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Re: low Vitamin D levels/Angie

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OMG!!!! ME TOO! My liver enzymes have been high since September which is why I

cannot go on MTX right now!

What medications are you on?

©x© Kami ©x©

Re: [ ] low Vitamin D levels

hi

I wanted to let you know you are not alone either I have been dealing with low

vitamin d levels for a little over a month now my rheumy has me on 50000 iu's a

week for the next 3 months and then he will retest my levels I have RA and Fibro

also been fighting with liver levels being to high I am 34 so there isn't much

difference in age unlike you I do not like milk but do like cheese

Thans

Angie

<man_u8@...> wrote:

Hello everyone, hope everyone is well. I saw a new rheumatologist

last week and I just got the results of my labs/x-rays. They told me

yes, I have RA but that I also have extremely low vitamin D levels.

Their concern is that my bones are weak and with the combination of

RA, the bones in my joints are at an increased risk. They can't do

anything about the damage that is already done, but to help my bones

stronger so the RA doesn't damage my joints at a faster rate.

They want me to take a special vitamin D beta medication which is

stronger and more concentrated then any vitamin D supplement I can

get over the counter. I am 30, but they want me to start to get bone

scans when I hit 40. I drink milk everday, I love cheese...I thought

I was getting enough vitamin D through my diet, but I guess that is

not the case.

I asked them if this is herditary (my grandma has osteoprosis and

takes foxamax); but he said no.

My question is if anyone else has ever been told this by their

rheumatologist? Is anyone taking a speical vitamin D medication to

help make my joints/bones stronger so the RA doesn't damange at a

faster rate? This is the first time I heard anything about Vitamin D

levels related to my RA.

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My liver enzymes have been elevated constantly since

1999. I was not on any medications at that point.

I've had ultrasounds, MRI's and am in a liver study

and have had biopsies and still no answers. It's so

odd!

--- ~ Kami ~ <kamilleon@...> wrote:

> OMG!!!! ME TOO! My liver enzymes have been high

> since September which is why I cannot go on MTX

> right now!

>

> What medications are you on?

>

>

> ©x© Kami ©x©

>

> Re: [ ] low Vitamin D levels

>

>

> hi

> I wanted to let you know you are not alone either

> I have been dealing with low vitamin d levels for a

> little over a month now my rheumy has me on 50000

> iu's a week for the next 3 months and then he will

> retest my levels I have RA and Fibro also been

> fighting with liver levels being to high I am 34 so

> there isn't much difference in age unlike you I do

> not like milk but do like cheese

> Thans

> Angie

>

> <man_u8@...> wrote:

> Hello everyone, hope everyone is well. I saw a new

> rheumatologist

> last week and I just got the results of my

> labs/x-rays. They told me

> yes, I have RA but that I also have extremely low

> vitamin D levels.

> Their concern is that my bones are weak and with

> the combination of

> RA, the bones in my joints are at an increased

> risk. They can't do

> anything about the damage that is already done,

> but to help my bones

> stronger so the RA doesn't damage my joints at a

> faster rate.

> They want me to take a special vitamin D beta

> medication which is

> stronger and more concentrated then any vitamin D

> supplement I can

> get over the counter. I am 30, but they want me to

> start to get bone

> scans when I hit 40. I drink milk everday, I love

> cheese...I thought

> I was getting enough vitamin D through my diet,

> but I guess that is

> not the case.

> I asked them if this is herditary (my grandma has

> osteoprosis and

> takes foxamax); but he said no.

>

> My question is if anyone else has ever been told

> this by their

> rheumatologist? Is anyone taking a speical vitamin

> D medication to

> help make my joints/bones stronger so the RA

> doesn't damange at a

> faster rate? This is the first time I heard

> anything about Vitamin D

> levels related to my RA.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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Sorry it took so long to respond I have been coming home from work and going to

sleep, cooking and then going back to sleep so I am trying to get through all my

emails. My meds are lisprinol for blood pressure, albuterol for asthma,

flexaril and gabapentin (neorontin) for fibro, prednisone, leflunomide (Arava),

tramadol (ultram) for RA, and vitamin D THis is my long list of meds what are

you on

mapgamez <mapgamez@...> wrote:

>

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