Re: Re: Discouraged and Depessed help somewhere

[Guest guest]

That is TERRIBLE that you got treated like that. I have been there with the

Dr. who has blamed me almost and made me feel guilty that I had even come.

Luckily I now have a good team, although my Rheumo, doesn't like to see that I

am on the pain Med Vicodin and would like to cut me down, I have told her I need

them or surley would not make it lately MOST days now. My pirmary Dr. thinks it

time I go to a pain clinic and they say sometimes Fibro sufferers Have to be on

a strong Med and it be a lifetime relationship. I have been on every other non

narcotic, med and had so many bad side effects could not take. Luckily also my

Dr's, beleive pain meds were made for a reason and no one should have to suffer,

and I was able to put on a front and hide my pain for a long long time, but now

they have seen me at my worst and now know IHURT, and wonder how I did as much

as I did up until Aug. The last thing anyone who is suffering needs is a cocky

Dr. I called over a yr ago as

directed by my doc. to the Pain Management Center and the front office lady was

awful to me, she was irrogant and treated me like I was calling hoping to get a

prescription right over the phone I guess. I never called back or went! I to

fear the thought of a new Dr. as we have moved from Mass. to ME. it to is a

small area I am in, and hate the thought of starting all over again, plus I am

at jeaprody of losing our Insurance as it is Ma. based under my husband as a

fishing partnership program. OH, where will I be then. I can only say I don't

think I would go back to her, it is your right to have a Dr. to begin with hear

you out, and if you were on meds that worked before they should carry over,

reguardless of what she thinks. Some of them believe with the Fibro u should

not take pain meds, as we should learn to trick it into remission, and that

can't be done with a pain Med, ya right, I have been in pain for 20 yrs, but

just recent diagnoised, and took nothing until

then, have used accupunture, which did help but can't afford. I think you

should go back to your old Dr. and tell them what happened and ask for another

referral or at least ask him to keep you on the precriptions he had given you

that work, and continue seeing who he sent u to for other stuff, but I won't go

to a DR. anymore who can't listen to me and have compassion, mine take all the

time I need and really work with me. My Rheumo as I said would rather not see

take so many pain meds, but I have told her I would never get through I can not

even get out of bed most days now without a muscle relaxer, and pain med., She

has known me all my lifr though her mom was my pedotrician,,and she is my mom's

god child.

She knows her stuff, she has helped my mom tremdously and others that I have

met in the waiting room, which that is something we DO do WAIT when we have an

appt. The best to you in getting right help.

lizzy138_2001 <lizzy138_2001@...> wrote:

oh my goodness that must have been terrible for you. i'm sorry you

had to go through that. iknow how it is to have someone think you are

faking and it is frustrating. you have alot more will power than i do

i would have said something. as for the sleeping aid. i take unisom

it is the best OTC sleep aid i have tried so far. don't let it get to

you. happiness helps alot with RA and right now it sounds like you

need it. sometimes i like to escape in a good book

-Liz

>

> OK. Today has not been good AT ALL. My rheumatoligist had referred

me

> to another rheumy at the Med University of SC in ton and I

> went this morning. And now all I want to do is cry.

>

> Let me start with the fact that I have had RA since 2002. I have

been

> seperately diagnosed by 3 different primary doctors an addition to

my

> local rheumatologist. This " doctor " today felt like I didn't have

RA.

> She said she felt like I had fibromyalgia, possibly lupus, possibly

> scleroderma and more than likely a sleeping disorder. She DID run a

> lot of bloodwork which I am glad because blood tests don't lie.

Other

> than my shoulders, hands & feet, I was actually having a good day

> today. Oh and " since I am double jointed, that can cause joint

> problems. "

>

> Fibro had been mentioned to me a couple of years ago but I have had

> lupus tests run - all negative in the past. I don't sleep well

> because of the pain that she " brushed off " . With my shoulders

alone,

> I have dislocated both a total of 5 times, have 4 pins in one and a

> fracture to the other. Then just had all of the other wonderful

aches

> and pains. She doesn't believe in pain meds, doesn't prescribe

them,

> and doesn't prescribe sleeping aids. She told me this all up front -

> I never asked for anything. Although I was going to, but not after

> she said that. She wants me to go to a sleep clinic. I don't have a

> disorder!!!!! and I am jsut so ticked that I wasted money and time

> with this woman.

