Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi Diane We are in a similar boat, I am due to start on MTX end of month - I've been on Plaquenil 60 days now with only partial relief. A journal is a very good idea - your general/specific comfort/pains and sleep are good ideas to journal, I would also add any activities that you do only episodically. Also if your rheumy suggest other interventions - diet, drug, rest, etc I would journal those also. Good idea! And good luck on the MTX, hope it works for both of us. - > > At my rheumy visit on Monday my RD changed my medication from sulphasalazine to 10 mg methotrexate and folic acid. The sulphasalazine just made me feel like a toxic waste dump and didn't do anything for my pain. I haven't started the methotrexate yet...it took 2 days for my pharmacy to get through to my insurance and then the patient advisory said to avoid vaccinations and I'm due to get my flu and pneumonia vaccine on Monday. I'm supposed to take the MTX once a week and the folic acid on the other 6 days. My multivitamin also has folic acid...should I also skip the vitamin on the MTX day? I don't have to worry about pregnancy, but I do worry about taking this drug. > > I'm starting to keep a daily journal listing how I slept (generally poorly), and how my day went and any aches and pains that need to be noted. Is there anything else that I should monitor? Weather conditions, food, activities? > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 My Rheumatologist told me to take my 5 mg of folic acid the day after my MTX injection. She said that the MTX will deplete the folic acid, so it is better to replace it the next day.... JP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 --- In , Barbara Creedon <bcreedon@...> wrote: >hello BC,my name is melynda.my rheummy & pcp both said do not take mtx & folic acid at the same time. you DEFINETLY NEED TO TAKE FOLIC ACID....GOD BLESS,melyndagamez>wrote:1:05 p.m.central time > Hi JP: > I also inject. MTX, and 12 hrs. later I take 2 Leucovorin pills to help with the nausea. Why do you take folic acid? > I got diagnosed with R.A. 6 years ago, and had never heard of it. It is progressing rapidly, so I decided to see if there was any support groups on line. So, here I am!!! > Thanks for your e-mail. > > BC > > > > [ ] Methotrexate & Folic Acid > > My Rheumatologist told me to take my 5 mg of folic acid the day after my MTX injection. She said that the MTX will deplete the folic acid, so it is better to replace it the next day.... > > JP > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Hi Melynda: Why take Folic acid? What does it do for you? How are you feeling now? I hope you had a good day, with not much pain. God Bless you too. Nice to chat with you, and thanks for your e-mail. Nice to hear from people who know what it is like to have R.A. I am sure it has changed your life, mine too. Looking forward to talking with again. B C [ ] Methotrexate & Folic Acid > > My Rheumatologist told me to take my 5 mg of folic acid the day after my MTX injection. She said that the MTX will deplete the folic acid, so it is better to replace it the next day.... > > JP > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 hello B C: im o.k. today a lil pain!! there are severe THUNDERSTORMS HERE IN CORPUS CHRISTI,TX.so thats not good for me.i TAKE folic acid cuz im on prednisone.the effects of the pred.is very SEVERE & it makes your BONES very BRITTLE & very prone to FRACTURES!!!!!!! i have had several fractures & broken my bones,by walking or just falling by ACCIDENT. its very PAINFUL! i also have OSTEOPOROSIS due to PREDNISONE effects.....oh i cant even explain how this diease has effected me & my family!!!! i have COME A LONG WAY,SOOO I WOULD NOT CHANGE MY LIFE FOR nothing or no one..god has a PURPOSE for ME,im SURE!!! god bless,melynda gamez<wrote:3/10/08 Barbara Creedon <bcreedon@...> wrote: Hi Melynda: Why take Folic acid? What does it do for you? How are you feeling now? I hope you had a good day, with not much pain. God Bless you too. Nice to chat with you, and thanks for your e-mail. Nice to hear from people who know what it is like to have R.A. I am sure it has changed your life, mine too. Looking forward to talking with again. B C [ ] Methotrexate & Folic Acid > > My Rheumatologist told me to take my 5 mg of folic acid the day after my MTX injection. She said that the MTX will deplete the folic acid, so it is better to replace it the next day.... > > JP > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 you are not supposed to take folic acid as the same day you take the methotrexate ne In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, mezuro@... writes: Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 wow ive never heard that hmmm my doc said no folic acid on the same day. Jolene In a message dated 4/11/2008 8:49:49 P.M. Eastern Daylight Time, McNacks@... writes: I take folic acid 7 days a week, 2 times a day. I'm currently on 4 mtxs a week. mary in pa Re: [ ] Re: Methotrexate & folic acid you are not supposed to take folic acid as the same day you take the methotrexate ne In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, _mezuro@..._ (mailto:mezuro@...) writes: Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez ************************<WBR>**It's Tax Time! Get tips, forms and adv & Finance. (_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolcmp00300000002850) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Hi, I also take my folic acid daily, 1 mg. Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 4/11/2008 9:25:51 P.M. Eastern Daylight Time, Jolenefive@... writes: wow ive never heard that hmmm my doc said no folic acid on the same day. Jolene In a message dated 4/11/2008 8:49:49 P.M. Eastern Daylight Time, _McNacks@..._ (mailto:McNacks@...) writes: I take folic acid 7 days a week, 2 times a day. I'm currently on 4 mtxs a week. mary in pa Re: [ ] Re: Methotrexate & folic acid you are not supposed to take folic acid as the same day you take the methotrexate ne In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, __mezuro (DOT) _me_ (mailto:_mezuro@...) _ (mailto:_mezuro@..._ (mailto:mezuro@...) ) writes: Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez ************************<WBR>**<WBR>*It's Tax Time! Get tips, forms a & Finance. (__http://money.http://money.<WBhttp://mo_ (http://money.http//moneyhttp://money.) <_WBhttp://mo__ (wbhttp://mo_/) (_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolcmp00300000002850) ) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ************************<WBR>**It's Tax Time! Get tips, forms and advice & Finance. (_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolcmp00300000002850) ) [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 HI , I take my methotrexate on Thursdays and my folic acid is 1mg every day. I started enbrel on Tuesday, no result yet. I think it is too soon too tell. Currenlty I am experiencing a lovely swollen wrist by the joint there up to the elbow to the pinky. Wonder how long it takes for the enbrel to kick in. The shot was easy to give, burned going in. I had a headache all day and had a little muscle stiffness in the neck and shoulder area. It all disappeared by the end of the day and the next day I felt fine. Time will tell I guess. Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 4/11/2008 9:02:30 P.M. Eastern Daylight Time, ortizd73@... writes: This is what my Dr. told me as well. I was taking my Metotrexate and folic acid on the same day, which for me was Friday. I never had any problems, perhaps the folic acid interacts with the medication. Who knows??? I have been on my Meds for two months now and no change. I begin enbrel injections next week. I hope they work for me. Does anyone else take enbrel? How is it? I would be intrested to know what I am in for. Thank You, . --- In _ @groRA-SUPP_ (mailto: ) , Jolenefive@., Jol > > you are not supposed to take folic acid as the same day you take the > methotrexate > > ne > > > In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, > mezuro@... writes: > > > > > Re: do you take the folic acid on the same day or a different day as > methotrexate? > > I take methotrexate one day a week. > > My rheumatologist prescribed folic acid every day. > > ez > > > > > > > > ************ ************<WBR>**It's Tax Time! Get tips, forms Money & > Finance. (_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolcmp00300000002850) ) > > > [Non-text portions of this message have been removed] > **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Hi Pat, I take 8 as well, how do you do with that? It makes me " fuzzy " . After I take 4 my brain is a gonner for a while. LOL. I'm ok the next day, more energetic. Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 4/11/2008 10:16:52 P.M. Eastern Daylight Time, pmandell@... writes: I have also been instructed to take folic acid every day. I am on 8 methotrexate tabs (20 mgs) per week and 2mg of folic acid every day. Hope that helps. Pat > > Re: do you take the folic acid on the same day or a different day as > methotrexate? > > I take methotrexate one day a week. > > My rheumatologist prescribed folic acid every day. > > ez > **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 I take folic acid 7 days a week, 2 times a day. I'm currently on 4 mtxs a week. mary in pa Re: [ ] Re: Methotrexate & folic acid you are not supposed to take folic acid as the same day you take the methotrexate ne In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, mezuro@... writes: Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 This is what my Dr. told me as well. I was taking my Metotrexate and folic acid on the same day, which for me was Friday. I never had any problems, perhaps the folic acid interacts with the medication. Who knows??? I have been on my Meds for two months now and no change. I begin enbrel injections next