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I have had allot of pain due to high estrogen levels, or low

progesterone. Do you know if you have either of these? If

you are high in estrogen try stopping the flaxseed oil. It made

my estrogen rise and caused me more pain. Look into the subject

of Estrogn dominance or Progesterone dominance. There is plant

based natural hormonal creams on the market you can use to control

this.

Two other products that help reduce pain is MSM and Collostrum.

I don't know if I spelled that right. Do a search on this before

using it. But I would look into the hormone issue first.

Last but not least I found that there was sodium laureth sulphate

in all my bath and cleaning products as well as toothpaste. I

stopped using this and my body and mind feels better. Now I am

looking into the personal products I use. Just read in a few

links posted on phenols how we absorb them with the products

we use. I feel like many of these kids on this board and I

am an adult trying to find anyway to get better.

Liz D.

> I am having a terrible time lately with body pain. Awful. I am on

> enzymes, probiotics, flaxseed oil, magnesium, Vitamin C, zinc...have

> tried malic acid for a week, been to the chiropractor, acupuncture,

> GSE...the only thing that helps is Vicodin.

> M

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,

I also have chronic pain...I can't practice anymore because of it (I used to

have a chiropractic practice.) Even on a good day, something hurts. (I focus

on other things or I'd be like one of the Whiners on the old Saturday Night

Live.)What is helping me is trying to keep my body more alkaline. Enzyme

therapy is also very important. Go to google or another search engine and plug

in

things like alkalizing minerals, alkalizing foods, alkaline diet, etc.

A new book on the market is The pH Miracle. The Nature's Sunshine website

also a page on this information.

By the very nature of this plan, you avoid a lot of the foods that are on

GFCF and SCD diets. Perhaps one of the reasons these diets help is they

encourage

people to eat more alkalizing foods.

Good luck with your pain--I can truly sympathize.

Robin

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> I am having a terrible time lately with body pain. Awful. I am on

> enzymes, probiotics, flaxseed oil, magnesium, Vitamin C, zinc...have

> tried malic acid for a week, been to the chiropractor, acupuncture,

> GSE...the only thing that helps is Vicodin.

Any of these relatively new?

Flaxseed oil was sooooooo bad for me. Also probiotics. Nasty feeling, almost

wanted to die.

Too much zinc can do this also.

> and all suggestions appreciated...by the way, is selenium supposed to

> smell bad??? I opened a bottle recently and it smelled almost like

> rotten eggs...

I don't think so. Mine is in capsules and does not smell at all.

Dana

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<< I have had allot of pain due to high estrogen levels, or low

progesterone. Do you know if you have either of these? If

you are high in estrogen try stopping the flaxseed oil.>>

Okay, you and my mil have both suggested it...stopped. I was going for

the Omega 3s...what else should I try for EFAs?

<< It made my estrogen rise and caused me more pain. Look into the

subject

of Estrogn dominance or Progesterone dominance. There is plant

based natural hormonal creams on the market you can use to control

this.>>

I have a couple books on this and I don't really fit the profile for

estrogen dominance...or I fit part of it but not the whole thing...but

I've had a lot of treatments for endometriosis over the years, and at

one time my estrogen was down near menopausal levels...I did buy some

cream today, but I have to wait a few days to use it...

<<Two other products that help reduce pain is MSM >>

I may try this since magnesium and epsom baths worked so well in the

past...

<<and Collostrum.

I don't know if I spelled that right. Do a search on this before

using it. But I would look into the hormone issue first.

Last but not least I found that there was sodium laureth sulphate

in all my bath and cleaning products as well as toothpaste. I

stopped using this and my body and mind feels better. Now I am

looking into the personal products I use. Just read in a few

links posted on phenols how we absorb them with the products

we use. I feel like many of these kids on this board and I

am an adult trying to find anyway to get better.

Liz D.>>

Thanks Liz...

M

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<<Any of these relatively new?>>

Flaxseed oil is relatively new, but I'm not real consistent with it. I

haven't taken it for a few days, though...

<<Flaxseed oil was sooooooo bad for me. Also probiotics. Nasty

feeling, almost wanted to die.>>

Definitely can relate...I had switched to yogurt for my probiotics, as

per 's suggestions, and I do feel it controls the yeast better, but

the dairy seems to be aggravating my asthma, even with enzymes...may

have to switch back...

