Re: minocycline anyone?

[Guest guest]

> I tried to ask this question before and perhaps I missed a response.  Is

> anyone else on

> Minocycline?

>

I tried it for a few months and got sicker than ever. That's how I got

diagnosed with myasthenia gravis. Antibiotics tend to make us MG'ers worse. It

did

not help my RA. When the doc tells you it's a Herxheimer reaction, listen to

your gut feelings about feeling bad. Same thing happened with plaquenil. I felt

worse. That also reacts negatively with MG.

My philosophy has been to research meds and try the best choices and keep

plugging away until something works. I'm still looking ;-p I LOVED ivig, but

at

$18,000 every three weeks, my insurance company didn't.

the Wanderer

On the road in an ancient RV and also living in a (GASP) apartment in Florida

http://wendyusuallywanders.wordpress.com/

You give but little when you give of your possessions.

It is when you give of yourself that you truly give.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

,

I have just started reading about the AP using Minocycline. My rheumatologist

has used it in the past for the treatment of RA. I don't have an appointment

for 2 months, but it does sound interesting.

---------------------------------

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[Guest guest]

I will start off by saying I have not taken it. However, once they figure out

what is causing some odd symptoms, my RD is going to write me a script for it.

I have been on all the biologics except Rituxin, a laundry list of other

medicines, but never antibiotic therapy. I refuse to take Rituxin because I

have BAD BAD BAD reactions with anything with murine proteins, and Rituxin has

murine protein in it. My RD says some patients have had some success with mino,

but nothing overwhelmingly positive. I have seen posts from patients who swear

by it, others have typical antibiotic related side effects. Another one of

those your mileage may vary drugs.

I look forward to reading the posts on this since I should be on mino before

too long too right along with you.

Shandi

savannahhipchick <lfriedman5@...> wrote:

Hi everybody,

I tried to ask this question before and perhaps I missed a response. Is anyone

else on

Minocycline? I saw Dr. Trentham last week and got an RX for minocycline. I just

has 2 hip

replacements form OA and I'm afraid of infection due to chemo. Am I crazy to try

minocycline first? My RF is only a few points above normal.

I'm a flight attendant and I hope I can return to work. My feet have been

bothering me and I

am very worried so any input is appreciated. Thanks.

---------------------------------

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[Guest guest]

I am not currently taking mimocin but have used it the past. I got some

positive response from it for the first several months then it seemed less and

it was messing with my stomach so I stopped it. A year or so later I tried it

again and seemed to see some improvement but again it messed up my stomach to

the point that I stopped it again.

wsm311@... wrote:

> I tried to ask this question before and perhaps I missed a response. Is

> anyone else on

> Minocycline?

>

I tried it for a few months and got sicker than ever. That's how I got

diagnosed with myasthenia gravis. Antibiotics tend to make us MG'ers worse. It

did

not help my RA. When the doc tells you it's a Herxheimer reaction, listen to

your gut feelings about feeling bad. Same thing happened with plaquenil. I felt

worse. That also reacts negatively with MG.

My philosophy has been to research meds and try the best choices and keep

plugging away until something works. I'm still looking ;-p I LOVED ivig, but at

$18,000 every three weeks, my insurance company didn't.

the Wanderer

On the road in an ancient RV and also living in a (GASP) apartment in Florida

http://wendyusuallywanders.wordpress.com/

You give but little when you give of your possessions.

It is when you give of yourself that you truly give.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I forgot to add that an added bonus was that during the time i used minocin

(over the course of 2 winters) I did not even get a cold or my usual round of

bronchits. This winter I was not taking it and had bronchitis that lasted about

2 months and 3 rounds of antibiotic and going off enbrel to finally clear it.

linda

Boyd <lindagb52@...> wrote: I am not currently taking

mimocin but have used it the past. I got some positive response from it for the

first several months then it seemed less and it was messing with my stomach so I

stopped it. A year or so later I tried it again and seemed to see some

improvement but again it messed up my stomach to the point that I stopped it

again.

wsm311@... wrote:

> I tried to ask this question before and perhaps I missed a response. Is

> anyone else on

> Minocycline?

>

I tried it for a few months and got sicker than ever. That's how I got

diagnosed with myasthenia gravis. Antibiotics tend to make us MG'ers worse. It

did

not help my RA. When the doc tells you it's a Herxheimer reaction, listen to

your gut feelings about feeling bad. Same thing happened with plaquenil. I felt

worse. That also reacts negatively with MG.

My philosophy has been to research meds and try the best choices and keep

plugging away until something works. I'm still looking ;-p I LOVED ivig, but at

$18,000 every three weeks, my insurance company didn't.

the Wanderer

On the road in an ancient RV and also living in a (GASP) apartment in Florida

http://wendyusuallywanders.wordpress.com/

You give but little when you give of your possessions.

It is when you give of yourself that you truly give.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489