Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 --- Mike and Dorie Brennecke wrote: > Hi. I am returning to this list after about a 6 > month absence. I would like to know if any of you > have experience with Lupron. > > I was first diagnosed with a fibroid about 3 years > ago, through a routine pelvic exam. I was > asymptomatic at the time, so nothing was done. > Since that time, it has grown to 11 cm, or the size > of a grapefruit. My uterus is the size of a 5-month > pregnancy, and my clothes aren't fitting like they > used to. I have some excess bleeding the first 2 > days of my periods, but it isn't too extreme, and I > only feel some pressure and occasional twinges, > rather than pain. As far as they can tell from > pelvic and vaginal ultrasounds, it appears there is > only the one. My local gynecologist referred me to > a large university hospital for treatment options > because I do not want a hysterectomy. I'm 46, and > based on my mom's experience, I could easily have 8 > or 10 years before menopause. An FSH test also > showed no signs of menopause. I don't plan to have > any more kids, but that is beside the point as far > as I am concerned. I just don't want a > hysterectomy. > > I have pretty much decided to have a myomectomy in > late May or June, after school is out. The doctor I > saw this week at the university hospital has done an > average of 2-3 myomectomies per week for the past 20 > years. I feel comfortable with his expertise, and > with him personally, and he would do the surgery > himself. He has offered me the option of taking > Lupron injections to shrink the fibroid prior to > surgery, and the timing is about right to start > those injections in the next month or so, if I want > to take this medication. He said many doctors put > their myomectomy patients on this drug as a matter > of course prior to surgery, but he has no > preference, and I can choose whether or not I want > it. > > I am concerned about the severity of side effects, > and possibly shrinking any other small fibroids that > might be present, but undetected, making them harder > to find during the surgery. Also, does anyone know > if taking calcium supplements (which I do anyway) > can help to reduce the bone thinning side effect of > the drug? Has anyone experienced increased > cholesterol levels from this drug, and does the > level decrease again after the drug is stopped? > While I have these concerns, the idea of shrinking > this huge growth on my uterus sounds pretty good to > me. I can actually feel my uterus through my > abdomen. It reaches clear up to my bellybutton, it > makes my abdomen protrude, and it is hard. The > Lupron can supposedly shrink the fibroid by half, or > more, in 3 months, and the surgery would be easier > then, too. > > If any of you have experience with Lupron, I would > appreciate hearing how it worked for you. > > Thanks very much, > Dorie > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 There has been ALOT of discussion about Lupron in the past week or so. Check the archives, and make sure to read Carla's posts. --- Mike and Dorie Brennecke wrote: > Hi. I am returning to this list after about a 6 > month absence. I would like to know if any of you > have experience with Lupron. > > I was first diagnosed with a fibroid about 3 years > ago, through a routine pelvic exam. I was > asymptomatic at the time, so nothing was done. > Since that time, it has grown to 11 cm, or the size > of a grapefruit. My uterus is the size of a 5-month > pregnancy, and my clothes aren't fitting like they > used to. I have some excess bleeding the first 2 > days of my periods, but it isn't too extreme, and I > only feel some pressure and occasional twinges, > rather than pain. As far as they can tell from > pelvic and vaginal ultrasounds, it appears there is > only the one. My local gynecologist referred me to > a large university hospital for treatment options > because I do not want a hysterectomy. I'm 46, and > based on my mom's experience, I could easily have 8 > or 10 years before menopause. An FSH test also > showed no signs of menopause. I don't plan to have > any more kids, but that is beside the point as far > as I am concerned. I just don't want a > hysterectomy. > > I have pretty much decided to have a myomectomy in > late May or June, after school is out. The doctor I > saw this week at the university hospital has done an > average of 2-3 myomectomies per week for the past 20 > years. I feel comfortable with his expertise, and > with him personally, and he would do the surgery > himself. He has offered me the option of taking > Lupron injections to shrink the fibroid prior to > surgery, and the timing is about right to start > those injections in the next month or so, if I want > to take this medication. He said many doctors put > their myomectomy patients on this drug as a matter > of course prior to surgery, but he has no > preference, and I can choose whether or not I want > it. > > I am concerned about the severity of side effects, > and possibly shrinking any other small fibroids that > might be present, but undetected, making them harder > to find during the surgery. Also, does