Re: Lupron

January 13, 2002

Bonnie,

I resent the fact that you are questioning the skill of my surgeon.

I did extensive research before choosing my surgeon and made the best

choice for me. I am happy with my treatment and the care that my

doctor provided and would not change a thing if I have to repeat this

ordeal again.

Each person needs to conduct their own research and then do what they

believe is best for them. You did not take Lupron so you really

shouldn't be giving advice about it one way or another.

> > > > > > I also feel positive about taking the Lupron shot. I have

a

> > > > similar

> > > > > > experience to yours

> > > > > >

> > > > > > -- Original Message -----

> > > > > > From: " jackret2001 " <JACKRET@a...>

> > > > > > To: <uterinefibroids@y...>

> > > > > > Sent: Tuesday, January 08, 2002 8:28 AM

> > > > > > Subject: Lupron

> > > > > >

> > > > > > >

> > > > > > > I had my myo on 12/7. Prior to that I was taking the

Lupron

> > > > > > > injections for 3 months. I have read some of the post

> > > > regarding

> > > > > some

> > > > > > > of the pros/cons of this drug. I must say that I am

glad

> > > that

> > > > I

> > > > > took

> > > > > > > it before my surgery. I had 3 very large tumors

removed from

> > > > > > > the " outside " of my uterus. Two were the size of

grapefruits

> > > > and

> > > > > > > that was after the Lupron shrunk them. The doctor said

that

> > > the

> > > > > > > injection worked tremendously on me. Needless to say, I

> > > hardly

> > > > > had

> > > > > > > any blood loss which is another reason why surgeons want

> > > people

> > > > to

> > > > > > > take the shot to cut down on the blood loss. The only

side

> > > > > effects

> > > > > > > that I had while I was taking it was hotflashes and they

> > > > weren't

> > > > > that

> > > > > > > unbearable. In my case it was worth taking it. I just

works

> > > > > > > differently on everyone as does everything else. >

> > > > > > >

> > >

January 13, 2002

Bonnie,

I resent the fact that you are questioning the skill of my surgeon.

I did extensive research before choosing my surgeon and made the best

choice for me. I am happy with my treatment and the care that my

doctor provided and would not change a thing if I have to repeat this

ordeal again.

Each person needs to conduct their own research and then do what they

believe is best for them. You did not take Lupron so you really

shouldn't be giving advice about it one way or another.

> > > > > > I also feel positive about taking the Lupron shot. I have

a

> > > > similar

> > > > > > experience to yours

> > > > > >

> > > > > > -- Original Message -----

> > > > > > From: " jackret2001 " <JACKRET@a...>

> > > > > > To: <uterinefibroids@y...>

> > > > > > Sent: Tuesday, January 08, 2002 8:28 AM

> > > > > > Subject: Lupron

> > > > > >

> > > > > > >

> > > > > > > I had my myo on 12/7. Prior to that I was taking the

Lupron

> > > > > > > injections for 3 months. I have read some of the post

> > > > regarding

> > > > > some

> > > > > > > of the pros/cons of this drug. I must say that I am

glad

> > > that

> > > > I

> > > > > took

> > > > > > > it before my surgery. I had 3 very large tumors

removed from

> > > > > > > the " outside " of my uterus. Two were the size of

grapefruits

> > > > and

> > > > > > > that was after the Lupron shrunk them. The doctor said

that

> > > the

> > > > > > > injection worked tremendously on me. Needless to say, I

> > > hardly

> > > > > had

> > > > > > > any blood loss which is another reason why surgeons want

> > > people

> > > > to

> > > > > > > take the shot to cut down on the blood loss. The only

side

> > > > > effects

> > > > > > > that I had while I was taking it was hotflashes and they

> > > > weren't

> > > > > that

> > > > > > > unbearable. In my case it was worth taking it. I just

works

> > > > > > > differently on everyone as does everything else. >

> > > > > > >

> > >

January 13, 2002

I agree that there don't really seem to be good reasons to take Lupron, in my

opinion. My doctor didn't recommend it either. However, if others know of

compelling reasons why it's beneficial and worth the risks, I'd be interested

in hearing them.

