Re: Re: INFO - On Enbrel Enliven Services

[Guest guest]

I have insurance but it was still to expensive for me to get enbrel. I went

through the enbrel quick card and for the 1st 6 months I get it free then I have

to pay $50 every 3 months for it. I guess that isn't too bad. When I didn't

have health ins after the state had dropped me because I started working a PART

time job I had to go without until I found a full time job. went from Jan 07 to

Dec 07 without. I would have flares every day. I had 2 children to take care

of and had left my ex hubby because of abuse after my RA was diagnosed. I vow

to myself never to not have insurance again because it was murder on me and my

kids on days where I couldn't get out of bed and had to literally push myself

for them to keep moving. If it wasn't for my children for the months without

the enbrel I would be sitting in a wheelchair today and not be able to do

anything. My children still motivate me everyday to go on with life and live it

to the fullest no matter what is thrown at me. The

y have become my inspiration to keep going and not let this horrible disease

take over me or my life.

-------------- Original message --------------

From: " shauna4343 " <shauna4343@...>

>

> Enbrel.com

> Enliven Services

> Reimbursement Support Services

>

>

> http://www.enbrel.com/ra/enliven-services.jsp

>

>

> --

>

> Not an MD

>

Been there, did without.

I once was a very grateful and fortunate recipient of Enliven's

Services. But once Medicare Part D was enacted, I was dropped from

the program.

For six months, I went w/o Enbrel until I could

find some philanthropic assistance.

You are not going to find Enbrel on anyone's $4.00 list.

You will not qualify for Enbrel's Enliven Services if you

have/qualify for Medicare Part D.

Enbrel's Enliven Services are for folks w/o insurance.

Medicare Part D, qualifies as insurance....such as it is.

You may find assistance with PPA or Healthwell, but they won't be

able to cover the entire cost of a year's supply of Enbrel.

Under Medicare Part D, once the Enbrel Rx burns through that

philanthropic organization's contribution you may find yourself

paying large co-pays.

It was a total nightmare for six months. The philanthropic

organizations' resources are limited and are exhausted quickly.

If you have the determination, patience and wherewithall to work

through the endless paperwork eventually you may find some financial

assistance with this obscenely expensive drug.

Soapbox -----> Personally I think it's a crime, an ethical

abomination to develop a drug that can help the crippled walk but

make it so expensive that there is no way on earth that the disabled

w/ no health insurance can obtain it. And don't tell me R & D merits a

price that high, when the pharmaceutical companies post record

breaking profits, year after year.

Good Luck,

Shauna

[Guest guest]

I absolutely agree with what Shauna has said here. I'm the one that posted the

" Enbrel for Seniors? " post a week ago and I have been through hell with all the

papers and calls that I have made to get help with this drug. Just when I was

ready to finally send the papers in, I was told my doctor has to make one more

call to verify her RX. Any drug that is $1600 a month or more should not even

be put out there for people to use, insurance or no and I'm thinking now that I

will go in another direction, and I don't know what that it.

Jean

shauna4343 <shauna4343@...> wrote:

>

> Enbrel.com

> Enliven Services

> Reimbursement Support Services

>

>

> http://www.enbrel.com/ra/enliven-services.jsp

>

>

> --

>

> Not an MD

>

Been there, did without.

I once was a very grateful and fortunate recipient of Enliven's

Services. But once Medicare Part D was enacted, I was dropped from

the program.

For six months, I went w/o Enbrel until I could

find some philanthropic assistance.

You are not going to find Enbrel on anyone's $4.00 list.

You will not qualify for Enbrel's Enliven Services if you

have/qualify for Medicare Part D.

Enbrel's Enliven Services are for folks w/o insurance.

Medicare Part D, qualifies as insurance....such as it is.

You may find assistance with PPA or Healthwell, but they won't be

able to cover the entire cost of a year's supply of Enbrel.

Under Medicare Part D, once the Enbrel Rx burns through that

philanthropic organization's contribution you may find yourself

paying large co-pays.

It was a total nightmare for six months. The philanthropic

organizations' resources are limited and are exhausted quickly.

If you have the determination, patience and wherewithall to work

through the endless paperwork eventually you may find some financial

assistance with this obscenely expensive drug.

Soapbox -----> Personally I think it's a crime, an ethical

abomination to develop a drug that can help the crippled walk but

make it so expensive that there is no way on earth that the disabled

w/ no health insurance can obtain it. And don't tell me R & D merits a

price that high, when the pharmaceutical companies post record

breaking profits, year after year.

Good Luck,

Shauna

---------------------------------

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[Guest guest]

don't give up. You've worked hard to try Enbrel and now that you've done

so much paperwork, at least give it a shot. It might turn out to be really

worth all the hard work. I agree that it's horrible so many people have to go

without biologics because of lack of insurance coverage.