<<Too much zinc can do this also.>>

I actually just re-added the zinc when the pain started. Honestly, it

feels just like the body aches with the flu, only about 10 times worse,

and no fever or anything...ibuprofen won't touch it. Viral, maybe, if

not hormonal? What are really strong antivirals that I can pick up at

the health food store?

I know how bad it is to throw in everything at once, but I've got 3

kids, holidays, and end-of-the-semester madness for my graduate class to

do...moms aren't allowed to be incapacitated!

M

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M., For some reason the only EFAs I can use is cod liver oil.

It didn't make me hormonaly sick. However I didn't feel it was

doing anything for me either. I found information on DHA plant

source. It greatly improved my memory so I know it is working

and I am sure it is helping other things that it is supposed to

do for me too. The product I bought was from Natures Way called

Neuromins DHA plant source. I am sure you can find other makers

of this oil. It is the oil from the algae that the fish eat,

seems that the fish get their oil from this plant. However if

you can, you could supplement the algae instead. I was told taking

the whole food is more benificial. I tried algae in the past and

it messed with my hormones too, and I had to stop taking it.

About the book you read on hormonal supplementation. Each of us

are different and you won't find your mirror problem in the book

exactly. The books don't mention different way on using the

natural hormonal creams either. My book just says to use it one way.

I however benefited by my doctor introducing me to this therapy.

I didn't know about it and then had to run out to get the book.

Using the cream the way the book recommended didn't work for me.

You see we all have different hormonal problems and our cycle

does different things throughout the month. You may only need

to use it only a few weeks of the month and not the whole month.

My system was so low in progesterone that my doctor made me use

the cream every day, even during my bleeding. This corrected

itself in a few months and now I don't need the cream at all.

The book doesn't mention anything like this. And it took my

doctor 3 months to experiement with the dose and the days until

we got it right. Also some brands of creams are better than others.

I had a symptom that wasn't in the book. I began to have bone

pain and was still told I didn't have arthritis. Doctor said

that it was a sign that my hormones were very low and the pain

I was feeling was calcium being moved out of my bones. The

cream stopped the problem.

P.S. If you decide to take Cod Liver Oil softgels make sure that the

capsule contains cod liver oil. I went to the store and found many

bottles that had the fish oil in the capsule with soy oil. !!!!!

Soy increases estrogen. These people I think, are nuts. Why buy

fish oil capsules if it is not 100% fish oil?

Liz D.

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> Definitely can relate...I had switched to yogurt for my probiotics, as

> per 's suggestions, and I do feel it controls the yeast better, but

> the dairy seems to be aggravating my asthma, even with enzymes...may

> have to switch back...

Milk aggravated my asthma, even with enzymes, altho with Peptizyde AND No-Fenol

was tolerable. This has dissipated tho, I can

have some milk products now without major problems, so long as I use those two

enzymes.

>>What are really strong antivirals that I can pick up at

> the health food store?

I don't really know. I tried vitamin C and echinacea for myself. Vitamin C

triggered a major anaphylactic asthma attack that took

almost 3 months to get rid of. Must have been the orange flavoring, I don't do

well with orange [just like my kids before chelation].

Echinacea caused me to get about 2 hours sleep in 20 minute intervals, I was

AWAKE all night and could NOT get to sleep, even with

heavy doses of antihistamines.

> I know how bad it is to throw in everything at once, but I've got 3

> kids, holidays, and end-of-the-semester madness for my graduate class to

> do...moms aren't allowed to be incapacitated!

Yep, I can sure relate to that. Hope you feel better soon.

Dana

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  • 4 years later...

Hello to everyone :)

I was diagnosed with RA back in April of 2007. I went into denial &

wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put

me on MTX & Prednizone but my liver enzymes came back too high. He

ended up putting me on 40mg Humira every other week, he also wanted

me to take 5mg Prednizone a day but it made me feel crazy. I

couldn't stop itching & felt like I had bugs all over me all the

time. So we stopped the Prednizone & now I am just on the Humira. My

question is I still have small flare ups. Is this normal? My right

foot is still swollen at the heel & I have been wearing backless

shoes because these are the most comfortable. Will the swelling ever

go down in my foot? I am 43 years young & I have a wonderful

supportive husband. He is in the Army & is deployed to Iraq right

now so I am not sleeping well at all. He will be home in December of

this year, maybe January of next year...?