There are other ways of controlling bleeding, and many doctors feel Lupron

can potentially shrink the smaller fibroids to the point that they are

undetectable and remain in the uterus after surgery. I'd prefer a doctor who

is capable of performing the surgery without it, but each of us needs to

weigh its benefits (whatever they are) against its risks.

January 13, 2002

I agree that there don't really seem to be good reasons to take Lupron, in my

opinion. My doctor didn't recommend it either. However, if others know of

compelling reasons why it's beneficial and worth the risks, I'd be interested

in hearing them.

There are other ways of controlling bleeding, and many doctors feel Lupron

can potentially shrink the smaller fibroids to the point that they are

undetectable and remain in the uterus after surgery. I'd prefer a doctor who

is capable of performing the surgery without it, but each of us needs to

weigh its benefits (whatever they are) against its risks.

January 13, 2002

I agree that there don't really seem to be good reasons to take Lupron, in my

opinion. My doctor didn't recommend it either. However, if others know of

compelling reasons why it's beneficial and worth the risks, I'd be interested

in hearing them.

There are other ways of controlling bleeding, and many doctors feel Lupron

can potentially shrink the smaller fibroids to the point that they are

undetectable and remain in the uterus after surgery. I'd prefer a doctor who

is capable of performing the surgery without it, but each of us needs to

weigh its benefits (whatever they are) against its risks.

January 13, 2002

,

I am sorry for your resentment,but I think you should re-read what I have said.

#1-Lupron has risks and some of them may add up to long term risks.I do not need

to have taken the

drug to inform myself of this The same way I don't need to take arsenic to know

that it could kill

me..I advised those on our list to look at the Lupron Victim's Network which is

very extensive and

shows-now are you ready -actually studies!! I think that might be

important for those

researching.Don't you?

#2-I am telling you that there are most definitely surgeons who will perform

abdominal myomectomies

on very large,very extensive myomas without the use of Lupron first.So,if that

is a truth,and it is

because I happened to have had such a surgeon,then wouldn't it only be logical

to question any

surgeon who can't do the same? Yes,it is logical and I believe that a woman

looking into a myomectomy

should do her best to find someone who can do a good surgery without imposing

the added risk of

Lupron.

If you are happy with your decision that's fine and I am most happy for

you,however,I will continue

to contribute to this list group in ways that are helpful to others.

Bonnie

samanthap1970 wrote:

> Bonnie,

>

> I resent the fact that you are questioning the skill of my surgeon.

> I did extensive research before choosing my surgeon and made the best

> choice for me. I am happy with my treatment and the care that my

> doctor provided and would not change a thing if I have to repeat this

> ordeal again.

>

> Each person needs to conduct their own research and then do what they

> believe is best for them. You did not take Lupron so you really

> shouldn't be giving advice about it one way or another.

>

> > > > > > > I also feel positive about taking the Lupron shot. I have

> a

> > > > > similar

> > > > > > > experience to yours

> > > > > > >

> > > > > > > -- Original Message -----

> > > > > > > From: " jackret2001 " <JACKRET@a...>

> > > > > > > To: <uterinefibroids@y...>

> > > > > > > Sent: Tuesday, January 08, 2002 8:28 AM

> > > > > > > Subject: Lupron

> > > > > > >

> > > > > > > >

> > > > > > > > I had my myo on 12/7. Prior to that I was taking the

> Lupron

> > > > > > > > injections for 3 months. I have read some of the post

> > > > > regarding

> > > > > > some

> > > > > > > > of the pros/cons of this drug. I must say that I am

> glad

> > > > that

> > > > > I

> > > > > > took

> > > > > > > > it before my surgery. I had 3 very large tumors

> removed from

> > > > > > > > the " outside " of my uterus. Two were the size of

> grapefruits

> > > > > and

> > > > > > > > that was after the Lupron shrunk them. The doctor said

> that

> > > > the

> > > > > > > > injection worked tremendously on me. Needless to say, I

> > > > hardly

> > > > > > had

> > > > > > > > any blood loss which is another reason why surgeons want

> > > > people

> > > > > to

> > > > > > > > take the shot to cut down on the blood loss. The only

> side

> > > > > > effects

> > > > > > > > that I had while I was taking it was hotflashes and they

> > > > > weren't

> > > > > > that

> > > > > > > > unbearable. In my case it was worth taking it. I just

> works

> > > > > > > > differently on everyone as does everything else. >

> > > > > > > >

> > > >

January 13, 2002

,

I am sorry for your resentment,but I think you should re-read what I have said.

