RE: Re: Looking for some advice

[Guest guest]

Vickie - I was on Plaquenil for several years and ended up with vision

problems - they diagnosed Plaquenil toxicity and I was taken off it. I

think that Plaquenil is known to cause eye problems so it's recommended that

you be followed by an ophthalmologist on a regular basis. Just wanted to be

sure you were aware of this since you mentioned prior vision problems.

Dorothy

_____

From: [mailto: ] On

Behalf Of hurtinmomma

Sent: Saturday, March 01, 2008 12:26 PM

Subject: [ ] Re: Looking for some advice

Hi! Mandi, thanks for the encouragement. I am currently taking

Tylenol as needed and Plaquenil 2-200Mg tablets per day. I am in the

process of being weaned off prednisone. For a while I was taking

Methotrexate, which really affected my vision. I am fortunate to

have a spa, which gives some temporary relief.

Most people tell me once the meds are correct they deal with only

occasional pain. Do you know this to be true?

Vickie

>

> Wow Vickie,

> Your situation is unique and I dont have much advice to offer but

wanted to

> let you know there are many incredibly helpful people here and

hopefully

> answers are on the way. If you dont mind me asking what have you

done to manage

> so far?

>

> Mandi

> Florida

>

>

> In a message dated 3/1/2008 9:12:07 A.M. Eastern Standard Time,

> hurtinmomma@... writes:

>

>

>

>

> Hi! I'm new to the group. I am 50 and was diagnosed with RA about

9

> months ago. My frustration has been the limited medications that

can

> be prescribed for me. I gave a kidney to my sister two years ago

and

> have to be careful of the medications I take. I'm hoping there is

> someone out there who is in the " same boat " I am in that share

their

> experiences.

>

> Vickie

>

>

>

>

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.

<http://living.aol.com/video/how-to-please-your-picky-eater/rachel->

aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

>

[Guest guest]

My rheumatologist has me see my opthamologist every 6

months. I remember I had to go even before I started

my Plaquenil so that I could get a baseline reading of

the retina.

--- Dorothy <dorv@...> wrote:

> Vickie - I was on Plaquenil for several years and

> ended up with vision

> problems - they diagnosed Plaquenil toxicity and I

> was taken off it. I

> think that Plaquenil is known to cause eye problems

> so it's recommended that

> you be followed by an ophthalmologist on a regular

> basis. Just wanted to be

> sure you were aware of this since you mentioned

> prior vision problems.

>

>

>

>

>

> Dorothy

>

>

>

> _____

>

> From:

> [mailto: ] On

> Behalf Of hurtinmomma

> Sent: Saturday, March 01, 2008 12:26 PM

>

> Subject: [ ] Re: Looking for some advice

>

>

>

> Hi! Mandi, thanks for the encouragement. I am

> currently taking

> Tylenol as needed and Plaquenil 2-200Mg tablets per

> day. I am in the

> process of being weaned off prednisone. For a while

> I was taking

> Methotrexate, which really affected my vision. I am

> fortunate to

> have a spa, which gives some temporary relief.

>

> Most people tell me once the meds are correct they

> deal with only

> occasional pain. Do you know this to be true?

>

> Vickie

>

>

> >

> > Wow Vickie,

> > Your situation is unique and I dont have much

> advice to offer but

> wanted to

> > let you know there are many incredibly helpful

> people here and

> hopefully

> > answers are on the way. If you dont mind me asking

> what have you

> done to manage

> > so far?

> >

> > Mandi

> > Florida

> >

> >

> > In a message dated 3/1/2008 9:12:07 A.M. Eastern

> Standard Time,

> > hurtinmomma@... writes:

> >

> >

> >

> >

> > Hi! I'm new to the group. I am 50 and was

> diagnosed with RA about

> 9

> > months ago. My frustration has been the limited

> medications that

> can

> > be prescribed for me. I gave a kidney to my sister

> two years ago

> and

> > have to be careful of the medications I take. I'm

> hoping there is

> > someone out there who is in the " same boat " I am

> in that share

> their

> > experiences.

> >

> > Vickie

> >

> >

> >

> >

> >

> >

> >

> > **************Ideas to please picky eaters. Watch

> video on AOL

> Living.

> > (http://living.