anyone know > if taking calcium supplements (which I do anyway) > can help to reduce the bone thinning side effect of > the drug? Has anyone experienced increased > cholesterol levels from this drug, and does the > level decrease again after the drug is stopped? > While I have these concerns, the idea of shrinking > this huge growth on my uterus sounds pretty good to > me. I can actually feel my uterus through my > abdomen. It reaches clear up to my bellybutton, it > makes my abdomen protrude, and it is hard. The > Lupron can supposedly shrink the fibroid by half, or > more, in 3 months, and the surgery would be easier > then, too. > > If any of you have experience with Lupron, I would > appreciate hearing how it worked for you. > > Thanks very much, > Dorie > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 There has been ALOT of discussion about Lupron in the past week or so. Check the archives, and make sure to read Carla's posts. --- Mike and Dorie Brennecke wrote: > Hi. I am returning to this list after about a 6 > month absence. I would like to know if any of you > have experience with Lupron. > > I was first diagnosed with a fibroid about 3 years > ago, through a routine pelvic exam. I was > asymptomatic at the time, so nothing was done. > Since that time, it has grown to 11 cm, or the size > of a grapefruit. My uterus is the size of a 5-month > pregnancy, and my clothes aren't fitting like they > used to. I have some excess bleeding the first 2 > days of my periods, but it isn't too extreme, and I > only feel some pressure and occasional twinges, > rather than pain. As far as they can tell from > pelvic and vaginal ultrasounds, it appears there is > only the one. My local gynecologist referred me to > a large university hospital for treatment options > because I do not want a hysterectomy. I'm 46, and > based on my mom's experience, I could easily have 8 > or 10 years before menopause. An FSH test also > showed no signs of menopause. I don't plan to have > any more kids, but that is beside the point as far > as I am concerned. I just don't want a > hysterectomy. > > I have pretty much decided to have a myomectomy in > late May or June, after school is out. The doctor I > saw this week at the university hospital has done an > average of 2-3 myomectomies per week for the past 20 > years. I feel comfortable with his expertise, and > with him personally, and he would do the surgery > himself. He has offered me the option of taking > Lupron injections to shrink the fibroid prior to > surgery, and the timing is about right to start > those injections in the next month or so, if I want > to take this medication. He said many doctors put > their myomectomy patients on this drug as a matter > of course prior to surgery, but he has no > preference, and I can choose whether or not I want > it. > > I am concerned about the severity of side effects, > and possibly shrinking any other small fibroids that > might be present, but undetected, making them harder > to find during the surgery. Also, does anyone know > if taking calcium supplements (which I do anyway) > can help to reduce the bone thinning side effect of > the drug? Has anyone experienced increased > cholesterol levels from this drug, and does the > level decrease again after the drug is stopped? > While I have these concerns, the idea of shrinking > this huge growth on my uterus sounds pretty good to > me. I can actually feel my uterus through my > abdomen. It reaches clear up to my bellybutton, it > makes my abdomen protrude, and it is hard. The > Lupron can supposedly shrink the fibroid by half, or > more, in 3 months, and the surgery would be easier > then, too. > > If any of you have experience with Lupron, I would > appreciate hearing how it worked for you. > > Thanks very much, > Dorie > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 There has been ALOT of discussion about Lupron in the past week or so. Check the archives, and make sure to read Carla's posts. --- Mike and Dorie Brennecke wrote: > Hi. I am returning to this list after about a 6 > month absence. I would like to know if any of you > have experience with Lupron. > > I was first diagnosed with a fibroid about 3 years > ago, through a routine pelvic exam. I was > asymptomatic at the time, so nothing was done. > Since that time, it has grown to 11 cm, or the size > of a grapefruit. My uterus is the size of a 5-month > pregnancy, and my clothes aren't fitting like they > used to. I have some excess bleeding the first 2 > days of my periods, but it isn't too extreme, and I > only feel some pressure and occasional twinges, > rather than pain. As far as they can tell from > pelvic and vaginal ultrasounds, it appears there is > only the one. My local gynecologist referred me to > a large university hospital for treatment options > because I do not want a hysterectomy. I'm 46, and > based on my mom's experience, I could easily have 8 > or 10 years before menopause. An FSH test also > showed no signs of menopause. I don't plan to have > any more kids, but that is beside the point as far > as I am concerned. I just don't want a > hysterectomy. > > I have pretty much decided to have