Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Dear , This group has been a godsend to me. My Mom, who will be 78 on Monday, has had LBD for at least 12 years. It is a difficult struggle, but you will get lots of wonderful information and support on this site. If the excelon patch isn't working, you might want to talk to the doctor about aricept and namenda. The aricept helped quite a bit in the beginning, and when the dementia progressed more, we added the namenda. Namenda seems to work, too, but it did make my Mom more drowsy. See if you can become part of a support group that meets usually once a month - it is a wonderful help. A sad, but warm welcome to our group Helene in NY > > My mother who has been diagnosed with LBD since Thanksgiving 2011 was recently placed on a low dose of serequiel, ti help her to sleep and with hallucinations. It did the exact opposite the hallucinations increased tremendously. Dr said we could stop the med, and that it seems her dementia is progressing faster then she would like to think it would wants her to see a neurologist sooner then may. Mom is currently taking the exelon patch and has had that doseage increased 3 times. We are at a loss for being able to locate good solid information regarding LBD symptoms and stages. Mom is 73 and we have seen drastic changes in memory and ability to do things. At times we feel all alone and doing search after search and coming up with mis-information. I have read that life expectancy is 6-8 yrs and was unsure if that was true? I know truly none of us know when its our time to be called home to Jesus. Any helpful comments etc.... are so very much welcomed and appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Sometimes LBD is darned inconvenient . If her MD can't prescribe something to help her sleep (you might try melatonin?) is it possible that you can actually GIVE her things to do? Sit her at a table with a bunch of objects she can handle and sort and mess around with? Or papers to shuffle and " organize " ? Some objects with a dust cloth she can shine up? Or whatever? Another thought is if you can let her do her things safely - ie, " LBD proof " the room/area so she can do her LBD thing while you are doing your study thing? Just a few thoughts... -- His, Sherry daughter/guardian of , dx 4/09 with LBD, living in a nearby NH > Hello group. I am messaging you all because I need assistance. My > mother has been diagnosed with LBD for about 6 years now and she has > her long stretches of good times and now and again she has her bad > episodes. My main question is at night, if she is having a bad night, > she always insists on walking around and doing things. I try to get her > to lay down and without physically restraining her I can't get her stay > still. Like for instance I have a final exam tomorrow and I can't even > study because I have been watching over her for the past two hours. Any > suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Sometimes LBD is darned inconvenient . If her MD can't prescribe something to help her sleep (you might try melatonin?) is it possible that you can actually GIVE her things to do? Sit her at a table with a bunch of objects she can handle and sort and mess around with? Or papers to shuffle and " organize " ? Some objects with a dust cloth she can shine up? Or whatever? Another thought is if you can let her do her things safely - ie, " LBD proof " the room/area so she can do her LBD thing while you are doing your study thing? Just a few thoughts... -- His, Sherry daughter/guardian of , dx 4/09 with LBD, living in a nearby NH > Hello group. I am messaging you all because I need assistance. My > mother has been diagnosed with LBD for about 6 years now and she has > her long stretches of good times and now and again she has her bad > episodes. My main question is at night, if she is having a bad night, > she always insists on walking around and doing things. I try to get her > to lay down and without physically restraining her I can't get her stay > still. Like for instance I have a final exam tomorrow and I can't even > study because I have been watching over her for the past two hours. Any > suggestions? Quote Link to comment Share on other sites More sharing options...
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