Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi All, My name is . I am 24 and I was diagnosed with RA in Oct. 2005. Since then I really havn't been able to find an effective treatment. I just moved recently and am starting over with new doctors, and I am soooo frusterated with that! As I am sure everyone can relate. I live in Southern California (Temecula Valley). Currently I am waiting on my HMO to get my refferal through, so I can start seeing a Rheumatologist again. So far I have only been on NSAID's which actually caused more swelling, and am not taking anything right now. My PCP suggested a DMARD, but I am not sure if I should because I havn't had children yet, and plan to soon. Still kinda confused about everything. I do have a question for everyone though (and a bit of a WHINE)? Does anyone else feel like they are progressivly dieing some days? I recently just started having increased pain, which doesn't bother me too much, but the fatigue makes me feel like I am a cancer patient or something. I am so overwhelmingly tired some days I just loose hope. I don't know what to do. Since I just moved I am looking for a job, but some days I feel like I couldn't even have a job because I am so tired! Thanks all. I hope to make some buddies, so I can have people to talk to that can relate. It's hard, especially when your family ( and even my doctor) don't realize what I am going through. Best Wishes to Everyone! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hey and welcome, I am 27 years old and I too live in the SoCal area (Rancho Cucamonga). Right now I am on short term disability and I really don't know how people work having RA. I was diagnosed this past July. I have a little boy that gets me going in the morning and some days I feel normal--then by the end of the day it seems like my whole body starts to flare up. I know that through out the day I need to take mini-breaks and it seems to work. Once you find the right doctor hopefully things will get better. Take care, laurenrosepeters <laurenrosepeters@...> wrote: Hi All, My name is . I am 24 and I was diagnosed with RA in Oct. 2005. Since then I really havn't been able to find an effective treatment. I just moved recently and am starting over with new doctors, and I am soooo frusterated with that! As I am sure everyone can relate. I live in Southern California (Temecula Valley). Currently I am waiting on my HMO to get my refferal through, so I can start seeing a Rheumatologist again. So far I have only been on NSAID's which actually caused more swelling, and am not taking anything right now. My PCP suggested a DMARD, but I am not sure if I should because I havn't had children yet, and plan to soon. Still kinda confused about everything. I do have a question for everyone though (and a bit of a WHINE)? Does anyone else feel like they are progressivly dieing some days? I recently just started having increased pain, which doesn't bother me too much, but the fatigue makes me feel like I am a cancer patient or something. I am so overwhelmingly tired some days I just loose hope. I don't know what to do. Since I just moved I am looking for a job, but some days I feel like I couldn't even have a job because I am so tired! Thanks all. I hope to make some buddies, so I can have people to talk to that can relate. It's hard, especially when your family ( and even my doctor) don't realize what I am going through. Best Wishes to Everyone! - --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 --- In , andrea hecht <dreahecht@...> wrote: > > Hey and welcome, > I am 27 years old and I too live in the SoCal area (Rancho Cucamonga). Right now I am on short term disability and I really don't know how people work having RA. I was diagnosed this past July. I have a little boy that gets me going in the morning and some days I feel normal--then by the end of the day it seems like my whole body starts to flare up. I know that through out the day I need to take mini-breaks and it seems to work. Once you find the right doctor hopefully things will get better. > Take care, > > > laurenrosepeters <laurenrosepeters@...