Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Tim >Hi, > >My name Tim and i am 21 years old.........similar to my age, how they >are coping with life, their location etc ....................................................................... >Hi Tim I am " Handsome " Jimmy,I'm 29,live in Ohio.I don't know how others cope,but I live in Denial:),some might even say I live in my own world " .I'm not much for nf2 talk,but if you wanna shoot the breeze I'm your guy.We can talk sports,women,or cars,women in sports or women in cars....Ok,ok,ok,you get the idea. Jimmy(never in his life saw Phyco the Rapist) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Tim >Hi, > >My name Tim and i am 21 years old.........similar to my age, how they >are coping with life, their location etc ....................................................................... >Hi Tim I am " Handsome " Jimmy,I'm 29,live in Ohio.I don't know how others cope,but I live in Denial:),some might even say I live in my own world " .I'm not much for nf2 talk,but if you wanna shoot the breeze I'm your guy.We can talk sports,women,or cars,women in sports or women in cars....Ok,ok,ok,you get the idea. Jimmy(never in his life saw Phyco the Rapist) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Tim >Hi, > >My name Tim and i am 21 years old.........similar to my age, how they >are coping with life, their location etc ....................................................................... >Hi Tim I am " Handsome " Jimmy,I'm 29,live in Ohio.I don't know how others cope,but I live in Denial:),some might even say I live in my own world " .I'm not much for nf2 talk,but if you wanna shoot the breeze I'm your guy.We can talk sports,women,or cars,women in sports or women in cars....Ok,ok,ok,you get the idea. Jimmy(never in his life saw Phyco the Rapist) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Now that's creative Tim!!! Carol totalwest@... wrote: > To All > > Thanks everybody who replied to me, You have all been very kind. > > I will take a few days to contemplate my next course of action, I do not feel > any better regarding NF2 however receiving all your kind emails have cheered > me up alot. > > Please keep in touch > > Please send any messages to TOTALWEST@... - the reason i used TOTAL is > because nothing else would work and i got stressed ot so i used the first > thing that came in to my head and i happened to be wearing a Total Oil T > Shirt at the time. > > Thanks > > Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Now that's creative Tim!!! Carol totalwest@... wrote: > To All > > Thanks everybody who replied to me, You have all been very kind. > > I will take a few days to contemplate my next course of action, I do not feel > any better regarding NF2 however receiving all your kind emails have cheered > me up alot. > > Please keep in touch > > Please send any messages to TOTALWEST@... - the reason i used TOTAL is > because nothing else would work and i got stressed ot so i used the first > thing that came in to my head and i happened to be wearing a Total Oil T > Shirt at the time. > > Thanks > > Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Now that's creative Tim!!! Carol totalwest@... wrote: > To All > > Thanks everybody who replied to me, You have all been very kind. > > I will take a few days to contemplate my next course of action, I do not feel > any better regarding NF2 however receiving all your kind emails have cheered > me up alot. > > Please keep in touch > > Please send any messages to TOTALWEST@... - the reason i used TOTAL is > because nothing else would work and i got stressed ot so i used the first > thing that came in to my head and i happened to be wearing a Total Oil T > Shirt at the time. > > Thanks > > Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Pam, Welcome to the list. A myo is a myomectomy--the gyn surgically removes the fibroids. there are a number of different kinds of myo. hysteroscopic resection is where they enter thru the cervix to remove small submucosal fibroids--often the culprits behind heavy bleeding. Abdominal myo also called a lap myo is where an incision is made--usually horizontally, called a bikini cut--and the fibroids are removed. this is usually for subserosal and intramural fibroids. Laparoscopic myo is done thru small incision(s) less than 1 " and the fibroid is cut up and brought out--usually only an option for small subserosal fibroids. Fertility can be maintained depending on various individual factors. Hysterectomy, they remove all or part of the uterus. they may also remove all or part of the ovaries and/or cervix. Fertility is not maintained. HRT therapy may become necessary if the ovaries are no longer functioning. All treatment options (myo, hyst, UAE, etc.) for uterine fibroids are dependant on symptoms, type, size, and location of fibroids. Accurate diagnosing and a gyn with fibroid knowledge become crucial in helping to determine what treatment option(s) to pursue. On this particular list, you'll notice alot of different approaches to treatment but we basically all have the same starting point: fibroids. You might want to check out the NUFF site for more information as well as the many resources in Bookmarks and Database on the yahoo groups home page for this list.. you can also