Re: Now I am REALLY discouraged AND depressed!

[Guest guest]

>

> OK. Today has not been good AT ALL. My rheumatoligist had referred

me

> to another rheumy at the Med University of SC in ton and I

> went this morning. And now all I want to do is cry.

>

> Let me start with the fact that I have had RA since 2002. I have

been

> seperately diagnosed by 3 different primary doctors an addition to

my

> local rheumatologist. This " doctor " today felt like I didn't have

RA.

> She said she felt like I had fibromyalgia, possibly lupus, possibly

> scleroderma and more than likely a sleeping disorder. She DID run a

> lot of bloodwork which I am glad because blood tests don't lie.

Other

> than my shoulders, hands & feet, I was actually having a good day

> today. Oh and " since I am double jointed, that can cause joint

> problems. "

>

> Fibro had been mentioned to me a couple of years ago but I have had

> lupus tests run - all negative in the past. I don't sleep well

> because of the pain that she " brushed off " . With my shoulders

alone,

> I have dislocated both a total of 5 times, have 4 pins in one and a

> fracture to the other. Then just had all of the other wonderful

aches

> and pains. She doesn't believe in pain meds, doesn't prescribe

them,

> and doesn't prescribe sleeping aids. She told me this all up front -

> I never asked for anything. Although I was going to, but not after

> she said that. She wants me to go to a sleep clinic. I don't have a

> disorder!!!!! and I am jsut so ticked that I wasted money and time

> with this woman.

>

> I don't know where else to turn and I am probably the most

> discouraged I have ever been. And I am a naturally happy person but

I

> feel like somebody punched me in the stomach at this point. I did

> NOT walk in there wanting a bunch of pills, etc. And I want to make

> myself clear on that as I know doctors have to be really careful.

All

> I want is to get on something that minimizes & addresses the real

> problem but until a doctor comes up with a treatment plan that I

can

> tolerate, exactly what am I supposed to do about the pain???? I am

in

> pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> med's (and I am talking, throat closing up, hives, face swollen) OR

I

> had severe side effects. Rituxan was the only drug I tollerated,

> however, there was no real change in my condition. That is why he

> released me and referred me to the university. He has kept me on

> prednisone, percocet (I have never had more than 2 - 5mg in one

day!)

> & ambien until I could see her.

>

> I know I have to wait for the bloodwork to prove her wrong and I

> realize that there's a possiblity that I could have something else

in

> addition to RA. BUT - I didn't even like her! She was stiff - no

bed

> side manner and cold. She pitched a fit to sign my renewal form for

a

> handicap placecard! She said " I didn't need it " . I said, well I

guess

> you didn't notice the very noticable limp I have. I never, ever

take

> advantage of the thing, but when I need it, I need it. She totally

> blew me off and that really pissed me off. I don't even know where

to

> go from here. I live in a relatively small town - with only 2

> rheumy's in town. One is a well known quack and the other one was

the

> one that had been my doctor. The thought of having to find yet

> another doctor and go thru the same garbage is just depressing. I

> can't beleive how she shrugged off my pain and my symptoms. I

wasn't

> about to ask her for a thing the way she treated me and this is

> supposed to be some great wonderful teaching hospital????? I think

> she should go BACK to school and learn a few more things.

>

> Does anyone have any suggestions on finding a good doctor in the

> South/East? I live in South Carolina. I can't afford to have a ton

of

> expensive visits and walk away feeling like I feel right now. This

> has really put a bad taste in my mouth not to mention the fact that

I

> am really depressed now. Several hundred dollars right down the

tube.

> Although I wouldn't go back to her if she was the last doctor on

the

> planet, I am looking forward to proving her wrong.

> Thank you so much for just listening

>

i would contact the medical society of sc and explin to them what

happened today tell them the drs name and i would report her when you

are in pain unless they have it they have no idea i then would ask

for someonelse call your old rheumy and tell him maybe he will have

somebody else he knows brenda

[Guest guest]

I hate when Drs act like that, unfortunately there are still so many out

there who do not believe that we are sick and need pain relief. She is a

jack *$ & #. I know it may be hard but you need to find a different Dr. Is

there possible another one in a near town that may even be linked to the

Ununiversity? You also might try a D.O. they usually are more prone to

listening. Remember that even if the blood work comes back Neg that does not

mean you don't have RA. Make them do an MRI to diagnose it.

