RE: questions about penile implants

[Guest guest]

Hi ,

Good for you and your husband for continuing to seek solutions to

your ED problem. I don't recall having read much about implants here

in the last year and a half. I also do not have any personal

experience to offer.

There has been a lot of discussion about the subject of implants on

another online support group. It is not as user friendly as the yahoo

groups, but well worth checking out. You first need to search for

ustoo.org. Somewhere in the first couple of " hits " will be

International Prostate Cancer Education and Support Network. Click on

that and one of the options you will find will be Chapters and

Support Groups or Online Communities Prostate Pointers.

Once you have gotten that far there is a fabulous group called

pcaiprostatepointers (DOT) The pcai stands for prostate cancer and

intimacy. It is a group of men and women who are diligently working

to regain thier best possible post treatment sex life. Many have gone

the implant route. The discussions are as frank as any I have seen on

the subject, and the group is very responsive. You will not believe

the amount of the feedback you will get.

Let me know if you have any trouble finding your way and also what

you think once you get there. If anybody knows an easier way to tell

to get the prostate pointers groups, I would appreciate it. I

have a feeling there is a better way, than I have given.

Laurel

>

> My husband had a prostectomy 2 years ago at age 49. He was

> incontinent for quite some time afterwards, but has mostly overcome

> that now. He hasn't had any luck at all with meds or injections for

> impotence and is reluctant to consider penile implant. He doesn't

> trust the doctors as they proved to be overly optimistic through the

> whole cancer ordeal.

>

> If any of you have had a penile implant or have a partner who has

had

> one, can you give us some advice? Are you glad that you had it

done?

> Does it improve your experience at all? Were there any ill side-

effects?

>

> Also, I'd really like to find a trustworthy site that lists the side

> effects of having the implant.

>

> I appreciate any advice you all can give. Unfortunately this is

> becoming an issue in our marriage. From his perspective, the worry

> over being incontinent again is paramount and when we talk about it,

> he seems to think that it's all about me. From my perspective, it's

> heartbreaking to not be able to do anything for him in terms of

> intimacy, and I'm not happy at the prospect of no more sex. We've

had

> a good marriage to 23 years, but we seem to be stuck on this issue.

>

> Please help,

>

>

>

[Guest guest]

Hi ,

Good for you and your husband for continuing to seek solutions to

your ED problem. I don't recall having read much about implants here

in the last year and a half. I also do not have any personal

experience to offer.

There has been a lot of discussion about the subject of implants on

another online support group. It is not as user friendly as the yahoo

groups, but well worth checking out. You first need to search for

ustoo.org. Somewhere in the first couple of " hits " will be

International Prostate Cancer Education and Support Network. Click on

that and one of the options you will find will be Chapters and

Support Groups or Online Communities Prostate Pointers.

Once you have gotten that far there is a fabulous group called

pcaiprostatepointers (DOT) The pcai stands for prostate cancer and

intimacy. It is a group of men and women who are diligently working

to regain thier best possible post treatment sex life. Many have gone

the implant route. The discussions are as frank as any I have seen on

the subject, and the group is very responsive. You will not believe

the amount of the feedback you will get.

Let me know if you have any trouble finding your way and also what

you think once you get there. If anybody knows an easier way to tell

to get the prostate pointers groups, I would appreciate it. I

have a feeling there is a better way, than I have given.

Laurel

>

> My husband had a prostectomy 2 years ago at age 49. He was

> incontinent for quite some time afterwards, but has mostly overcome

> that now. He hasn't had any luck at all with meds or injections for

> impotence and is reluctant to consider penile implant. He doesn't

> trust the doctors as they proved to be overly optimistic through the

> whole cancer ordeal.

>

> If any of you have had a penile implant or have a partner who has

had

> one, can you give us some advice? Are you glad that you had it

done?

> Does it improve your experience at all? Were there any ill side-

effects?

>

> Also, I'd really like to find a trustworthy site that lists the side

> effects of having the implant.