>

> I don't know where else to turn and I am probably the most

> discouraged I have ever been. And I am a naturally happy person but

I

> feel like somebody punched me in the stomach at this point. I did

> NOT walk in there wanting a bunch of pills, etc. And I want to make

> myself clear on that as I know doctors have to be really careful.

All

> I want is to get on something that minimizes & addresses the real

> problem but until a doctor comes up with a treatment plan that I

can

> tolerate, exactly what am I supposed to do about the pain???? I am

in

> pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> med's (and I am talking, throat closing up, hives, face swollen) OR

I

> had severe side effects. Rituxan was the only drug I tollerated,

> however, there was no real change in my condition. That is why he

> released me and referred me to the university. He has kept me on

> prednisone, percocet (I have never had more than 2 - 5mg in one

day!)

> & ambien until I could see her.

>

> I know I have to wait for the bloodwork to prove her wrong and I

> realize that there's a possiblity that I could have something else

in

> addition to RA. BUT - I didn't even like her! She was stiff - no

bed

> side manner and cold. She pitched a fit to sign my renewal form for

a

> handicap placecard! She said " I didn't need it " . I said, well I

guess

> you didn't notice the very noticable limp I have. I never, ever

take

> advantage of the thing, but when I need it, I need it. She totally

> blew me off and that really pissed me off. I don't even know where

to

> go from here. I live in a relatively small town - with only 2

> rheumy's in town. One is a well known quack and the other one was

the

> one that had been my doctor. The thought of having to find yet

> another doctor and go thru the same garbage is just depressing. I

> can't beleive how she shrugged off my pain and my symptoms. I

wasn't

> about to ask her for a thing the way she treated me and this is

> supposed to be some great wonderful teaching hospital????? I think

> she should go BACK to school and learn a few more things.

>

> Does anyone have any suggestions on finding a good doctor in the

> South/East? I live in South Carolina. I can't afford to have a ton

of

> expensive visits and walk away feeling like I feel right now. This

> has really put a bad taste in my mouth not to mention the fact that

I

> am really depressed now. Several hundred dollars right down the

tube.

> Although I wouldn't go back to her if she was the last doctor on

the

> planet, I am looking forward to proving her wrong.

> Thank you so much for just listening

>

[Guest guest]

Thanks to all for your thoughts AND your support. After blowing a gasket

yesterday - I actually feel much better today. Very few things in life really

tick me off and get me upset but that sure did! It's like riding a horse I guess

- you fall off but you get back up and get on again. Hopefully I won't have to

search too far to find a doctor that will listen - that is the most important

thing. It will be a little - (little is an understatement!!) tough for awhile

but I have been through worse I suppose! Thanks again to all for writing &

calling!!! D.

sharon studley <seescallop@...> wrote: That is TERRIBLE that you

got treated like that. I have been there with the Dr. who has blamed me almost

and made me feel guilty that I had even come. Luckily I now have a good team,

although my Rheumo, doesn't like to see that I am on the pain Med Vicodin and

would like to cut me down, I have told her I need them or surley would not make

it lately MOST days now. My pirmary Dr. thinks it time I go to a pain clinic and

they say sometimes Fibro sufferers Have to be on a strong Med and it be a

lifetime relationship. I have been on every other non narcotic, med and had so

many bad side effects could not take. Luckily also my Dr's, beleive pain meds

were made for a reason and no one should have to suffer, and I was able to put

on a front and hide my pain for a long long time, but now they have seen me at

my worst and now know IHURT, and wonder how I did as much as I did up until Aug.