search the uterinefibroids archives if there is a particular topic you want to learn more about. http://www.NUFF.org/health_uterinefibroids.htm Best wishes, > Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Pam, Welcome to the list. A myo is a myomectomy--the gyn surgically removes the fibroids. there are a number of different kinds of myo. hysteroscopic resection is where they enter thru the cervix to remove small submucosal fibroids--often the culprits behind heavy bleeding. Abdominal myo also called a lap myo is where an incision is made--usually horizontally, called a bikini cut--and the fibroids are removed. this is usually for subserosal and intramural fibroids. Laparoscopic myo is done thru small incision(s) less than 1 " and the fibroid is cut up and brought out--usually only an option for small subserosal fibroids. Fertility can be maintained depending on various individual factors. Hysterectomy, they remove all or part of the uterus. they may also remove all or part of the ovaries and/or cervix. Fertility is not maintained. HRT therapy may become necessary if the ovaries are no longer functioning. All treatment options (myo, hyst, UAE, etc.) for uterine fibroids are dependant on symptoms, type, size, and location of fibroids. Accurate diagnosing and a gyn with fibroid knowledge become crucial in helping to determine what treatment option(s) to pursue. On this particular list, you'll notice alot of different approaches to treatment but we basically all have the same starting point: fibroids. You might want to check out the NUFF site for more information as well as the many resources in Bookmarks and Database on the yahoo groups home page for this list.. you can also search the uterinefibroids archives if there is a particular topic you want to learn more about. http://www.NUFF.org/health_uterinefibroids.htm Best wishes, > Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Pam, Welcome to the list. A myo is a myomectomy--the gyn surgically removes the fibroids. there are a number of different kinds of myo. hysteroscopic resection is where they enter thru the cervix to remove small submucosal fibroids--often the culprits behind heavy bleeding. Abdominal myo also called a lap myo is where an incision is made--usually horizontally, called a bikini cut--and the fibroids are removed. this is usually for subserosal and intramural fibroids. Laparoscopic myo is done thru small incision(s) less than 1 " and the fibroid is cut up and brought out--usually only an option for small subserosal fibroids. Fertility can be maintained depending on various individual factors. Hysterectomy, they remove all or part of the uterus. they may also remove all or part of the ovaries and/or cervix. Fertility is not maintained. HRT therapy may become necessary if the ovaries are no longer functioning. All treatment options (myo, hyst, UAE, etc.) for uterine fibroids are dependant on symptoms, type, size, and location of fibroids. Accurate diagnosing and a gyn with fibroid knowledge become crucial in helping to determine what treatment option(s) to pursue. On this particular list, you'll notice alot of different approaches to treatment but we basically all have the same starting point: fibroids. You might want to check out the NUFF site for more information as well as the many resources in Bookmarks and Database on the yahoo groups home page for this list.. you can also search the uterinefibroids archives if there is a particular topic you want to learn more about. http://www.NUFF.org/health_uterinefibroids.htm Best wishes, > Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 In a message dated 1/10/02 12:28:57 AM Eastern Standard Time, molinaripamela@... writes: > Hi this is all new to me. I had extreme pain last week and went to the dr. > They had me get an ultrasound and it showed two cysts on each ovary and > several fibroids in my uterus and my uterus is enlarged. I have had really > heavy periods for years and my doctor never said I had fibroids. I have > always taken the pill for years because it helps the heavy periods. Does > the pill shrink the fibroids? or just help with the symptoms? What is the > myo I keep reading about on this email group. What about having my uterus > out, or is the other operation better? I don't plan on having anymore > children, I will not go through the change for another 7-10years. Any info > is helpful, thanks Pam Pam, Welcome to the group. A myo is a " myomectomy. " It's surgery that removes fibroid tumors but leaves the uterus intact. A sugeon cuts the tumors out of the uterus and repairs the uterus. If you wish to keep your uterus, this is a good option. Concerning the pill, a lot of people indicate it may help fibroids grow. Personally, I think it does, although the verdict is out on that. It could also be that certain types of the pill are more likely to make them grow. Unfortunately, there hasn't been enough research to answer that definitively. I went off the pill two years ago, and had no further fibroid growth after that, although I had to endure more painful and longer periods since the pill was helping with those hormonal problems. Anyway, this group has tons of archive information regarding treatment options such as UAE (uterine artery embolization), myomectomy, and there is also a lot of discussion