a myomectomy in > late May or June, after school is out. The doctor I > saw this week at the university hospital has done an > average of 2-3 myomectomies per week for the past 20 > years. I feel comfortable with his expertise, and > with him personally, and he would do the surgery > himself. He has offered me the option of taking > Lupron injections to shrink the fibroid prior to > surgery, and the timing is about right to start > those injections in the next month or so, if I want > to take this medication. He said many doctors put > their myomectomy patients on this drug as a matter > of course prior to surgery, but he has no > preference, and I can choose whether or not I want > it. > > I am concerned about the severity of side effects, > and possibly shrinking any other small fibroids that > might be present, but undetected, making them harder > to find during the surgery. Also, does anyone know > if taking calcium supplements (which I do anyway) > can help to reduce the bone thinning side effect of > the drug? Has anyone experienced increased > cholesterol levels from this drug, and does the > level decrease again after the drug is stopped? > While I have these concerns, the idea of shrinking > this huge growth on my uterus sounds pretty good to > me. I can actually feel my uterus through my > abdomen. It reaches clear up to my bellybutton, it > makes my abdomen protrude, and it is hard. The > Lupron can supposedly shrink the fibroid by half, or > more, in 3 months, and the surgery would be easier > then, too. > > If any of you have experience with Lupron, I would > appreciate hearing how it worked for you. > > Thanks very much, > Dorie > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Well, my understanding is that the incision may be smaller and the surgery easier--for me, that is, never mind for the doctor. Primarily, though, I hate this huge lump in my abdomen--even more so now that I realize it isn't just a roll of fat! ;-) I just think I need to hear what others have to say, to know what I'd be getting into, and to help me sort out how I feel about the option. I'm rather mixed about it now. Just got the suggestion 2 days ago, and I need to think on it awhile. Thanks. Your input helps. Dorie Re: Lupron > Dorie > > I am on my second 6 month round of Lupron ... I only take it because I really > don't seem to have any other options at this time ... I am not a surgery > candidate. Lupron has some unpleasant side effects ... hot flashes, night > sweats, my hair fell out, horrible mood swings and the list goes on ... not > to mention the possible long term effects. If your doctor feels he/she can > remove the fibroid either way and has no preference ... then why take Lupron? > > Make the right decision for you -- good luck. > Jana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Hi Dorie, I was put on lupron three months before my myo. I did not have any really bad side effects from the lupron. I did have the mild headaches not to bad but the only side effect that I hated having was insomnia from the lupron. It was so bad that my family physcian put me on sleeping pills to help me sleep at night time. If I had to have a myo all over again I will use the lupron for the second time. Right now knowing the amount of blood lost I had during my myo and thinking about what would of happen if it wasn't for the lupron. I had a total of 650 millilitre of blood lost during the surgery and thinking about what the blood lost could of been if I didn't use lupron. > Hi. I am returning to this list after about a 6 month absence. I would like to know if any of you have experience with Lupron. > > I was first diagnosed with a fibroid about 3 years ago, through a routine pelvic exam. I was asymptomatic at the time, so nothing was done. Since that time, it has grown to 11 cm, or the size of a grapefruit. My uterus is the size of a 5-month pregnancy, and my clothes aren't fitting like they used to. I have some excess bleeding the first 2 days of my periods, but it isn't too extreme, and I only feel some pressure and occasional twinges, rather than pain. As far as they can tell from pelvic and vaginal ultrasounds, it appears there is only the one. My local gynecologist referred me to a large university hospital for treatment options because I do not want a hysterectomy. I'm 46, and based on my mom's experience, I could easily have 8 or 10 years before menopause. An FSH test also showed no signs of menopause. I don't plan to have any more kids, but that is beside the point as far as I am concerned. I just don't want a hysterectomy. > > I have pretty much decided to have a myomectomy in late May or June, after school is out. The doctor I saw this week at the university hospital has done an average of 2-3 myomectomies per week for the past 20 years. I feel comfortable with his expertise, and with him personally, and he would do the surgery himself. He has offered me the option of taking Lupron injections to shrink the fibroid prior to surgery, and the timing is about right to start those injections in the next month or so, if I want to take this medication. He said many doctors put their myomectomy patients on this drug