Could I still be having problems because I am not sleeping so good?

Sorry so many questions...I have one more thing to ask about. I have

noduals on my right elbow & one of them keeps getting bigger. My

primary care Doctor wants to remove it in March. Is it ok to get

them removed? Thank you all for being here...gentile hugs to all :)

Marie

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I have the same questions..but I never thought to ask! I've been on mtx

for awhile now and while most of my joints are MUCH better, I still

have a couple of spots that are swollen and painful and not responding

like everywhere else.

Speaking for myself, if I don't get enough sleep and/or rest my joints

definitely flare. For me, sleep is very important in controlling the

inflammation and pain.

>

> My

> question is I still have small flare ups. Is this normal? My right

> foot is still swollen at the heel & I have been wearing backless

> shoes because these are the most comfortable. Will the swelling ever

> go down in my foot? > Could I still be having problems because I am

not sleeping so good? > Marie

>

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hi this is in reply to the noduals. i have them on both arms(3 on one arm and

one on the other)i have six on my fingers and two on my wrists. when i first

started getting them i asked my ra dr about having them removed but he said they

would just come back. is there anyone else out there that their toes do not

touch the floor anymore? thank you and take care

Marie Homan <marieannett2269@...> wrote: Hello to everyone :)

I was diagnosed with RA back in April of 2007. I went into denial &

wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put

me on MTX & Prednizone but my liver enzymes came back too high. He

ended up putting me on 40mg Humira every other week, he also wanted

me to take 5mg Prednizone a day but it made me feel crazy. I

couldn't stop itching & felt like I had bugs all over me all the

time. So we stopped the Prednizone & now I am just on the Humira. My

question is I still have small flare ups. Is this normal? My right

foot is still swollen at the heel & I have been wearing backless

shoes because these are the most comfortable. Will the swelling ever

go down in my foot? I am 43 years young & I have a wonderful

supportive husband. He is in the Army & is deployed to Iraq right

now so I am not sleeping well at all. He will be home in December of

this year, maybe January of next year...?

Could I still be having problems because I am not sleeping so good?

Sorry so many questions...I have one more thing to ask about. I have

noduals on my right elbow & one of them keeps getting bigger. My

primary care Doctor wants to remove it in March. Is it ok to get

them removed? Thank you all for being here...gentile hugs to all :)

Marie

---------------------------------

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Hello, I was diagnosed in July of 2007 and like you I take Humira and

prednisone as well as sulfasalazine and I still swell up, specifically the

tendon that is located by the inside upper arch of my foot. My doctor says to

stay off of it as much as possible, but with a baby running around the house I

find that impossible. I also sleep pretty well and still have swollen joints. I

sleep about 8 hours at night and take a nap during the day. My doctor said that

the swelling should go down once the Humira starts taking more affect and I

think he wants to add another medication. I started Humira late November. But I

think resting does play a huge part. I know when I am on my feet longer then

two hours I start feeling the affects.

Hope I helped

Marie Homan <marieannett2269@...> wrote:

Hello to everyone :)

I was diagnosed with RA back in April of 2007. I went into denial &

wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put

me on MTX & Prednizone but my liver enzymes came back too high. He

ended up putting me on 40mg Humira every other week, he also wanted

me to take 5mg Prednizone a day but it made me feel crazy. I

couldn't stop itching & felt like I had bugs all over me all the

time. So we stopped the Prednizone & now I am just on the Humira. My

question is I still have small flare ups. Is this normal? My right

foot is still swollen at the heel & I have been wearing backless

shoes because these are the most comfortable. Will the swelling ever

go down in my foot? I am 43 years young & I have a wonderful

supportive husband. He is in the Army & is deployed to Iraq right

now so I am not sleeping well at all. He will be home in December of

this year, maybe January of next year...?

Could I still be having problems because I am not sleeping so good?

