enough

that we would just hit the delete key and might miss something new. If

you want, email me at the address attached to this posting and I will

tell you my story. The others will just laugh if they read it again. Oh,

and I can empathize with your dad. I have had plastic surgery on my face

three times and multiple contussions, hematomas, etc. Even a concussion

and whiplash. All of these from falls.

Best to you and your family,

Mike Gray Logansport IN

Joyce McAllister wrote:

> Hello everyone, I have joined to find out as much info as I can in

> PLS!

> I don't have it, or at least don't think I do!

> My father though did have it and was diagnosed 20 years ago! It take

> a few years before they found out what it truly was, but they did!For

> those years we graudally seen his falls become more frequent and at

> times looking like Rocky racoon, with his black eyes, and we said

> this in a loving way!About 6 years ago they discovered my uncle,

> dad's brother also has PLS. His falls gave him two broken hips and

> later hip replacements and know uses a walker and soon a wheel chair.

> This uncle is a twin, and needless to say, the question my uncle

> has, will he be a candiadate for PLS as well? Can anyone tell me this?

> In PLS I understand that 5% is familial! But does this also include

> the children of those with PLS.

> For myself, I have fibromyalgia, and I have a lot of body aches and

> pains, and the cold weather makes it worse.

> But, lately, I have notice different feelings in the stiffness of my

> legs and it is also in my feet, my hands are becoming sore and weak

> and achyand I can feel it travel up the arm. Now fibro does this as

> well, but because dad and my uncle started out feeling this things as

> well, I wonder what my chances are? Plus I have a sister wondering

> the same thing about herslef, and she says she is just getting

> clummsy!

> We have been told that it isn't likely that we will get it, but there

> seems to be some uncertainty to this as our family arleady has two

> with PLS and possibly ALS!

> Are we just being to paranoid?

> Any help would be wonderful.

> My father had one of the leading neuro doctors in the country and we

> adore him, it is Dr. Strong out of London, Ontario! It has been an

> honour to have him with dad and with my uncle, which by the way

> drives 6 hours just for an appointment!

> I hope to learn much here on PLS and feel I have come to the right

> place for it!

> Thanks for your time!

>

> Gentle hugs and kisses!!

> Joyce

>

>

>

[Guest guest]

Joyce,

Welcome to this rather odd, but supportive group. Unfortunately, we have

all come together for a purpose - PLS. It is a rather unpredictable

disease and can be associated with many other autoimmune diseases, such

as fibromyalgia. Since your dad and uncle are twins, it is definitely

NOT unusual for them to develop the same symptoms. There is also the

possibility that HSP is the culprit here (Hereditary Spastic

Paraplegia). Both have frequent falls and some balance problems. Mine

are associated with spasticity of the muscles, which is controlled to a

great extent by medication. When I fall, my legs get stiff and I just go

wherever, but always down. It's the direction that's unpredictable. I

don't know where you got the 5% number for familial PLS. It's new to me.

The only things my brothers and sisters have in common with me is the

same mother and father. However, one brother has had a kidney transplant

(from my oldest sister) and a heart attack. My youngest brother has had

precancerous polyps removed from his colon, something that runs in our

family. My oldest brother had tuberculosis about 30 years ago and died

of lung cancer two years ago. My dad died last year of a brain aneurysm

bursting and leading to a series of strokes, which eventually killed

him. His older brother and sister both died of cancer within the past

year. My two sisters are supposedly healthy, but they only talk to Mom.

Mom gave all of us high cholesterol and a tendency to develop diabetes

from her side of the family. So far, I am the only one to develop a

neuromuscular disease and hope to be the only one. It's strange, looking

back and seeing how, when we were young (I'm the oldest.), we thought

the world would go forever and so would we.

This group will answer any questions you have. Most of us have been

happy when we found it! It is a blessing for us to share our

experiences, our humor, our sadness and ourselves. We each have a story

and can tell it to you, but so many of us have heard each others enough

that we would just hit the delete key and might miss something new. If

you want, email me at the address attached to this posting and I will

tell you my story. The others will just laugh if they read it again. Oh,

and I can empathize with your dad. I have had plastic surgery on my face

three times and multiple contussions, hematomas, etc. Even a concussion

and whiplash. All of these from falls.

Best to you and your family,

Mike Gray Logansport IN

Joyce McAllister wrote:

> Hello everyone, I have joined to find out as much info as I can in

> PLS!

> I don't have it, or at least don't think I do!

