Re: My ra doctor cancelled on me

[Guest guest]

Robin,

It seems that we are in similar place right now at least mentally. I'm 31

also and am having a lot of the same thoughts and feelings you are it all

seems like to much and I wonder if and when will these medications I just

started

work. Is the damage done by all the inflammation permanent and will I ever

be able to function again? My husband is working two jobs and like yours he

cant do anymore and with a toddler at home it makes things even more trying.

I just wanted you to know that you are not alone and someone does care...I

wish I had more to offer but for now all we can do is be hopeful things will

get better!

Take care,

Mandi

Florida

In a message dated 2/22/2008 8:15:04 P.M. Eastern Standard Time,

babysalemsmom@... writes:

I have such luck:}

We had a big storm today, the only day I was looking forward to this

whole month to finally get some answers and treatment. I just needed

a specialist to tell me " yes you do have ra and I can help you with

the pain " . I didn't even think about calling my primary care doctor

to see if she could help me with the pain. That is the only thing

that kept me going all this month at work and at life in

general " all I have to do is wait till the 22nd and everything is

going to be alright " . Now the day is here and it gets canceled. I

just don't know if I can handle this. Especially if this gets worse.

I am poor and uneducated. I am not going anywhere in my life. And now

I am going to be a burden to my new Husband!!!! I thought my life was

terrible all my life and then I met my Husband. Even though we are

poor we love each other. Everything was fine. And now... I can't keep

up anymore. He can't do more. This is very stressful. And no one

seems to care. Everyone says, " She is being too lazy " , " She is taking

advantage of you " , " There is nothing wrong with you " , " it's not as

bad as you make it out to be " . You know I am not so bad. I am

caring,honest,caring,honest,<WBR>most of the time very funny,(not late

hopeful. But right now I am beat down. I just want everything to go

back the way it was before I went to the stupid Doctors to find out

what the pain was. I could seem to live with it if I didn't know what

it was. Now I have to reschedule and then tell myself once again all

I have to do is wait until I see the Doctor and then everything will

be alright. Thank you for listening~~~be a

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Robin,

I hope they rescheduled you for a day soon.I can imagine your frustration.

Just know that I will keep you in my prayers.

Heidi M

On Fri, Feb 22, 2008 at 7:51 PM, Robin <babysalemsmom@...> wrote:

> I have such luck:}

>

> We had a big storm today, the only day I was looking forward to this

> whole month to finally get some answers and treatment. I just needed

> a specialist to tell me " yes you do have ra and I can help you with

> the pain " . I didn't even think about calling my primary care doctor

> to see if she could help me with the pain. That is the only thing

> that kept me going all this month at work and at life in

> general " all I have to do is wait till the 22nd and everything is

> going to be alright " . Now the day is here and it gets canceled. I

> just don't know if I can handle this. Especially if this gets worse.

> I am poor and uneducated. I am not going anywhere in my life. And now

> I am going to be a burden to my new Husband!!!! I thought my life was

> terrible all my life and then I met my Husband. Even though we are

> poor we love each other. Everything was fine. And now... I can't keep

> up anymore. He can't do more. This is very stressful. And no one

> seems to care. Everyone says, " She is being too lazy " , " She is taking

> advantage of you " , " There is nothing wrong with you " , " it's not as

> bad as you make it out to be " . You know I am not so bad. I am

> caring,honest,most of the time very funny,(not lately though) and

> hopeful. But right now I am beat down. I just want everything to go

> back the way it was before I went to the stupid Doctors to find out

> what the pain was. I could seem to live with it if I didn't know what

> it was. Now I have to reschedule and then tell myself once again all

> I have to do is wait until I see the Doctor and then everything will

> be alright. Thank you for listening~~~~ Robin

>

>

>

[Guest guest]

> >

>

>

>

[Guest guest]

It is nice to know that I have people to talk to. Not that I don't

want to talk to my Husband or anything, but I don't think he knows

what I am going through. I noticed last night that My fingers and toes

are looking crooked and I don't know if it is in my head or I am

really seeing this. I told my husband and he says. Yea mine does that

too. I know he was trying to make me feel better about what I see or

think I see. But I felt it came out as don't be crazy there is nothing

wrong with you. I just stopped talking about it. I just felt alone and

angry. We got into a little argument about it. I just hope I can get

myself together soon or I am going to lose everything. I am so tired

of hearing myself talk about how I feel but I don't know how else to

handle this.

[Guest guest]

Robin,

I think sometimes that my whole world revolves around my health. We have to

spend so much time and effort trying to find something that helps. I am sure

my DH is tired of me complaining, its down to now he ask how I feel I say

same s*** different day. Because thats what it is. If you think your joints

are causing your fingers to turn, point it out to your Dr at the next appt.

