RE: IMRT

[Guest guest]

> Today I had my 4th IMRT session out of a total of 42 planned.

> I would appreciate hearing from others about the side efects they have,

> short and long term. My Gleason 6, staging T1C.

Well, as I say so often, what I experience is utterly irrelevant to what

anyone else might experience. We are all different.

Having said that, I'll say this: The earliest SE for me was a bit of

reddening and itching, like a minor sunburn, on the skin over the site

of the prostate. A nurse gave me a salve, " Aquaphor. " Worked like a charm.

Brief fecal urge incontinence, manageable, no accidents.

Now, three years later, zero problems. Caveat: some claim later

impotence. I don't know about that, as I was already impotent from the

only feature of my earlier cryotherapy that actually performed as

advertised.

Here is a thorough essay on IMRT:

http://www.prostate-cancer.org/education/localdis/Chaiken_IMRT.html

Good luck.

Regards,

Steve J

[Guest guest]

,

As Steve J says, individual reactions are

varied, but you might like read the experiences of almost 30 men who had EBRT

(External Beam Radiation Therapy) including IMRT (Intensity Modulated Radiation

Therapy) with the earliest being diagnosed in 1993. the stories are indexed

here http://www.yananow.net/Experiences.html#ebrt

and most of the men would be happy to provide further information if you mail

them.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of and

Sent: Saturday, 9 August 2008 8:37

AM

To: ProstateCancerSupport

Subject:

IMRT

Today I had my 4th IMRT session out of a total of 42

planned.

I would appreciate hearing from others about the side efects they have,

short and long term. My Gleason 6, staging T1C. Thanks.

[Guest guest]

Hi All,

My husband has 4 IMRT treatments left which will total 42. He has only had a few side effect so far. Frequent urination, especially at night. He had just a couple of days of rectal bleeding and it stopped. He has been very fatigued, but he is also on Hormone Therapy and hopefully only for 6 more months. But the doctors think the fatigue is from the hormones and not the IMRT even though it could be adding to it. We are finally seeing light at the end of the tunnel. Well, at least as far as treatments go. He will have to have his PSA checked out every 6 months, the doctor said for 10 years. Also from the hormones he is experiencing hot flashes but he is handling it very well so far. All in all he is doing well. They did blood work every two weeks and his levels stayed with in normal limits.I would get a copy myself and to keep a record. I've saved a lot of information and have pasted it on to, to many already. We are coming across more and more people that we

know how have developed Prostate Cancer. It's sad.

If anyone has any questions feel free to ask.

Best Wishes to All,

Sheila

-------------- Original message --------------

> Today I had my 4th IMRT session out of a total of 42 planned.> I would appreciate hearing from others about the side efects they have,> short and long term. My Gleason 6, staging T1C. Well, as I say so often, what I experience is utterly irrelevant to what anyone else might experience. We are all different.Having said that, I'll say this: The earliest SE for me was a bit of reddening and itching, like a minor sunburn, on the skin over the site of the prostate. A nurse gave me a salve, "Aquaphor." Worked like a charm.Brief fecal urge incontinence, manageable, no accidents.Now, three years later, zero problems. Caveat: some claim later impotence. I don't know about that, as I was already impotent from the only feature of my earlier cryotherapy that actually performed as advertised.Here is a thorough essay on IMRT: http://www.prostate-cancer.org/education/localdis/Chaiken_IMRT.htmlGood luck.Regards,Steve J

[Guest guest]

Hi All,

My husband has 4 IMRT treatments left which will total 42. He has only had a few side effect so far. Frequent urination, especially at night. He had just a couple of days of rectal bleeding and it stopped. He has been very fatigued, but he is also on Hormone Therapy and hopefully only for 6 more months. But the doctors think the fatigue is from the hormones and not the IMRT even though it could be adding to it. We are finally seeing light at the end of the tunnel. Well, at least as far as treatments go. He will have to have his PSA checked out every 6 months, the doctor said for 10 years. Also from the hormones he is experiencing hot flashes but he is handling it very well so far. All in all he is doing well. They did blood work every two weeks and his levels stayed with in normal limits.I would get a copy myself and to keep a record. I've saved a lot of information and have pasted it on to, to many already. We are coming across more and more people that we

know how have developed Prostate Cancer. It's sad.

If anyone has any questions feel free to ask.

