Re: Does the pain EVER end?

[Guest guest]

Kami, have you tried Aleve or Advil? You need to let your doctor know you

need something for pain so you can get through your day with out sleeping it

away ! If he puts you on and NSAID, it can take up to two weeks before you

feel it's affects, it needs to get built up in your system. If you use

Advil/aleve, do the liquid gels, they work faster. Can you take Tylenol? I

use the fast release ones, but I tend to stay away from it, since I am on

other meds that can affect your liver, and Tylenol will too in large doses,

with the Aleve or Advil it does work pretty quickly! The plaquenil may not

be the right med for you, there are many more meds you can take, and you

also need to let your doctor know it is not working, you are paying your co

pay to sit there and not get what you need to get through your day!!!He is

working for you, so tell him what you need and expect !!!! Nicely of course,

but be firm! I make a list of what I want to tell my doctors , so I get my

money's worth !!!! LOL

Debbie A

Have a great day !

-- [ ] Does the pain EVER end?

Wow... I am seriously in a bad mood so bear with me. I am so mad at this

disease it is not even funny. Combine that with switching doctors and not

being sure what to do at this time because of that fact.... All I know is...

I am in pain. It was mainly in my hands but now I am having pain in my neck

and hips. I am so confused. Is this the RA, the fibro or something else?

I have been on Plaquenil since December 29. Shouldn't I be noticing SOME

effect from it? Shouldn't my symptoms be getting BETTER and not worse?

I am not scheduled to see my new doctor again until the 19th. I am afraid to

call and ask for something for pain because of this reason. I am newly

diagnosed with RA but was diagnosed with Fibro in 2001. I do have a

prescription for Vicodin but honestly, all that does is knock me out. I need

something to keep this pain at bay and be able to FUNCTION on a daily basis.

Is this what life is going to be like for me on a daily basis? Seriously....

Life is starting to SUCK and I don't know HOW I am going to cope. I spent an

hour in therapy on Monday crying over this.... It seems as if life as I knew

it is over. I realize I can't have that life back but I would like to find

out how I can cope with THIS life..... *sigh* I feel as if I am grieving

that old life....

I'm pissed...I'm sad.... I just don't know WHAT to do!!!!!!!!!!!!

©x© Kami ©x©

[Guest guest]

Kami,

Don't give on the Plaquenil yet. It can take up to 6 months to start working.

I was started on it at the end of November, it it is just now starting to work.

I take Ultram (Tramadol) for pain during the day and it has been a lifesaver.

I am an RN and on my feet all day. I have mild Lupus and RA and suffer from

frequent hip and shoulder bursitis. Combined with Tylenol during flares, it

works wonderfully.

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Kami,

My doc says the same as . The Plaquenil takes a while to build up in your

system. I also take Naproxen, folic acid and Mtx. I've had 4 cortisone shots

since December but that is probably all I'll be able to get for a while. They

just buy time until the others kick in.

Jere

Re: [ ] Does the pain EVER end?

Kami,

Don't give on the Plaquenil yet. It can take up to 6 months to start working.

I was started on it at the end of November, it it is just now starting to work.

I take Ultram (Tramadol) for pain during the day and it has been a lifesaver.

I am an RN and on my feet all day. I have mild Lupus and RA and suffer from

frequent hip and shoulder bursitis. Combined with Tylenol during flares, it

works wonderfully.

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Hi Kami!

I've had Fibro since 2000 and the RA came a few years

later. My FMS hurts every single day no matter what I

do. With the RA, it took my Plaquenil a few months to

begin working. It needs to build up in your system.

And even then, I needed another medication added,

Sulfasalazine and that took a few more months to build

up. Then we needed to increase the dosage as it was

not enough. Even being on those medications, I still

feel pain. I try to remind myself of children that

were born with illness and had to struggle throughout

their lives. Of those with juvenile RA who never knew

a pain free day. Of Reeve being in

extreme pain and yet working 15 hours or more a day to

even be able to take a step again. This helps me feel

a little more brave when I am feeling overwhelmed.

Perhaps there is something your doctor can give you

until this pain can subside some? Do you take Ultram

for your Fibro? I began taking the new Ultram ER just

a few months ago to help some. Good luck:) I hope the

pain subsides soon

--- ~ Kami ~ <kamilleon@...> wrote:

> Wow... I am seriously in a bad mood so bear with me.

> I am so mad at this disease it is not even funny.

> Combine that with switching doctors and not being

> sure what to do at this time because of that

> fact.... All I know is.... I am in pain. It was

> mainly in my hands but now I am having pain in my

> neck and hips. I am so confused. Is this the RA, the

> fibro or something else?

>

> I have been on Plaquenil since December 29.

> Shouldn't I be noticing SOME effect from it?

> Shouldn't my symptoms be getting BETTER and not

> worse?

>

> I am not scheduled to see my new doctor again until

> the 19th. I am afraid to call and ask for something

> for pain because of this reason. I am newly

> diagnosed with RA but was diagnosed with Fibro in

> 2001. I do have a prescription for Vicodin but

> honestly, all that does is knock me out. I need

> something to keep this pain at bay and be able to

> FUNCTION on a daily basis.

>

> Is this what life is going to be like for me on a

> daily basis? Seriously.... Life is starting to SUCK

> and I don't know HOW I am going to cope. I spent an

> hour in therapy on Monday crying over this.... It

> seems as if life as I knew it is over. I realize I

> can't have that life back but I would like to find

> out how I can cope with THIS life..... *sigh* I feel

> as if I am grieving that old life....

>

> I'm pissed...I'm sad.... I just don't know WHAT to

> do!!!!!!!!!!!!

>

>

> ©x© Kami ©x©

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

There's good news and bad news.

The bad news is:

it is always going to hurt.

The good news is:

you get used to it.

The mind and body are

amazing miracles and

if you choose a positive attitude

(this is making me a stronger, wiser person)

you eventually get used to the pain.

No matter what you do

it's going to hurt so

go on out and

live it up.

Good Luck

Shauna

>

> Wow... I am seriously in a bad mood so bear with me. I am so mad at

this disease it is not even funny. Combine that with switching

doctors and not being sure what to do at this time because of that

fact.... All I know is.... I am in pain. It was mainly in my hands

but now I am having pain in my neck and hips. I am so confused. Is

this the RA, the fibro or something else?

>

> I have been on Plaquenil since December 29. Shouldn't I be noticing

SOME effect from it? Shouldn't my symptoms be getting BETTER and not

worse?

>

> I am not scheduled to see my new doctor again until the 19th. I am

afraid to call and ask for something for pain because of this reason.

I am newly diagnosed with RA but was diagnosed with Fibro in 2001. I

do have a prescription for Vicodin but honestly, all that does is

knock me out. I need something to keep this pain at bay and be able

to FUNCTION on a daily basis.

>

> Is this what life is going to be like for me on a daily basis?

Seriously.... Life is starting to SUCK and I don't know HOW I am

going to cope. I spent an hour in therapy on Monday crying over

this.... It seems as if life as I knew it is over. I realize I can't

have that life back but I would like to find out how I can cope with

THIS life..... *sigh* I feel as if I am grieving that old life....

>

> I'm pissed...I'm sad.... I just don't know WHAT to do!!!!!!!!!!!!

>

>

> ©x© Kami ©x©

>

>

>