Dr.'s visit

[Guest guest]

Hi ,

Glad to hear that your labwork is getting better.... As for you

screwing up..... You already know that it was a mistake, and you took

the steps to fix it.... Hang in there buddy!!!!!! We are here for

you...

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

,

I think you will do fine.I ahve been following this protocol for a

month and really am seing some improvament.I was on minocin alone

with some antifungal here and there for 6 1/2 yrs.

This is doing a nice job on my hands and felt especially..more

flexion , the stiffmess is gone and feet feel better.It seems that my

dupuytrens is less as well.

I se that progress already.I have been able to do without the nsaid,

and I am greatful for that.So I was able to drop cytotec as well.

I feel like you do, that some of us have more organsims to deal with

and this addition is something thats beneficial to some of us.

He seems to have a great care and concren and thats important. Just

keep doing what he prescribed and I am sure you will do fine!

Love ya

Marge

> Hi Everyone,

> I am . I have RA, 4 years. I had an appt. with Dr.

Sentef on Monday and it went very well. I told him I had stopped his

regimen after 6 months without giving him the opportunity to talk to

me and try to find out why I was not making progress. To be honest, I

expected some chastizement, but he just waved his hand like it didn't

matter and proceded to tell me some of what he had learned since I

was last there and that he still thought this treatment was my best

opportunity. It's amazing to me, comparing him to other drs. I've

had, he seems to have no ego to deal with, just a genuine concern

that I get well.

> Anyway, he changed my doxy MWF to minocin 100 mg. twice a day,

added metronidazole 500 mg. once a day, and Diflucan 150 mg. once a

week. He also gave me a low dose hydrocodone for the pain which I am

able to swap off with some ultram I have left from last visit. I am

very careful to only take the hydrocodone if I really need it because

it is addictive.

> He also tested me for chlamydia pneumoneia, (sp?) which came

back positive. He told me to expect this because he feels like he's

isolated this as the " bug " that we're looking to kill. Before when I

was there he thought it might be the chlamydia that is an std but has

done more research and feels it's the pneumoneia thing instead. I

realize this is a very simplified explanation of a complex problem

but I am not well versed in the scientific terms, so please forgive

me.

> He told me he didn't know why some people responded quickly

and others did not, but that he still thought this treatment was

better than the alternatives. I had to agree. I have tried very hard

in the last 4 years to stay away from the traditional, harder drugs

usually prescribed for us. I still really beleive that because I

started the AP early in my disease that I have avoided severe joint

damage, not completely, but mostly.

> I don't feel this in anyway detracts from the idea of the AP,

but rather is just built upon that theory and expanded. It's just

adding more and different antibiotics and anti-fungals to get the job

done, whether it's mycoplasmas or a strain of chlamydia the end

result will hopefully be the same. I am very encouraged and plan to

see this through.

> Finally, I don't know what I'd do without you all, you've

helped so much I can't possibly express it. I pray for this group

every day.

>

>

>

>

[Guest guest]

Darrel,

I think you are making the right step. I wish Dr. 's and her

books and this message board had been availble when I first had my

first seizure (nocturnal) back in 1983. Also, people such as Kathy,

Arnold, and a host of others have defnitley made a difference in my

entire approach to seizures in addition to the reasearch I did prior

to finding about this group.

You sound so much like me it is amazing and only natural becasue this

is a nightmare. I started off with a nocturnal seizure and only had

them once in a blue moon while only taking Dilantin every so often.

When the Drs. finished with me I was on 8 different medications 3 of

which were Benzos. A pharmacist and a couple of Drs. alerted me that

this was wrong and a down right medical abuse. The Drs. were trying

to talk to me into surgery. I am still debating whether to take

legal action because I do have some problems as a result of the meds.

I have auduously weaned down to 2 and 1/2 Dilantin pills a day and I

feel so much batter that words can't express them. I have a long ways

to go but have come a longs ways. Fear is leaving and I am venturing

out of the house and doing things I haven't done in years. My

depression is leaving and I can feel joy, something that I had forgot

what it felt like. So keep up the hope.

I think you are making the right decision. A lady named Glenda

and the others told me about so how certain vitamins really help.

Melatonin has virtually stopped the electrical shocks and firings in

my head. Since removing my Mercury fillings in my mouth I no longer

have grand mal seizures and only had a couple of nocturnal seizures

when I had a high temperature as a result of the flu. Another was

due to lack of sleep and going off my diet. Worry is another

culprit. There is so much more but here is really where I actually

turned things around. So you are on the right track.

Thanks everyone for your help. I just recently wrote a letter to Sen.

Durbin of Illinois demanding he not vote for a bill that would put

the Vitamin industry in the hands of the FDA. Arnold made me aware

of this. What a shame! That would been a tradegy and the

consequences of this would be devastating. Take care.

Love

[Guest guest]

ok finailly made it in to see the doctor, and he was very nice about

it, said he was glad i came because i saved him a phone call. Said he

got the results back from the bone scan and not looking good at all.

The bones are showing signs servere thinning, not sure what excally

that means. want to address the vitiman D deffincy. Have to go see

one of them vitiman doctors, I cant even pronouce the name but you

know what i am talking about. He did however put me on Prednisone 2.5

mg tab, 3 a day and Tramadol 50 mg at bedtime. the first night it

made my heast race but now it ok. took me off the skelaxin for now but

kept me on the mxt and plaquinel. said to keep close check on my

sugars and call him monday morning to let him knoe how i am doing.

well thanks fot listing and try and have a painless day,

joelann

[Guest guest]

ann,

I am glad you were able to see the Dr. Sounds like he is gonna be very

helpful.

Heid M

On Sat, Feb 23, 2008 at 11:20 AM, unicornmom1062 <Donahuejk6@...> wrote:

> ok finailly made it in to see the doctor, and he was very nice about

> it, said he was glad i came because i saved him a phone call. Said he

> got the results back from the bone scan and not looking good at all.

> The bones are showing signs servere thinning, not sure what excally

> that means. want to address the vitiman D deffincy. Have to go see

> one of them vitiman doctors, I cant even pronouce the name but you

> know what i am talking about. He did however put me on Prednisone 2.5

> mg tab, 3 a day and Tramadol 50 mg at bedtime. the first night it

> made my heast race but now it ok. took me off the skelaxin for now but

> kept me on the mxt and plaquinel. said to keep close check on my

> sugars and call him monday morning to let him knoe how i am doing.

> well thanks fot listing and try and have a painless day,

> joelann

>

>

>