#1-Lupron has risks and some of them may add up to long term risks.I do not need

to have taken the

drug to inform myself of this The same way I don't need to take arsenic to know

that it could kill

me..I advised those on our list to look at the Lupron Victim's Network which is

very extensive and

shows-now are you ready -actually studies!! I think that might be

important for those

researching.Don't you?

#2-I am telling you that there are most definitely surgeons who will perform

abdominal myomectomies

on very large,very extensive myomas without the use of Lupron first.So,if that

is a truth,and it is

because I happened to have had such a surgeon,then wouldn't it only be logical

to question any

surgeon who can't do the same? Yes,it is logical and I believe that a woman

looking into a myomectomy

should do her best to find someone who can do a good surgery without imposing

the added risk of

Lupron.

If you are happy with your decision that's fine and I am most happy for

you,however,I will continue

to contribute to this list group in ways that are helpful to others.

Bonnie

samanthap1970 wrote:

> Bonnie,

>

> I resent the fact that you are questioning the skill of my surgeon.

> I did extensive research before choosing my surgeon and made the best

> choice for me. I am happy with my treatment and the care that my

> doctor provided and would not change a thing if I have to repeat this

> ordeal again.

>

> Each person needs to conduct their own research and then do what they

> believe is best for them. You did not take Lupron so you really

> shouldn't be giving advice about it one way or another.

>

> > > > > > > I also feel positive about taking the Lupron shot. I have

> a

> > > > > similar

> > > > > > > experience to yours

> > > > > > >

> > > > > > > -- Original Message -----

> > > > > > > From: " jackret2001 " <JACKRET@a...>

> > > > > > > To: <uterinefibroids@y...>

> > > > > > > Sent: Tuesday, January 08, 2002 8:28 AM

> > > > > > > Subject: Lupron

> > > > > > >

> > > > > > > >

> > > > > > > > I had my myo on 12/7. Prior to that I was taking the

> Lupron

> > > > > > > > injections for 3 months. I have read some of the post

> > > > > regarding

> > > > > > some

> > > > > > > > of the pros/cons of this drug. I must say that I am

> glad

> > > > that

> > > > > I

> > > > > > took

> > > > > > > > it before my surgery. I had 3 very large tumors

> removed from

> > > > > > > > the " outside " of my uterus. Two were the size of

> grapefruits

> > > > > and

> > > > > > > > that was after the Lupron shrunk them. The doctor said

> that

> > > > the

> > > > > > > > injection worked tremendously on me. Needless to say, I

> > > > hardly

> > > > > > had

> > > > > > > > any blood loss which is another reason why surgeons want

> > > > people

> > > > > to

> > > > > > > > take the shot to cut down on the blood loss. The only

> side

> > > > > > effects

> > > > > > > > that I had while I was taking it was hotflashes and they

> > > > > weren't

> > > > > > that

> > > > > > > > unbearable. In my case it was worth taking it. I just

> works

> > > > > > > > differently on everyone as does everything else. >

> > > > > > > >

> > > >

January 13, 2002

,

I am sorry for your resentment,but I think you should re-read what I have said.

#1-Lupron has risks and some of them may add up to long term risks.I do not need

to have taken the

drug to inform myself of this The same way I don't need to take arsenic to know

that it could kill

me..I advised those on our list to look at the Lupron Victim's Network which is

very extensive and

shows-now are you ready -actually studies!! I think that might be

important for those

researching.Don't you?

#2-I am telling you that there are most definitely surgeons who will perform

abdominal myomectomies

on very large,very extensive myomas without the use of Lupron first.So,if that

is a truth,and it is

because I happened to have had such a surgeon,then wouldn't it only be logical

to question any

surgeon who can't do the same? Yes,it is logical and I believe that a woman

looking into a myomectomy

should do her best to find someone who can do a good surgery without imposing

the added risk of

Lupron.

If you are happy with your decision that's fine and I am most happy for

you,however,I will continue

to contribute to this list group in ways that are helpful to others.

