Re: Hi I'm new to the group

March 1, 2008

>

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions!Even about how to deal with the

> pain.

>

> Thanks,

>

> Jan

>have u tried any heat oils or any other types rubbing meds to help

ease your pains there are many types of oils or lotion to help ease

pain with out over doing meds from mapgamez@...

March 1, 2008

No I haven't but I am open to trying anything. Thanks for the information!

mapgamez <mapgamez@...> wrote:

>

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions!Even about how to deal with the

> pain.

>

> Thanks,

>

> Jan

>have u tried any heat oils or any other types rubbing meds to help

ease your pains there are many types of oils or lotion to help ease

pain with out over doing meds from mapgamez@...

Jan

" It isn't the load that breaks us down, it is the way we carry it. "

---------------------------------

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March 1, 2008

Oops. I meant to ask, can you suggest any specific oils, etc?

mapgamez <mapgamez@...> wrote:

>

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions!Even about how to deal with the

> pain.

>

> Thanks,

>

> Jan

>have u tried any heat oils or any other types rubbing meds to help

ease your pains there are many types of oils or lotion to help ease

pain with out over doing meds from mapgamez@...

Jan

" It isn't the load that breaks us down, it is the way we carry it. "

---------------------------------

Never miss a thing. Make your homepage.

March 1, 2008

> >

> > My name is Jan and I just turned 45 in January. I was diagnosed

> with

> > RA about 6 months ago, but have some health problems that

> complicate

> > my treatment. I was hoping I might get some advice or

suggestions

> > from all of you that have been dealing with this longer than

> myself.

> >

> > Right now my doctor is treating me with Mobic and Minocycline

and

> > recently started Oxycontin for the pain. I also take 4-8mg of

> > prednisone daily. Well, this is not helping me. I also have an

> > immune deficiency that makes me suceptible to infections, I have

a

> > tracheostomy due to an airway obstruction and I am diabetic. I

> also

> > have a very long list of allergies to antibiotics and other

meds.

> >

> > Because of the immune problem and the allergies my doctor wanted

> to

> > be conservative with treatment. He didn't want to kill me right

> off

> > the bat. LOL. So he said we'd try this drug regimine for 6

months.

> > Well it has been that long and I am not able to sleep more than

3-

> 4

> > hours a night due to the pain and my hands are so bad I can't

cut

> my

> > own food right now. The doc had talked about the TNF drugs like

> > remicade and Humira but since they can have such serious side

> > effects he didn't want to try them in case I died from a bad

> > reaction.

> >

> > Can anyone make any treatment suggestions? I should add that

over

> > the past few years I have been on about every anti inflammatory

> drug

> > and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> > (They initially diagnosed me with AS.)

> >

> > I would appreciate any suggestions!Even about how to deal with

the

> > pain.

> >

> > Thanks,

> >

> > Jan

> >have u tried any heat oils or any other types rubbing meds to

help

> ease your pains there are many types of oils or lotion to help

ease

> pain with out over doing meds from mapgamez@...

>

> Jan

>

> " It isn't the load that breaks us down, it is the way we carry

it. "

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

March 1, 2008

>hi Jan i to have severe ra along with other health problems.you

know what though,i dont give up because I HAVE RA,RA DOES NOT HAVE

ME!!!!!Jan im kinda like you,i have tried every meds. in the world &

sometimes you dont even know which is actually WORKING!!!this is

what makes me soo CONFUSED,because one med works while the OTHERS

DONT WORK & that SUX TOTALLY!!!!i would LOVEsomeINPUT if you

wouldLIKEto chat with me.god bless,MelyndaGamez>wrote

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions!Even about how to deal with the

> pain.

>

> Thanks,

>

> Jan

>

March 2, 2008

I would love to chat with others with ra as well.. Is there a list or

something here.

im at _jolenefive5@..._ (mailto:jolenefive5@...) for im

In a message dated 3/2/2008 9:26:02 A.M. Eastern Standard Time,

janrichardson98@... writes:

Sure melynda I'd love to have someone to talk to that knows the " feeling " .

ha ha. I am on messenger as janrichardson98

mapgamez <_mapgamez@..._ (mailto:mapgamez@...) > wrote: --- In

_ @groRA-SUPP_ (mailto: ) , " Jan "

<janrichardson98@jan> wrote:

>hi Jan i to have severe ra along with other health problems.you

know what though,i dont give up because I HAVE RA,RA DOES NOT HAVE

ME!!!!!Jan im kinda like you,i have tried every meds. in the world &

sometimes you dont even know which is actually WORKING!!!this is

what makes me soo CONFUSED,because one med works while the OTHERS

DONT WORK & that SUX TOTALLY!!!!i would LOVEsomeINPUT if you

wouldLIKEto chat with me.god bless,MelyndaGamez><WBR>

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions! I would appreciate any suggestions!

> pain.