>

> I appreciate any advice you all can give. Unfortunately this is

> becoming an issue in our marriage. From his perspective, the worry

> over being incontinent again is paramount and when we talk about it,

> he seems to think that it's all about me. From my perspective, it's

> heartbreaking to not be able to do anything for him in terms of

> intimacy, and I'm not happy at the prospect of no more sex. We've

had

> a good marriage to 23 years, but we seem to be stuck on this issue.

>

> Please help,

>

>

>

[Guest guest]

Juile,

I know someone who is getting an implant next month, I'll check with him, but I'm sure he would be glad to answer your questions. I'll be back in touch.

Sheila

-------------- Original message --------------

My husband had a prostectomy 2 years ago at age 49. He wasincontinent for quite some time afterwards, but has mostly overcomethat now. He hasn't had any luck at all with meds or injections forimpotence and is reluctant to consider penile implant. He doesn'ttrust the doctors as they proved to be overly optimistic through thewhole cancer ordeal.If any of you have had a penile implant or have a partner who has hadone, can you give us some advice? Are you glad that you had it done?Does it improve your experience at all? Were there any ill side-effects?Also, I'd really like to find a trustworthy site that lists the sideeffects of having the implant.I appreciate any advice you all can give. Unfortunately this isbecoming an issue in our marriage. From his perspective, the worryover being incontinent again is paramount and when we talk about it,he seems to think that it's all about me. From my perspective, it'sheart

breaking to not be able to do anything for him in terms ofintimacy, and I'm not happy at the prospect of no more sex. We've hada good marriage to 23 years, but we seem to be stuck on this issue.Please help,

[Guest guest]

He needs to go for the penile implant without delay. The three-piece device has a very strong history of very high satisfaction. There is a yahoo group devoted to this topic. It is: groups.yahoo.com/group/penileimplant

Louis. . .

questions about penile implants

My husband had a prostectomy 2 years ago at age 49. He wasincontinent for quite some time afterwards, but has mostly overcomethat now. He hasn't had any luck at all with meds or injections forimpotence and is reluctant to consider penile implant. He doesn'ttrust the doctors as they proved to be overly optimistic through thewhole cancer ordeal.If any of you have had a penile implant or have a partner who has hadone, can you give us some advice? Are you glad that you had it done?Does it improve your experience at all? Were there any ill side-effects?Also, I'd really like to find a trustworthy site that lists the sideeffects of having the implant.I appreciate any advice you all can give. Unfortunately this isbecoming an issue in our marriage. From his perspective, the worryover being incontinent again is paramount and when we talk about it,he seems to think that it's all about me. From my perspective, it'sheartbreaking to not be able to do anything for him in terms ofintimacy, and I'm not happy at the prospect of no more sex. We've hada good marriage to 23 years, but we seem to be stuck on this issue.Please help,

[Guest guest]

The Prostate Cancer and Intimacy List is

here http://www.prostatepointers.org/mailman/listinfo/pcai

Although the late (and great) Young passed on some years ago now, his

widow has kept his site going at there are some good links to intimacy issues

at http://www.phoenix5.org/sexaids.html

This page describes the implants available when the page was constructed and

how they work: http://www.phoenix5.org/sexaids/implants/implanttypes.html

Some of the links on the pages do not

work.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Laurel

Sent: Saturday, 24 May 2008 10:58

AM

To:

ProstateCancerSupport

Subject:

Re: questions about penile implants

Hi ,

Good for you and your husband for continuing to seek solutions to

your ED problem. I don't recall having read much about implants here

in the last year and a half. I also do not have any personal

experience to offer.

There has been a lot of discussion about the subject of implants on

another online support group. It is not as user friendly as the yahoo

groups, but well worth checking out. You first need to search for

ustoo.org. Somewhere in the first couple of " hits " will be

International Prostate Cancer Education and Support Network. Click on

that and one of the options you will find will be Chapters and

Support Groups or Online Communities Prostate Pointers.

Once you have gotten that far there is a fabulous group called

pcaiprostatepointers (DOT) The pcai stands for prostate cancer and

intimacy. It is a group of men and women who are diligently working

to regain thier best possible post treatment sex life. Many have gone

the implant route. The discussions are as frank as any I have seen on

the subject, and the group is very responsive. You will not believe

the amount of the feedback you will get.