as a matter of course prior to surgery, but he has no preference, and I can choose whether or not I want it. > > I am concerned about the severity of side effects, and possibly shrinking any other small fibroids that might be present, but undetected, making them harder to find during the surgery. Also, does anyone know if taking calcium supplements (which I do anyway) can help to reduce the bone thinning side effect of the drug? Has anyone experienced increased cholesterol levels from this drug, and does the level decrease again after the drug is stopped? While I have these concerns, the idea of shrinking this huge growth on my uterus sounds pretty good to me. I can actually feel my uterus through my abdomen. It reaches clear up to my bellybutton, it makes my abdomen protrude, and it is hard. The Lupron can supposedly shrink the fibroid by half, or more, in 3 months, and the surgery would be easier then, too. > > If any of you have experience with Lupron, I would appreciate hearing how it worked for you. > > Thanks very much, > Dorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi Debra, I just have been put on Lupron. I'm also scared, its only been a week and I've had only very weird headache everyday almost like I'm in a fog. It goes away with tylenol. And now I have a horrible period. Some women will be lucky and it will stop but sometimes you can get it worst the first time and then it will stop. I will probably feel more side effects as time goes on. Just remember the side effects are only temporary if you decide on Lupron, the big thing is the bone loss. My DR. told me also it will make the surgury less bloody. I was told by one Dr. to go Hysterectomey but just decided to get the tumor in my uterus removed to see if it helps with the bleeding. I don't want a hyster. but many of my friends have had them and they love it. No more periods and they are happy. I just don't feel the need for one for me. Good Luck, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi Debra, I just have been put on Lupron. I'm also scared, its only been a week and I've had only very weird headache everyday almost like I'm in a fog. It goes away with tylenol. And now I have a horrible period. Some women will be lucky and it will stop but sometimes you can get it worst the first time and then it will stop. I will probably feel more side effects as time goes on. Just remember the side effects are only temporary if you decide on Lupron, the big thing is the bone loss. My DR. told me also it will make the surgury less bloody. I was told by one Dr. to go Hysterectomey but just decided to get the tumor in my uterus removed to see if it helps with the bleeding. I don't want a hyster. but many of my friends have had them and they love it. No more periods and they are happy. I just don't feel the need for one for me. Good Luck, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi Debra, I just have been put on Lupron. I'm also scared, its only been a week and I've had only very weird headache everyday almost like I'm in a fog. It goes away with tylenol. And now I have a horrible period. Some women will be lucky and it will stop but sometimes you can get it worst the first time and then it will stop. I will probably feel more side effects as time goes on. Just remember the side effects are only temporary if you decide on Lupron, the big thing is the bone loss. My DR. told me also it will make the surgury less bloody. I was told by one Dr. to go Hysterectomey but just decided to get the tumor in my uterus removed to see if it helps with the bleeding. I don't want a hyster. but many of my friends have had them and they love it. No more periods and they are happy. I just don't feel the need for one for me. Good Luck, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 : Hi, thank you for answering my request. I went off Megace on Friday and was really hoping that I would start bleeding so I could start the injections and get started on my 3 months, but no go. Hyster. wasnt for me either over these last few years, but if I knew then what I know now about the size of my uterous and complications and that I would have had to go on Lupron, I probably would have had the surgery a year ago. I sure does pay to get informed.! Good luck to you too! Debra> > Hi Debra, I just have been put on Lupron. I'm also >scared, its only been a week and I've had only very > weird headache everyday almost like I'm in a fog. It > goes away with tylenol. And now I have a horrible > period. Some women will be lucky and it will stop but >sometimes you can get it worst the first time and then > it will stop. I will probably feel more side effects > as time goes on. Just remember the side effects are > only temporary if you decide on Lupron, the big thing > is the bone loss. My DR. told me also it will make > the surgury less bloody. I was told by one Dr. to go > Hysterectomey but just decided to get the tumor in my > uterus removed to see if it helps with the bleeding. > I don't want a hyster. but many of my friends have > had them and they love it. No more periods and they > are happy. I just don't feel the need for one for me. > Good