New RA Group in Austin, TX

February 8, 2008

Hi there - I'm curious how many on this list are in or around the

Austin, TX area? A friend and I who were both recently diagnosed with

RA are going to start a meet up/ support group here. If you live in the

area, shoot me an email to get on the list if you are interested in

joining and/or helping us spread the word.

Thanks!

February 8, 2008

I am in the Austin area. A group would be nice. Not sure if I would ever be

able to attend. Between work and an hour commute one way to get there...I am

pretty exhausted by the end of the day and still have to go home to take care

of my family.

The choices of rheummies here is very limited. I have seen most and I have

not pleased by the care of any so far. I could write a book on issues I have

had with doctors in this area.

Toni

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

February 8, 2008

Toni,

I agree with you about the limited number of rheummies here (Austin) so you

may wish to consider a referral to & White's main campus in nearby

Temple.

They ( & White in Temple) were the ones who were finally able to

diagnose and treat my husband's polymyositis.

Everyone here was stumped and blamed his condition (undiagnosed polymyositis)

on everything from age, to heart to osteoarthritis to heaven knows what all

only to watch all

of their misdiagnosis fail while he deteriorated before my very crying eyes.

Thank goodness one night when Bob (my husband) was barely able to walk we

(our son and I) acted strictly out of desperation and took Bob to the ER at

& White's Round Rock facility.

We do not live in that area or even close to that area but since we knew that

the other options were failing us and worse yet my husband was going downhill

so rapidly we knew we needed a fresh set of eyes who would not simply look at

the notes from the others doctors who were so grossly wrong.

(Sorry, this is a very emotional issue for me.)

I am delighted to say that Bob is doing even better than we could have hoped

for and for that I will always be grateful to our son (he was the one that

insisted on & White) and most of all I will always be grateful to the

doctors at and White who truly listened to us and helped us to get to this

day.

Supportive hugs,

Sharon

Austin, Texas

********

In a message dated 2/8/2008 7:25:40 PM Central Standard Time,

aclavern33@... writes:

> The choices of rheummies here is very limited. I have seen most and I have

> not pleased by the care of any so far. I could write a book on issues I have

>

> had with doctors in this area.

>

> Toni

>

**************

Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

February 11, 2008

Debbie,

The only doc I have seen at ADC is Dr. Cepeda. He was OK. Did not take a

lot of time for a new patient. The office staff seemed rather busy and not

really interested in speaking with. That is the nurse was that way. The

receptionist and appnt setter were very nice and attentive.

He was the one that sent me for a Functional Capacity Exam as I was on

private funded Long Term Disability from my former employer. Then from those

results he did not see me again and wrote to my insurance I could do any job I

wanted and work full time with NO restrictions....I was immediately terminated

from my LTD.

I did not return to him. He also was not one to write for pain meds...to me

to find a pain management specialist...and gave a piece of paper with a list

docs on it.

Toni

_New RA Group in Austin, TX _

( /message/109150;_ylc=X3oDMTJyMjdyYjFjBF\

9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAzE3

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Posted by: " deebs87 " _dlohf@... _

(mailto:dlohf@...?Subject= Re:New%20RA%20Group%20in%20Austin,%20TX)

_deebs87 _

(deebs87)

Mon Feb 11, 2008 2:33 pm (PST)

Hi Toni,

Have you seen the doctors at ADC? I am happy with my doctor in the

big clinic. He won't give me a muscle relaxant since he put me on

Neurontin to help my sleep.

Debbie L

**************The year's hottest artists on the red carpet at the Grammy

Awards. Go to AOL Music.

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

February 11, 2008

Hi Toni,

Have you seen the doctors at ADC? I am happy with my doctor in the

big clinic. He won't give me a muscle relaxant since he put me on

Neurontin to help my sleep.

Debbie L

>

> I am in the Austin area. A group would be nice. Not sure if I

would ever be

> able to attend. Between work and an hour commute one way to get

there...I am

> pretty exhausted by the end of the day and still have to go home

to take care

> of my family.

>

> The choices of rheummies here is very limited. I have seen most

and I have

> not pleased by the care of any so far. I could write a book on

issues I have

> had with doctors in this area.

>

> Toni

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

> (http://music.aol.com/grammys/pictures/never-won-a-grammy?

