Re: anyone here have MS too?

[Guest guest]

,

A good friend of mine who has lupus and just got diagnosed w/ MS. I

don't know if an auto-immune disease is related to MS, but I thought

I would let you know what it is not completely unheard of.

>

> Hi all,

>

> I was told told that RA and MS go together. I have four small

spots on my brain like MS but

> was told I don't have MS. Then again, I was told I didn't have RA

either. Anyone else?

>

>

>

[Guest guest]

> I was told told that RA and MS go together. I have four small spots

on my brain like MS but

> was told I don't have MS. Then again, I was told I didn't have RA

either. Anyone else?

>

I was diagnosed with RA at 18. From then on I collected autoimmune

diseases. I, too, had spots in my brain. They have gone away. I have

repeatedly been worked up for MS. I have many MS symptoms. In 2000 I

was diagnosed with MG....myasthenia gravis.

My personal opinion is that these diseases have whole clusters of

symptoms that cross over and are in common with other autoimmune

diseases. Over the last 30+ years of one thing after another, I have

realized there is no exact science for any of this.

I have been labeled with disease after disease, then other docs say

nope...it's something else. At the moment my docs say I have mixed

connective tissue disease, myasthenia gravis, fibro, Raynaud's,

Sjogren's, Crohn's and a bunch more. Only God knows what it really is,

docs are just practicing ;-p

the Wanderer in Florida

http://wendyusuallywanders.wordpress.com/

It is precisely because neither individuals nor small groups can be

fully self-sufficient that cooperation is necessary to human survival

and flourishing. Tom G. Palmer

[Guest guest]

I have three friends with MS, two of them near their

60's now. That is the only disease that they suffer

from, they do not have RA or FMS or anything like

that.

--- <man_u8@...> wrote:

> ,

> A good friend of mine who has lupus and just got

> diagnosed w/ MS. I

> don't know if an auto-immune disease is related to

> MS, but I thought

> I would let you know what it is not completely

> unheard of.

>

>

>

>

>

> >

> > Hi all,

> >

> > I was told told that RA and MS go together. I

> have four small

> spots on my brain like MS but

> > was told I don't have MS. Then again, I was told

> I didn't have RA

> either. Anyone else?

> >

> >

> >

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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[Guest guest]

Yes, MS is an autoimmune disease. I didn't mean to imply it always goes

together. My

doctor at Harvard said it is not uncommon to find them together.

I don't think I have it. I just got blood work back and my endocriologist thinks

I either have

a pituatary tumor or adrenal dysfunction/tumor.

My male pattern balding started right when my RA got really bad. It is very

uncommon in

pre-menopausal women. Only 1% of the female population. Of course my doctors

kept

blowing it off. Obviously my hormones are out of whack at some level. Maybe if

I can get

this treated, my RA will improve too.

The test that finally showed the abnormality was the DHEA-s test. My was sky

high. 150

points above normal. My endocrinologist is good but the rest have done nothing

for me.

>

> Hi all,

>

> I was told told that RA and MS go together. I have four small spots on my

brain like MS

but

> was told I don't have MS. Then again, I was told I didn't have RA either.

Anyone else?

>

>

>

[Guest guest]

Yes, I have MS and RA. Diagnosed with RA then 3 mos later MS. I have a

positive RA factor and have lesions on my brain from the MS.

[ ] Re: anyone here have MS too?

Yes, MS is an autoimmune disease. I didn't mean to imply it always goes

together. My

doctor at Harvard said it is not uncommon to find them together.

I don't think I have it. I just got blood work back and my endocriologist thinks

I either have

a pituatary tumor or adrenal dysfunction/ tumor.

My male pattern balding started right when my RA got really bad. It is very

uncommon in

pre-menopausal women. Only 1% of the female population. Of course my doctors

kept

blowing it off. Obviously my hormones are out of whack at some level. Maybe if I

can get

this treated, my RA will improve too.

The test that finally showed the abnormality was the DHEA-s test. My was sky

high. 150

points above normal. My endocrinologist is good but the rest have done nothing

for me.

>

> Hi all,

>

> I was told told that RA and MS go together. I have four small spots on my

brain like MS

but

> was told I don't have MS. Then again, I was told I didn't have RA either.

Anyone else?

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I would appreciate more info on this topic. I have RA and a very

strong family history of MS.

I have many MS symptoms...ie: muscle weakness,spasms, vision

problems, inability to tolerate heat, thyroid issues, dropsies,

etc....

I have been told I " over react to RA " .

I have been stoic all my life and now question whether I have

additional issues.

I do believe this is worth exploring...

Cordially,

> >

> > Hi all,

> >

> > I was told told that RA and MS go together. I have four small

spots on my brain like MS

> but

> > was told I don't have MS. Then again, I was told I didn't have RA

either. Anyone else?