about hysterectomy (mostly the risks or problems with it). Best of luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 In a message dated 1/10/02 12:28:57 AM Eastern Standard Time, molinaripamela@... writes: > Hi this is all new to me. I had extreme pain last week and went to the dr. > They had me get an ultrasound and it showed two cysts on each ovary and > several fibroids in my uterus and my uterus is enlarged. I have had really > heavy periods for years and my doctor never said I had fibroids. I have > always taken the pill for years because it helps the heavy periods. Does > the pill shrink the fibroids? or just help with the symptoms? What is the > myo I keep reading about on this email group. What about having my uterus > out, or is the other operation better? I don't plan on having anymore > children, I will not go through the change for another 7-10years. Any info > is helpful, thanks Pam Pam, Welcome to the group. A myo is a " myomectomy. " It's surgery that removes fibroid tumors but leaves the uterus intact. A sugeon cuts the tumors out of the uterus and repairs the uterus. If you wish to keep your uterus, this is a good option. Concerning the pill, a lot of people indicate it may help fibroids grow. Personally, I think it does, although the verdict is out on that. It could also be that certain types of the pill are more likely to make them grow. Unfortunately, there hasn't been enough research to answer that definitively. I went off the pill two years ago, and had no further fibroid growth after that, although I had to endure more painful and longer periods since the pill was helping with those hormonal problems. Anyway, this group has tons of archive information regarding treatment options such as UAE (uterine artery embolization), myomectomy, and there is also a lot of discussion about hysterectomy (mostly the risks or problems with it). Best of luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 In a message dated 1/10/02 12:28:57 AM Eastern Standard Time, molinaripamela@... writes: > Hi this is all new to me. I had extreme pain last week and went to the dr. > They had me get an ultrasound and it showed two cysts on each ovary and > several fibroids in my uterus and my uterus is enlarged. I have had really > heavy periods for years and my doctor never said I had fibroids. I have > always taken the pill for years because it helps the heavy periods. Does > the pill shrink the fibroids? or just help with the symptoms? What is the > myo I keep reading about on this email group. What about having my uterus > out, or is the other operation better? I don't plan on having anymore > children, I will not go through the change for another 7-10years. Any info > is helpful, thanks Pam Pam, Welcome to the group. A myo is a " myomectomy. " It's surgery that removes fibroid tumors but leaves the uterus intact. A sugeon cuts the tumors out of the uterus and repairs the uterus. If you wish to keep your uterus, this is a good option. Concerning the pill, a lot of people indicate it may help fibroids grow. Personally, I think it does, although the verdict is out on that. It could also be that certain types of the pill are more likely to make them grow. Unfortunately, there hasn't been enough research to answer that definitively. I went off the pill two years ago, and had no further fibroid growth after that, although I had to endure more painful and longer periods since the pill was helping with those hormonal problems. Anyway, this group has tons of archive information regarding treatment options such as UAE (uterine artery embolization), myomectomy, and there is also a lot of discussion about hysterectomy (mostly the risks or problems with it). Best of luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Pam: As far as I understand this, there is not enough empirical information to support the statement that the pill makes fibroids grow. Sometimes it does and sometimes it doesn't. There is however some empirical support for the fact that the pill helps relieve heavy periods. A number of gyns I have consulted so far have suggested hysterectomy but I am 41and not ready for it yet. You should really get 3 or 4 opinions from different gyns and reproductive endocrinologists. Robi help Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Pam: As far as I understand this, there is not enough empirical information to support the statement that the pill makes fibroids grow. Sometimes it does and sometimes it doesn't. There is however some empirical support for the fact that the pill helps relieve heavy periods. A number of gyns I have consulted so far have suggested hysterectomy but I am 41and not ready for it yet. You should really get 3 or 4 opinions from different gyns and reproductive endocrinologists. Robi help Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Pam: As far as I understand this, there is not enough empirical information to support the statement that the pill makes fibroids grow. Sometimes it does and sometimes it doesn't. There is however some empirical support for the fact that the pill helps relieve heavy periods. A number of gyns I have consulted so far have suggested hysterectomy but I am 41and not ready for it yet. You should really get 3 or 4 opinions from different gyns and reproductive