Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 I have had allot of pain due to high estrogen levels, or low progesterone. Do you know if you have either of these? If you are high in estrogen try stopping the flaxseed oil. It made my estrogen rise and caused me more pain. Look into the subject of Estrogn dominance or Progesterone dominance. There is plant based natural hormonal creams on the market you can use to control this. Two other products that help reduce pain is MSM and Collostrum. I don't know if I spelled that right. Do a search on this before using it. But I would look into the hormone issue first. Last but not least I found that there was sodium laureth sulphate in all my bath and cleaning products as well as toothpaste. I stopped using this and my body and mind feels better. Now I am looking into the personal products I use. Just read in a few links posted on phenols how we absorb them with the products we use. I feel like many of these kids on this board and I am an adult trying to find anyway to get better. Liz D. > I am having a terrible time lately with body pain. Awful. I am on > enzymes, probiotics, flaxseed oil, magnesium, Vitamin C, zinc...have > tried malic acid for a week, been to the chiropractor, acupuncture, > GSE...the only thing that helps is Vicodin. > M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 , I also have chronic pain...I can't practice anymore because of it (I used to have a chiropractic practice.) Even on a good day, something hurts. (I focus on other things or I'd be like one of the Whiners on the old Saturday Night Live.)What is helping me is trying to keep my body more alkaline. Enzyme therapy is also very important. Go to google or another search engine and plug in things like alkalizing minerals, alkalizing foods, alkaline diet, etc. A new book on the market is The pH Miracle. The Nature's Sunshine website also a page on this information. By the very nature of this plan, you avoid a lot of the foods that are on GFCF and SCD diets. Perhaps one of the reasons these diets help is they encourage people to eat more alkalizing foods. Good luck with your pain--I can truly sympathize. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 > I am having a terrible time lately with body pain. Awful. I am on > enzymes, probiotics, flaxseed oil, magnesium, Vitamin C, zinc...have > tried malic acid for a week, been to the chiropractor, acupuncture, > GSE...the only thing that helps is Vicodin. Any of these relatively new? Flaxseed oil was sooooooo bad for me. Also probiotics. Nasty feeling, almost wanted to die. Too much zinc can do this also. > and all suggestions appreciated...by the way, is selenium supposed to > smell bad??? I opened a bottle recently and it smelled almost like > rotten eggs... I don't think so. Mine is in capsules and does not smell at all. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 << I have had allot of pain due to high estrogen levels, or low progesterone. Do you know if you have either of these? If you are high in estrogen try stopping the flaxseed oil.>> Okay, you and my mil have both suggested it...stopped. I was going for the Omega 3s...what else should I try for EFAs? << It made my estrogen rise and caused me more pain. Look into the subject of Estrogn dominance or Progesterone dominance. There is plant based natural hormonal creams on the market you can use to control this.>> I have a couple books on this and I don't really fit the profile for estrogen dominance...or I fit part of it but not the whole thing...but I've had a lot of treatments for endometriosis over the years, and at one time my estrogen was down near menopausal levels...I did buy some cream today, but I have to wait a few days to use it... <<Two other products that help reduce pain is MSM >> I may try this since magnesium and epsom baths worked so well in the past... <<and Collostrum. I don't know if I spelled that right. Do a search on this before using it. But I would look into the hormone issue first. Last but not least I found that there was sodium laureth sulphate in all my bath and cleaning products as well as toothpaste. I stopped using this and my body and mind feels better. Now I am looking into the personal products I use. Just read in a few links posted on phenols how we absorb them with the products we use. I feel like many of these kids on this board and I am an adult trying to find anyway to get better. Liz D.>> Thanks Liz... M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 <<Any of these relatively new?>> Flaxseed oil is relatively new, but I'm not real consistent with it. I haven't taken it for a few days, though... <<Flaxseed oil was sooooooo bad for me. Also probiotics. Nasty feeling, almost wanted to die.>> Definitely can relate...I had switched to yogurt for my probiotics, as per 's suggestions, and I do feel it controls the yeast better, but the dairy seems to be aggravating my asthma, even with enzymes...may have to switch back... <<Too much zinc can do this also.