The last thing anyone who is suffering

needs is a cocky Dr. I called over a yr ago as

directed by my doc. to the Pain Management Center and the front office lady was

awful to me, she was irrogant and treated me like I was calling hoping to get a

prescription right over the phone I guess. I never called back or went! I to

fear the thought of a new Dr. as we have moved from Mass. to ME. it to is a

small area I am in, and hate the thought of starting all over again, plus I am

at jeaprody of losing our Insurance as it is Ma. based under my husband as a

fishing partnership program. OH, where will I be then. I can only say I don't

think I would go back to her, it is your right to have a Dr. to begin with hear

you out, and if you were on meds that worked before they should carry over,

reguardless of what she thinks. Some of them believe with the Fibro u should not

take pain meds, as we should learn to trick it into remission, and that can't be

done with a pain Med, ya right, I have been in pain for 20 yrs, but just recent

diagnoised, and took nothing until

then, have used accupunture, which did help but can't afford. I think you should

go back to your old Dr. and tell them what happened and ask for another referral

or at least ask him to keep you on the precriptions he had given you that work,

and continue seeing who he sent u to for other stuff, but I won't go to a DR.

anymore who can't listen to me and have compassion, mine take all the time I

need and really work with me. My Rheumo as I said would rather not see take so

many pain meds, but I have told her I would never get through I can not even get

out of bed most days now without a muscle relaxer, and pain med., She has known

me all my lifr though her mom was my pedotrician,,and she is my mom's god child.

She knows her stuff, she has helped my mom tremdously and others that I have met

in the waiting room, which that is something we DO do WAIT when we have an appt.

The best to you in getting right help.

lizzy138_2001 <lizzy138_2001@...> wrote:

oh my goodness that must have been terrible for you. i'm sorry you

had to go through that. iknow how it is to have someone think you are

faking and it is frustrating. you have alot more will power than i do

i would have said something. as for the sleeping aid. i take unisom

it is the best OTC sleep aid i have tried so far. don't let it get to

you. happiness helps alot with RA and right now it sounds like you

need it. sometimes i like to escape in a good book

-Liz

>

> OK. Today has not been good AT ALL. My rheumatoligist had referred

me

> to another rheumy at the Med University of SC in ton and I

> went this morning. And now all I want to do is cry.

>

> Let me start with the fact that I have had RA since 2002. I have

been

> seperately diagnosed by 3 different primary doctors an addition to

my

> local rheumatologist. This " doctor " today felt like I didn't have

RA.

> She said she felt like I had fibromyalgia, possibly lupus, possibly

> scleroderma and more than likely a sleeping disorder. She DID run a

> lot of bloodwork which I am glad because blood tests don't lie.

Other

> than my shoulders, hands & feet, I was actually having a good day

> today. Oh and " since I am double jointed, that can cause joint

> problems. "

>

> Fibro had been mentioned to me a couple of years ago but I have had

> lupus tests run - all negative in the past. I don't sleep well

> because of the pain that she " brushed off " . With my shoulders

alone,

> I have dislocated both a total of 5 times, have 4 pins in one and a

> fracture to the other. Then just had all of the other wonderful

aches

> and pains. She doesn't believe in pain meds, doesn't prescribe

them,

> and doesn't prescribe sleeping aids. She told me this all up front -

> I never asked for anything. Although I was going to, but not after

> she said that. She wants me to go to a sleep clinic. I don't have a

> disorder!!!!! and I am jsut so ticked that I wasted money and time

> with this woman.

>

> I don't know where else to turn and I am probably the most

> discouraged I have ever been. And I am a naturally happy person but

I

> feel like somebody punched me in the stomach at this point. I did

> NOT walk in there wanting a bunch of pills, etc. And I want to make

> myself clear on that as I know doctors have to be really careful.

All

> I want is to get on something that minimizes & addresses the real

> problem but until a doctor comes up with a treatment plan that I

can

> tolerate, exactly what am I supposed to do about the pain???? I am

in

> pain 24/7. My former rheumy had me go thru all of the DMARD;s,

> NSAID's, Enbrel, Humira and Rituxan. I was either allergic to the

> med's (and I am talking, throat closing up, hives, face swollen) OR

I

> had severe side effects. Rituxan was the only drug I tollerated,

> however, there was no real change in my condition. That is why he

> released me and referred me to the university. He has kept me on

> prednisone, percocet (I have never had more than 2 - 5mg in one

day!)