Heidi M

On Feb 7, 2008 5:52 PM, ltdavis_jrdavis <ltdavis_jrdavis@...> wrote:

> OK. Today has not been good AT ALL. My rheumatoligist had referred me

> to another rheumy at the Med University of SC in ton and I

> went this morning. And now all I want to do is cry.

>

> Let me start with the fact that I have had RA since 2002. I have been

> seperately diagnosed by 3 different primary doctors an addition to my

> local rheumatologist. This " doctor " today felt like I didn't have RA.

> She said she felt like I had fibromyalgia, possibly lupus, possibly

> scleroderma and more than likely a sleeping disorder. She DID run a

> lot of bloodwork which I am glad because blood tests don't lie. Other

> than my shoulders, hands & feet, I was actually having a good day

> today. Oh and " since I am double jointed, that can cause joint

> problems. "

>

> Fibro had been mentioned to me a couple of years ago but I have had

> lupus tests run - all negative in the past. I don't sleep well

> because of the pain that she " brushed off " . With my shoulders alone,

> I have dislocated both a total of 5 times, have 4 pins in one and a

> fracture to the other. Then just had all of the other wonderful aches

> and pains. She doesn't believe in pain meds, doesn't prescribe them,

> and doesn't prescribe sleeping aids. She told me this all up front -

> I never asked for anything. Although I was going to, but not after

> she said that. She wants me to go to a sleep clinic. I don't have a

> disorder!!!!! and I am jsut so ticked that I wasted money and time

> with this woman.

>

> I don't know where else to turn and I am probably the most

> discouraged I have ever been. And I am a naturally happy person but I

> feel like somebody punched me in the stomach at this point. I did

> NOT walk in there wanting a bunch of pills, etc. And I want to make

> myself clear on that as I know doctors have to be really careful. All

> I want is to get on something that minimizes & addresses the real

> problem but until a doctor comes up with a treatment plan that I can

> tolerate, exactly what am I supposed to do about the pain???? I am in

> pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> med's (and I am talking, throat closing up, hives, face swollen) OR I

> had severe side effects. Rituxan was the only drug I tollerated,

> however, there was no real change in my condition. That is why he

> released me and referred me to the university. He has kept me on

> prednisone, percocet (I have never had more than 2 - 5mg in one day!)

> & ambien until I could see her.

>

> I know I have to wait for the bloodwork to prove her wrong and I

> realize that there's a possiblity that I could have something else in

> addition to RA. BUT - I didn't even like her! She was stiff - no bed

> side manner and cold. She pitched a fit to sign my renewal form for a

> handicap placecard! She said " I didn't need it " . I said, well I guess

> you didn't notice the very noticable limp I have. I never, ever take

> advantage of the thing, but when I need it, I need it. She totally

> blew me off and that really pissed me off. I don't even know where to

> go from here. I live in a relatively small town - with only 2

> rheumy's in town. One is a well known quack and the other one was the

> one that had been my doctor. The thought of having to find yet

> another doctor and go thru the same garbage is just depressing. I

> can't beleive how she shrugged off my pain and my symptoms. I wasn't

> about to ask her for a thing the way she treated me and this is

> supposed to be some great wonderful teaching hospital????? I think

> she should go BACK to school and learn a few more things.

>

> Does anyone have any suggestions on finding a good doctor in the

> South/East? I live in South Carolina. I can't afford to have a ton of

> expensive visits and walk away feeling like I feel right now. This

> has really put a bad taste in my mouth not to mention the fact that I

> am really depressed now. Several hundred dollars right down the tube.

> Although I wouldn't go back to her if she was the last doctor on the

> planet, I am looking forward to proving her wrong.

> Thank you so much for just listening

>

>

>

[Guest guest]

oh my goodness that must have been terrible for you. i'm sorry you

had to go through that. iknow how it is to have someone think you are

faking and it is frustrating. you have alot more will power than i do

i would have said something. as for the sleeping aid. i take unisom

it is the best OTC sleep aid i have tried so far. don't let it get to

you. happiness helps alot with RA and right now it sounds like you

need it. sometimes i like to escape in a good book

-Liz

>

> OK. Today has not been good AT ALL. My rheumatoligist had referred

me

> to another rheumy at the Med University of SC in ton and I

> went this morning. And now all I want to do is cry.