> wrote: Hi All, > My name is . I am 24 and I was diagnosed with RA in Oct. 2005. > Since then I really havn't been able to find an effective treatment. > I just moved recently and am starting over with new doctors, and I am > soooo frusterated with that! As I am sure everyone can relate. I live > in Southern California (Temecula Valley). Currently I am waiting on > my HMO to get my refferal through, so I can start seeing a > Rheumatologist again. So far I have only been on NSAID's which > actually caused more swelling, and am not taking anything right now. > My PCP suggested a DMARD, but I am not sure if I should because I > havn't had children yet, and plan to soon. Still kinda confused about > everything. I do have a question for everyone though (and a bit of a > WHINE)? > > Does anyone else feel like they are progressivly dieing some days? I > recently just started having increased pain, which doesn't bother me > too much, but the fatigue makes me feel like I am a cancer patient or > something. I am so overwhelmingly tired some days I just loose hope. > I don't know what to do. Since I just moved I am looking for a job, > but some days I feel like I couldn't even have a job because I am so > tired! > > Thanks all. I hope to make some buddies, so I can have people to talk > to that can relate. It's hard, especially when your family ( and even > my doctor) don't realize what I am going through. > > Best Wishes to Everyone! > - > hi lauren & welcome!my name is MELYNDA & i live in texas.ive had ra since i was 5yrs old.yes sometimes people just dont know what we go through every day of our lives.hang in there,god bless you!!!melynda gamez > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi - I will agree with u on that idea that sometimes I just think I have some hidden thing taking my life away from me, as my pain is so bad, in odd areas, and fatigue, tiredness, and the lack of energy to even talk to people exspecially those who don't understand, and say oh, just suck it up!, that drains what little energy I do have right out of me. I though have decided if I have something other then ,mine is Fibromyalgia ,which are u sure u may not also have? well I will just have to wait and see, I have had cancer run rapid through my family since 2000, and it scares me, like u when your so darn drained and in pain these thoughts enter the mind, but I think don't worry, you are in a new area, change causes these illnesses to do weird things, you would never expect. I am a bit older then you but think I was ill back in my 20's only then Dr.'s really thought, it was a troubled relationship, hyperchondriac etc. and would not further look, I also just moved from Mass. 3hrs away to ME. and don't want to let go of my Rheumi and Primary they are so nice, sympathetic, smart, and have done all they could do get me diagnoised they always believed in my symptoms, I have continued to keep them, but am overdue with my appts. because snowstorms have had me cancel x3 and now they wonder if I should not get Dr.'s up here, I have the same issue u are going through I don't want to take the last 5yrs of my care to someone new and start over, and they may not have the same patience my now Dr. have, But hey listen I lived out in Ca. for 18yrs, and have a daughter in Sacto., I visit, I have had to make ER visits while out visiting! But I lived down So.Ca also and there are some smart Dr. out there you should be fine once established, just find someway to keep in communication with the group, or join a group that meets out there, stay busy with your mind if you can't physically to keep the dying thoughts abay, I have learned that, as I no longer can work and this is new and very hard for me to accept, I have always loved my work and worked 60+ hrs a week and this was my therapy I thought push through the pain well it was the wrong way and the Dr. had warned me to slow down, now I am applying for SSD. good luck and u take care and I am sure you'll do well once your familiar with your surroundings. Sharon andrea hecht <dreahecht@...> wrote: Hey and welcome, I am 27 years old and I too live in the SoCal area (Rancho Cucamonga). Right now I am on short term disability and I really don't know how people work having RA. I was diagnosed this past July. I have a little boy that gets me going in the morning and some days I feel normal--then by the end of the day it seems like my whole body starts to flare up. I know that through out the day I need to take mini-breaks and it seems to work. Once you find the right doctor hopefully things will get better. Take care, laurenrosepeters <laurenrosepeters@...> wrote: Hi All, My name is . I am 24 and I was diagnosed with RA in Oct. 2005. Since then I really havn't been able to find an effective treatment. I just moved recently and am starting over with new doctors, and I am soooo frusterated with that! As I am sure everyone can relate. I live in Southern California (Temecula Valley). Currently I am waiting on my HMO to get my refferal through, so I can start seeing a Rheumatologist again. So far I have only been on NSAID's which actually caused more swelling, and am not taking anything right now. My PCP suggested a DMARD, but I am not sure if I should because I havn't had children yet, and plan to soon. Still kinda confused about everything. I do have a question for everyone though (and a bit of a WHINE)? Does anyone else feel like they are progressivly dieing some days? I recently just started having increased pain, which doesn't bother me too