Treatment data base was...... Most important priorities for prostate cancer research

[Guest guest]

,

You will no doubt be aware that I have

been posting such stories on my site for some years now - we have almost 500 'live'

ones and would have more but for the fact that some men are not prepared to

update their stories, or change e-mail addresses and are uncontactable.

It is interesting to note that when I

first mooted this idea it was heavily criticized by some Listers because it

would unduly influence men into making the 'wrong' decision. It seems however

that many men find the stories of some use, especially as they are indexed by

age, PSA and Gleason Score at diagnosis as well as date of diagnosis and

treatment chosen. The main index is at http://www.yananow.net/Experiences.html#index

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers :

" As a physician, I am painfully aware that most of the decisions we make

with regard to prostate cancer are made with inadequate data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Carpenter

Sent: Monday, 21 July 2008 11:45

PM

To: Jon Nowlin

Cc: PROSTATE@...; ProstateCancerSupport ;

iceballs@...; PC-ACT ;

newdx@...; ww@...; ebrt@...;

SurvivingPCaWithoutSurgery

Subject:

Most important priorities for prostate cancer research

Hi Jon,

Most important priority: IT (information technology).

We have tens of thousands of patients who want to contribute,

who are keeping diaries (or can easily be motivated to do so),

and are willing to share their medical histories and personal

stories. Let's harness them.

Imagine the power of a database with 50,000 detailed entries.

Imagine a newly diagnosed 64-year-old with cT2b cGS7=3+4

being able to see a compendium of 1500 other cTb cGS7=3+4

65-ish men and how they fared on various treatments and AS.