Re: autopsy - reply to Judy S

[Guest guest]

Hi

my sister really wanted to know - was it LBD or not ? So now we know.

Dad was always so healthy and so youthful - so even this didn't completely kick

his butt till the last couple of months. He had very scary hallucinations - and

got mad at me when I didn't agree with the one about the monster with the one

eye - when he told me " careful, careful - he is waiting to get YOU ! " I agreed

with the nice hallucinations - of horses and peacocks and things like that. In

one of his hospitalizations, a nurse said to go along with him and not argue

about his hallucinations.

He knew who we were until he went into the coma of the last week or 2.

His mobility - he had the shuffling gait, then crossed his feet when walking and

got very weak in the core - could not get up from a chair. Had Physical Therapy

at the house - after the last 2 hospitalizations and Rehab places - Really the

last 2 years were pretty awful. He had trouble with his voice and speaking.

He was told he had Parkinsons for 7 years, then MSA, the Lewy Body. We didn't

tell him too much about the LBD - especially when we learned about it - we said

nothing about it and he didn't ask.

He layed on the couch on November 4 and never got up again. Home care was

changed to Hospice and Hospice said to call the Fire Dept and the Medics when

come to lift him from the couch to the Hospital Bed in the living room. And

thats where he lay for 6 weeks. The aides got him into a chair 2 different

times for 10 minutes and he was thrilled with that. I saw him every day for the

6 weeks or so - He died on December 16. He lost ability to swallow. before the

coma.

Oh well, I was actually getting to a happy place the other day, now I am right

back there in my mind. I am now going to try to get peace and joy back as he

would want me to be.

Thanks for asking

in MA

[Guest guest]

Dear ,

 

So sorry about your Dad.  I understand your sadness.  Knowing definitively

that it was LBD is nice, but it does bring back all of the sad memories.  I

hope you will begin to find a measure of happiness again as the months progress

toward Spring & renewal.

 

Patti , dtr of Pat, passed away with Jan 24, 2012.  Diagnosed with LBD

2009.  In a care center near my home in OH for 2 yrs.

________________________________

To: LBDcaregivers

Sent: Saturday, February 4, 2012 8:16 AM

Subject: Re: autopsy - reply to Judy S

 

Hi

my sister really wanted to know - was it LBD or not ? So now we know.

Dad was always so healthy and so youthful - so even this didn't completely kick

his butt till the last couple of months. He had very scary hallucinations - and

got mad at me when I didn't agree with the one about the monster with the one

eye - when he told me " careful, careful - he is waiting to get YOU ! " I agreed

with the nice hallucinations - of horses and peacocks and things like that. In

one of his hospitalizations, a nurse said to go along with him and not argue

about his hallucinations.

He knew who we were until he went into the coma of the last week or 2.

His mobility - he had the shuffling gait, then crossed his feet when walking and

got very weak in the core - could not get up from a chair. Had Physical Therapy

at the house - after the last 2 hospitalizations and Rehab places - Really the

last 2 years were pretty awful. He had trouble with his voice and speaking.

He was told he had Parkinsons for 7 years, then MSA, the Lewy Body. We didn't

tell him too much about the LBD - especially when we learned about it - we said

nothing about it and he didn't ask.

He layed on the couch on November 4 and never got up again. Home care was

changed to Hospice and Hospice said to call the Fire Dept and the Medics when

come to lift him from the couch to the Hospital Bed in the living room. And

thats where he lay for 6 weeks. The aides got him into a chair 2 different times

for 10 minutes and he was thrilled with that. I saw him every day for the 6

weeks or so - He died on December 16. He lost ability to swallow. before the

coma.

Oh well, I was actually getting to a happy place the other day, now I am right

back there in my mind. I am now going to try to get peace and joy back as he

would want me to be.

Thanks for asking

in MA

[Guest guest]

Dear ,

 

So sorry about your Dad.  I understand your sadness.  Knowing definitively

that it was LBD is nice, but it does bring back all of the sad memories.  I

hope you will begin to find a measure of happiness again as the months progress

toward Spring & renewal.

 

Patti , dtr of Pat, passed away with Jan 24, 2012.  Diagnosed with LBD

2009.  In a care center near my home in OH for 2 yrs.

________________________________

To: LBDcaregivers

Sent: Saturday, February 4, 2012 8:16 AM

Subject: Re: autopsy - reply to Judy S

 

Hi

my sister really wanted to know - was it LBD or not ? So now we know.

Dad was always so healthy and so youthful - so even this didn't completely kick

his butt till the last couple of months. He had very scary hallucinations - and

got mad at me when I didn't agree with the one about the monster with the one

eye - when he told me " careful, careful - he is waiting to get YOU ! " I agreed

with the nice hallucinations - of horses and peacocks and things like that. In

one of his hospitalizations, a nurse said to go along with him and not argue

about his hallucinations.

He knew who we were until he went into the coma of the last week or 2.

His mobility - he had the shuffling gait, then crossed his feet when walking and

got very weak in the core - could not get up from a chair. Had Physical Therapy

at the house - after the last 2 hospitalizations and Rehab places - Really the

last 2 years were pretty awful. He had trouble with his voice and speaking.

He was told he had Parkinsons for 7 years, then MSA, the Lewy Body. We didn't

tell him too much about the LBD - especially when we learned about it - we said

nothing about it and he didn't ask.

He layed on the couch on November 4 and never got up again. Home care was

changed to Hospice and Hospice said to call the Fire Dept and the Medics when

come to lift him from the couch to the Hospital Bed in the living room. And

thats where he lay for 6 weeks. The aides got him into a chair 2 different times

for 10 minutes and he was thrilled with that. I saw him every day for the 6

weeks or so - He died on December 16. He lost ability to swallow. before the

coma.

Oh well, I was actually getting to a happy place the other day, now I am right

back there in my mind. I am now going to try to get peace and joy back as he

would want me to be.

Thanks for asking

in MA