> My father though did have it and was diagnosed 20 years ago! It take

> a few years before they found out what it truly was, but they did!For

> those years we graudally seen his falls become more frequent and at

> times looking like Rocky racoon, with his black eyes, and we said

> this in a loving way!About 6 years ago they discovered my uncle,

> dad's brother also has PLS. His falls gave him two broken hips and

> later hip replacements and know uses a walker and soon a wheel chair.

> This uncle is a twin, and needless to say, the question my uncle

> has, will he be a candiadate for PLS as well? Can anyone tell me this?

> In PLS I understand that 5% is familial! But does this also include

> the children of those with PLS.

> For myself, I have fibromyalgia, and I have a lot of body aches and

> pains, and the cold weather makes it worse.

> But, lately, I have notice different feelings in the stiffness of my

> legs and it is also in my feet, my hands are becoming sore and weak

> and achyand I can feel it travel up the arm. Now fibro does this as

> well, but because dad and my uncle started out feeling this things as

> well, I wonder what my chances are? Plus I have a sister wondering

> the same thing about herslef, and she says she is just getting

> clummsy!

> We have been told that it isn't likely that we will get it, but there

> seems to be some uncertainty to this as our family arleady has two

> with PLS and possibly ALS!

> Are we just being to paranoid?

> Any help would be wonderful.

> My father had one of the leading neuro doctors in the country and we

> adore him, it is Dr. Strong out of London, Ontario! It has been an

> honour to have him with dad and with my uncle, which by the way

> drives 6 hours just for an appointment!

> I hope to learn much here on PLS and feel I have come to the right

> place for it!

> Thanks for your time!

>

> Gentle hugs and kisses!!

> Joyce

>

>

>

[Guest guest]

Hi Mike!

I would like to hear your story! I guess now some of

the stories are funny, but at the time they happen they

are very scary. I remember dad bleeding perfusly

sometimes. He passed a way 4 years ago, not from PLS,

but from a tumour in the centre of the brain, which was

in operable, and chemo wouldn't have helped and

radiation would have given him a poor quality of life

for a short time, so dad, chose to live life to the

fulliest and being the christian that he was, he was

more than prepared to go to heaven!

My dad's brother, also has PLS, and it is this brother

who has a twin brother that is concerned that he may

also get this same illness.

Dr. Strong, is the doctor my dad had and that my uncle

has now, and Dr.Strong, does alot of research at the

Robarts research institute for ALS/PLS!

I am still curious though as to whether or not the

children of a PLS person can get it as well. I know

somehwere it says no, but to have two brothers have it

concerns me. Any kind of info would be greatly

appreciated!

Thanks!

Hugs, Joyce <:}}}><

Galatians 6:9 - " Let us not become weary in doing good, for at the proper time

we will reap a

harvest if we do not give up. " (NIV)

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

I'd like to correct you on the number of PLS-people in the US. My

newsletter relating to PLS has over 700 subscribers with PLS. There

are surely as many out there who are not subscribers. You might want to

contact PLS-FRIENDS to see how many members they have.

Levy

[Guest guest]

I'd like to correct you on the number of PLS-people in the US. My

newsletter relating to PLS has over 700 subscribers with PLS. There

are surely as many out there who are not subscribers. You might want to

contact PLS-FRIENDS to see how many members they have.

Levy

[Guest guest]

Regarding the 10-12% of PLS-people of which I am one. My father's

mother and my father and myself were all diagnosed with PLS. That's

three generations. I have three daughters and none of them have shown

any symptoms. My oldest is older than when I showed mine. My father

had three sisters and none of them had PLS. It is hard to say if it is

sex-linked, since my grandmother was the first in our family that had

it. This is all the information I can offer. I hope it helps.

Levy

[Guest guest]

Regarding the 10-12% of PLS-people of which I am one. My father's

mother and my father and myself were all diagnosed with PLS. That's

three generations. I have three daughters and none of them have shown

any symptoms. My oldest is older than when I showed mine. My father

had three sisters and none of them had PLS. It is hard to say if it is

sex-linked, since my grandmother was the first in our family that had

it. This is all the information I can offer. I hope it helps.

Levy

[Guest guest]

Regarding the 10-12% of PLS-people of which I am one. My father's

mother and my father and myself were all diagnosed with PLS. That's

three generations. I have three daughters and none of them have shown

any symptoms. My oldest is older than when I showed mine. My father

had three sisters and none of them had PLS. It is hard to say if it is

sex-linked, since my grandmother was the first in our family that had

it. This is all the information I can offer. I hope it helps.