Best Wishes to All,

Sheila

-------------- Original message --------------

> Today I had my 4th IMRT session out of a total of 42 planned.> I would appreciate hearing from others about the side efects they have,> short and long term. My Gleason 6, staging T1C. Well, as I say so often, what I experience is utterly irrelevant to what anyone else might experience. We are all different.Having said that, I'll say this: The earliest SE for me was a bit of reddening and itching, like a minor sunburn, on the skin over the site of the prostate. A nurse gave me a salve, "Aquaphor." Worked like a charm.Brief fecal urge incontinence, manageable, no accidents.Now, three years later, zero problems. Caveat: some claim later impotence. I don't know about that, as I was already impotent from the only feature of my earlier cryotherapy that actually performed as advertised.Here is a thorough essay on IMRT: http://www.prostate-cancer.org/education/localdis/Chaiken_IMRT.htmlGood luck.Regards,Steve J

[Guest guest]

Terry,

I tried the link you provided but it did not yield the list of patients with

external beam treatment. The page appears to have a problem at the

end.

http://www.yananow.net/Experiences.html#ebrt

Subject: RE: IMRT

To: ProstateCancerSupport

Date: Friday, August 8, 2008, 7:48 PM

,

 

As Steve J says, individual reactions are varied, but you might like read the

experiences of almost 30 men who had EBRT (External Beam Radiation Therapy)

including IMRT (Intensity Modulated Radiation Therapy) with the earliest being

diagnosed in 1993. the stories are indexed here http://www.yananow.

net/Experiences. html#ebrt and most of the men would be happy to provide further

information if you mail them.

 

 

All the best

 

Terry Herbert

I have no medical qualifications but I was diagnosed in ‘96: and have learned

a bit since then.

My sites are at www.yananow. net  and www.prostatecancerw atchfulwaiting.

co.za 

Dr “Snuffy†Myers : " As a physician, I am painfully aware that most

of the decisions we make with regard to prostate cancer are made with inadequate

data "

 

From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto: ProstateCancerSuppo

rtyahoogroups (DOT) com ] On Behalf Of and

Sent: Saturday, 9 August 2008 8:37 AM

To: ProstateCancerSuppo rtyahoogroups (DOT) com

Subject: [ProstateCancerSupp ort] IMRT

 

Today I had my 4th IMRT session out of a total of 42 planned.

I would appreciate hearing from others about the side efects they have,

short and long term. My Gleason 6, staging T1C. Thanks.

[Guest guest]

, It is loading for me – try this http://www.yananow.net/Experiences.html

and page down to Radiation:External Beam or if that doesn’t work, try going to http://www.yananow.net/choices.htm

paging down and then clicking on External Beam Radiation – you will see another

link there to the page. It is a big page and takes some time to download.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers :

" As a physician, I am painfully aware that most of the decisions we make

with regard to prostate cancer are made with inadequate data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Oxy Moronic

Sent: Saturday, 9 August 2008 3:05

PM

To: ProstateCancerSupport

Subject: RE:

IMRT

Terry,

I tried the link you provided but it did not yield the list of patients with

external beam treatment. The page appears to have a problem at the

end.

http://www.yananow.net/Experiences.html#ebrt

From: Terry Herbert <ghenesh_49optusnet.au>

Subject: RE: IMRT

To: ProstateCancerSupport

Date: Friday, August 8, 2008, 7:48 PM

,

As Steve J says, individual reactions are varied, but you might like read the

experiences of almost 30 men who had EBRT (External Beam Radiation Therapy)

including IMRT (Intensity Modulated Radiation Therapy) with the earliest being

diagnosed in 1993. the stories are indexed here http://www.yananow.

net/Experiences. html#ebrt and most of the men would be happy to provide

further information if you mail them.

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed in ‘96: and have learned a

bit since then.

My sites are at www.yananow. net and www.prostatecancerw atchfulwaiting.

co.za

Dr “Snuffy” Myers : " As a physician, I am painfully aware that

most of the decisions we make with regard to prostate cancer are made with

inadequate data "

From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto: ProstateCancerSuppo

rtyahoogroups (DOT) com ] On Behalf Of and

Sent: Saturday, 9 August 2008 8:37 AM

To: ProstateCancerSuppo rtyahoogroups (DOT) com

Subject: [ProstateCancerSupp ort] IMRT

Today I had my 4th IMRT session out of a total of 42 planned.

I would appreciate hearing from others about the side efects they have,

short and long term. My Gleason 6, staging T1C. Thanks.

[Guest guest]

Terry,

Still not able to get to the link using your suggestions, might be due to the old version

of IE6 that I am using. I was able to get there with Firefox.