Luck, > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 : Hi, thank you for answering my request. I went off Megace on Friday and was really hoping that I would start bleeding so I could start the injections and get started on my 3 months, but no go. Hyster. wasnt for me either over these last few years, but if I knew then what I know now about the size of my uterous and complications and that I would have had to go on Lupron, I probably would have had the surgery a year ago. I sure does pay to get informed.! Good luck to you too! Debra> > Hi Debra, I just have been put on Lupron. I'm also >scared, its only been a week and I've had only very > weird headache everyday almost like I'm in a fog. It > goes away with tylenol. And now I have a horrible > period. Some women will be lucky and it will stop but >sometimes you can get it worst the first time and then > it will stop. I will probably feel more side effects > as time goes on. Just remember the side effects are > only temporary if you decide on Lupron, the big thing > is the bone loss. My DR. told me also it will make > the surgury less bloody. I was told by one Dr. to go > Hysterectomey but just decided to get the tumor in my > uterus removed to see if it helps with the bleeding. > I don't want a hyster. but many of my friends have > had them and they love it. No more periods and they > are happy. I just don't feel the need for one for me. > Good Luck, > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 : Hi, thank you for answering my request. I went off Megace on Friday and was really hoping that I would start bleeding so I could start the injections and get started on my 3 months, but no go. Hyster. wasnt for me either over these last few years, but if I knew then what I know now about the size of my uterous and complications and that I would have had to go on Lupron, I probably would have had the surgery a year ago. I sure does pay to get informed.! Good luck to you too! Debra> > Hi Debra, I just have been put on Lupron. I'm also >scared, its only been a week and I've had only very > weird headache everyday almost like I'm in a fog. It > goes away with tylenol. And now I have a horrible > period. Some women will be lucky and it will stop but >sometimes you can get it worst the first time and then > it will stop. I will probably feel more side effects > as time goes on. Just remember the side effects are > only temporary if you decide on Lupron, the big thing > is the bone loss. My DR. told me also it will make > the surgury less bloody. I was told by one Dr. to go > Hysterectomey but just decided to get the tumor in my > uterus removed to see if it helps with the bleeding. > I don't want a hyster. but many of my friends have > had them and they love it. No more periods and they > are happy. I just don't feel the need for one for me. > Good Luck, > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Can you tell me a little more about your memory loss? Is it long term/short term, how does it affect your daily activities? I'm considering taking Lupron and I really appreciated the info you posted about it. The first thing I found on the web when I started looking for info was the Lupron Victims web site and it really has me scared. Thanks again! Lupron > Hello ladies! I just posted and I am new to this forum, but not to > Lupron. I took Lupron for 3 months last year(for treatment of > endometriosis). I had one 3 month injection. My hormones were already > reduced because of previous treatment, so I did not have any > menopausal symptoms. I did however experience extreme irratability, > memory loss, and severe joint pain. I had the shot in July of last > year, and the symptoms of memory loss and joint pain still remain. > Also, before I was put on Lupron, I had a bone density scan. A Score > of -2.0 is Osteoporosis. The score that frightened me most was a a > score of -1.6 in my lower back/hip area. I was immediately put on > Fosamax which has been described as an anti-Osteoporosis medication. > It is supposed to stop further bone loss and help rebuild the bone > that was lost. I was also instructed to take 1500mg of calcium a day > and 800IU of Vitamin D (it helps break up the calcium). Despite these > preventive measures, I still developed osteoporosis. I have been on > the Fosamax for 8 months and have a minumum of 4 more months left. So > please be very careful if you take Lupron. Demand a bone density scan > so you will know before how your bones density is and how the Lupron > has effected it. I'm only 23 and I have osteoporosis, that's still a > shock to me. > > I don't think that there is a difference in the way Lupron is used to > treat endometriosis or to shrink fibroids. Personally, I will NEVER > go back on this drug again. I know too many women who still have > symptoms that Lupron caused even years after stopping it. This drug > really terrifies me, and I don't want any woman to use it, but I > believe that's a decision that each woman has to make on her own. > Also, remember that Lupron is NOT supposed to be taken for more than > 6 months in a LIFETIME. And there have been little to no studies on > the long-term side-effects of Lupron. > I have a few