Re: Stomach aches all the time?? UC & PSC

[Guest guest]

Mindy - before I was diagnosed with PSC, I used to get severe pain, just

below the sternum. Sometimes it lasted minutes, sometimes hours, the last

time 1/2 day (before I went to the ER). I can't say it felt like a stomach

ache, more like gas pain. I believe it was " sludge blockage " of bile - just

in a little different place than most (upper right quadrant pain is more

typical).

Since I was dilated and stented, it's gone away (knock on wood). Gall

bladder pain was much worse, but definitely URQ - I don't have to worry

about that one anymore!

What level is the pain (on a 10 scale, 10 being worst). What does the GI

say?

Arne

51 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

-----Original Message-----

From: mindy_wagner

Hi everyone. It's been along time since I've posted. Last fall my dh

was diagnosed with UC and PSC. His stomach aches are just horrible

and sometimes they just last all day everyday for weeks. So far the

doctors haven't found a medication that will help them. He just had

another colonoscopy today since it had been awhile and it looks as

though his UC is in remission. His colon is back to normal so why

could he still having such horrible stomach aches? It doesn't even

seem to matter what he eats or doesn't eat. Does anyone else have

this problem or have any insight?

Thanks,

MINDY

[Guest guest]

Mindy - before I was diagnosed with PSC, I used to get severe pain, just

below the sternum. Sometimes it lasted minutes, sometimes hours, the last

time 1/2 day (before I went to the ER). I can't say it felt like a stomach

ache, more like gas pain. I believe it was " sludge blockage " of bile - just

in a little different place than most (upper right quadrant pain is more

typical).

Since I was dilated and stented, it's gone away (knock on wood). Gall

bladder pain was much worse, but definitely URQ - I don't have to worry

about that one anymore!

What level is the pain (on a 10 scale, 10 being worst). What does the GI

say?

Arne

51 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

-----Original Message-----

From: mindy_wagner

Hi everyone. It's been along time since I've posted. Last fall my dh

was diagnosed with UC and PSC. His stomach aches are just horrible

and sometimes they just last all day everyday for weeks. So far the

doctors haven't found a medication that will help them. He just had

another colonoscopy today since it had been awhile and it looks as

though his UC is in remission. His colon is back to normal so why

could he still having such horrible stomach aches? It doesn't even

seem to matter what he eats or doesn't eat. Does anyone else have

this problem or have any insight?

Thanks,

MINDY

[Guest guest]

Mindy - before I was diagnosed with PSC, I used to get severe pain, just

below the sternum. Sometimes it lasted minutes, sometimes hours, the last

time 1/2 day (before I went to the ER). I can't say it felt like a stomach

ache, more like gas pain. I believe it was " sludge blockage " of bile - just

in a little different place than most (upper right quadrant pain is more

typical).

Since I was dilated and stented, it's gone away (knock on wood). Gall

bladder pain was much worse, but definitely URQ - I don't have to worry

about that one anymore!

What level is the pain (on a 10 scale, 10 being worst). What does the GI

say?

Arne

51 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

-----Original Message-----

From: mindy_wagner

Hi everyone. It's been along time since I've posted. Last fall my dh

was diagnosed with UC and PSC. His stomach aches are just horrible

and sometimes they just last all day everyday for weeks. So far the

doctors haven't found a medication that will help them. He just had

another colonoscopy today since it had been awhile and it looks as

though his UC is in remission. His colon is back to normal so why

could he still having such horrible stomach aches? It doesn't even

seem to matter what he eats or doesn't eat. Does anyone else have

this problem or have any insight?

Thanks,

MINDY

[Guest guest]

Hi. Okay I've interrogated my husband about this stomach ache/pain

and this is what he told me. Everyday he has them (aches) normally

about a 4-5 (pain scale) annoying, constantly there but he can

function normally..2-3 days a week it's like around a 7 and the

other day he was trying to put a heat pack on it and he said that

day was about a 9. Our last GI thought it was probably his UC

because he had a bad flare up but they haven't gone away and now he

is in remission from that, his colon looks good and he has them

pretty bad. They are normally in his right side.

We have recently moved and this doctor did a colonoscopy to check

things out, still in remission, and is giving us yet another stomach

medicine to try. None have worked so far. Mike has not yet had an

ERCP. The doctors at mayo did an MRCP but said the other was to

evasive. This doctor said he would like to do one.