Let me know if you have any trouble finding your way and also what

you think once you get there. If anybody knows an easier way to tell

to get the prostate pointers groups, I would appreciate it. I

have a feeling there is a better way, than I have given.

Laurel

>

> My husband had a prostectomy 2 years ago at age 49. He was

> incontinent for quite some time afterwards, but has mostly overcome

> that now. He hasn't had any luck at all with meds or injections for

> impotence and is reluctant to consider penile implant. He doesn't

> trust the doctors as they proved to be overly optimistic through the

> whole cancer ordeal.

>

> If any of you have had a penile implant or have a partner who has

had

> one, can you give us some advice? Are you glad that you had it

done?

> Does it improve your experience at all? Were there any ill side-

effects?

>

> Also, I'd really like to find a trustworthy site that lists the side

> effects of having the implant.

>

> I appreciate any advice you all can give. Unfortunately this is

> becoming an issue in our marriage. From his perspective, the worry

> over being incontinent again is paramount and when we talk about it,

> he seems to think that it's all about me. From my perspective, it's

> heartbreaking to not be able to do anything for him in terms of

> intimacy, and I'm not happy at the prospect of no more sex. We've

had

> a good marriage to 23 years, but we seem to be stuck on this issue.

>

> Please help,

>

>

>

[Guest guest]

,

I have just been doing the day’s

updates on my Yana site and you may care to

read the experience of Rich at http://www.yananow.net/Mentors/R.htm

and mail him as he has done some homework on the subject of penile implants and

intends having one fitted shortly.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of julie_puppitypup

Sent: Saturday, 24 May 2008 9:39

AM

To:

ProstateCancerSupport

Subject:

questions about penile implants

My husband had a prostectomy 2 years ago at age 49. He

was

incontinent for quite some time afterwards, but has mostly overcome

that now. He hasn't had any luck at all with meds or injections for

impotence and is reluctant to consider penile implant. He doesn't

trust the doctors as they proved to be overly optimistic through the

whole cancer ordeal.

If any of you have had a penile implant or have a partner who has had

one, can you give us some advice? Are you glad that you had it done?

Does it improve your experience at all? Were there any ill side-effects?

Also, I'd really like to find a trustworthy site that lists the side

effects of having the implant.

I appreciate any advice you all can give. Unfortunately this is

becoming an issue in our marriage. From his perspective, the worry

over being incontinent again is paramount and when we talk about it,

he seems to think that it's all about me. From my perspective, it's

heartbreaking to not be able to do anything for him in terms of

intimacy, and I'm not happy at the prospect of no more sex. We've had

a good marriage to 23 years, but we seem to be stuck on this issue.

Please help,

[Guest guest]

:I agree with the post by Laurel. The pcai@... is a great place to reach people who will discuss implants with you. Guys there will discuss different models, the surgery, complications, and what to expect. As an aside, in the past almost 2 years, I have never seen one person on that forum say that the implant was the wrong decision. Of course, that is for you and your husband to discuss. Good luck, To: ProstateCancerSupport From: jruch1@...Date: Fri, 23 May 2008 23:38:48 +0000Subject: questions about penile implants

My husband had a prostectomy 2 years ago at age 49. He was

incontinent for quite some time afterwards, but has mostly overcome

that now. He hasn't had any luck at all with meds or injections for

impotence and is reluctant to consider penile implant. He doesn't

trust the doctors as they proved to be overly optimistic through the

whole cancer ordeal.

If any of you have had a penile implant or have a partner who has had

one, can you give us some advice? Are you glad that you had it done?

Does it improve your experience at all? Were there any ill side-effects?

Also, I'd really like to find a trustworthy site that lists the side

effects of having the implant.

I appreciate any advice you all can give. Unfortunately this is

becoming an issue in our marriage. From his perspective, the worry

over being incontinent again is paramount and when we talk about it,

he seems to think that it's all about me. From my perspective, it's

heartbreaking to not be able to do anything for him in terms of

intimacy, and I'm not happy at the prospect of no more sex. We've had

a good marriage to 23 years, but we seem to be stuck on this issue.

Please help,

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