endocrinologists. Robi help Hi this is all new to me. I had extreme pain last week and went to the dr. They had me get an ultrasound and it showed two cysts on each ovary and several fibroids in my uterus and my uterus is enlarged. I have had really heavy periods for years and my doctor never said I had fibroids. I have always taken the pill for years because it helps the heavy periods. Does the pill shrink the fibroids? or just help with the symptoms? What is the myo I keep reading about on this email group. What about having my uterus out, or is the other operation better? I don't plan on having anymore children, I will not go through the change for another 7-10years. Any info is helpful, thanks Pam Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Hi Pam, I've had ovarian cysts for the past 18 years and I know they can be scary and cause some pretty serious pain. I had one removed when I was 21 that was the size of a grapefruit. Please be sure you keep an eye on these, especially if they cause pain, because my ovary was so crushed by the large cyst that they had to remove it. I had surgery last year to remove another cyst, but my doc was able to save my remaining ovary. There is a lot of controversy about whether the Pill causes fibroids to grow. I specifically asked my doctor about this a few weeks ago. I'm on the Pill for birth control and also to help reduce the incidence of ovarian cysts, but I was concerned that it is making my fibroids grow. She said that the Pill does not have any effect on fibroids - it doesn't make them shrink, and it doesn't make them grow. They use it only to control the sometimes-heavy bleeding associated with fibroids. I was off the Pill for more than a year after I was diagnosed with fibroids, and in my experience they grew just as much during that time as they have when I'm on the Pill. In my personal experience it didn't make a noticeable difference either way. Even if you don't plan on having more children, having a hysterectomy is not something to undertake without a lot of research and several different medical opinions. It is usually not considered absolutely medically necessary unless you have cancer, but OB/GYNs recommend it all the time because it is fairly simple to perform relative to myomectomy. Some women have them and are completely happy with that choice, but hysterectomy can also cause immediate menopause, diminished sexual function, and many other things - so please think about whether you're ready to deal with those possibilities. What did your doctor recommend after your ultrasound? ==Cat > > > Hi this is all new to me. I had extreme pain last > week and went > to the dr. They had me get an ultrasound and it > showed two > cysts on each ovary and several fibroids in my > uterus and my > uterus is enlarged. I have had really heavy periods > for years and > my doctor never said I had fibroids. I have always > taken the pill > for years because it helps the heavy periods. Does > the pill shrink > the fibroids? or just help with the symptoms? What > is the myo I > keep reading about on this email group. What about > having my > uterus out, or is the other operation better? I > don't plan on having > anymore children, I will not go through the change > for another > 7-10years. Any info is helpful, thanks Pam __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Hi Pam, I've had ovarian cysts for the past 18 years and I know they can be scary and cause some pretty serious pain. I had one removed when I was 21 that was the size of a grapefruit. Please be sure you keep an eye on these, especially if they cause pain, because my ovary was so crushed by the large cyst that they had to remove it. I had surgery last year to remove another cyst, but my doc was able to save my remaining ovary. There is a lot of controversy about whether the Pill causes fibroids to grow. I specifically asked my doctor about this a few weeks ago. I'm on the Pill for birth control and also to help reduce the incidence of ovarian cysts, but I was concerned that it is making my fibroids grow. She said that the Pill does not have any effect on fibroids - it doesn't make them shrink, and it doesn't make them grow. They use it only to control the sometimes-heavy bleeding associated with fibroids. I was off the Pill for more than a year after I was diagnosed with fibroids, and in my experience they grew just as much during that time as they have when I'm on the Pill. In my personal experience it didn't make a noticeable difference either way. Even if you don't plan on having more children, having a hysterectomy is not something to undertake without a lot of research and several different medical opinions. It is usually not considered absolutely medically necessary unless you have cancer, but OB/GYNs recommend it all the time because it is fairly simple to perform relative to myomectomy. Some women have them and are completely happy with that choice, but hysterectomy can also cause immediate menopause, diminished sexual function, and many other things - so please think about whether you're ready to deal with those possibilities. What did your doctor recommend after your ultrasound? ==Cat > > > Hi this is all new to me. I had extreme pain last > week and went > to the dr. They had me get an ultrasound and it > showed two > cysts