Sorry so many questions...I have one more thing to ask about. I have

noduals on my right elbow & one of them keeps getting bigger. My

primary care Doctor wants to remove it in March. Is it ok to get

them removed? Thank you all for being here...gentile hugs to all :)

Marie

---------------------------------

Never miss a thing. Make your homepage.

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Hi I hope you don't mind if I chime in, but I am also on Humira and Predinzone,

as well as suffazalazane (I know wrong spelling) anyways. I take the Humira by

injection every other week in my stomach and it burns. It probably takes me

under a minute to fully take it all in, which my doctor doesn't like. He would

like me to inject it a lot faster. My feet also hurt, but they have actually

bothered me most of my life, but have seemed to have gotten worse with the RA.

In addition, I was in another blog in regards to my feet and they said that it

is natural to be swollen and rest helps. So good luck, I hope I helped.

hearttrapt <hearttrapt@...> wrote:

Hello Marie,

I was diagonsed almost three years ago with RA and I am 25 years old

now. I have been on Humira for the last 6months. I take the Humira

the exact same way as you have. I am also taken the Predinzone also

and I have noticed that it is helping me a lot. I know that

Predinzone is not for everybody, example is your case, but I have had

some flare ups with the Humira and Predinzone. I also have problems

with the back of the heel area to where when I walk I feel a

stretching and pulling of my muscles. I have noticed that with

Humira and Pred the most probably is with the feet. I had a time

where the top of my one foot had a ball that was as big as a golf

ball that hurt when I walked. My doctor just told me to take more

Pred. I am now slowly getting off of the Pred because I have been on

it since I was diagnosed, and this was by my choice not my doctor but

she is supporting me. So I am saying that me and you are two people

so far that has had this problem with our feet while on Humira. I

was also wondering about where do you give your shots on your legs or

stomach? Also does it burn when you are injecting the Humira and

hurt a little bit when you are done and walk after the injection?

Thanks, Destiny

>

> Hello to everyone :)

> I was diagnosed with RA back in April of 2007. I went into denial &

> wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put

> me on MTX & Prednizone but my liver enzymes came back too high. He

> ended up putting me on 40mg Humira every other week, he also wanted

> me to take 5mg Prednizone a day but it made me feel crazy. I

> couldn't stop itching & felt like I had bugs all over me all the

> time. So we stopped the Prednizone & now I am just on the Humira.

My

> question is I still have small flare ups. Is this normal? My right

> foot is still swollen at the heel & I have been wearing backless

> shoes because these are the most comfortable. Will the swelling

ever

> go down in my foot? I am 43 years young & I have a wonderful

> supportive husband. He is in the Army & is deployed to Iraq right

> now so I am not sleeping well at all. He will be home in December

of

> this year, maybe January of next year...?

> Could I still be having problems because I am not sleeping so good?

> Sorry so many questions...I have one more thing to ask about. I

have

> noduals on my right elbow & one of them keeps getting bigger. My

> primary care Doctor wants to remove it in March. Is it ok to get

> them removed? Thank you all for being here...gentile hugs to all :)

> Marie

>

---------------------------------

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hmmmm . . . I was told to inject the Humira verrrrry slowly, so it

would burn less. Also told to take it out of the fridge 20-30 minutes

before injecting it, to warm it up a little.

On Jan 27, 2008 11:45 PM, andrea hecht <dreahecht@...> wrote:

>

>

>

>

>

>

> Hi I hope you don't mind if I chime in, but I am also on Humira and

> Predinzone, as well as suffazalazane (I know wrong spelling) anyways. I take

> the Humira by injection every other week in my stomach and it burns. It

> probably takes me under a minute to fully take it all in, which my doctor

> doesn't like. He would like me to inject it a lot faster.

--

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You can see my galleries at http://www.pbase.com/arenared986

M. Schulz - " All you need is love. But a little chocolate now

and then doesn't hurt. "

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Okay, I don't know if I should be doing this, and I have only tried it

one time, but... I sprayed a little solarcaine where I was giving

myself the shot. It was an experiment, and it kinda worked. Now, I

been giving myself MTX shots for ages now, and they don't hurt at all,

but the others, oh howdy! do they.

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