Re: [ ] Re: INFO - On Enbrel Enliven Services

I absolutely agree with what Shauna has said here. I'm the one that posted the

" Enbrel for Seniors? " post a week ago and I have been through hell with all the

papers and calls that I have made to get help with this drug. Just when I was

ready to finally send the papers in, I was told my doctor has to make one more

call to verify her RX. Any drug that is $1600 a month or more should not even be

put out there for people to use, insurance or no and I'm thinking now that I

will go in another direction, and I don't know what that it.

Jean

shauna4343 <shauna4343 (DOT) com> wrote:

>

> Enbrel.com

> Enliven Services

> Reimbursement Support Services

>

>

> http://www.enbrel. com/ra/enliven- services. jsp

>

>

> --

>

> Not an MD

>

Been there, did without.

I once was a very grateful and fortunate recipient of Enliven's

Services. But once Medicare Part D was enacted, I was dropped from

the program.

For six months, I went w/o Enbrel until I could

find some philanthropic assistance.

You are not going to find Enbrel on anyone's $4.00 list.

You will not qualify for Enbrel's Enliven Services if you

have/qualify for Medicare Part D.

Enbrel's Enliven Services are for folks w/o insurance.

Medicare Part D, qualifies as insurance... .such as it is.

You may find assistance with PPA or Healthwell, but they won't be

able to cover the entire cost of a year's supply of Enbrel.

Under Medicare Part D, once the Enbrel Rx burns through that

philanthropic organization' s contribution you may find yourself

paying large co-pays.

It was a total nightmare for six months. The philanthropic

organizations' resources are limited and are exhausted quickly.

If you have the determination, patience and wherewithall to work

through the endless paperwork eventually you may find some financial

assistance with this obscenely expensive drug.

Soapbox -----> Personally I think it's a crime, an ethical

abomination to develop a drug that can help the crippled walk but

make it so expensive that there is no way on earth that the disabled

w/ no health insurance can obtain it. And don't tell me R & D merits a

price that high, when the pharmaceutical companies post record

breaking profits, year after year.

Good Luck,

Shauna

------------ --------- --------- ---

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[Guest guest]

Wow. discouraging. I see all the t.v. ads for that and had questioned it

myself, did not realize it is that exspensive, I feel for u that u went through

all that to find out discourgement. I don't know if any help, but my son is on

Remicaid, has had to be on it now for 2yrs, for a whole different disease, this

also very very expensive 3,000. a Tx, but he was able to get it covered, and

what insurance doesn't pay the Remicade Co. has contributed which is quite a

bit. I think to this has less side effects??? Hope u well

Fair <kalfoley@...> wrote: don't give up. You've

worked hard to try Enbrel and now that you've done so much paperwork, at least

give it a shot. It might turn out to be really worth all the hard work. I agree

that it's horrible so many people have to go without biologics because of lack

of insurance coverage.

Re: [ ] Re: INFO - On Enbrel Enliven Services

I absolutely agree with what Shauna has said here. I'm the one that posted the

" Enbrel for Seniors? " post a week ago and I have been through hell with all the

papers and calls that I have made to get help with this drug. Just when I was

ready to finally send the papers in, I was told my doctor has to make one more

call to verify her RX. Any drug that is $1600 a month or more should not even be

put out there for people to use, insurance or no and I'm thinking now that I

will go in another direction, and I don't know what that it.

Jean

shauna4343 <shauna4343 (DOT) com> wrote:

>

> Enbrel.com

> Enliven Services

> Reimbursement Support Services

>

>

> http://www.enbrel. com/ra/enliven- services. jsp

>

>

> --

>

> Not an MD

>

Been there, did without.

I once was a very grateful and fortunate recipient of Enliven's

Services. But once Medicare Part D was enacted, I was dropped from

the program.

For six months, I went w/o Enbrel until I could

find some philanthropic assistance.

You are not going to find Enbrel on anyone's $4.00 list.

You will not qualify for Enbrel's Enliven Services if you

have/qualify for Medicare Part D.

Enbrel's Enliven Services are for folks w/o insurance.

Medicare Part D, qualifies as insurance... .such as it is.

You may find assistance with PPA or Healthwell, but they won't be

able to cover the entire cost of a year's supply of Enbrel.

Under Medicare Part D, once the Enbrel Rx burns through that

philanthropic organization' s contribution you may find yourself

paying large co-pays.

It was a total nightmare for six months. The philanthropic

organizations' resources are limited and are exhausted quickly.

If you have the determination, patience and wherewithall to work

through the endless paperwork eventually you may find some financial

assistance with this obscenely expensive drug.

Soapbox -----> Personally I think it's a crime, an ethical

abomination to develop a drug that can help the crippled walk but

make it so expensive that there is no way on earth that the disabled

w/ no health insurance can obtain it. And don't tell me R & D merits a

price that high, when the pharmaceutical companies post record

breaking profits, year after year.

Good Luck,

Shauna

------------ --------- --------- ---

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