sites that give a little more info on Lupron.. > First there are some articles on Lupron at www.redflagsweekly.com, > run a search for Lupron. This has been the first investigative > reporting I have seen about Lupron. There is also a website called > Lupron Victims.. I want to warn that this site was made to scare us > about Lupron. While some of the info there is very interesting, try > to keep in mind that this woman created this site basically just to > scare people away from Lupron. I know that she mentions a friend of > mine in the site, and nothing she says about her or the Endometriosis > Research Center is true.. so just a little warning > http://www.lupronvictims.com/ > > Here are some other sites that might be of interest: > http://womenshealth.about.com/library/weekly/aa050801a.htm? > terms=lupron+side+effects > http://209.64.11.10/NewDrugs/pages97/lupron.htm > http://my.webmd.com/content/asset/uspdi.202322 > Drug information > http://www.fda.gov/cder/drug/default.htm > Drugs used for endo > http://promini.medscape.com/drugdb/disease_drugs.asp? > DiseaseCode=1632 & DiseaseName=ENDOMETRIOSIS > > There are alot of other sites out there, and some that I really want > to share but can't find right now. I hope this helps some. > Love and Prayers, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Can you tell me a little more about your memory loss? Is it long term/short term, how does it affect your daily activities? I'm considering taking Lupron and I really appreciated the info you posted about it. The first thing I found on the web when I started looking for info was the Lupron Victims web site and it really has me scared. Thanks again! Lupron > Hello ladies! I just posted and I am new to this forum, but not to > Lupron. I took Lupron for 3 months last year(for treatment of > endometriosis). I had one 3 month injection. My hormones were already > reduced because of previous treatment, so I did not have any > menopausal symptoms. I did however experience extreme irratability, > memory loss, and severe joint pain. I had the shot in July of last > year, and the symptoms of memory loss and joint pain still remain. > Also, before I was put on Lupron, I had a bone density scan. A Score > of -2.0 is Osteoporosis. The score that frightened me most was a a > score of -1.6 in my lower back/hip area. I was immediately put on > Fosamax which has been described as an anti-Osteoporosis medication. > It is supposed to stop further bone loss and help rebuild the bone > that was lost. I was also instructed to take 1500mg of calcium a day > and 800IU of Vitamin D (it helps break up the calcium). Despite these > preventive measures, I still developed osteoporosis. I have been on > the Fosamax for 8 months and have a minumum of 4 more months left. So > please be very careful if you take Lupron. Demand a bone density scan > so you will know before how your bones density is and how the Lupron > has effected it. I'm only 23 and I have osteoporosis, that's still a > shock to me. > > I don't think that there is a difference in the way Lupron is used to > treat endometriosis or to shrink fibroids. Personally, I will NEVER > go back on this drug again. I know too many women who still have > symptoms that Lupron caused even years after stopping it. This drug > really terrifies me, and I don't want any woman to use it, but I > believe that's a decision that each woman has to make on her own. > Also, remember that Lupron is NOT supposed to be taken for more than > 6 months in a LIFETIME. And there have been little to no studies on > the long-term side-effects of Lupron. > I have a few sites that give a little more info on Lupron.. > First there are some articles on Lupron at www.redflagsweekly.com, > run a search for Lupron. This has been the first investigative > reporting I have seen about Lupron. There is also a website called > Lupron Victims.. I want to warn that this site was made to scare us > about Lupron. While some of the info there is very interesting, try > to keep in mind that this woman created this site basically just to > scare people away from Lupron. I know that she mentions a friend of > mine in the site, and nothing she says about her or the Endometriosis > Research Center is true.. so just a little warning > http://www.lupronvictims.com/ > > Here are some other sites that might be of interest: > http://womenshealth.about.com/library/weekly/aa050801a.htm? > terms=lupron+side+effects > http://209.64.11.10/NewDrugs/pages97/lupron.htm > http://my.webmd.com/content/asset/uspdi.202322 > Drug information > http://www.fda.gov/cder/drug/default.htm > Drugs used for endo > http://promini.medscape.com/drugdb/disease_drugs.asp? > DiseaseCode=1632 & DiseaseName=ENDOMETRIOSIS > > There are alot of other sites out there, and some that I really want > to share but can't find right now. I hope this helps some. > Love and Prayers, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Hiya hon! Oh man, at first and for a long time my memory was effected on EVERY level. I couldn't remember my son's birthday.. I found myself speaking and not being able to recall simple words, this was really upsetting for me because I have always