>

> Thanks,

>

> Jan

>

Jan

---------------------------------

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[Non-text portions of this message have been removed]

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2050827?NCID=aolcmp00300000002598)

March 2, 2008

Sure melynda I'd love to have someone to talk to that knows the " feeling " . ha

ha. I am on messenger as janrichardson98

mapgamez <mapgamez@...> wrote:

>hi Jan i to have severe ra along with other health problems.you

know what though,i dont give up because I HAVE RA,RA DOES NOT HAVE

ME!!!!!Jan im kinda like you,i have tried every meds. in the world &

sometimes you dont even know which is actually WORKING!!!this is

what makes me soo CONFUSED,because one med works while the OTHERS

DONT WORK & that SUX TOTALLY!!!!i would LOVEsomeINPUT if you

wouldLIKEto chat with me.god bless,MelyndaGamez>wrote

> My name is Jan and I just turned 45 in January. I was diagnosed

with

> RA about 6 months ago, but have some health problems that

complicate

> my treatment. I was hoping I might get some advice or suggestions

> from all of you that have been dealing with this longer than

myself.

>

> Right now my doctor is treating me with Mobic and Minocycline and

> recently started Oxycontin for the pain. I also take 4-8mg of

> prednisone daily. Well, this is not helping me. I also have an

> immune deficiency that makes me suceptible to infections, I have a

> tracheostomy due to an airway obstruction and I am diabetic. I

also

> have a very long list of allergies to antibiotics and other meds.

>

> Because of the immune problem and the allergies my doctor wanted

to

> be conservative with treatment. He didn't want to kill me right

off

> the bat. LOL. So he said we'd try this drug regimine for 6 months.

> Well it has been that long and I am not able to sleep more than 3-

4

> hours a night due to the pain and my hands are so bad I can't cut

my

> own food right now. The doc had talked about the TNF drugs like

> remicade and Humira but since they can have such serious side

> effects he didn't want to try them in case I died from a bad

> reaction.

>

> Can anyone make any treatment suggestions? I should add that over

> the past few years I have been on about every anti inflammatory

drug

> and stuff like Methotrexate, Sulfasalazine, etc and none worked.

> (They initially diagnosed me with AS.)

>

> I would appreciate any suggestions!Even about how to deal with the

> pain.

>

> Thanks,

>

> Jan

>

Jan

---------------------------------

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March 2, 2008

I think you just have to have messenger and a sign on

Jan

---------------------------------

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September 2, 2009

hi

i,m from nj muggy and hot damp and cold.had ra 27 years.

was on your meds but it made my hair fall out.and it wasn.t

working well with my ra.was on enbrel thatn stopped working

going to start orencia if ins. ok's it.i thought arizona was a good place

for people with ra. welcome

ann

From: loveyouhun <loveyouhun@...>

Subject: [ ] Hi I'm new to the Group

Date: Wednesday, September 2, 2009, 4:29 AM

Hi,

I was diagnosis with RA. I'm currently taking Methotrexate for it. It's seem to

be helping me. I live in Arizona and it's warm and dry here. I was wondering if

anyone take this medication and if they are haveing side effect and what it is.

I would appreciate the feedback.

Christa

September 2, 2009

Hi Christa,

I am in Ohio and it has been pretty humid. I have been taking MTX for about a

month. I have noticed that I am kind of groggy for a couple of days after my

once weekly dose.

~Connie

From: loveyouhun <loveyouhun@...>

Subject: [ ] Hi I'm new to the Group

Date: Wednesday, September 2, 2009, 4:29 AM

Hi,

I was diagnosis with RA. I'm currently taking Methotrexate for it. It's seem to

be helping me. I live in Arizona and it's warm and dry here. I was wondering if

anyone take this medication and if they are haveing side effect and what it is.

I would appreciate the feedback.

Christa

September 2, 2009

Hi...been taking MTX for a year, side effects are generally fatigue day after

taking the medication. I was taking the oral version to start then switched to

the injections. I found the injections to be much more effective with less side

effects. It's something I would definitely look into if you are having any

issues with the oral. I'm currently looking into staying somewhere in Nevada for

three to four weeks to determine if the lower humidity will improve my condition

with RA. I used to live in Tucson and really like it but my girlfriend refuses

to move that far away from Washington state. It seems to me women always get

what they want, but then I've been a " guy " my whole life!

Stan

Seattle, Cloudy - 93%

[ ] Hi I'm new to the Group

Hi,

Â Â I was diagnosis with RA. Â I'm currently taking Methotrexate for it. Â It's

seem to be helping me. Â I live in Arizona and it's warm and dry here. Â I was

wondering if anyone take this medication and if they are haveing side effect and

what it is. Â I would appreciate the feedback.

Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Christa

September 2, 2009

Stan,

I am very interested to know if you will feel better in desert conditions.

I am considering the move if i can be more mobile....

Raniolo

From: stanpfister@... <stanpfister@...>

Subject: Re: [ ] Hi I'm new to the Group

Date: Wednesday, September 2, 2009, 12:47 PM