Heidi M

On Sat, Feb 23, 2008 at 12:25 PM, <MLH951@...> wrote:

> I feel like in the last week my fingers and right foot are showing some

> abnormalities and wonder the same thing...am I looking to hard or have

> they

> changed, unfortunately I think they changed.

>

> Take care,

>

> Mandi

>

>

> In a message dated 2/23/2008 11:57:42 A.M. Eastern Standard Time,

> babysalemsmom@... <babysalemsmom%40> writes:

>

> It is nice to know that I have people to talk to. Not that I don't

> want to talk to my Husband or anything, but I don't think he knows

> what I am going through. I noticed last night that My fingers and toes

> are looking crooked and I don't know if it is in my head or I am

> really seeing this. I told my husband and he says. Yea mine does that

> too. I know he was trying to make me feel better about what I see or

> think I see. But I felt it came out as don't be crazy there is nothing

> wrong with you. I just stopped talking about it. I just felt alone and

> angry. We got into a little argument about it. I just hope I can get

> myself together soon or I am going to lose everything. I am so tired

> of hearing myself talk about how I feel but I don't know how else to

> handle this.

>

> **************Ideas to please picky eaters. Watch video on AOL Living.

> (

>

http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

[Guest guest]

I know it is very frustrating. I am 36 and have been

ill with FMS since I was 30 and RA 2 years later. It

does take time for medications to work. Once you get

started, it can take up to 6 months for a DMARD to

work. Sometimes, the dosage may not be right and more

medication will be added. I started on Plaquenil

almost 2 years ago. That began to not be enough and

Sulfasalazine was added. My doctor advised that would

take up to 6 months to work. Then I became ill with

bronchitis and could not take my Sulfasalazine for

three months. We had just upped the dose to 3000mgs

to see if it would help. I was finally able to

restart it in January. It's such a touch and go

situation at times. Yet stress and tension make it so

much worse and is very bad for pain. Do your best to

just pace yourself and do what you can do, and be

gentle with yourself:)

--- MLH951@... wrote:

> Robin,

>

> It seems that we are in similar place right now at

> least mentally. I'm 31

> also and am having a lot of the same thoughts and

> feelings you are it all

> seems like to much and I wonder if and when will

> these medications I just started

> work. Is the damage done by all the inflammation

> permanent and will I ever

> be able to function again? My husband is working

> two jobs and like yours he

> cant do anymore and with a toddler at home it makes

> things even more trying.

> I just wanted you to know that you are not alone

> and someone does care...I

> wish I had more to offer but for now all we can do

> is be hopeful things will

> get better!

>

> Take care,

>

> Mandi

> Florida

>

>

> In a message dated 2/22/2008 8:15:04 P.M. Eastern

> Standard Time,

> babysalemsmom@... writes:

>

>

>

>

> I have such luck:}

>

> We had a big storm today, the only day I was

> looking forward to this

> whole month to finally get some answers and

> treatment. I just needed

> a specialist to tell me " yes you do have ra and I

> can help you with

> the pain " . I didn't even think about calling my

> primary care doctor

> to see if she could help me with the pain. That is

> the only thing

> that kept me going all this month at work and at

> life in

> general " all I have to do is wait till the 22nd and

> everything is

> going to be alright " . Now the day is here and it

> gets canceled. I

> just don't know if I can handle this. Especially if

> this gets worse.

> I am poor and uneducated. I am not going anywhere

> in my life. And now

> I am going to be a burden to my new Husband!!!! I

> thought my life was

> terrible all my life and then I met my Husband.

> Even though we are

> poor we love each other. Everything was fine. And

> now... I can't keep

> up anymore. He can't do more. This is very

> stressful. And no one

> seems to care. Everyone says, " She is being too

> lazy " , " She is taking

> advantage of you " , " There is nothing wrong with

> you " , " it's not as

> bad as you make it out to be " . You know I am not so

> bad. I am

> caring,honest,caring,honest,<WBR>most of the time

> very funny,(not late

> hopeful. But right now I am beat down. I just want

> everything to go

> back the way it was before I went to the stupid

> Doctors to find out

> what the pain was. I could seem to live with it if I

> didn't know what

> it was. Now I have to reschedule and then tell

> myself once again all

> I have to do is wait until I see the Doctor and

> then everything will

> be alright. Thank you for listening~~~be a

>

>

>

>

>

>

>

> **************Ideas to please picky eaters. Watch

> video on AOL Living.

>

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