on each ovary and several fibroids in my > uterus and my > uterus is enlarged. I have had really heavy periods > for years and > my doctor never said I had fibroids. I have always > taken the pill > for years because it helps the heavy periods. Does > the pill shrink > the fibroids? or just help with the symptoms? What > is the myo I > keep reading about on this email group. What about > having my > uterus out, or is the other operation better? I > don't plan on having > anymore children, I will not go through the change > for another > 7-10years. Any info is helpful, thanks Pam __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Hi Pam, I've had ovarian cysts for the past 18 years and I know they can be scary and cause some pretty serious pain. I had one removed when I was 21 that was the size of a grapefruit. Please be sure you keep an eye on these, especially if they cause pain, because my ovary was so crushed by the large cyst that they had to remove it. I had surgery last year to remove another cyst, but my doc was able to save my remaining ovary. There is a lot of controversy about whether the Pill causes fibroids to grow. I specifically asked my doctor about this a few weeks ago. I'm on the Pill for birth control and also to help reduce the incidence of ovarian cysts, but I was concerned that it is making my fibroids grow. She said that the Pill does not have any effect on fibroids - it doesn't make them shrink, and it doesn't make them grow. They use it only to control the sometimes-heavy bleeding associated with fibroids. I was off the Pill for more than a year after I was diagnosed with fibroids, and in my experience they grew just as much during that time as they have when I'm on the Pill. In my personal experience it didn't make a noticeable difference either way. Even if you don't plan on having more children, having a hysterectomy is not something to undertake without a lot of research and several different medical opinions. It is usually not considered absolutely medically necessary unless you have cancer, but OB/GYNs recommend it all the time because it is fairly simple to perform relative to myomectomy. Some women have them and are completely happy with that choice, but hysterectomy can also cause immediate menopause, diminished sexual function, and many other things - so please think about whether you're ready to deal with those possibilities. What did your doctor recommend after your ultrasound? ==Cat > > > Hi this is all new to me. I had extreme pain last > week and went > to the dr. They had me get an ultrasound and it > showed two > cysts on each ovary and several fibroids in my > uterus and my > uterus is enlarged. I have had really heavy periods > for years and > my doctor never said I had fibroids. I have always > taken the pill > for years because it helps the heavy periods. Does > the pill shrink > the fibroids? or just help with the symptoms? What > is the myo I > keep reading about on this email group. What about > having my > uterus out, or is the other operation better? I > don't plan on having > anymore children, I will not go through the change > for another > 7-10years. Any info is helpful, thanks Pam __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Help > Please tell me about the site about Dr. Goldstein. I am also in NEw > York and have seen two docs there. What hospital is he affiliated with? > > I can't figure out how to get back into the Yahoo group, otherwise I > would have posted there. Thanks. > > Heidi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Help > Please tell me about the site about Dr. Goldstein. I am also in NEw > York and have seen two docs there. What hospital is he affiliated with? > > I can't figure out how to get back into the Yahoo group, otherwise I > would have posted there. Thanks. > > Heidi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Help > Please tell me about the site about Dr. Goldstein. I am also in NEw > York and have seen two docs there. What hospital is he affiliated with? > > I can't figure out how to get back into the Yahoo group, otherwise I > would have posted there. Thanks. > > Heidi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Cat, Thanks for writing back, my doctor recommended going on the pill to get rid of the cysts and to see if it would help the heavy bleeding from the fibroids. She also said she would try hormone therapy before considering surgery. This all sounds okay with me. I guess at this point will just watch and see if they grow, plus hopefully the cysts will go away on their on. Pam Re: Re: help Hi Pam, I've had ovarian cysts for the past 18 years and I know they can be scary and cause some pretty serious pain. I had one removed when I was 21 that was the size of a grapefruit. Please be sure you keep an eye on these, especially if they cause pain, because my ovary was so crushed by the large cyst that they had to remove it. I had surgery last year to remove another cyst, but my doc was able to save my remaining ovary. There is a lot of controversy about whether the Pill causes fibroids to grow. I specifically asked my doctor about this a few weeks ago. I'm on the Pill for birth control and also to help reduce the incidence of ovarian cysts, but I was concerned that it is making my fibroids grow. She said that