>

> Let me start with the fact that I have had RA since 2002. I have

been

> seperately diagnosed by 3 different primary doctors an addition to

my

> local rheumatologist. This " doctor " today felt like I didn't have

RA.

> She said she felt like I had fibromyalgia, possibly lupus, possibly

> scleroderma and more than likely a sleeping disorder. She DID run a

> lot of bloodwork which I am glad because blood tests don't lie.

Other

> than my shoulders, hands & feet, I was actually having a good day

> today. Oh and " since I am double jointed, that can cause joint

> problems. "

>

> Fibro had been mentioned to me a couple of years ago but I have had

> lupus tests run - all negative in the past. I don't sleep well

> because of the pain that she " brushed off " . With my shoulders

alone,

> I have dislocated both a total of 5 times, have 4 pins in one and a

> fracture to the other. Then just had all of the other wonderful

aches

> and pains. She doesn't believe in pain meds, doesn't prescribe

them,

> and doesn't prescribe sleeping aids. She told me this all up front -

> I never asked for anything. Although I was going to, but not after

> she said that. She wants me to go to a sleep clinic. I don't have a

> disorder!!!!! and I am jsut so ticked that I wasted money and time

> with this woman.

>

> I don't know where else to turn and I am probably the most

> discouraged I have ever been. And I am a naturally happy person but

I

> feel like somebody punched me in the stomach at this point. I did

> NOT walk in there wanting a bunch of pills, etc. And I want to make

> myself clear on that as I know doctors have to be really careful.

All

> I want is to get on something that minimizes & addresses the real

> problem but until a doctor comes up with a treatment plan that I

can

> tolerate, exactly what am I supposed to do about the pain???? I am

in

> pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> med's (and I am talking, throat closing up, hives, face swollen) OR

I

> had severe side effects. Rituxan was the only drug I tollerated,

> however, there was no real change in my condition. That is why he

> released me and referred me to the university. He has kept me on

> prednisone, percocet (I have never had more than 2 - 5mg in one

day!)

> & ambien until I could see her.

>

> I know I have to wait for the bloodwork to prove her wrong and I

> realize that there's a possiblity that I could have something else

in

> addition to RA. BUT - I didn't even like her! She was stiff - no

bed

> side manner and cold. She pitched a fit to sign my renewal form for

a

> handicap placecard! She said " I didn't need it " . I said, well I

guess

> you didn't notice the very noticable limp I have. I never, ever

take

> advantage of the thing, but when I need it, I need it. She totally

> blew me off and that really pissed me off. I don't even know where

to

> go from here. I live in a relatively small town - with only 2

> rheumy's in town. One is a well known quack and the other one was

the

> one that had been my doctor. The thought of having to find yet

> another doctor and go thru the same garbage is just depressing. I

> can't beleive how she shrugged off my pain and my symptoms. I

wasn't

> about to ask her for a thing the way she treated me and this is

> supposed to be some great wonderful teaching hospital????? I think

> she should go BACK to school and learn a few more things.

>

> Does anyone have any suggestions on finding a good doctor in the

> South/East? I live in South Carolina. I can't afford to have a ton

of

> expensive visits and walk away feeling like I feel right now. This

> has really put a bad taste in my mouth not to mention the fact that

I

> am really depressed now. Several hundred dollars right down the

tube.

> Although I wouldn't go back to her if she was the last doctor on

the

> planet, I am looking forward to proving her wrong.

> Thank you so much for just listening

>

[Guest guest]

> >

> > OK. Today has not been good AT ALL. My rheumatoligist had

referred

> me

> > to another rheumy at the Med University of SC in ton and I

> > went this morning. And now all I want to do is cry.

> >

> > Let me start with the fact that I have had RA since 2002. I have

> been

> > seperately diagnosed by 3 different primary doctors an addition

to

> my

> > local rheumatologist. This " doctor " today felt like I didn't have

> RA.

> > She said she felt like I had fibromyalgia, possibly lupus,

possibly

> > scleroderma and more than likely a sleeping disorder. She DID run

a

> > lot of bloodwork which I am glad because blood tests don't lie.