much, but the fatigue makes me feel like I am a cancer patient or something. I am so overwhelmingly tired some days I just loose hope. I don't know what to do. Since I just moved I am looking for a job, but some days I feel like I couldn't even have a job because I am so tired! Thanks all. I hope to make some buddies, so I can have people to talk to that can relate. It's hard, especially when your family ( and even my doctor) don't realize what I am going through. Best Wishes to Everyone! - --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi , Welcome! Please whine, It makes me feel normal for some bizarre reason. haha. I went to see a doctor to get some time off work so I could collect SDI benefits and they all made me feel crazy. THREE!!!! people asked me when I was going to feel like going back to work. And I said Why dont YOU tell ME?!? I cant figure this damn disease out. But I can figure out that I can hardly bath my daughter without my hands being out of commision for three hours. So I had a really BAD day, and it feels great to get on here and know that I am not alone. There are so many people on here going through what I am going through, it makes me wonder why it is so baffeling that I feel like crap to my doctor. Thanks for all the support and I hope everyone sleeps without pain tonight. Thats what Im hoping for. sharon studley <seescallop@...> wrote: Hi - I will agree with u on that idea that sometimes I just think I have some hidden thing taking my life away from me, as my pain is so bad, in odd areas, and fatigue, tiredness, and the lack of energy to even talk to people exspecially those who don't understand, and say oh, just suck it up!, that drains what little energy I do have right out of me. I though have decided if I have something other then ,mine is Fibromyalgia ,which are u sure u may not also have? well I will just have to wait and see, I have had cancer run rapid through my family since 2000, and it scares me, like u when your so darn drained and in pain these thoughts enter the mind, but I think don't worry, you are in a new area, change causes these illnesses to do weird things, you would never expect. I am a bit older then you but think I was ill back in my 20's only then Dr.'s really thought, it was a troubled relationship, hyperchondriac etc. and would not further look, I also just moved from Mass. 3hrs away to ME. and don't want to let go of my Rheumi and Primary they are so nice, sympathetic, smart, and have done all they could do get me diagnoised they always believed in my symptoms, I have continued to keep them, but am overdue with my appts. because snowstorms have had me cancel x3 and now they wonder if I should not get Dr.'s up here, I have the same issue u are going through I don't want to take the last 5yrs of my care to someone new and start over, and they may not have the same patience my now Dr. have, But hey listen I lived out in Ca. for 18yrs, and have a daughter in Sacto., I visit, I have had to make ER visits while out visiting! But I lived down So.Ca also and there are some smart Dr. out there you should be fine once established, just find someway to keep in communication with the group, or join a group that meets out there, stay busy with your mind if you can't physically to keep the dying thoughts abay, I have learned that, as I no longer can work and this is new and very hard for me to accept, I have always loved my work and worked 60+ hrs a week and this was my therapy I thought push through the pain well it was the wrong way and the Dr. had warned me to slow down, now I am applying for SSD. good luck and u take care and I am sure you'll do well once your familiar with your surroundings. Sharon andrea hecht <dreahecht@...> wrote: Hey and welcome, I am 27 years old and I too live in the SoCal area (Rancho Cucamonga). Right now I am on short term disability and I really don't know how people work having RA. I was diagnosed this past July. I have a little boy that gets me going in the morning and some days I feel normal--then by the end of the day it seems like my whole body starts to flare up. I know that through out the day I need to take mini-breaks and it seems to work. Once you find the right doctor hopefully things will get better. Take care, laurenrosepeters <laurenrosepeters@...