Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Dear , I am new to the group and will introduce myself by telling one of our stories. We have 3 daughters, 2 of whom developed iatrogenic bipolar disorder. This is about our youngest as she is in crisis, and therefore, so are we as her primary support system. Our 24 year old daughter has been off all meds for iatrogenic bipolar disorder for 6 months now after doing a careful taper off depakote, cymbalta and had been prescribed other drugs over a 13 year period. We are fans of Whitaker and she has with our support been working to withdraw from all the stuff she was on for the past 2 years and think this time she was successful. She has always been careful about eating organic foods, watching additives, and exercising. She is now having trouble sleeping and having " flashbacks " from real trauma and its subsequent emotional flooding: she would be described as manic by western medicine, so we are keeping her away from doctors. She is not ready to do EMDR therapy, doesn't trust therapist right now and wants to get in touch with her own guidance. We have her in a calm, low stim environment, (she will not be going to school this term) where we can support her. She has been using a combination of supplements while she tapered of meds: some we learned about from a naturopath: Lithium orotate 5-10 mg TID along with 500 mg of l-tryptophan as needed, 500 gaba prn and l-theanine 200 mg do help relax her, and melatonin in 3 mg pills up to 3 at a time, but does not get her to the point of sleep. In this agitated state, we are going to try to get back her ability to do meditation. 50 mg of benadryl gets her to sleep for 4 hours--but the side effects are unacceptable, and so she doesn't want to take that. (very thirsty, dry mouth, feels worse upon awakening) We are being guided by her, as even though she is experiencing an overload, I can see she is getting in touch with her inner wisdom and really doesn't want to be taking anything, which I agree. However, we found that lowering the doses of any of the supplements seems to make things worse, or at least doesn't help. Not being able to sleep is the current crisis. She is now asleep with the help of lorazapam 1 mg, 3 mg melatonin, 500 l-tryptophan and 10 mg lithium orotate. She has always refused to take any benzos and has never been on them--this was only an emergency measure, and will not be repeated unless we absolutely must, and I am wondering if it is okay as a short term measure. I also found a website that suggested massive doses of l-tryptophan, 10 mg melatonin bid along with injectable 50 mg of benadryl (which we won't be doing--I am not a nurse). I am hopeful you can suggest which supplements are actually helping her to sleep and which might not be necessary/doing harm and if there are other measures to help slow her thoughts down so she can sleep. Please be gentle with your response as I am frightened and don't want to raise my anxiety levels which will only add to hers, if you know what I mean: she is so wide open right now, and frankly, so am I. I also need my sleep and don't want to feel more anxious than I do. My husband and I are supporting her through this time and know we are fortunate in that we have this kind of relationship and that she trusts us. We are truly grateful to have arrived at this point in her life as there were times we thought we might lose her and we can see the health in her current state and are reassuring to her as she recovers from her diagnosis that she is NOT crazy, or manic, or bipolar. What horrors the affair between psychiatry and big pharma has wrought in so many lives. If you need more specifics, we will need to do that at another time when she is capable of filling out forms, as I do not recall all the s*!@# she has been on, but suffice it to say she got all the way down to geodon, the " medicine " of last resort. Thank you and best wishes to you in your new venture. Blessings,ptmom333 >> ** This is my short response. As a result, it leaves out much of what I'm thinking at this time. This information is all helpful but given how many drugs she's been on and that she's already discontinued them and is now needing to " rebalance " , it is not a case I'd touch using this form of communication. She could not be served well that way. It would have to be done ass a private consultation. It's not that important to recall ALL the drugs and when, it is more important to know the last batch of drugs that were all discontinued for the purpose of recovery. From what you wrote here ( " careful taper off depakote, cymbalta... " ) it looks like this is something you may be able to do yourself. At first glance here's what jumps out at me: -- Sleep is ALWAYS elusive after discontinuing psych drugs -- Though it's been 6 months,this is very early recovery and for the most part, an extended " withdrawal " period -- Most of what she has been given (at minimum Lithium orotate l-tryptophan as needed, gaba prn, and melatonin) are highly inappropriate and contribute to the ongoing imbalance. The problem with most naturopaths, chiropractors, and other alt practitioners is that they accept all the premises put forth by conventional medicine and the drug industry and merely substitute " natural " substances in place of the pharmaceutical drugs. This is doomed to fail because the premises are false. They are designed to give credibility to the drugs in order to sell them. There are other things contributing to the sleep issue beside the things listed above that I won't go into at this time. I'm confident I can help but we need to communicate in a way that facilitates in-depth communication and allows for the natural flow of conversation. My suggestion would be for you to fill out the form as best you can making sure to note anywhere where you are uncertain of what you're saying. Then send it to me along with some days and times of availability (please include your time zone). Then, we can plan to get on the phone and begin properly addressing the difficulties. I'm confident that I can help you. Here's a link to the folder with the consultation info and personal history form: http://health.groups.yahoo.com/group/Withdrawal_and_Recovery/files I want to also address your concern mentioned when you said: " Please be gentle with your response as I am frightened and don't want to raise my anxiety levels which will only add to hers, if you know what I mean: she is so wide open right now, and frankly, so am I. I also need my sleep and don't want to feel more anxious than I do. " ** If this is literally how careful I have to be, I am not the person for you. First and foremost, I'm very good at what I do. But, I've NEVER been the best communicator. Trust me when I say I've worked on it and remain working on it, but I am realistic and know I'm never going to reach the point of being called " gentle " . I'm an Aries, my brain is constantly " on " , I'm tremendously busy 24/7/365, it takes me forever to type (I do barely 26 wpm accurately), I have very poor eyesight (legally blind) and have unremitting chronic pain that makes it very difficult to sit at the computer. I'm an intense person. It seems to go with the territory of what I do. I couldn't do it for as long as I have if I didn't have the level of fire and passion that I do. This is my nature; it's not going to change. For the most part the times I get annoyed are the times I'm being repeatedly asked the same questions by the same person. I have so much to do, I'm years behind in doing it so cannot bear to have my time spent repeating myself. I am biased toward action and have found that clients with the same bias are the clients who do very well in recovery from the drugs. I'm perfectly capable of being " gentle " in a normal situation. There are people here who can tell you that. What you feel online often is my intensity, some of which is driven by pain and time constraints. Bottom line -- as I said, I'm very good at what I do. I have no illusions that I can be all things to all people. What people have to tolerate for my knowledge and ability is my intensity. Each person has to decide if it's worth it. I can tell you though that it is quite a bit different on the phone in a consultation because I'm not sitting in pain typing 26wpm and looking at the next 40 emails I have to answer tonight. It is your time and your time alone when time is booked. This substantially changes the dynamic. I hope I've clarified some things for you. If you have any questions please ask away. There is no doubt in my mind that we can restore some balance to your daughter's system. [i held off posting your link until I can review it. I post very few links on this list and I never post any links without reviewing them.] One more note, please make some paragraphs when you write. It's impossible for a fast reader to read what you wrote above. One has to slow down substantially to read it. Also, those with nervous system problems cannot read all those words jumbled together. All you have to do is hit ENTER 2x after every 4-5 sentences or where it makes sense to you. The customary way is to create a new paragraph when the subject shifts. I don't car how you choose to do it as long as you do it. Regards, Quote Link to comment Share on other sites More sharing options...
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