> Other

> > than my shoulders, hands & feet, I was actually having a good day

> > today. Oh and " since I am double jointed, that can cause joint

> > problems. "

> >

> > Fibro had been mentioned to me a couple of years ago but I have

had

> > lupus tests run - all negative in the past. I don't sleep well

> > because of the pain that she " brushed off " . With my shoulders

> alone,

> > I have dislocated both a total of 5 times, have 4 pins in one and

a

> > fracture to the other. Then just had all of the other wonderful

> aches

> > and pains. She doesn't believe in pain meds, doesn't prescribe

> them,

> > and doesn't prescribe sleeping aids. She told me this all up

front -

>

> > I never asked for anything. Although I was going to, but not

after

> > she said that. She wants me to go to a sleep clinic. I don't have

a

> > disorder!!!!! and I am jsut so ticked that I wasted money and

time

> > with this woman.

> >

> > I don't know where else to turn and I am probably the most

> > discouraged I have ever been. And I am a naturally happy person

but

> I

> > feel like somebody punched me in the stomach at this point. I

did

> > NOT walk in there wanting a bunch of pills, etc. And I want to

make

> > myself clear on that as I know doctors have to be really careful.

> All

> > I want is to get on something that minimizes & addresses the real

> > problem but until a doctor comes up with a treatment plan that I

> can

> > tolerate, exactly what am I supposed to do about the pain???? I

am

> in

> > pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> > NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> > med's (and I am talking, throat closing up, hives, face swollen)

OR

> I

> > had severe side effects. Rituxan was the only drug I tollerated,

> > however, there was no real change in my condition. That is why he

> > released me and referred me to the university. He has kept me on

> > prednisone, percocet (I have never had more than 2 - 5mg in one

> day!)

> > & ambien until I could see her.

> >

> > I know I have to wait for the bloodwork to prove her wrong and I

> > realize that there's a possiblity that I could have something

else

> in

> > addition to RA. BUT - I didn't even like her! She was stiff - no

> bed

> > side manner and cold. She pitched a fit to sign my renewal form

for

> a

> > handicap placecard! She said " I didn't need it " . I said, well I

> guess

> > you didn't notice the very noticable limp I have. I never, ever

> take

> > advantage of the thing, but when I need it, I need it. She

totally

> > blew me off and that really pissed me off. I don't even know

where

> to

> > go from here. I live in a relatively small town - with only 2

> > rheumy's in town. One is a well known quack and the other one was

> the

> > one that had been my doctor. The thought of having to find yet

> > another doctor and go thru the same garbage is just depressing. I

> > can't beleive how she shrugged off my pain and my symptoms. I

> wasn't

> > about to ask her for a thing the way she treated me and this is

> > supposed to be some great wonderful teaching hospital????? I

think

> > she should go BACK to school and learn a few more things.

> >

> > Does anyone have any suggestions on finding a good doctor in the

> > South/East? I live in South Carolina. I can't afford to have a

ton

> of

> > expensive visits and walk away feeling like I feel right now.

This

> > has really put a bad taste in my mouth not to mention the fact

that

> I

> > am really depressed now. Several hundred dollars right down the

> tube.

> > Although I wouldn't go back to her if she was the last doctor on

> the

> > planet, I am looking forward to proving her wrong.

> > Thank you so much for just listening

> >

> i would contact the medical society of sc and explin to them what

> happened today tell them the drs name and i would report her when

you

> are in pain unless they have it they have no idea i then would ask

> for someonelse call your old rheumy and tell him maybe he will have

> somebody else he knows brenda

>

How long have you been on prednisone (5 mg twice a day)? I've been

on that dose for 1 month so far and really need it.

Tom

[Guest guest]

Tom,

I have been on the prednisone for about 4 years.

> > >

> > > OK. Today has not been good AT ALL. My rheumatoligist had

> referred

> > me

> > > to another rheumy at the Med University of SC in ton and

I

> > > went this morning. And now all I want to do is cry.

> > >

> > > Let me start with the fact that I have had RA since 2002. I

have

> > been

> > > seperately diagnosed by 3 different primary doctors an addition

> to

> > my

> > > local rheumatologist. This " doctor " today felt like I didn't

have

> > RA.