the Pill does not have any effect on fibroids - it doesn't make them shrink, and it doesn't make them grow. They use it only to control the sometimes-heavy bleeding associated with fibroids. I was off the Pill for more than a year after I was diagnosed with fibroids, and in my experience they grew just as much during that time as they have when I'm on the Pill. In my personal experience it didn't make a noticeable difference either way. Even if you don't plan on having more children, having a hysterectomy is not something to undertake without a lot of research and several different medical opinions. It is usually not considered absolutely medically necessary unless you have cancer, but OB/GYNs recommend it all the time because it is fairly simple to perform relative to myomectomy. Some women have them and are completely happy with that choice, but hysterectomy can also cause immediate menopause, diminished sexual function, and many other things - so please think about whether you're ready to deal with those possibilities. What did your doctor recommend after your ultrasound? ==Cat > > > Hi this is all new to me. I had extreme pain last > week and went > to the dr. They had me get an ultrasound and it > showed two > cysts on each ovary and several fibroids in my > uterus and my > uterus is enlarged. I have had really heavy periods > for years and > my doctor never said I had fibroids. I have always > taken the pill > for years because it helps the heavy periods. Does > the pill shrink > the fibroids? or just help with the symptoms? What > is the myo I > keep reading about on this email group. What about > having my > uterus out, or is the other operation better? I > don't plan on having > anymore children, I will not go through the change > for another > 7-10years. Any info is helpful, thanks Pam __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 >>Those of us with long histories with lots of docs have a little system we try >>to use for doc visits, hospitalizations, and the like. >>Having these lists on your person >>whenever leave the house is also a good idea. If you, for any reason, end up in the >>ER, you have all the necessary information for the staff on duty Excellent advice! I subscribe to Medic-Alert... costs $20/year, my bracelet has my id # on it, and any emergency provider can have access to all my allergies, meds, and conditions by one phone call. My husband carries this information also, and I always make sure that someone at work has the info in case something should happen to me at work. I keep a " task " in my Outlook for each of my doctors, marked " prep for allergist " etc. Then, as something takes place in my life that I will want to mention to that doctor at my next visit, I make a note in that " task " . The day before each appointment, I review that info, refine it a little, make complete sentences/formulate questions, and take it with me. We each have to be proactive about our medical care. Several years ago, I became jaundiced and didn't have a doctor who truly followed up as he should--and we were living in a large metro area at the time. ly I felt that the whole incident went generally untreated. Now, knowing about the SLE and Sjogren's, I understand the role this might have played in diagnosis, etc. <down from soapbox> Sharon Case Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 what kind of virus proctor do you have....I run my Norton and go to find and fix problems and then click on windows doctor and that will usually stop mine....I have a pop-up stopper and I turn that on but it doesn't stop them but when I run Norton that usually takes care of it.....hope it helps.....Jeana wrote: I need some computer help. So if anyone know how to solve my problem let me knoe. I appreciate any help.I have a pop up that comes on the screen, its not an ordinary pop up. Its a cannot find server- microsoft internet explorer. When this pops up it shuts down what ever I am working on, whether its a game or reading email. It even pops up when I am not even on line. Now I am also getting a little pop up that says can not view this page offline, connect or work off line. Its getting really annoying, as its happening more often now.If anyone know how to stop this.....Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 what kind of virus proctor do you have....I run my Norton and go to find and fix problems and then click on windows doctor and that will usually stop mine....I have a pop-up stopper and I turn that on but it doesn't stop them but when I run Norton that usually takes care of it.....hope it helps.....Jeana wrote: I need some computer help. So if anyone know how to solve my problem let me knoe. I appreciate any help.I have a pop up that comes on the screen, its not an ordinary pop up. Its a cannot find server- microsoft internet explorer. When this pops up it shuts down what ever I am working on, whether its a game or reading email. It even pops up when I am not even on line. Now I am also getting a little pop up that says can not view this page offline, connect or work off line. Its getting really annoying, as its happening more often now.If anyone know how to stop this.....Jeana Quote Link to comment Share on other sites More sharing options...
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