week. I hope they work for me. Does anyone else take enbrel? How is it? I would be intrested to know what I am in for. Thank You, . > > you are not supposed to take folic acid as the same day you take the > methotrexate > > ne > > > In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, > mezuro@... writes: > > > > > Re: do you take the folic acid on the same day or a different day as > methotrexate? > > I take methotrexate one day a week. > > My rheumatologist prescribed folic acid every day. > > ez > > > > > > > > **************It's Tax Time! Get tips, forms and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 I have also been instructed to take folic acid every day. I am on 8 methotrexate tabs (20 mgs) per week and 2mg of folic acid every day. Hope that helps. Pat > > Re: do you take the folic acid on the same day or a different day as > methotrexate? > > I take methotrexate one day a week. > > My rheumatologist prescribed folic acid every day. > > ez > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 , I take Enbrel with my MTX, Plaquenil & prednisone. The Enbrel has done a fantastic job. I began feeling much better about 2½ weeks after starting it. I have no side effects either. Yeah!!! > > > > you are not supposed to take folic acid as the same day you take > the > > methotrexate > > > > ne > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 jolene i was told the same thing.. i was getting kinda scared when i read the other message.. thank-you for putting my mind at ease.. god bless,melyndagamez 4/11/08 10:15p.m. central Re: [ ] Re: Methotrexate & folic acid you are not supposed to take folic acid as the same day you take the methotrexate ne In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, mezuro@... writes: Re: do you take the folic acid on the same day or a different day as methotrexate? I take methotrexate one day a week. My rheumatologist prescribed folic acid every day. ez **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 This is a controversial issue, Jo. Some researchers and rheumatologists believe that folic acid may reduce the effectiveness of MTX, so they advise skipping the folic acid on the day you take the MTX. Others advise taking the folic acid every day because they believe the impact on MTX's effectiveness is negligible. Not an MD On Fri, Apr 11, 2008 at 7:38 PM, <Jolenefive@...> wrote: > you are not supposed to take folic acid as the same day you take the > methotrexate > > ne > > > In a message dated 4/11/2008 8:22:02 P.M. Eastern Daylight Time, > mezuro@... writes: > > > > > Re: do you take the folic acid on the same day or a different day as > methotrexate? > > I take methotrexate one day a week. > > My rheumatologist prescribed folic acid every day. > > ez > > > > > > > > **************It's Tax Time! Get tips, forms and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hi, I take MTX 20mg/wk (8tabs) every Wed night and take 1mg folic acid daily. The s- Hopkins website also recommends daily folic acid. in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Here again is a good example of a need to take liquid MTX by mouth or injection. It changes the possible reactions to something that may be better for you. I've been 'lucky?' in that there is no reaction even though I take 1.2cc each week, and been taking MTX for almost 20 years. Dennis in eastexas Re: [ ] Re: Methotrexate & folic acid > Hi Pat, > > I take 8 as well, how do you do with that? It makes me " fuzzy " . After I > take 4 my brain is a gonner for a while. LOL. I'm ok the next day, more > energetic. > > Heidi > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > > In a message dated 4/11/2008 10:16:52 P.M. Eastern Daylight Time, > pmandell@... writes: > > > > > I have also been instructed to take folic acid every day. I am on 8 > methotrexate tabs (20 > mgs) per week and 2mg of folic acid every day. > > Hope that helps. > > Pat > > >> >> Re: do you take the folic acid on the same day or a different day as >> methotrexate? >> >> I take methotrexate one day a week. >> >> My rheumatologist prescribed folic acid every day. >> >> ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hi Dennis, Right now being on so many meds, I am very careful with how I do things...I'm sensitive to so many. I don't think that I want to drink my mtx, and as far as the injectible, I have never mentioned it to my rheumy. Now that I am on enbrel , if it is successful, there is a chance of decreasing the mtx...so for now, inspite of it making me " fuzzy " ....it is still working for me. I am interested though from everyone, doyou all find that you have less energy by the time its time for your next dose of mtx? and the day after you are back to a good , workable energy level? that is what happens to me. Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 4/12/2008 10:42:17 P.M. Eastern Daylight Time, betnden@... writes: Here again is a good example of a need to take liquid MTX by mouth or injection. It changes the possible reactions to something that may be better for you. I've been 'lucky?' in that there is no reaction even though I take 1.2cc each week, and been taking MTX for almost 20 years. Dennis in eastexas Re: [ ] Re: Methotrexate & folic acid > Hi Pat, > > I take 8 as well, how do you do with that? It makes me " fuzzy " . After I > take 4 my brain is a gonner for a while. LOL. I'm ok the next day, more > energetic. > > Heidi > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > > In a message dated 4/11/2008 10:16:52 P.M. Eastern Daylight Time, > _pmandell@..._ (mailto:pmandell@...) writes: > > > > > I have also been instructed to take folic acid every day. I am on 8 > methotrexate tabs (20 > mgs) per week and 2mg of folic acid every day. > > Hope that helps. > > Pat > > >> >> Re: do you take the folic acid on the same day or a different day as >> methotrexate? >> >> I take methotrexate one day a week. >> >> My rheumatologist prescribed folic acid every day. >> >> ez **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 HI Heidi, I see no energy level difference near the time when I take my mtx (I take 4). Sometimes, I forget, go a day or two over and then my only sign is a joint gets stiff, once I take it, the next day, back to my normal. Hope this helps, mary in pa Re: [ ] Re: Methotrexate & folic acid > Hi Pat, > > I take 8 as well, how do you do with that? It makes me " fuzzy " . After I > take 4 my brain is a gonner for a while. LOL. I'm ok the next day, more > energetic. > > Heidi > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > > In a message dated 4/11/2008 10:16:52 P.M. Eastern Daylight Time, > _pmandell@..._ (mailto:pmandell@...) writes: > > > > > I have also been instructed to take folic acid every day. I am on 8 > methotrexate tabs (20 > mgs) per week and 2mg of folic acid every day. > > Hope that helps. > > Pat > > >> >> Re: do you take the folic acid on the same day or a different day as >> methotrexate? >> >> I take methotrexate one day a week. >> >> My rheumatologist prescribed folic acid every day. >> >> ez **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Hi Everyone, I take four Methotrexate a week and 1 mg of Folic Acid everyday. My doctor didn't say anything about not taking the Folic Acid on the day I take the Mtx. The last two months I've noticed that I feel really tired and wore out after I take the Mtx. I don't know why this just started recently since I've been taking Mtx for about a year and a half. I usually take it on Sunday. I work two days during the week and every other weekend, 12 hour shifts. I took the Mtx on Sunday two weeks ago while I was working and I had no energy at all and dragged along all night long. I'm supposed to take it today and go to work tonight. I think I'm going to wait until tomorrow to take it this week. Does it hurt anything if you don't take it on the same day every week? Pam > >> > >> Re: do you take the folic acid on the same day or a different day as > >> methotrexate? > >> > >> I take methotrexate one day a week. > >> > >> My rheumatologist prescribed folic acid every day. > >> > >> ez > > **************It's Tax Time! Get tips, forms and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Heidi, the MTX doesn't have much of a taste to begin with, but I took it in a glass of orange juice and never noticed it. I have been fortunate that I haven't had any side effects from it except for the folic acid snafu from the Rummy that I used for a while. And, it's less expensive, which is important to me. I get 5 ea 2cc vials for about $30 before my insurance co-pay. Right now I'm taking 2mg Folic Acid per day but have taken as much as 5mg per day when we finally found out that the Rummy wasn't much of a Rheumy. I don't know anything about the biologics since I'm doing so well with MTX and Lodine and Prednisone. Dennis in eastexas Re: [ ] Re: Methotrexate & folic acid > >> Hi Pat, >> >> I take 8 as well, how do you do with that? It makes me " fuzzy " . After I >> take 4 my brain is a gonner for a while. LOL. I'm ok the next day, more >> energetic. >> >> Heidi >> >> To those who believe, no explanation is necessary; to those who dont, no >> explanation is possible >> >> >> In a message dated 4/11/2008 10:16:52 P.M. Eastern Daylight Time, >> _pmandell@..._ (mailto:pmandell@...) writes: >> >> >> >> >> I have also been instructed to take folic acid every day. I am on 8 >> methotrexate tabs (20 >> mgs) per week and 2mg of folic acid every day. >> >> Hope that helps. >> >> Pat >> >> >>> >>> Re: do you take the folic acid on the same day or a different day as >>> methotrexate? >>> >>> I take methotrexate one day a week. >>> >>> My rheumatologist prescribed folic acid every day. >>> >>> ez > > > > > > > > > **************It's Tax Time! Get tips, forms and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) > > > Quote Link to comment Share on other sites More sharing options...
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