Guest guest Posted November 30, 1999 Report Share Posted November 30, 1999 Hello to everyone from Columbus, Indiana. My son, , was diagnosed in April '99 with Pearsons Syndrome. He is only the 2nd child to have a mito disorder at the hospital we go to, so dr. experience is extremely limited. I'm having a hard time understanding the correlation of all the information they are giving me, and dr. won't discuss long-term effects or prognosis. If anyone has any experience with Pearsons or Kearns-Sayre (which I understand is similar to Pearsons, and what Pearsons morphs into as it progresses), please help me to understand it better. Also, dr. wants Matt to take B-50 vits, but I can't get him to take the pill (even crushed). Any suggestions? We went to Mito & Metabolic CRC at Univ. of California at San Diego in June '99, but it was a total disaster. Dr. wants us to go to Univ. of Cal. at Las Angeles, but I'm not sure since they are the same Univ. Anyone have any experiences at Emory Univ. in Atlanta? Thanks in advance for any help or information anyone can offer. Hyten and my son, . Quote Link to comment Share on other sites More sharing options...
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