> & ambien until I could see her.

>

> I know I have to wait for the bloodwork to prove her wrong and I

> realize that there's a possiblity that I could have something else

in

> addition to RA. BUT - I didn't even like her! She was stiff - no

bed

> side manner and cold. She pitched a fit to sign my renewal form for

a

> handicap placecard! She said " I didn't need it " . I said, well I

guess

> you didn't notice the very noticable limp I have. I never, ever

take

> advantage of the thing, but when I need it, I need it. She totally

> blew me off and that really pissed me off. I don't even know where

to

> go from here. I live in a relatively small town - with only 2

> rheumy's in town. One is a well known quack and the other one was

the

> one that had been my doctor. The thought of having to find yet

> another doctor and go thru the same garbage is just depressing. I

> can't beleive how she shrugged off my pain and my symptoms. I

wasn't

> about to ask her for a thing the way she treated me and this is

> supposed to be some great wonderful teaching hospital????? I think

> she should go BACK to school and learn a few more things.

>

> Does anyone have any suggestions on finding a good doctor in the

> South/East? I live in South Carolina. I can't afford to have a ton

of

> expensive visits and walk away feeling like I feel right now. This

> has really put a bad taste in my mouth not to mention the fact that

I

> am really depressed now. Several hundred dollars right down the

tube.

> Although I wouldn't go back to her if she was the last doctor on

the

> planet, I am looking forward to proving her wrong.

> Thank you so much for just listening

>

[Guest guest]

,

For your safety, when asked what drugs you are taking, you should always

list them all.

Not an MD

> Re: [ ] Re: Discouraged and Depessed help somewhere

>

> Actually I did write everything I was taking on the application because I

thought being

> honest was the right thing to do. BUT I hadn't looked at it the way you

mentioned. Do

> you think maybe in this case I shouldn't have?

[Guest guest]

That's what I thought - I don't have anything to hide. I was not there to seek

out some kind of drug but I expected her to listen. Had she listened and had I

been given the opportunity to really speak, she would have found out that the

only reason I was put on the pain med that I have been on is because it's the

only one that my former doctor found that I could tolerate. I am unable to take

NSAID's for a host of reasons. Believe me, I have been put on numerous drugs,

paid an enormous amount of money on drugs that I am either allergic to or I have

suffered severe side effects.

Once I calmed down from the entire ordeal and just looked at the facts, this

doctor was more interested in her clinical trials for other conditions than with

my very unique situation. She agreed with my last rheumy until she realized that

I was coming to her for treatment and then she started in on her study groups,

etc. Bottom line - I don't think she was incompetent or anything, but we did not

hit it off by a long shot. And if I am going to have to see a doctor for years

to come, I want to feel like I am listened to and that my welfare is as

important to them as it is to me. I just didn't get that from her.

<Matsumura_Clan@...> wrote:

,

For your safety, when asked what drugs you are taking, you should always

list them all.

Not an MD

> Re: [ ] Re: Discouraged and Depessed help somewhere

>

> Actually I did write everything I was taking on the application because I

thought being

> honest was the right thing to do. BUT I hadn't looked at it the way you

mentioned. Do

> you think maybe in this case I shouldn't have?

ltdavis_jrdavis@...

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I'm sorry your visit was such a bad experience, . I can certainly

understand your feelings about it. I wish it were otherwise, but finding an

excellent rheumatologist is not always easy (or cheap).

Not an MD

> RE: [ ] Re: Discouraged and Depessed help somewhere

>

> That's what I thought - I don't have anything to hide. I was not there to

seek out

> some kind of drug but I expected her to listen. Had she listened and had I

been given

> the opportunity to really speak, she would have found out that the only

reason I was

> put on the pain med that I have been on is because it's the only one that

my former

> doctor found that I could tolerate. I am unable to take NSAID's for a host

of reasons.

> Believe me, I have been put on numerous drugs, paid an enormous amount of

money

> on drugs that I am either allergic to or I have suffered severe side

effects.