Bonnie

samanthap1970 wrote:

> Bonnie,

>

> I resent the fact that you are questioning the skill of my surgeon.

> I did extensive research before choosing my surgeon and made the best

> choice for me. I am happy with my treatment and the care that my

> doctor provided and would not change a thing if I have to repeat this

> ordeal again.

>

> Each person needs to conduct their own research and then do what they

> believe is best for them. You did not take Lupron so you really

> shouldn't be giving advice about it one way or another.

>

> > > > > > > I also feel positive about taking the Lupron shot. I have

> a

> > > > > similar

> > > > > > > experience to yours

> > > > > > >

> > > > > > > -- Original Message -----

> > > > > > > From: " jackret2001 " <JACKRET@a...>

> > > > > > > To: <uterinefibroids@y...>

> > > > > > > Sent: Tuesday, January 08, 2002 8:28 AM

> > > > > > > Subject: Lupron

> > > > > > >

> > > > > > > >

> > > > > > > > I had my myo on 12/7. Prior to that I was taking the

> Lupron

> > > > > > > > injections for 3 months. I have read some of the post

> > > > > regarding

> > > > > > some

> > > > > > > > of the pros/cons of this drug. I must say that I am

> glad

> > > > that

> > > > > I

> > > > > > took

> > > > > > > > it before my surgery. I had 3 very large tumors

> removed from

> > > > > > > > the " outside " of my uterus. Two were the size of

> grapefruits

> > > > > and

> > > > > > > > that was after the Lupron shrunk them. The doctor said

> that

> > > > the

> > > > > > > > injection worked tremendously on me. Needless to say, I

> > > > hardly

> > > > > > had

> > > > > > > > any blood loss which is another reason why surgeons want

> > > > people

> > > > > to

> > > > > > > > take the shot to cut down on the blood loss. The only

> side

> > > > > > effects

> > > > > > > > that I had while I was taking it was hotflashes and they

> > > > > weren't

> > > > > > that

> > > > > > > > unbearable. In my case it was worth taking it. I just

> works

> > > > > > > > differently on everyone as does everything else. >

> > > > > > > >

> > > >

January 13, 2002

Yes,and 2 of the ways is to look at what is out there in terms of the negative

effects and seeing a

number of surgeons and asking WHY he/she thinks it necessary to take Lupron

pre-operatively.In other

words,cut to the chase,can he/she handle big/numerous fibroids surgically or

not.

Best,

Bonnie

lbell007@... wrote:

> I agree that there don't really seem to be good reasons to take Lupron, in my

> opinion. My doctor didn't recommend it either. However, if others know of

> compelling reasons why it's beneficial and worth the risks, I'd be interested

> in hearing them.

>

> There are other ways of controlling bleeding, and many doctors feel Lupron

> can potentially shrink the smaller fibroids to the point that they are

> undetectable and remain in the uterus after surgery. I'd prefer a doctor who

> is capable of performing the surgery without it, but each of us needs to

> weigh its benefits (whatever they are) against its risks.

>

January 13, 2002

Yes,and 2 of the ways is to look at what is out there in terms of the negative

effects and seeing a

number of surgeons and asking WHY he/she thinks it necessary to take Lupron

pre-operatively.In other

words,cut to the chase,can he/she handle big/numerous fibroids surgically or

not.

Best,

Bonnie

lbell007@... wrote:

> I agree that there don't really seem to be good reasons to take Lupron, in my

> opinion. My doctor didn't recommend it either. However, if others know of

> compelling reasons why it's beneficial and worth the risks, I'd be interested

> in hearing them.

>

> There are other ways of controlling bleeding, and many doctors feel Lupron

> can potentially shrink the smaller fibroids to the point that they are

> undetectable and remain in the uterus after surgery. I'd prefer a doctor who

> is capable of performing the surgery without it, but each of us needs to

> weigh its benefits (whatever they are) against its risks.

>

January 15, 2002

Hi ,

No body knows how fibroids start but they do know that once they

started to develop it feeds off the estrogen from your body and that

is why they grow bigger.

January 15, 2002

Hi ,

No body knows how fibroids start but they do know that once they

started to develop it feeds off the estrogen from your body and that

is why they grow bigger.

January 15, 2002

Hi ,

No body knows how fibroids start but they do know that once they

started to develop it feeds off the estrogen from your body and that

is why they grow bigger.