> > > She said she felt like I had fibromyalgia, possibly lupus,

> possibly

> > > scleroderma and more than likely a sleeping disorder. She DID

run

> a

> > > lot of bloodwork which I am glad because blood tests don't lie.

> > Other

> > > than my shoulders, hands & feet, I was actually having a good

day

> > > today. Oh and " since I am double jointed, that can cause joint

> > > problems. "

> > >

> > > Fibro had been mentioned to me a couple of years ago but I have

> had

> > > lupus tests run - all negative in the past. I don't sleep well

> > > because of the pain that she " brushed off " . With my shoulders

> > alone,

> > > I have dislocated both a total of 5 times, have 4 pins in one

and

> a

> > > fracture to the other. Then just had all of the other wonderful

> > aches

> > > and pains. She doesn't believe in pain meds, doesn't prescribe

> > them,

> > > and doesn't prescribe sleeping aids. She told me this all up

> front -

> >

> > > I never asked for anything. Although I was going to, but not

> after

> > > she said that. She wants me to go to a sleep clinic. I don't

have

> a

> > > disorder!!!!! and I am jsut so ticked that I wasted money and

> time

> > > with this woman.

> > >

> > > I don't know where else to turn and I am probably the most

> > > discouraged I have ever been. And I am a naturally happy person

> but

> > I

> > > feel like somebody punched me in the stomach at this point. I

> did

> > > NOT walk in there wanting a bunch of pills, etc. And I want to

> make

> > > myself clear on that as I know doctors have to be really

careful.

> > All

> > > I want is to get on something that minimizes & addresses the

real

> > > problem but until a doctor comes up with a treatment plan that

I

> > can

> > > tolerate, exactly what am I supposed to do about the pain???? I

> am

> > in

> > > pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> > > NSAID's, Enbrel, Humira and Rituxan. I was either allergic to

the

> > > med's (and I am talking, throat closing up, hives, face

swollen)

> OR

> > I

> > > had severe side effects. Rituxan was the only drug I

tollerated,

> > > however, there was no real change in my condition. That is why

he

> > > released me and referred me to the university. He has kept me

on

> > > prednisone, percocet (I have never had more than 2 - 5mg in one

> > day!)

> > > & ambien until I could see her.

> > >

> > > I know I have to wait for the bloodwork to prove her wrong and

I

> > > realize that there's a possiblity that I could have something

> else

> > in

> > > addition to RA. BUT - I didn't even like her! She was stiff -

no

> > bed

> > > side manner and cold. She pitched a fit to sign my renewal form

> for

> > a

> > > handicap placecard! She said " I didn't need it " . I said, well I

> > guess

> > > you didn't notice the very noticable limp I have. I never, ever

> > take

> > > advantage of the thing, but when I need it, I need it. She

> totally

> > > blew me off and that really pissed me off. I don't even know

> where

> > to

> > > go from here. I live in a relatively small town - with only 2

> > > rheumy's in town. One is a well known quack and the other one

was

> > the

> > > one that had been my doctor. The thought of having to find yet

> > > another doctor and go thru the same garbage is just depressing.

I

> > > can't beleive how she shrugged off my pain and my symptoms. I

> > wasn't

> > > about to ask her for a thing the way she treated me and this is

> > > supposed to be some great wonderful teaching hospital????? I

> think

> > > she should go BACK to school and learn a few more things.

> > >

> > > Does anyone have any suggestions on finding a good doctor in

the

> > > South/East? I live in South Carolina. I can't afford to have a

> ton

> > of

> > > expensive visits and walk away feeling like I feel right now.

> This

> > > has really put a bad taste in my mouth not to mention the fact

> that

> > I

> > > am really depressed now. Several hundred dollars right down the

> > tube.

> > > Although I wouldn't go back to her if she was the last doctor

on

> > the

> > > planet, I am looking forward to proving her wrong.

> > > Thank you so much for just listening

> > >

> > i would contact the medical society of sc and explin to them what

> > happened today tell them the drs name and i would report her when

> you

> > are in pain unless they have it they have no idea i then would

ask

> > for someonelse call your old rheumy and tell him maybe he will

have

> > somebody else he knows brenda

> >

>

>

> How long have you been on prednisone (5 mg twice a day)? I've been

> on that dose for 1 month so far and really need it.

>

> Tom

>