> wrote: Hi All, My name is . I am 24 and I was diagnosed with RA in Oct. 2005. Since then I really havn't been able to find an effective treatment. I just moved recently and am starting over with new doctors, and I am soooo frusterated with that! As I am sure everyone can relate. I live in Southern California (Temecula Valley). Currently I am waiting on my HMO to get my refferal through, so I can start seeing a Rheumatologist again. So far I have only been on NSAID's which actually caused more swelling, and am not taking anything right now. My PCP suggested a DMARD, but I am not sure if I should because I havn't had children yet, and plan to soon. Still kinda confused about everything. I do have a question for everyone though (and a bit of a WHINE)? Does anyone else feel like they are progressivly dieing some days? I recently just started having increased pain, which doesn't bother me too much, but the fatigue makes me feel like I am a cancer patient or something. I am so overwhelmingly tired some days I just loose hope. I don't know what to do. Since I just moved I am looking for a job, but some days I feel like I couldn't even have a job because I am so tired! Thanks all. I hope to make some buddies, so I can have people to talk to that can relate. It's hard, especially when your family ( and even my doctor) don't realize what I am going through. Best Wishes to Everyone! - --------------------------------- Looking for last minute shopping deals? Find them fast with Search. 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Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 , Awesome! Good to know someone, in my area and age group that is in the same boat as me. I am not working right now (i'm on unemployment), and have a real hard time wrapping my head around going back to work. The job that I HAD was perfect, I worked from home and made a high hourly wage and made my own hours, which were usually only about 20 hrs, so it worked with my RA. Since my company (which is non-profit) is virtually out of business now, I can't imagine haveing to work twice as hard to earn the same income. It's so discouraging. My family just keep telling me to " man-up " , but they don't understand. I really need to find a good doctor first. I think that is what it boils down to. I need to start feeling better and then a job won't seem so dauting. I have also been thinking about having children too, and I don't know how that is going to work? Yikes! Your little boy give you motivation though, right? More than some stupid job ever would; I'd think. Maybe hubby just needs to make more money, and my solution is to be a Mommy??? Thanks for your thoughts. Warm Wishes, > > Hey and welcome, > I am 27 years old and I too live in the SoCal area (Rancho Cucamonga). Right now I am on short term disability and I really don't know how people work having RA. I was diagnosed this past July. I have a little boy that gets me going in the morning and some days I feel normal--then by the end of the day it seems like my whole body starts to flare up. I know that through out the day I need to take mini-breaks and it seems to work. Once you find the right doctor hopefully things will get better. > Take care, > > > laurenrosepeters <laurenrosepeters@...> wrote: Hi All, > My name is . I am 24 and I was diagnosed with RA in Oct. 2005. > Since then I really havn't been able to find an effective treatment. > I just moved recently and am starting over with new doctors, and I am > soooo frusterated with that! As I am sure everyone can relate. I live > in Southern California (Temecula Valley). Currently I am waiting on > my HMO to get my refferal through, so I can start seeing a > Rheumatologist again. So far I have only been on NSAID's which > actually caused more swelling, and am not taking anything right now. > My PCP suggested a DMARD, but I am not sure if I should because I > havn't had children yet, and plan to soon. Still kinda confused about > everything. I do have a question for everyone though (and a bit of a > WHINE)? > > Does anyone else feel like they are progressivly dieing some days? I > recently just started having increased pain, which doesn't bother me > too much, but the fatigue makes me feel like I am a cancer patient or > something. I am so overwhelmingly tired some days I just loose hope. > I don't know what to do. Since I just moved I am looking for a job, > but some days I feel like I couldn't even have a job because I am so > tired! > > Thanks all. I hope to make some buddies, so I can have people to talk > to that can relate. It's hard, especially when your family ( and even > my doctor) don't realize what I am going through. > > Best Wishes to Everyone! > - > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Sharon, Thanks for the thoughts and support. I am in the phase now where all my doctors think I am a hypochondriac. It is so frusterating, and just adds to my symptoms. I actually noticed that I feel better when I don't see the doctor (mentally at least). I know I need to find someone soon, so I can re-establish some type of life. I think I need to take a more agressive approach with my medicines, even though it sort of scares me. I appreciate your input, more than you know! Kindest Regards, Hi All, > My name is . I am 24 and I was diagnosed with RA in Oct. 2005. > Since then I really