had a way with words so to speak. For example, I would have a doctors appointment and couldn't think of the word symptoms, to describe what had been going on, much less remember the symptoms that I was having. Something as simple as washing dishes became a task, I couldn't remember where my dishtowels were, so off in search I go.. I go to the bathroom and sit down. Oh ya, I was doing something, what was I doing?? I walked room by room and by the time I would get back to the kitchen I would have cold water.. I couldn't concentrate on anything really. I'm doing better now. I still forget words that I want to use, but nothing like it was. I have to write myself notes about things that I need to do, but at least I can remember to write the notes. I still have some problems with my memory. For example, last night I was going to bed.. My living room is maybe 10 steps from my bedroom.. I got in the bedroom and Andy asked me what that loud noise was.. He said it sounded like something fell or I tripped. For the life of me I still can't remember what the noise was.. I do have to say, I love post-its now lol. My monitor is full of them lol. I hope this has helped some hon. If you have any more questions, ask away, and feel free to email me any time. Love and Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Hiya hon! Oh man, at first and for a long time my memory was effected on EVERY level. I couldn't remember my son's birthday.. I found myself speaking and not being able to recall simple words, this was really upsetting for me because I have always had a way with words so to speak. For example, I would have a doctors appointment and couldn't think of the word symptoms, to describe what had been going on, much less remember the symptoms that I was having. Something as simple as washing dishes became a task, I couldn't remember where my dishtowels were, so off in search I go.. I go to the bathroom and sit down. Oh ya, I was doing something, what was I doing?? I walked room by room and by the time I would get back to the kitchen I would have cold water.. I couldn't concentrate on anything really. I'm doing better now. I still forget words that I want to use, but nothing like it was. I have to write myself notes about things that I need to do, but at least I can remember to write the notes. I still have some problems with my memory. For example, last night I was going to bed.. My living room is maybe 10 steps from my bedroom.. I got in the bedroom and Andy asked me what that loud noise was.. He said it sounded like something fell or I tripped. For the life of me I still can't remember what the noise was.. I do have to say, I love post-its now lol. My monitor is full of them lol. I hope this has helped some hon. If you have any more questions, ask away, and feel free to email me any time. Love and Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Hiya hon! Oh man, at first and for a long time my memory was effected on EVERY level. I couldn't remember my son's birthday.. I found myself speaking and not being able to recall simple words, this was really upsetting for me because I have always had a way with words so to speak. For example, I would have a doctors appointment and couldn't think of the word symptoms, to describe what had been going on, much less remember the symptoms that I was having. Something as simple as washing dishes became a task, I couldn't remember where my dishtowels were, so off in search I go.. I go to the bathroom and sit down. Oh ya, I was doing something, what was I doing?? I walked room by room and by the time I would get back to the kitchen I would have cold water.. I couldn't concentrate on anything really. I'm doing better now. I still forget words that I want to use, but nothing like it was. I have to write myself notes about things that I need to do, but at least I can remember to write the notes. I still have some problems with my memory. For example, last night I was going to bed.. My living room is maybe 10 steps from my bedroom.. I got in the bedroom and Andy asked me what that loud noise was.. He said it sounded like something fell or I tripped. For the life of me I still can't remember what the noise was.. I do have to say, I love post-its now lol. My monitor is full of them lol. I hope this has helped some hon. If you have any more questions, ask away, and feel free to email me any time. Love and Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 What is the copyright on this book? I'm assuming it is dated by a number of years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 What is the copyright on this book? I'm assuming it is dated by a number of years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 No, actually, it is the 2nd edition, copyright 2001. I know he updated the section on GnRH analogs because he states, " In this instance, the add-back regimens, new when the first edition of this book appeared, are no longer the province of the pioneers and a few specialists; virtually all gynecologists and endocrinologists use them. " Therese > What is the copyright on this book? I'm assuming it is dated by a number of > years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 --Hi Deb, I'm also on Lupron so I can take Arimidex, but after two monthly injections I was switched to one larger injection every three months. It just cuts down on the number of times I have to go to the doctor. Janet - In breastcancer2 , " Debra " <dacl1217@a...