Hi Gang! I am home recovering...update..

[Guest guest]

Well, I went in for my appt. on Thursday for the echocardiogram and

chest x-rays. I was sent to ER for 20 hours. Then admitted to

inpatient from there. Finally discharged on Monday with no clear

answers for the pleural pain and heart pounding out of my, unable to

walk 5 feet to the bathroom. My chest pressures were 3 times the

high normal rate in the 200s. I was diagnosed with yet another

lifetime condition which is what bothers me. Just would like the

diagnoses to stop adding up. It feels like the more I go to the

doctor the sicker I get. I was told the chest pain may not get any

better. I am continuing to have chest pain but not as severe.

Severe chest pain and extreme shortness of breath got me there this

time. Oncologists have put the lymph node biopsy and possibilities

on the backburner for now. No more talk of lymphoma or possible

casselman's disease. Now talk of pulmonary pressures and heart

function. Equally scary in my mind. Also talk of placing me on

Rituxan for the RA. My sole concern for this year was having the

hips replaced, but will have to go on hold again.

Now looking into working from home again and maybe filing for

disability. I think the 2 hour roundtrip drive to work is taking a

toll on me. I really hadn't planned to do this drive on my own when

I got this job but now with little help, I better start looking for

another way of making a living or my health will suffer.

So, I am taking it easy, resting, preparing for my next appt next

week with the pulmonologist and going from there.

Will chime in here from time to time as my energy allows.

Healing energy,

Ebony

[Guest guest]

It just never ends, does it? So sorry to hear that they really

couldn't give you much relief. Good grief, a two hour drive to work?

Girl, how on earth are you doing that? I was already working at home

when this hit me - hubby runs a small consulting business and I handle

the admin end of it. I KNOW I wouldn't still be working, even from

home, if I didn't have such an understanding boss!

You are in my prayers, hang in there.

On Jan 26, 2008 6:45 AM, Ebony <stillbreathing29@...> wrote:

>

>

>

>

>

>

> Well, I went in for my appt. on Thursday for the echocardiogram and

> chest x-rays. I was sent to ER for 20 hours. Then admitted to

> inpatient from there. Finally discharged on Monday with no clear

> answers for the pleural pain and heart pounding out of my, unable to

> walk 5 feet to the bathroom. My chest pressures were 3 times the

> high normal rate in the 200s. I was diagnosed with yet another

> lifetime condition which is what bothers me. Just would like the

> diagnoses to stop adding up. It feels like the more I go to the

> doctor the sicker I get. I was told the chest pain may not get any

> better. I am continuing to have chest pain but not as severe.

>

> Severe chest pain and extreme shortness of breath got me there this

> time. Oncologists have put the lymph node biopsy and possibilities

> on the backburner for now. No more talk of lymphoma or possible

> casselman's disease. Now talk of pulmonary pressures and heart

> function. Equally scary in my mind. Also talk of placing me on

> Rituxan for the RA. My sole concern for this year was having the

> hips replaced, but will have to go on hold again.

>

> Now looking into working from home again and maybe filing for

> disability. I think the 2 hour roundtrip drive to work is taking a

> toll on me. I really hadn't planned to do this drive on my own when

> I got this job but now with little help, I better start looking for

> another way of making a living or my health will suffer.

>

> So, I am taking it easy, resting, preparing for my next appt next

> week with the pulmonologist and going from there.

>

> Will chime in here from time to time as my energy allows.

>

> Healing energy,

> Ebony

>

--

South Pasadena, CA / Lilydale, MN

You can see my galleries at http://www.pbase.com/arenared986

M. Schulz - " All you need is love. But a little chocolate now

and then doesn't hurt. "

[Guest guest]

Hi Ebony!

I hope you are feeling better after your scary ordeal!

It's very very frustrating when every time we go to

the doctor there is something new! I was sent to a

cardiologist when I was 26 because they thought my

heart could be a reason my balance is off all of the

time. I have been going to one for my 10th year now.

I have an arrythmia, enlarged ventricle, mitrol valve

prolapes, tietzie syndrome, and hypotension. I

started seeing a cardiologist who had treated both of

my grandparents when they had been alive. He used to

tell me all the time, that I was going to live to be

90! He also chatted to me about the FMS and

inflammatory arthritis on my visits. He retired a

couple of years ago to spend time with his family. I

now see one who is in my small area from Harvard.

He's very good, and did an EKG a few months back to

make sure my medications were not affecting my heart.

It's just really clinical with him and even though he

is great at what he does, I really miss the one I

began with originally. I have you in my thoughts and

prayers!

in MI

--- Ebony <stillbreathing29@...> wrote:

> Well, I went in for my appt. on Thursday for the

> echocardiogram and

> chest x-rays. I was sent to ER for 20 hours. Then

> admitted to

> inpatient from there. Finally discharged on Monday

> with no clear

> answers for the pleural pain and heart pounding out

> of my, unable to

> walk 5 feet to the bathroom. My chest pressures

> were 3 times the

> high normal rate in the 200s. I was diagnosed with

> yet another

> lifetime condition which is what bothers me. Just

> would like the

> diagnoses to stop adding up. It feels like the more

> I go to the

> doctor the sicker I get. I was told the chest pain

> may not get any

> better. I am continuing to have chest pain but not

> as severe.

>

> Severe chest pain and extreme shortness of breath

> got me there this

> time. Oncologists have put the lymph node biopsy

> and possibilities

> on the backburner for now. No more talk of lymphoma

> or possible

> casselman's disease. Now talk of pulmonary

> pressures and heart

> function. Equally scary in my mind. Also talk of

> placing me on

> Rituxan for the RA. My sole concern for this year

> was having the

> hips replaced, but will have to go on hold again.

>

> Now looking into working from home again and maybe

> filing for

> disability. I think the 2 hour roundtrip drive to

> work is taking a

> toll on me. I really hadn't planned to do this

> drive on my own when

> I got this job but now with little help, I better

> start looking for

> another way of making a living or my health will

> suffer.

>

> So, I am taking it easy, resting, preparing for my

> next appt next

> week with the pulmonologist and going from there.

>

> Will chime in here from time to time as my energy

> allows.

>

> Healing energy,

> Ebony

>

>

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