havn't been able to find an effective treatment. > I just moved recently and am starting over with new doctors, and I am > soooo frusterated with that! As I am sure everyone can relate. I live > in Southern California (Temecula Valley). Currently I am waiting on > my HMO to get my refferal through, so I can start seeing a > Rheumatologist again. So far I have only been on NSAID's which > actually caused more swelling, and am not taking anything right now. > My PCP suggested a DMARD, but I am not sure if I should because I > havn't had children yet, and plan to soon. Still kinda confused about > everything. I do have a question for everyone though (and a bit of a > WHINE)? > > Does anyone else feel like they are progressivly dieing some days? I > recently just started having increased pain, which doesn't bother me > too much, but the fatigue makes me feel like I am a cancer patient or > something. I am so overwhelmingly tired some days I just loose hope. > I don't know what to do. Since I just moved I am looking for a job, > but some days I feel like I couldn't even have a job because I am so > tired! > > Thanks all. I hope to make some buddies, so I can have people to talk > to that can relate. It's hard, especially when your family ( and even > my doctor) don't realize what I am going through. > > Best Wishes to Everyone! > - > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 hi lauren my name is sara and i am new to this group as well and i have ra and fibromyalgia i can understand what you are going through sometimes i think if i didn't have my pain medication i think i could just die right there. i get really tired all the time as well, i feel like i am soooooo tired i could sleep all the time but i have a five year old child home with me all the time until sept 08. i am disabled now i have been since sept 06 but i was diagnosed in june 05 i went through five rheumatologists until i found one who understood my pain and was gentle with me. we finally found a medication to help but it makes me sick all the time so i might have to stop the meds. can you believe it we finally found something that works. i also found out just lately that my prognosis is not good it looks like i am going to have to live with my mother forever, i am a single parent, and have noone else to help except her. and right now we aren;t getting along too well. and my doctor tells me that its not a good idea for me to live on my own. so i have to stay here i am only 38 and i feel like i just got a life sentence so to speak. if it wasn't for my daughter i don't think i would live with this pain everyday forever with noone who understands what i mean when i say i hurt everywhere and it won't stop even with pain meds. well enough of my whining i hope we can become friends i have good ears write me anytime sara Hi All, > > My name is . I am 24 and I was diagnosed with RA in Oct. > 2005. > > Since then I really havn't been able to find an effective > treatment. > > I just moved recently and am starting over with new doctors, and > I am > > soooo frusterated with that! As I am sure everyone can relate. I > live > > in Southern California (Temecula Valley). Currently I am waiting > on > > my HMO to get my refferal through, so I can start seeing a > > Rheumatologist again. So far I have only been on NSAID's which > > actually caused more swelling, and am not taking anything right > now. > > My PCP suggested a DMARD, but I am not sure if I should because > I > > havn't had children yet, and plan to soon. Still kinda confused > about > > everything. I do have a question for everyone though (and a bit > of a > > WHINE)? > > > > Does anyone else feel like they are progressivly dieing some > days? I > > recently just started having increased pain, which doesn't > bother me > > too much, but the fatigue makes me feel like I am a cancer > patient or > > something. I am so overwhelmingly tired some days I just loose > hope. > > I don't know what to do. Since I just moved I am looking for a > job, > > but some days I feel like I couldn't even have a job because I > am so > > tired! > > > > Thanks all. I hope to make some buddies, so I can have people to > talk > > to that can relate. It's hard, especially when your family ( and > even > > my doctor) don't realize what I am going through. > > > > Best Wishes to Everyone! > > - > > hi lauren & welcome!my name is MELYNDA & i live in texas.ive had ra > since i was 5yrs old.yes sometimes people just dont know what we go > through every day of our lives.hang in there,god bless you!!!melynda > gamez > > > > > > > > > > > > --------------------------------- > > Looking for last minute shopping deals? Find them fast with > Search. > > > > Quote Link to comment Share on other sites More sharing options...
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