Levy

[Guest guest]

,

I may be confused, but if my memory serves me I thought you had stated

that you most likely had HSP. Do you have problems with your speech or

arms?

> Regarding the 10-12% of PLS-people of which I am one. My father's

> mother and my father and myself were all diagnosed with PLS. That's

> three generations. I have three daughters and none of them have shown

> any symptoms. My oldest is older than when I showed mine. My father

> had three sisters and none of them had PLS. It is hard to say if it is

> sex-linked, since my grandmother was the first in our family that had

> it. This is all the information I can offer. I hope it helps.

>

> Levy

[Guest guest]

,

I may be confused, but if my memory serves me I thought you had stated

that you most likely had HSP. Do you have problems with your speech or

arms?

> Regarding the 10-12% of PLS-people of which I am one. My father's

> mother and my father and myself were all diagnosed with PLS. That's

> three generations. I have three daughters and none of them have shown

> any symptoms. My oldest is older than when I showed mine. My father

> had three sisters and none of them had PLS. It is hard to say if it is

> sex-linked, since my grandmother was the first in our family that had

> it. This is all the information I can offer. I hope it helps.

>

> Levy

[Guest guest]

I do not have any upper body problems including speech. Both my father

and myself were diagnosed with PLS. I probably do have HSP, but I

choose not to be concerned which I have.

[Guest guest]

I do not have any upper body problems including speech. Both my father

and myself were diagnosed with PLS. I probably do have HSP, but I

choose not to be concerned which I have.

[Guest guest]

Welcome to the group ,

You will find that this is the best group on the net to belong to. They

are all great people here. I do not have PLS but my husband does. He has been

ill for 6 years now. First was told that he had MS then was told that he had

Spastic paraparisis. Has only been about a year now that we have been told

that what he has is really PLS. We are very lucky that he has Dr. Fink as his

doctor as he is right now doing much research on the illness. When he first

started showing symptoms it started just with a limp. He really thought he

had pulled a muscle in his leg. So like many men would not go to the doctor

for some time until he started feeling things in the other leg and realized

that it may be more then just a pulled muscle. We tried many doctors and

clinics even as far as going to the Mayo clinic. Well, at this point and time

6 years later he is now not doing so well. He is full time in a wheelchair,

is unable to urinate on his own seems like there is not anything that is not

affected by this horrible illness. His speech is failing now and he has a

very had time swallowing. Will I have gone on enough really just wanted to

say welcome to the crowd here that seems to be growing every day? I hope you

get some comfort in seeing that you are not the only one out here. I know

that is what gives me the most comfort. Thanks for your time and take care

look forward to seeing your postings as I do everyone's. Shirley

(Michigan)

[Guest guest]

Welcome to the group ,

You will find that this is the best group on the net to belong to. They

are all great people here. I do not have PLS but my husband does. He has been

ill for 6 years now. First was told that he had MS then was told that he had

Spastic paraparisis. Has only been about a year now that we have been told

that what he has is really PLS. We are very lucky that he has Dr. Fink as his

doctor as he is right now doing much research on the illness. When he first

started showing symptoms it started just with a limp. He really thought he

had pulled a muscle in his leg. So like many men would not go to the doctor

for some time until he started feeling things in the other leg and realized

that it may be more then just a pulled muscle. We tried many doctors and

clinics even as far as going to the Mayo clinic. Well, at this point and time

6 years later he is now not doing so well. He is full time in a wheelchair,

is unable to urinate on his own seems like there is not anything that is not

affected by this horrible illness. His speech is failing now and he has a

very had time swallowing. Will I have gone on enough really just wanted to

say welcome to the crowd here that seems to be growing every day? I hope you

get some comfort in seeing that you are not the only one out here. I know

that is what gives me the most comfort. Thanks for your time and take care

look forward to seeing your postings as I do everyone's. Shirley

(Michigan)

[Guest guest]

