New Member

[Guest guest]

Hello to All! I just joined this group...My son Tristan, 22 months,

was born with spina bifida. He has shunted hydro., neurogenic

bladder, cath'd every 3 hours, daily meds, surgery coming up for

bladder(vesi or reimplantaion) and recently diagnosed with ACMII.

Just wanted to fill you all in. I feel completely stupid when it

comes to the ACM, like I cannot comprehend anything about it!! LOL I

hope its only b/c we have so much " stuff " going on right now! Tristan

had an MRI done in March that showed he was totally compressed. The

neuro showed me what it was " supposed " to look like on a model and

then showed me the films from the MRI and asked me to show him where

it was.......I didn't see it!! Dr. Troup was kinda puzzzled as to why

Tristan wasn't having " problems " due to the amount of compression! He

ordered 3 more tests..Hearing (checked out fine) Swallowing ( good

here too) and vision( this is what the ACM may be affecting) His

delayed speech may also be a factor. I'm sorry for such a long post

and sounding so scatter brained at that but I just wanted to give

ya'll some history so that maybe some of you will have some input.

Thank you all and I look forward to " meeting " you all! :-)

-mommy to Tristan