>> I actually just re-added the zinc when the pain started. Honestly, it feels just like the body aches with the flu, only about 10 times worse, and no fever or anything...ibuprofen won't touch it. Viral, maybe, if not hormonal? What are really strong antivirals that I can pick up at the health food store? I know how bad it is to throw in everything at once, but I've got 3 kids, holidays, and end-of-the-semester madness for my graduate class to do...moms aren't allowed to be incapacitated! M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 M., For some reason the only EFAs I can use is cod liver oil. It didn't make me hormonaly sick. However I didn't feel it was doing anything for me either. I found information on DHA plant source. It greatly improved my memory so I know it is working and I am sure it is helping other things that it is supposed to do for me too. The product I bought was from Natures Way called Neuromins DHA plant source. I am sure you can find other makers of this oil. It is the oil from the algae that the fish eat, seems that the fish get their oil from this plant. However if you can, you could supplement the algae instead. I was told taking the whole food is more benificial. I tried algae in the past and it messed with my hormones too, and I had to stop taking it. About the book you read on hormonal supplementation. Each of us are different and you won't find your mirror problem in the book exactly. The books don't mention different way on using the natural hormonal creams either. My book just says to use it one way. I however benefited by my doctor introducing me to this therapy. I didn't know about it and then had to run out to get the book. Using the cream the way the book recommended didn't work for me. You see we all have different hormonal problems and our cycle does different things throughout the month. You may only need to use it only a few weeks of the month and not the whole month. My system was so low in progesterone that my doctor made me use the cream every day, even during my bleeding. This corrected itself in a few months and now I don't need the cream at all. The book doesn't mention anything like this. And it took my doctor 3 months to experiement with the dose and the days until we got it right. Also some brands of creams are better than others. I had a symptom that wasn't in the book. I began to have bone pain and was still told I didn't have arthritis. Doctor said that it was a sign that my hormones were very low and the pain I was feeling was calcium being moved out of my bones. The cream stopped the problem. P.S. If you decide to take Cod Liver Oil softgels make sure that the capsule contains cod liver oil. I went to the store and found many bottles that had the fish oil in the capsule with soy oil. !!!!! Soy increases estrogen. These people I think, are nuts. Why buy fish oil capsules if it is not 100% fish oil? Liz D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 > Definitely can relate...I had switched to yogurt for my probiotics, as > per 's suggestions, and I do feel it controls the yeast better, but > the dairy seems to be aggravating my asthma, even with enzymes...may > have to switch back... Milk aggravated my asthma, even with enzymes, altho with Peptizyde AND No-Fenol was tolerable. This has dissipated tho, I can have some milk products now without major problems, so long as I use those two enzymes. >>What are really strong antivirals that I can pick up at > the health food store? I don't really know. I tried vitamin C and echinacea for myself. Vitamin C triggered a major anaphylactic asthma attack that took almost 3 months to get rid of. Must have been the orange flavoring, I don't do well with orange [just like my kids before chelation]. Echinacea caused me to get about 2 hours sleep in 20 minute intervals, I was AWAKE all night and could NOT get to sleep, even with heavy doses of antihistamines. > I know how bad it is to throw in everything at once, but I've got 3 > kids, holidays, and end-of-the-semester madness for my graduate class to > do...moms aren't allowed to be incapacitated! Yep, I can sure relate to that. Hope you feel better soon. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hello to everyone I was diagnosed with RA back in April of 2007. I went into denial & wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put me on MTX & Prednizone but my liver enzymes came back too high. He ended up putting me on 40mg Humira every other week, he also wanted me to take 5mg Prednizone a day but it made me feel crazy. I couldn't stop itching & felt like I had bugs all over me all the time. So we stopped the Prednizone & now I am just on the Humira. My question is I still have small flare ups. Is this normal? My right foot is still swollen at the heel & I have been wearing backless shoes because these are the most comfortable. Will the swelling ever go down in my foot? I am 43 years young & I have a wonderful supportive husband. He is in the Army & is deployed to Iraq right now so I am not sleeping well at all. He will be home in December of this year, maybe January of next year...? Could I still be having problems because I am not sleeping so good? Sorry so many questions...I have one more thing to ask about. I have noduals on my right elbow & one of them keeps getting bigger. My primary care Doctor wants to remove it in March. Is it ok to get them removed? Thank you all for being here...gentile hugs to all Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 I have the same questions..but I never thought to ask! I've been on mtx for awhile now and while most of my joints are MUCH better, I still have a couple of spots that are swollen and painful and not responding like everywhere else. Speaking for myself, if I don't get enough sleep and/or rest my joints definitely flare. For me, sleep is very important in controlling the inflammation and pain. > > My > question is I still have small flare ups. Is this normal? My right > foot is still swollen at the heel & I have been wearing backless > shoes because these are the most comfortable. Will the swelling ever > go down in my foot? > Could I still be having problems because I am not sleeping so good? > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 hi this is in reply to the noduals. i have them on both arms(3 on one arm and one on the other)i have six on my fingers and two on my wrists. when i first started getting them i asked my ra dr about having them removed but he said they would just come back. is there anyone else out there that their toes do not touch the floor anymore? thank you and take care Marie Homan <marieannett2269@...> wrote: Hello to everyone I was diagnosed with RA back in April of 2007. I went into denial & wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put me on MTX & Prednizone but my liver enzymes came back too high. He ended up putting me on 40mg Humira every other week, he also wanted me to take 5mg Prednizone a day but it made me feel crazy. I couldn't stop itching & felt like I had bugs all over me all the time. So we stopped the Prednizone & now I am just on the Humira. My question is I still have small flare ups. Is this normal? My right foot is still swollen at the heel & I have been wearing backless shoes because these are the most comfortable. Will the swelling ever go down in my foot? I am 43 years young & I have a wonderful supportive husband. He is in the Army & is deployed to Iraq right now so I am not sleeping well at all. He will be home in December of this year, maybe January of next year...? Could I still be having problems because I am not sleeping so good? Sorry so many questions...I have one more thing to ask about. I have noduals on my right elbow & one of them keeps getting bigger. My primary care Doctor wants to remove it in March. Is it ok to get them removed? Thank you all for being here...gentile hugs to all Marie --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hello, I was diagnosed in July of 2007 and like you I take Humira and prednisone as well as sulfasalazine and I still swell up, specifically the tendon that is located by the inside upper arch of my foot. My doctor says to stay off of it as much as possible, but with a baby running around the house I find that impossible. I also sleep pretty well and still have swollen joints. I sleep about 8 hours at night and take a nap during the day. My doctor said that the swelling should go down once the Humira starts taking more affect and I think he wants to add another medication. I started Humira late November. But I think resting does play a huge part. I know when I am on my feet longer then two hours I start feeling the affects. Hope I helped Marie Homan <marieannett2269@...> wrote: Hello to everyone I was diagnosed with RA back in April of 2007. I went into denial & wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put me on MTX & Prednizone but my liver enzymes came back too high. He ended up putting me on 40mg Humira every other week, he also wanted me to take 5mg Prednizone a day but it made me feel crazy. I couldn't stop itching & felt like I had bugs all over me all the time. So we stopped the Prednizone & now I am just on the Humira. My question is I still have small flare ups. Is this normal? My right foot is still swollen at the heel & I have been wearing backless shoes because these are the most comfortable. Will the swelling ever go down in my foot? I am 43 years young & I have a wonderful supportive husband. He is in the Army & is deployed to Iraq right now so I am not sleeping well at all. He will be home in December of this year, maybe January of next year...? Could I still be