>

<http://living.aol.com/video/how-to-please-your-picky-eater/rachel->

> aol.com/video/how-to-please-your-picky-eater/rachel-

> campos-duffy/

> > 2050827?NCID=aolcmp00300000002598)

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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[Guest guest]

hi stephanie,its melyndagamez.how are you doing?i to take plaquenil every single

dayand yes i to have to see my eye dr.because of the side effects.the dr.told me

that this med.could cause you to get catarachs(not sure of the spelling)in your

eyes.also you could start having vision problems(LOSEYOURSIGHT)no thanks!!!i

hope i could be of some help to you,stephanie...god bless,MelyndaGamez>wrote:

stephanie <stephieann2@...> wrote: My rheumatologist has me see

my opthamologist every 6

months. I remember I had to go even before I started

my Plaquenil so that I could get a baseline reading of

the retina.

--- Dorothy <dorv@...> wrote:

> Vickie - I was on Plaquenil for several years and

> ended up with vision

> problems - they diagnosed Plaquenil toxicity and I

> was taken off it. I

> think that Plaquenil is known to cause eye problems

> so it's recommended that

> you be followed by an ophthalmologist on a regular

> basis. Just wanted to be

> sure you were aware of this since you mentioned

> prior vision problems.

>

>

>

>

>

> Dorothy

>

>

>

> _____

>

> From:

> [mailto: ] On

> Behalf Of hurtinmomma

> Sent: Saturday, March 01, 2008 12:26 PM

>

> Subject: [ ] Re: Looking for some advice

>

>

>

> Hi! Mandi, thanks for the encouragement. I am

> currently taking

> Tylenol as needed and Plaquenil 2-200Mg tablets per

> day. I am in the

> process of being weaned off prednisone. For a while

> I was taking

> Methotrexate, which really affected my vision. I am

> fortunate to

> have a spa, which gives some temporary relief.

>

> Most people tell me once the meds are correct they

> deal with only

> occasional pain. Do you know this to be true?

>

> Vickie

>

>

> >

> > Wow Vickie,

> > Your situation is unique and I dont have much

> advice to offer but

> wanted to

> > let you know there are many incredibly helpful

> people here and

> hopefully

> > answers are on the way. If you dont mind me asking

> what have you

> done to manage

> > so far?

> >

> > Mandi

> > Florida

> >

> >

> > In a message dated 3/1/2008 9:12:07 A.M. Eastern

> Standard Time,

> > hurtinmomma@... writes:

> >

> >

> >

> >

> > Hi! I'm new to the group. I am 50 and was

> diagnosed with RA about

> 9

> > months ago. My frustration has been the limited

> medications that

> can

> > be prescribed for me. I gave a kidney to my sister

> two years ago

> and

> > have to be careful of the medications I take. I'm

> hoping there is

> > someone out there who is in the " same boat " I am

> in that share

> their

> > experiences.

> >

> > Vickie

> >

> >

> >

> >

> >

> >

> >

> > **************Ideas to please picky eaters. Watch

> video on AOL

> Living.

> > (http://living.

>

<http://living.aol.com/video/how-to-please-your-picky-eater/rachel->

> aol.com/video/how-to-please-your-picky-eater/rachel-

> campos-duffy/

> > 2050827?NCID=aolcmp00300000002598)

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

---------------------------------

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[Guest guest]

Dawn,

I love telling people that.  You are right they don't lie.  With my step kids (I

took them to get their shots  so the court wouldn't bring it up...scare

tactic...)  Anyway I had to sign more crap about knowing the side effects of the

shots than if I didn't get them shot up at all.  I try to tell my friends to

look at it. 

________________________________

From: Dawn <dawndanc@...>

Vaccinations

Sent: Tuesday, August 18, 2009 3:45:04 PM

Subject: Re: looking for some advice

 

, start by reading the package inserts. When you find something very

disturbing - show him!! Print it and highlight it. Vaccine manufacturers don't

lie! You will find that often, babies are required to receive the same dose as a

fully grown adult (under dosage instructions) . Every vaccine carries the

warning that they do not know if they cause cancer, alter your DNA or impair

your fertility because studies have not been done. This warning has been on them

for YEARS. Just read the package inserts. I'm sure your mouth will fall open and

so will your husband's. A lot of information on the same page contradicts

itself. For example, on one hand, they say studies were performed on infants 6

weeks or older. However, if premature, go by their birth date?! Okay...what if

they were 3 months early??

http://vaers. hhs.gov/pdf/ PackageInserts. pdf (click on right-hand column to

bring up each one)

My blog, along with this group has a lot of info.....http:

//vaccinesexpose d.blogspot. com

What really convinced my Marine hubby was showing him that a .5 ml dose was a

one-size fits all. That made him sick. At 250 lbs. he would get the same dose as

our brand new baby.