From: Terry Herbert <ghenesh_49@optusnet .com.au>Subject: RE: [ProstateCancerSupp ort] IMRTTo: ProstateCancerSuppo rtyahoogroups (DOT) comDate: Friday, August 8, 2008, 7:48 PM, As Steve J says, individual

reactions are varied, but you might like read the experiences of almost 30 men who had EBRT (External Beam Radiation Therapy) including IMRT (Intensity Modulated Radiation Therapy) with the earliest being diagnosed in 1993. the stories are indexed here http://www.yananow. net/Experiences. html#ebrt and most of the men would be happy to provide further information if you mail them. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow. net and www.prostatecancerw atchfulwaiting. co.za Dr “Snuffy” Myers : "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data" From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:

ProstateCancerSuppo rtyahoogroups (DOT) com ] On Behalf Of and Sent: Saturday, 9 August 2008 8:37 AMTo: ProstateCancerSuppo rtyahoogroups (DOT) comSubject: [ProstateCancerSupp ort] IMRT Today I had my 4th IMRT session out of a total of 42 planned.I would appreciate hearing from others about the side efects they have, short and long term. My Gleason 6, staging T1C. Thanks.

[Guest guest]

and wrote:

> I just finished 42 IMRT sessions last Saturday. I am having

> frequent urination problems, which are especially troublesome

> during the night.

>

> I would like to hear from others who may have had the same

> problem and if things got better after a period of time.

> Thanks.

....

,

I had this problem in spades. By the end of treatment, I could

barely urinate at all, to the point where my doctor considered

putting in a catheter. But since I could get a little out, she

agreed not to. She put me on Flomax - which was essential to

me. Ibuprofen might also help, but not nearly as much as

Flomax.

For about a month after treatment I was getting up as often as

once per hour, seven times per night, to urinate. I'd get a

little out but couldn't empty the bladder because the prostate

was swollen up around the urethra and clamping it shut. Pretty

soon I had to go again.

The problem started to get noticeably better within about a

month after treatment. By three months it was significantly

better and I was cutting back on the Flomax. By five months I

was finally able to get completely off the Flomax and had

returned pretty close to normal.

In the meantime, I recommend keeping a urinal, a jar with a

tight fitting cap, or something you can urinate into handy.

Keeping one by the bed makes it possible to sit up on the edge

of the bed, urinate, and go right back to sleep with less

disruption than getting up and going to the bathroom. Keeping

one in the car saved me a couple of times on a long drive when I

couldn't make it back from work, and had no bathroom in sight.

I just pulled over to the side of the road, relieved myself, and

drove on.

I found that the one quart soup containers that they use in

Chinese carry-out restaurants have a good capacity, a wide

mouth, and a tight fitting, water tight cap. They're also easy

to clean. Another guy I know uses a laundry detergent bottle.

Almost everyone has the problem after radiation. For almost

everyone, it gets better in a reasonable period of time.

Good luck [or should I say " Good pee'ing " ].

Alan

[Guest guest]

and wrote:

> I just finished 42 IMRT sessions last Saturday. I am having

> frequent urination problems, which are especially troublesome

> during the night.

>

> I would like to hear from others who may have had the same

> problem and if things got better after a period of time.

> Thanks.

....

,

I had this problem in spades. By the end of treatment, I could

barely urinate at all, to the point where my doctor considered

putting in a catheter. But since I could get a little out, she

agreed not to. She put me on Flomax - which was essential to

me. Ibuprofen might also help, but not nearly as much as

Flomax.

For about a month after treatment I was getting up as often as

once per hour, seven times per night, to urinate. I'd get a

little out but couldn't empty the bladder because the prostate

was swollen up around the urethra and clamping it shut. Pretty

soon I had to go again.

The problem started to get noticeably better within about a

month after treatment. By three months it was significantly

better and I was cutting back on the Flomax. By five months I

was finally able to get completely off the Flomax and had

returned pretty close to normal.

In the meantime, I recommend keeping a urinal, a jar with a

tight fitting cap, or something you can urinate into handy.

Keeping one by the bed makes it possible to sit up on the edge

of the bed, urinate, and go right back to sleep with less

disruption than getting up and going to the bathroom. Keeping

one in the car saved me a couple of times on a long drive when I

couldn't make it back from work, and had no bathroom in sight.

I just pulled over to the side of the road, relieved myself, and

drove on.

I found that the one quart soup containers that they use in

Chinese carry-out restaurants have a good capacity, a wide

mouth, and a tight fitting, water tight cap. They're also easy

to clean. Another guy I know uses a laundry detergent bottle.

Almost everyone has the problem after radiation. For almost

everyone, it gets better in a reasonable period of time.

Good luck [or should I say " Good pee'ing " ].

Alan