having problems because I am not sleeping so good? Sorry so many questions...I have one more thing to ask about. I have noduals on my right elbow & one of them keeps getting bigger. My primary care Doctor wants to remove it in March. Is it ok to get them removed? Thank you all for being here...gentile hugs to all Marie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I > hi this is in reply to the noduals. i have them on both arm>>>>> > Are they hard or soft? Painful? Can you move them at all? Thanks, Pris ************** Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi I hope you don't mind if I chime in, but I am also on Humira and Predinzone, as well as suffazalazane (I know wrong spelling) anyways. I take the Humira by injection every other week in my stomach and it burns. It probably takes me under a minute to fully take it all in, which my doctor doesn't like. He would like me to inject it a lot faster. My feet also hurt, but they have actually bothered me most of my life, but have seemed to have gotten worse with the RA. In addition, I was in another blog in regards to my feet and they said that it is natural to be swollen and rest helps. So good luck, I hope I helped. hearttrapt <hearttrapt@...> wrote: Hello Marie, I was diagonsed almost three years ago with RA and I am 25 years old now. I have been on Humira for the last 6months. I take the Humira the exact same way as you have. I am also taken the Predinzone also and I have noticed that it is helping me a lot. I know that Predinzone is not for everybody, example is your case, but I have had some flare ups with the Humira and Predinzone. I also have problems with the back of the heel area to where when I walk I feel a stretching and pulling of my muscles. I have noticed that with Humira and Pred the most probably is with the feet. I had a time where the top of my one foot had a ball that was as big as a golf ball that hurt when I walked. My doctor just told me to take more Pred. I am now slowly getting off of the Pred because I have been on it since I was diagnosed, and this was by my choice not my doctor but she is supporting me. So I am saying that me and you are two people so far that has had this problem with our feet while on Humira. I was also wondering about where do you give your shots on your legs or stomach? Also does it burn when you are injecting the Humira and hurt a little bit when you are done and walk after the injection? Thanks, Destiny > > Hello to everyone > I was diagnosed with RA back in April of 2007. I went into denial & > wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put > me on MTX & Prednizone but my liver enzymes came back too high. He > ended up putting me on 40mg Humira every other week, he also wanted > me to take 5mg Prednizone a day but it made me feel crazy. I > couldn't stop itching & felt like I had bugs all over me all the > time. So we stopped the Prednizone & now I am just on the Humira. My > question is I still have small flare ups. Is this normal? My right > foot is still swollen at the heel & I have been wearing backless > shoes because these are the most comfortable. Will the swelling ever > go down in my foot? I am 43 years young & I have a wonderful > supportive husband. He is in the Army & is deployed to Iraq right > now so I am not sleeping well at all. He will be home in December of > this year, maybe January of next year...? > Could I still be having problems because I am not sleeping so good? > Sorry so many questions...I have one more thing to ask about. I have > noduals on my right elbow & one of them keeps getting bigger. My > primary care Doctor wants to remove it in March. Is it ok to get > them removed? Thank you all for being here...gentile hugs to all > Marie > --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 hmmmm . . . I was told to inject the Humira verrrrry slowly, so it would burn less. Also told to take it out of the fridge 20-30 minutes before injecting it, to warm it up a little. On Jan 27, 2008 11:45 PM, andrea hecht <dreahecht@...> wrote: > > > > > > > Hi I hope you don't mind if I chime in, but I am also on Humira and > Predinzone, as well as suffazalazane (I know wrong spelling) anyways. I take > the Humira by injection every other week in my stomach and it burns. It > probably takes me under a minute to fully take it all in, which my doctor > doesn't like. He would like me to inject it a lot faster. -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Okay, I don't know if I should be doing this, and I have only tried it one time, but... I sprayed a little solarcaine where I was giving myself the shot. It was an experiment, and it kinda worked. Now, I been giving myself MTX shots for ages now, and they don't hurt at all, but the others, oh howdy! do they. Quote Link to comment Share on other sites More sharing options...
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