>

> Once I calmed down from the entire ordeal and just looked at the facts,

this doctor

> was more interested in her clinical trials for other conditions than with

my very unique

> situation. She agreed with my last rheumy until she realized that I was

coming to her

> for treatment and then she started in on her study groups, etc. Bottom

line - I don't

> think she was incompetent or anything, but we did not hit it off by a long

shot. And if

> I am going to have to see a doctor for years to come, I want to feel like

I am listened

> to and that my welfare is as important to them as it is to me. I just

didn't get that

> from her.

[Guest guest]

So true , when I was having all the problems with the MTX and no one

would believe me , I gave him one more chance, presented my case and

evidence, and if he did not believe me. I had already scheduled an appt with

my g/f RA doctor, which was 2 hours from me, but after talking with Terry,

he said he did not care what the distance was! But he listened and said I

feel you are right, so lets try Arava! I had prayed that God would show me

where I was to go and he showed me !

Debbie A

Have a great day !

-- RE: [ ] Re: Discouraged and Depessed help somewhere

>

> That's what I thought - I don't have anything to hide. I was not there to

seek out

> some kind of drug but I expected her to listen. Had she listened and had I

been given

> the opportunity to really speak, she would have found out that the only

reason I was

> put on the pain med that I have been on is because it's the only one that

my former

> doctor found that I could tolerate. I am unable to take NSAID's for a host

of reasons.

> Believe me, I have been put on numerous drugs, paid an enormous amount of

money

> on drugs that I am either allergic to or I have suffered severe side

effects.

>

> Once I calmed down from the entire ordeal and just looked at the facts,

this doctor

> was more interested in her clinical trials for other conditions than with

my very unique

> situation. She agreed with my last rheumy until she realized that I was

coming to her

> for treatment and then she started in on her study groups, etc. Bottom

line - I don't

> think she was incompetent or anything, but we did not hit it off by a long

shot. And if

> I am going to have to see a doctor for years to come, I want to feel like

I am listened

> to and that my welfare is as important to them as it is to me. I just

didn't get that

> from her.

[Guest guest]

I made a list of my meds starting with my name and the date of listing. Then

I list all the meds by name, then size/quantity, when they are taken, and

lastly what they are for. I then list all the alergies, then the doctor's

names and phone numbers. The last thing is my contact info and phone

numbers. I print my info on one side of the paper and my wife's info on the

other side. Both of us carry a current copy of it and offer it instead of

having to list anything on the forms. They are really helpful because we

won't forget to mention any of the meds otherwise.

Dennis in eastexas

> <Matsumura_Clan@...> wrote:

> ,

>

> For your safety, when asked what drugs you are taking, you should always

> list them all.

>

>

> Not an MD

>

>> Re: [ ] Re: Discouraged and Depessed help somewhere

>>

>> Actually I did write everything I was taking on the application because I

> thought being

>> honest was the right thing to do. BUT I hadn't looked at it the way you

> mentioned. Do

>> you think maybe in this case I shouldn't have?

[Guest guest]

I think that is very smart - I actually started doing that for myself after

methotextrate gave me seizures. But I never thought to do one for my husband!!!

Although I did that when we traveled out of the country - I just never thought

about it any other time. I will do that today!!! Thanks!

D.

betnden@... wrote:

I made a list of my meds starting with my name and the date of

listing. Then

I list all the meds by name, then size/quantity, when they are taken, and

lastly what they are for. I then list all the alergies, then the doctor's

names and phone numbers. The last thing is my contact info and phone

numbers. I print my info on one side of the paper and my wife's info on the

other side. Both of us carry a current copy of it and offer it instead of

having to list anything on the forms. They are really helpful because we

won't forget to mention any of the meds otherwise.

Dennis in eastexas

> <Matsumura_Clan@...> wrote:

> ,

>

> For your safety, when asked what drugs you are taking, you should always

> list them all.

>

>

> Not an MD

>

>> Re: [ ] Re: Discouraged and Depessed help somewhere

>>

>> Actually I did write everything I was taking on the application because I

> thought being

>> honest was the right thing to do. BUT I hadn't looked at it the way you

> mentioned. Do

>> you think maybe in this case I shouldn't have?

ltdavis_jrdavis@...

---------------------------------

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