Welcome to the group ,

You will find that this is the best group on the net to belong to. They

are all great people here. I do not have PLS but my husband does. He has been

ill for 6 years now. First was told that he had MS then was told that he had

Spastic paraparisis. Has only been about a year now that we have been told

that what he has is really PLS. We are very lucky that he has Dr. Fink as his

doctor as he is right now doing much research on the illness. When he first

started showing symptoms it started just with a limp. He really thought he

had pulled a muscle in his leg. So like many men would not go to the doctor

for some time until he started feeling things in the other leg and realized

that it may be more then just a pulled muscle. We tried many doctors and

clinics even as far as going to the Mayo clinic. Well, at this point and time

6 years later he is now not doing so well. He is full time in a wheelchair,

is unable to urinate on his own seems like there is not anything that is not

affected by this horrible illness. His speech is failing now and he has a

very had time swallowing. Will I have gone on enough really just wanted to

say welcome to the crowd here that seems to be growing every day? I hope you

get some comfort in seeing that you are not the only one out here. I know

that is what gives me the most comfort. Thanks for your time and take care

look forward to seeing your postings as I do everyone's. Shirley

(Michigan)

[Guest guest]

Hi ,

Welcome to our group. I have a webpage you might be interested. It has 36

PLSers and their data. You can access the data from this link:

http://www.geocities.com/mdmfoo/Data.html

It is so frustrating trying to get a diagnosis in the beginning. You know

something is going wrong, you don't want it to be something bad, but every time

they tell you the tests are negative and they don't give you an answer as to

what is wrong, you just feel a little more frantic to get an answer. Somehow

when you do get a firm diagnosis you can settle into things a bit better.

Sounds strange but true.

My neuro, Dr. Armon, wrote a PLS chapter on eMedicine for physician. You can

link to it here:

http://www.emedicine.com/neuro/topic324.htm

Please ask any questions you might have. We are here for you.

Thomson

Solana Beach, Ca

Visit www.als-pls.org

and www.geocities.com/mdmfoo/pls.html

[Guest guest]

Hi ,

Welcome to our group. I have a webpage you might be interested. It has 36

PLSers and their data. You can access the data from this link:

http://www.geocities.com/mdmfoo/Data.html

It is so frustrating trying to get a diagnosis in the beginning. You know

something is going wrong, you don't want it to be something bad, but every time

they tell you the tests are negative and they don't give you an answer as to

what is wrong, you just feel a little more frantic to get an answer. Somehow

when you do get a firm diagnosis you can settle into things a bit better.

Sounds strange but true.

My neuro, Dr. Armon, wrote a PLS chapter on eMedicine for physician. You can

link to it here:

http://www.emedicine.com/neuro/topic324.htm

Please ask any questions you might have. We are here for you.

Thomson

Solana Beach, Ca

Visit www.als-pls.org

and www.geocities.com/mdmfoo/pls.html

[Guest guest]

Hi ,

I am a 70 year old female and was diagnosed in 1996 after trying for 5 years

to find out what my problem was. I fell a lot, breaking an arm at the

shoulder and having 13 stitches taken in my forehead from another fall. I

would fall over when I tried to pick something up or if I tried to walk

without help. After many tests for everything from a B12 deficency to MS and

ALS to a stroke, my 2nd neurologist came up with PLS. He assured me it

wasn't fatal and tried to prepare me for what was to come. I have been very

fortunate that mine hasn't progressed as fast and as far as some I have

met...each patient seems to be different.

I'm not on any medication for PLS although I've tried several that didn't

help.

You have come to the right place for help and support. The patients seem to

know more about the disease than most doctors. Try to keep a positive

outlook and find things you can do happily and easily. One thing I have

learned is to take each day and live it the best you can.....easy for a 70 yr

old to say huh? I still have 11 grandchildren to watch grow up so I don't

plan on throwing in the towel.

God bless you.

Vivian

[Guest guest]

Hi ,

I am a 70 year old female and was diagnosed in 1996 after trying for 5 years

to find out what my problem was. I fell a lot, breaking an arm at the

shoulder and having 13 stitches taken in my forehead from another fall. I

would fall over when I tried to pick something up or if I tried to walk

without help. After many tests for everything from a B12 deficency to MS and

ALS to a stroke, my 2nd neurologist came up with PLS. He assured me it

wasn't fatal and tried to prepare me for what was to come. I have been very

fortunate that mine hasn't progressed as fast and as far as some I have

met...each patient seems to be different.

I'm not on any medication for PLS although I've tried several that didn't

help.

You have come to the right place for help and support. The patients seem to

know more about the disease than most doctors. Try to keep a positive

outlook and find things you can do happily and easily. One thing I have

learned is to take each day and live it the best you can.....easy for a 70 yr

old to say huh? I still have 11 grandchildren to watch grow up so I don't

plan on throwing in the towel.

God bless you.

Vivian