I always thought the stomach aches was related to UC but could it

could be related to the PSC you think?? I didn't realize others had

this. He is just sick of feeling yucky and having noone able to tell

him why these stomach aches aren't leaving.

Thanks so much for your email!!

MINDY

> Mindy - before I was diagnosed with PSC, I used to get severe

pain, just

> below the sternum. Sometimes it lasted minutes, sometimes hours,

the last

> time 1/2 day (before I went to the ER). I can't say it felt like

a stomach

> ache, more like gas pain. I believe it was " sludge blockage " of

bile - just

> in a little different place than most (upper right quadrant pain

is more

> typical).

>

> Since I was dilated and stented, it's gone away (knock on wood).

Gall

> bladder pain was much worse, but definitely URQ - I don't have to

worry

> about that one anymore!

>

> What level is the pain (on a 10 scale, 10 being worst). What does

the GI

> say?

>

>

> Arne

> 51 - UC 1977 - PSC 2000

> Alive and (mostly) well in Minnesota

>

> -----Original Message-----

> From: mindy_wagner [mailto:mswagner@w...]

>

> Hi everyone. It's been along time since I've posted. Last fall my

dh

> was diagnosed with UC and PSC. His stomach aches are just horrible

> and sometimes they just last all day everyday for weeks. So far the

> doctors haven't found a medication that will help them. He just had

> another colonoscopy today since it had been awhile and it looks as

> though his UC is in remission. His colon is back to normal so why

> could he still having such horrible stomach aches? It doesn't even

> seem to matter what he eats or doesn't eat. Does anyone else have

> this problem or have any insight?

> Thanks,

> MINDY

[Guest guest]

I have the same kind of pain as Arne when I have a blockage -- luckily I haven't

had one in awhile!

Penny

A & J Myrabo wrote:

> Mindy - before I was diagnosed with PSC, I used to get severe pain, just

> below the sternum. Sometimes it lasted minutes, sometimes hours, the last

> time 1/2 day (before I went to the ER). I can't say it felt like a stomach

> ache, more like gas pain.

[Guest guest]

Wish I could help but I don't know. I used to have lots of stomach problems, constant diarrhea, some days I would eat just baby food. I had to be so careful what I eat, it caused terrible bloating if I ate anything raw but after 10 years and a specialist in Columbia they gave me Flagyl, I took it about 2 months and I don't have near the trouble I used to have. Sometimes it takes a different Dr. to find the problem. They said in Columbia my problem was an overgrowth of bacteria in the gut, but of course the colonoscopy or any tests didn't show it.

|Good Luck

Martha from Mo

[Guest guest]

Sounds like you had clostridium difficile bacteria that overtook your normal

bactia! Glad you are better!(C. Diff) causes bad stomache cramps

and gas and bloating and very loose stools plus sometimes mucous and bleeding.

It is psuedomembranous ulc. colitis so the symptoms are similar to UC.

Elesa

MMyers5118@... wrote:

Wish I could

help but I don't know. I used to have lots of stomach problems, constant

diarrhea, some days I would eat just baby food. I had to be so careful

what I eat, it caused terrible bloating if I ate anything raw but after

10 years and a specialist in Columbia they gave me Flagyl, I took it about

2 months and I don't have near the trouble I used to have. Sometimes

it takes a different Dr. to find the problem. They said in Columbia

my problem was an overgrowth of bacteria in the gut, but of course the

colonoscopy or any tests didn't show it.

|Good Luck

Martha from Mo

[Guest guest]

Sounds like you had clostridium difficile bacteria that overtook your normal

bactia! Glad you are better!(C. Diff) causes bad stomache cramps

and gas and bloating and very loose stools plus sometimes mucous and bleeding.

It is psuedomembranous ulc. colitis so the symptoms are similar to UC.

Elesa

MMyers5118@... wrote:

Wish I could

help but I don't know. I used to have lots of stomach problems, constant

diarrhea, some days I would eat just baby food. I had to be so careful

what I eat, it caused terrible bloating if I ate anything raw but after

10 years and a specialist in Columbia they gave me Flagyl, I took it about

2 months and I don't have near the trouble I used to have. Sometimes

it takes a different Dr. to find the problem. They said in Columbia

my problem was an overgrowth of bacteria in the gut, but of course the

colonoscopy or any tests didn't show it.

|Good Luck

Martha from Mo