Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 I think all of what is on this web site is TRUE BUT also very well known already. I would like to point out the words RARE that are used. EVERY drug has it's dark side, BUT for Enbrel the dark side has only happened with a very small % of patients. In a message dated 5/22/2003 12:02:40 AM Eastern Standard Time, orinok writes: > I hate to be an alarmist but maybe you should read these; > <A > HREF= " http://www.enbrel-etanercept.com/pages/enbrel_side_effects.html " >Enbrel Side Effects: Linked to Infections</a> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Dave, I've been behind on my email and noticed this older post that you wrote. It didn't appear to have any responses. How did things go? Did you start to lower your dosage? If so, how is it going? On 6/22/07, david <dave@...> wrote: > > Hi All, > I had asked this a couple of years ago, but frankly can't recall what > others said. I know that PA is disease that can have flares & > remission, but what really constitutes remission? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? .. <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Cyn, are you also on MTX? I'm on remicade also, every 8 weeks and although it has done good things for me, I still need the MTX, sad but true. [ ] remission? I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? . <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Yes, I take 8 tablets weekly Also on celebrex and lyrica From: [mailto: ] On Behalf Of McNally Sent: Monday, January 28, 2008 6:33 PM Subject: Re: [ ] remission? Cyn, are you also on MTX? I'm on remicade also, every 8 weeks and although it has done good things for me, I still need the MTX, sad but true. [ ] remission? I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? .. <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 , I assume you still flare? How often? Or do you experience any problems before infusion time? Anyone can answer for that matter, I understand everyone is different but I am curious if this is very common. Cyn is short Cyndi, nice to meet you by the way. From: [mailto: ] On Behalf Of McNally Sent: Monday, January 28, 2008 6:33 PM Subject: Re: [ ] remission? Cyn, are you also on MTX? I'm on remicade also, every 8 weeks and although it has done good things for me, I still need the MTX, sad but true. [ ] remission? I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? .. <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 I also get " worse " shortly before it is time for my Remicade. My husband notices a big difference in my stamina. I am also on Methotrexate 15mg once a week, prednisone down to 10 mg SID, remicade every 8 weeks. I mostly seem to " wind down " , just run out of steam and fatigue easily as it gets close to time for my Remicade. Then I get a " burst " after the Remicade.... cyn <thecynomyn@...> wrote: , I assume you still flare? How often? Or do you experience any problems before infusion time? Anyone can answer for that matter, I understand everyone is different but I am curious if this is very common. Cyn is short Cyndi, nice to meet you by the way. From: [mailto: ] On Behalf Of McNally Sent: Monday, January 28, 2008 6:33 PM Subject: Re: [ ] remission? Cyn, are you also on MTX? I'm on remicade also, every 8 weeks and although it has done good things for me, I still need the MTX, sad but true. [ ] remission? I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? .. <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 My doctor doesn't like to prescribe prednisone, but the couple of times I took it it was much better, I wish I could take a small dose long term From: [mailto: ] On Behalf Of Margaret schindler Sent: Monday, January 28, 2008 10:42 PM Subject: RE: [ ] remission? I also get " worse " shortly before it is time for my Remicade. My husband notices a big difference in my stamina. I am also on Methotrexate 15mg once a week, prednisone down to 10 mg SID, remicade every 8 weeks. I mostly seem to " wind down " , just run out of steam and fatigue easily as it gets close to time for my Remicade. Then I get a " burst " after the Remicade.... cyn <thecynomyn@... <mailto:thecynomyn%40hotmail.com> > wrote: , I assume you still flare? How often? Or do you experience any problems before infusion time? Anyone can answer for that matter, I understand everyone is different but I am curious if this is very common. Cyn is short Cyndi, nice to meet you by the way. From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of McNally Sent: Monday, January 28, 2008 6:33 PM <mailto: %40> Subject: Re: [ ] remission? Cyn, are you also on MTX? I'm on remicade also, every 8 weeks and although it has done good things for me, I still need the MTX, sad but true. [ ] remission? I am 39 years old and a RA patient. I am on a slew of meds but also I am a Remicade patient.infusion every 6 weeks and its been over a year since I began them. I still flare before each infusion, sometimes only a few days and as much as 2 weeks. I wonder if this is common. I recently decided I should journal this, I got the idea from my kids to use live space and blog my daily thoughts. I just sat it up so the journal plan is just now about to kick off. Will be interesting to see how this works out, but it seems a little more fun than paper and pen. (stop by and leave me a message ..http://thecynomyn.spaces.live.com/) I welcome your thoughts and comments on both of the above. Any experience to share? .. <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 108356/stime=1201457347/nc1=5191948/nc2=5191951/nc3=4025291> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 I am on orencia and have lots of flare ups. My tend to be with major weather changes. This past week it has been really hard. Weather wise we have been bouncing between 40 degrees and rain on friday to 73 degrees and sunny on Saturday. My doctor does believe that my flare ups are because of the wierd weather here. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 The weather has been that way here too. My Rheumy always has some excuse, stress from the holidays (that was last month when I complained about not being able to reach my head to brush my hair), weather..whatever! I don't mean to be sarcastic but it's true. Then again, I am one that wants to strangle those people on TV commercials with my bare hands telling me " Tylenol " takes their pain away. (maybe I am that sarcastic or mean) I shouldn't be that way. I have some good days! Some days it's just how it is. And today is one of those days. I may be stuck in between. By that I mean, still adjusting new meds and what limits are. Every time you think you are there something changes again for one reason or another. I actually have a secret fear of telling the doc about a side effect because she might take the medicine away. But also, might we get the infusion (or whatever) and feel good, over do things like superwoman and then pay the price without realizing this flare is our own fault? It's a puzzle, trying to listen to our bodies thru the brain fog meds, and what might be a side effect...... Frustrating! And life itself doesn't cooperate. Its not like we can hit a button and say time out, my body cannot go any farther today. From: [mailto: ] On Behalf Of Larissa Sent: Tuesday, January 29, 2008 6:30 AM Subject: [ ] Re: remission? I am on orencia and have lots of flare ups. My tend to be with major weather changes. This past week it has been really hard. Weather wise we have been bouncing between 40 degrees and rain on friday to 73 degrees and sunny on Saturday. My doctor does believe that my flare ups are because of the wierd weather here. __________________________________________________________ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 LARISSA HI ITS ME MELYNDA .SORRY 4 SPELLING YOUR NAME THE FIRST MESS. I WROTE!!!! Larissa <cinderrissie@...> wrote: I am on orencia and have lots of flare ups. My tend to be with major weather changes. This past week it has been really hard. Weather wise we have been bouncing between 40 degrees and rain on friday to 73 degrees and sunny on Saturday. My doctor does believe that my flare ups are because of the wierd weather here. __________________________________________________________ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.