> wrote: > Hi everybody...hope all is well. > I met with my oncologist yesterday..since my period has returned > after stopping tamoxifen..in order for me to take the new medication, > arimidex, I must now have a monthly injection of Lupron...this is a > non surgical way to cease the production of estrogen and ensure > putting me into true menopause. > This medication is used for male prostrate cancer and female > endometreosis, to name a couple. I will need a monthly injection for > 5 years in addition to the arimidex. My mom didn't go through true > menopause till her early 50's...I'm hitting 50 this year...enough > with the eggs!!! much love to all and I'll keep you all updated. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 --Hi Deb, I'm also on Lupron so I can take Arimidex, but after two monthly injections I was switched to one larger injection every three months. It just cuts down on the number of times I have to go to the doctor. Janet - In breastcancer2 , " Debra " <dacl1217@a...> wrote: > Hi everybody...hope all is well. > I met with my oncologist yesterday..since my period has returned > after stopping tamoxifen..in order for me to take the new medication, > arimidex, I must now have a monthly injection of Lupron...this is a > non surgical way to cease the production of estrogen and ensure > putting me into true menopause. > This medication is used for male prostrate cancer and female > endometreosis, to name a couple. I will need a monthly injection for > 5 years in addition to the arimidex. My mom didn't go through true > menopause till her early 50's...I'm hitting 50 this year...enough > with the eggs!!! much love to all and I'll keep you all updated. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 --Hi Deb, I'm also on Lupron so I can take Arimidex, but after two monthly injections I was switched to one larger injection every three months. It just cuts down on the number of times I have to go to the doctor. Janet - In breastcancer2 , " Debra " <dacl1217@a...> wrote: > Hi everybody...hope all is well. > I met with my oncologist yesterday..since my period has returned > after stopping tamoxifen..in order for me to take the new medication, > arimidex, I must now have a monthly injection of Lupron...this is a > non surgical way to cease the production of estrogen and ensure > putting me into true menopause. > This medication is used for male prostrate cancer and female > endometreosis, to name a couple. I will need a monthly injection for > 5 years in addition to the arimidex. My mom didn't go through true > menopause till her early 50's...I'm hitting 50 this year...enough > with the eggs!!! much love to all and I'll keep you all updated. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Deb I have a question for you. How long were you on tamoxifen and why did you stop taking it? Have you been getting regular periods? I have been on Tamoxifen for a year and have had one period last Oct. It is really unclear if I am in chemo-induced menopause of real menopause or what! Thanks for the info. Judy > Hi everybody...hope all is well. > I met with my oncologist yesterday..since my period has returned > after stopping tamoxifen..in order for me to take the new medication, > arimidex, I must now have a monthly injection of Lupron...this is a > non surgical way to cease the production of estrogen and ensure > putting me into true menopause. > This medication is used for male prostrate cancer and female > endometreosis, to name a couple. I will need a monthly injection for > 5 years in addition to the arimidex. My mom didn't go through true > menopause till her early 50's...I'm hitting 50 this year...enough > with the eggs!!! much love to all and I'll keep you all updated. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Deb I have a question for you. How long were you on tamoxifen and why did you stop taking it? Have you been getting regular periods? I have been on Tamoxifen for a year and have had one period last Oct. It is really unclear if I am in chemo-induced menopause of real menopause or what! Thanks for the info. Judy > Hi everybody...hope all is well. > I met with my oncologist yesterday..since my period has returned > after stopping tamoxifen..in order for me to take the new medication, > arimidex, I must now have a monthly injection of Lupron...this is a > non surgical way to cease the production of estrogen and ensure > putting me into true menopause. > This medication is used for male prostrate cancer and female > endometreosis, to name a couple. I will need a monthly injection for > 5 years in addition to the arimidex. My mom didn't go through true > menopause till her early 50's...I'm hitting 50 this year...enough > with the eggs!!! much love to all and I'll keep you all updated. deb Quote Link to comment Share on other sites More sharing options...
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