> >

> >

> >

>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

[Guest guest]

I have just about all of the symptoms you describe below. My pcp sent me for an

MRI because I was having double vision. She found the lesions and sent me to a

neurologist They did an MRI, spinal tap and vision tests. I have the lesions,

had double vision and got to where I could not walk (lost my equilibrium). I

was on methotrexate when I developed double vision so I will never be able to

take it again. I take sulfasalazine, plaquenil and Orencia infusion. My rheumy

chose Orencia because it would only stay 30 days in my system should it affect

my MS. So far, it has not bothered the MS. I have been taking Orencia for over

a year now. It is hard to determine what is the RA and what is the MS. I do

take a shot a day for the MS (copaxone). Let me know if I can be of further

assistance.

Miny

[ ] Re: anyone here have MS too?

I would appreciate more info on this topic. I have RA and a very

strong family history of MS.

I have many MS symptoms...ie: muscle weakness,spasms, vision

problems, inability to tolerate heat, thyroid issues, dropsies,

etc....

I have been told I " over react to RA " .

I have been stoic all my life and now question whether I have

additional issues.

I do believe this is worth exploring...

Cordially,

> >

> > Hi all,

> >

> > I was told told that RA and MS go together. I have four small

spots on my brain like MS

> but

> > was told I don't have MS. Then again, I was told I didn't have RA

either. Anyone else?

> >

> >

> >

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ __

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

>

[Guest guest]

Thank you so much for your reply.

I will save it. I am having more tests done.

I was on plaquenal and could not tolerate it.

I am on sulfasalazene, celebrex etc...

I take prednizone during flares.

I love how I feel on it but the weight gain is a major health issue.

My symptoms seem to be more than my confirmed RA.

I have fallen many times and broken my leg 3 times. I am terrifed

crossing the street that I may fall midway.

I know I need to be more active but am so fearful of injury.

I would love an explanation.

Can you drive. Does your vision play tricks with you on the road?

I have become a horrid passenger. My eyes see all cars crashing in....

Miny S <minyslater@...> wrote:

I have just about all of the symptoms you describe below. My pcp sent

me for an MRI because I was having double vision. She found the lesions and sent

me to a neurologist They did an MRI, spinal tap and vision tests. I have the

lesions, had double vision and got to where I could not walk (lost my

equilibrium). I was on methotrexate when I developed double vision so I will

never be able to take it again. I take sulfasalazine, plaquenil and Orencia

infusion. My rheumy chose Orencia because it would only stay 30 days in my

system should it affect my MS. So far, it has not bothered the MS. I have been

taking Orencia for over a year now. It is hard to determine what is the RA and

what is the MS. I do take a shot a day for the MS (copaxone). Let me know if I

can be of further assistance.

Miny

[ ] Re: anyone here have MS too?

I would appreciate more info on this topic. I have RA and a very

strong family history of MS.

I have many MS symptoms...ie: muscle weakness,spasms, vision

problems, inability to tolerate heat, thyroid issues, dropsies,

etc....

I have been told I " over react to RA " .

I have been stoic all my life and now question whether I have

additional issues.

I do believe this is worth exploring...

Cordially,

> >

> > Hi all,

> >

> > I was told told that RA and MS go together. I have four small

spots on my brain like MS

> but

> > was told I don't have MS. Then again, I was told I didn't have RA

either. Anyone else?

> >

> >

> >

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ __

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

>

[Guest guest]

> I have many MS symptoms...ie: muscle weakness,spasms, vision

> problems, inability to tolerate heat, thyroid issues, dropsies,

> etc....

>

>

Read up on myasthenia gravis, too. They share many of the same

symptoms and I have MG for sure, even though docs still wonder about

MS from time to time. Google myasthenia gravis symptoms. To see a list

put together by an internet MG group, check this out for the human

element, not just clinical stuff...

http://tinyurl.com/37rhyw

the Wanderer in Florida

http://wendyusuallywanders.wordpress.com/

It is precisely because neither individuals nor small groups can be

fully self-sufficient that cooperation is necessary to human survival

and flourishing. Tom G. Palmer

[Guest guest]

Thank you for your reply. your web site was excellent and most informative.

Did not fit me, but may help others.....

I had a very bad day. Tried to do 4 loads of laundry. Could not fold. My

hands spazzed up. Were unusable for more than an hour. Pain excruciating. There

is an explanation out there.

<wendy.s.martin@...> wrote:

> I have many MS symptoms...ie: muscle weakness,spasms, vision

> problems, inability to tolerate heat, thyroid issues, dropsies,

> etc....

>

>

Read up on myasthenia gravis, too. They share many of the same

symptoms and I have MG for sure, even though docs still wonder about

MS from time to time. Google myasthenia gravis symptoms. To see a list

put together by an internet MG group, check this out for the human

element, not just clinical stuff...

http://tinyurl.com/37rhyw

the Wanderer in Florida

http://wendyusuallywanders.wordpress.com/

It is precisely because neither individuals nor small groups can be

fully self-sufficient that cooperation is necessary to human survival

and flourishing. Tom G. Palmer

Raniolo