February 2, 2002

Fran

I was taking the Lupron shots for 5 months with very little side effects.

Some general body aches....but compared to the pain from the fibroids

......it was a very welcomed relief.

I wish you luck.

Suzanne

lupron

Hi,

I am new to the group. I have 2 large fibroids which were detected when I

was pregnant with my daughter 12 years ago. I am 43 years old and my

symptoms have gotten progressively worse. Heavy bleeding, back pain, pelvic

discomfort and pressure, frequent urination, etc. After discussing options

with my OB/GYN I have decided to do the Lupron therapy. I am not ready for

the hysterectomy and the uterine artery embolization is still in the

experimental stage. I will start the shots next week and I have much

anxiety

of the side effects. Any advice on how severe the side effects are and what

can be done to ease for them?

Fran

February 3, 2002

What are you going to do after the Lupron shots are

stopped and the fibroids and symptoms come back? From

what I have read here and elsewhere it is not

recommended to be on Lupron longer than 3 months

because of the side effects including bone loss.

--- Fkbeachtime@... wrote:

> Hi,

> I am new to the group. I have 2 large fibroids

> which were detected when I

> was pregnant with my daughter 12 years ago. I am 43

> years old and my

> symptoms have gotten progressively worse. Heavy

> bleeding, back pain, pelvic

> discomfort and pressure, frequent urination, etc.

> After discussing options

> with my OB/GYN I have decided to do the Lupron

> therapy. I am not ready for

> the hysterectomy and the uterine artery embolization

> is still in the

> experimental stage. I will start the shots next

> week and I have much anxiety

> of the side effects. Any advice on how severe the

> side effects are and what

> can be done to ease for them?

>

> Fran

>

__________________________________________________

February 3, 2002

What are you going to do after the Lupron shots are

stopped and the fibroids and symptoms come back? From

what I have read here and elsewhere it is not

recommended to be on Lupron longer than 3 months

because of the side effects including bone loss.

--- Fkbeachtime@... wrote:

> Hi,

> I am new to the group. I have 2 large fibroids

> which were detected when I

> was pregnant with my daughter 12 years ago. I am 43

> years old and my

> symptoms have gotten progressively worse. Heavy

> bleeding, back pain, pelvic

> discomfort and pressure, frequent urination, etc.

> After discussing options

> with my OB/GYN I have decided to do the Lupron

> therapy. I am not ready for

> the hysterectomy and the uterine artery embolization

> is still in the

> experimental stage. I will start the shots next

> week and I have much anxiety

> of the side effects. Any advice on how severe the

> side effects are and what

> can be done to ease for them?

>

> Fran

>

__________________________________________________

February 3, 2002

Fran,

Uterine artery embolization is not experimental. It has been around for many

years, just not as a treatment for uterine fibroids. Not every woman is a

suitable candidate for this treatment, but I wouldn't discount it out of hand as

being " experimental. " There is another list (through Yahoo) called the " embo "

list which can give you a lot more information on UAE, and I daresay there is a

Lupron list as well. I had a successful UAE. I did not take Lupron. But from

what I have learned on both this list and the embo list, your fibroids will

grown back after you stop taking Lupron, so what then?

It is not my intention to " push " UAE, as it truly is not the best solution for

everyone--and may or may not be for you--but I urge you to read more about the

treatment options available to help you decide what is best for you. Also, to

consult with doctors who perform the various treatments you are considering,

since ob/gyns don't do UAEs and some don't do myomectomies either. As has been

discussed many times on this list, doctors tend to promote the treatments they

do themselves even over less invasive procedures.

B.

lupron

Hi,

I am new to the group. I have 2 large fibroids which were detected when I

was pregnant with my daughter 12 years ago. I am 43 years old and my

symptoms have gotten progressively worse. Heavy bleeding, back pain, pelvic

discomfort and pressure, frequent urination, etc. After discussing options

with my OB/GYN I have decided to do the Lupron therapy. I am not ready for

the hysterectomy and the uterine artery embolization is still in the

experimental stage. I will start the shots next week and I have much anxiety

of the side effects. Any advice on how severe the side effects are and what

can be done to ease for them?

Fran

February 3, 2002