Dawn

>

> Hey all,

>

> Neither my 2 year old daughter or 4 1/2 month old daughter have had any

vaccines, and I intend to keep it that way. My husband thinks there is nothing

wrong with vaccinating because " everyone he knows does it, and is fine " .

However, he has told me he would like to know more about the topic, mainly

disease risk vs vaccine risk. He is a numbers guy, so he likes to see

statistics. The problem is, every time I show him info, he says that I am only

showing him why you SHOULDN'T vaccinate, to which I respond, " that's because I

don't believe there are any benefits to vaccinating " . Obviously, he does feel

somewhat uncomftorable with vaccinating because he does not push the issue, but

he doesn't really want to discuss it much either. I really want him on my side

with this, and would really like to convince him that vaccines are dangerous.

> My 4 1/2 month old has an arachnoid cyst on her brain which they discovered

while I was pregnant. They actually thought she had dandy-walker syndrome and

put us through a lot of unnecessary worrying. Well, I called her neurologist

today to get his opinion on vaccinating because I figure he must see a lot of

autistic children. My husband also respects him, and said he would be interested

in what he has to say. I am praying that he tells me what I want to hear, but am

not betting on it. My husband also thinks dr.'s would never do anything to

endanger a child's health, and feels we should listen to them more often than

not. I do not feel that way, and mostly do not trust them. In fact, I do not

plan to take my baby to any more well baby check ups, because I feel they are

unnecessary, and am tired of getting the vaccine lecture. Last time I was there,

I felt like I was going to have a panic attack because of this conversation:

Dr.: " These are the shots

Brooklyn will be getting today " (she names them off) Me: I don't plan to

vaccinate, espcially with being on medication that is lowering her immune

system " Dr.: Well, a little protection is better than none....in fact, let me go

see what my colleagues have to say... " she comes back in the room, and says

this: " Yup, they agree with me, so this is what she's going to get today " , and,

she goes on to tell me what shots and what to expect (fever, redness, etc.).

Well, in my head, i am panicing,because I feel like I need to get out of this

situation quick, and I always feel so intimidated by dr.'s.(ugh!) I tell her I

have to talk to my husband before I make a decision like that. She says " well,

can you call him, because I am really worried that if she were to get a fever at

this age, she would need all kinds of testing, including kidneys and a spinal

tap " . (basically, trying to scare me!)

> I tell her no, that he is working and doesn't answer at work. I then tell her

that I will call and make an appt if I change my mind...of course never planning

to. She leaves the room without saying goodbye and goes onto her next appt. I

leave relieved, but also do not feel comftorable going to any more of these

" well baby " visits. They never did that back in the day, and I feel like it is

just one more way to control parents and take your money.

> Well, that was a little longer than I anticipated writing...I guess what I

would like to know is where I can find some good statistics on disease risk vs

vaccine risk. Thanks in advance! (The last part was just me venting...

>

> ~ (VA)

>

[Guest guest]

Dawn,

 

  Thanks for the great advice....I am checking them out right now! 

 

 

From: Dawn <dawndanc@...>

Subject: Re: looking for some advice

Vaccinations

Date: Tuesday, August 18, 2009, 10:45 PM

 

, start by reading the package inserts. When you find something very

disturbing - show him!! Print it and highlight it. Vaccine manufacturers don't

lie! You will find that often, babies are required to receive the same dose as a

fully grown adult (under dosage instructions) . Every vaccine carries the

warning that they do not know if they cause cancer, alter your DNA or impair

your fertility because studies have not been done. This warning has been on them

for YEARS. Just read the package inserts. I'm sure your mouth will fall open and

so will your husband's. A lot of information on the same page contradicts

itself. For example, on one hand, they say studies were performed on infants 6

weeks or older. However, if premature, go by their birth date?! Okay...what if

they were 3 months early??

http://vaers. hhs.gov/pdf/ PackageInserts. pdf (click on right-hand column to

bring up each one)

My blog, along with this group has a lot of info.....http:

//vaccinesexpose d.blogspot. com

What really convinced my Marine hubby was showing him that a .5 ml dose was a

one-size fits all. That made him sick. At 250 lbs. he would get the same dose as

our brand new baby.

Dawn

>

> Hey all,

>

> Neither my 2 year old daughter or 4 1/2 month old daughter have had any

vaccines, and I intend to keep it that way. My husband thinks there is nothing

wrong with vaccinating because " everyone he knows does it, and is fine " .

