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Neuropathy

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Hello all!

It is our belief that my son has a neuropathy throughout his body. In

fact, it appears that this neuropathy affects his reflexes (absent), his

optic nerves and his hearing. We don't know if the neuropathy is due to

a mito disorder or from his MMR vaccine, which corresponds to when the

neuropathy developed. At any rate, does anyone know what can be done to

treat this? I have heard about steroids being used. How long does a

child need to be on steroid treatment before the neuropathy improves?

Is this a life-long therapy or short term? My son's neuropathy does not

appear to be progressive, so I am hopeful that there is some treatment

out there for him.

Thanks,

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  • 2 years later...

At 02:08 PM 2/21/02 -0700, you wrote:

> >From what I've read, , neuropathy does indeed have way more to do with

>diabetic complications than a " pinched " nerve. Please do read the link and

>information on ALA (alpha lipoic acid at www.iherb.com) help with neuropathy

>as well. A lot of people find that their neuropathy lessens and/or

>disappears when their blood sugar is in good control for awhile.

>

>Barb

>

> >>I think I will check this site out. I asked a while back about neuropathy

>without being diabetic and the reply was something about a pinched nerve. I

>have had a cat scan, an MRI, and a nerve conduction test and was told their

>was nothing on the cat scan or MRI and even though it's been at least 4

>months I still can't find out anything about my nerve conduction test.

>Maybe the link above will help.>>

Thanks Barb,

I must point out that although Robbie (my husband) is a T2 the doctors all

say I'm not diabetic. I used to be hypo, Bs 60 most of the time). Now since

working on Robbie's Bs I'm running between 85 and 120 but the doctor said

that my A1c that he did was very low. Didn't really say what it was though.

That's why I asked if anyone knew if you could have neuropathy without

being a diabetic.

I must say that thanks to the help from this group, since Robbie helped me

to get set up on my computer so I could get into the group instead of his

relaying the messages, I've gotten a better handle on his Bs. In fact for

the last couple of days he has had several normal readings and even dipped

low once (64).

Thanks again,

>

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