However, he has told me he would like to know more about the topic, mainly

disease risk vs vaccine risk. He is a numbers guy, so he likes to see

statistics. The problem is, every time I show him info, he says that I am only

showing him why you SHOULDN'T vaccinate, to which I respond, " that's because I

don't believe there are any benefits to vaccinating " . Obviously, he does feel

somewhat uncomftorable with vaccinating because he does not push the issue, but

he doesn't really want to discuss it much either. I really want him on my side

with this, and would really like to convince him that vaccines are dangerous.

> My 4 1/2 month old has an arachnoid cyst on her brain which they discovered

while I was pregnant. They actually thought she had dandy-walker syndrome and

put us through a lot of unnecessary worrying. Well, I called her neurologist

today to get his opinion on vaccinating because I figure he must see a lot of

autistic children. My husband also respects him, and said he would be interested

in what he has to say. I am praying that he tells me what I want to hear, but am

not betting on it. My husband also thinks dr.'s would never do anything to

endanger a child's health, and feels we should listen to them more often than

not. I do not feel that way, and mostly do not trust them. In fact, I do not

plan to take my baby to any more well baby check ups, because I feel they are

unnecessary, and am tired of getting the vaccine lecture. Last time I was there,

I felt like I was going to have a panic attack because of this conversation:

Dr.: " These are the shots

Brooklyn will be getting today " (she names them off) Me: I don't plan to

vaccinate, espcially with being on medication that is lowering her immune

system " Dr.: Well, a little protection is better than none....in fact, let me go

see what my colleagues have to say... " she comes back in the room, and says

this: " Yup, they agree with me, so this is what she's going to get today " , and,

she goes on to tell me what shots and what to expect (fever, redness, etc.).

Well, in my head, i am panicing,because I feel like I need to get out of this

situation quick, and I always feel so intimidated by dr.'s.(ugh!) I tell her I

have to talk to my husband before I make a decision like that. She says " well,

can you call him, because I am really worried that if she were to get a fever at

this age, she would need all kinds of testing, including kidneys and a spinal

tap " . (basically, trying to scare me!)

> I tell her no, that he is working and doesn't answer at work. I then tell her

that I will call and make an appt if I change my mind...of course never planning

to. She leaves the room without saying goodbye and goes onto her next appt. I

leave relieved, but also do not feel comftorable going to any more of these

" well baby " visits. They never did that back in the day, and I feel like it is

just one more way to control parents and take your money..

> Well, that was a little longer than I anticipated writing...I guess what I

would like to know is where I can find some good statistics on disease risk vs

vaccine risk. Thanks in advance! (The last part was just me venting....

>

> ~ (VA)

>

[Guest guest]

Dr Sear's book was the first I read too and it convinced me to delay and read

more and now I wont vaccinate. The two hour video shared recently was also

enough to convince my sister to stop vaccinating and before that she feared if

she did not vax and something happened she would not be able to live with

herself.

________________________________

From: yvomo_yvonne <yvomo@...>

Vaccinations

Sent: Sunday, August 16, 2009 8:05:05 AM

Subject: Re: looking for some advice

Have you tried Dr. Sear's book on vaccinating? He is pro-vax but all the

numbers and reasons he gives for vaxing is not convincing at all. In fact, all

the reasons he gives for not vaxing makes sense. Read it first and pass it to

your husband if you think he can read in between the lines. I know that was the

book that made me change from spacing out the vax to not vaccinating at all. I

think it really helped me that he was pro-vax. I felt a little bit like your

husband before, not knowing if I trust the sources or thinking the sources was

bias.

> > Neither my 2 year old daughter or 4 1/2 month old daughter

> > have had any vaccines, and I intend to keep it that way. My

> > husband thinks there is nothing wrong with vaccinating because

> > " everyone he knows does it, and is fine " . However, he has told

> > me he would like to know more about the topic, mainly disease

> > risk vs vaccine risk. He is a numbers guy, so he likes to see

> > statistics. The problem is, every time I show him info, he

> says

> > that I am only showing him why you SHOULDN'T vaccinate, to

> which

> > I respond, " that's because I don't believe there are any

> > benefits to vaccinating " . Obviously, he does feel somewhat

> > uncomftorable with vaccinating because he does not push the

> > issue, but he doesn't really want to discuss it much either. I

> > really want him on my side with this, and would really like to

> > convince him that vaccines are dangerous.