NCID=aolcmp003000000025

> 48)

>

February 12, 2008

I'm just jealous because yall are in Austin and I'm in Dallas!

Jane

> >

> > I am in the Austin area. A group would be nice. Not sure if I

> would ever be

> > able to attend. Between work and an hour commute one way to get

> there...I am

> > pretty exhausted by the end of the day and still have to go home

> to take care

> > of my family.

> >

> > The choices of rheummies here is very limited. I have seen most

> and I have

> > not pleased by the care of any so far. I could write a book on

> issues I have

> > had with doctors in this area.

> >

> > Toni

> >

> > **************Biggest Grammy Award surprises of all time on AOL

> Music.

> > (http://music.aol.com/grammys/pictures/never-won-a-grammy?

> NCID=aolcmp003000000025

> > 48)

> >

February 12, 2008

Jane,

I am a fellow DFW representative. I live in mid-cities.

JANE <janeatregis@...> wrote:

I'm just jealous because yall are in Austin and I'm in Dallas!

Jane

> >

> > I am in the Austin area. A group would be nice. Not sure if I

> would ever be

> > able to attend. Between work and an hour commute one way to get

> there...I am

> > pretty exhausted by the end of the day and still have to go home

> to take care

> > of my family.

> >

> > The choices of rheummies here is very limited. I have seen most

> and I have

> > not pleased by the care of any so far. I could write a book on

> issues I have

> > had with doctors in this area.

> >

> > Toni

> >

> > **************Biggest Grammy Award surprises of all time on AOL

> Music.

> > (http://music.aol.com/grammys/pictures/never-won-a-grammy?

> NCID=aolcmp003000000025

> > 48)

> >

February 12, 2008

Hi Toni,

Thanks for warning me about Dr Cepeda. He must be Dr Crout's partner

then. That's horrible what he told you after your Functional Capacity

Exam. Hope another doctor agreed you needed the Long Term Disability.

When I first saw Dr Crout he did an extensive work up on me to see if

I had RA or Lupus also. Both RA and Lupus tests were negative. He

only gives me Ultram and Darvocet for pain. Last year he gave me

Neurontin to help me sleep but cancelled my Soma which I really need.

Still refuses to give me a muscle relaxant. He does take care of any

new problems I have.

Debbie L

>

> _New RA Group in Austin, TX _

> (RA-

SUPPORT/message/109150;_ylc=X3oDMTJyMjdyYjFjBF9TAzk3MzU5NzE1BGdycElkAz

EwMTQ3OARncnBzcElkAzE3

>

MDUwNjE0OTgEbXNnSWQDMTA5MTUwBHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyMDI3OD

A4ODc-)

> Posted by: " deebs87 " _dlohf@... _

> (mailto:dlohf@...?Subject= Re:New%20RA%20Group%20in%20Austin,%

20TX) _deebs87 _

> (deebs87)

> Mon Feb 11, 2008 2:33 pm (PST)

>>

>

> **************The year's hottest artists on the red carpet at the

Grammy

> Awards. Go to AOL Music.

> (http://music.aol.com/grammys?NCID=aolcmp00300000002565)

>

February 12, 2008

> > >

> > > I am in the Austin area. A group would be nice. Not sure if I

> > would ever be

> > > able to attend. Between work and an hour commute one way to

get

> > there...I am

> > > pretty exhausted by the end of the day and still have to go

home

> > to take care

> > > of my family.

> > >

> > > The choices of rheummies here is very limited. I have seen

most

> > and I have

> > > not pleased by the care of any so far. I could write a book on

> > issues I have

> > > had with doctors in this area.

> > >

> > > Toni

> > > TONI I LIVE IN CORPUS CHRISTI,TX.I SEE ONE OF THE BEST

RHEUMMIES,HER NAME IS DR.ADRIANA POP-MOODY!!!!SHE CARES ABOUT HER

PATIENTS & TREATS THEM WITH RESPECT.....SINCE I HAVE BEEN WITH HER

SHE HAS WON 3 TITLES AS BEST RHEUMY IN ALL OF TX. GOOD

LUCK,MELYNDA<MAPGAMEZ@...>,WROTE:

> > >

> > > **************Biggest Grammy Award surprises of all time on

AOL

> > Music.

> > > (http://music.aol.com/grammys/pictures/never-won-a-grammy?

> > NCID=aolcmp003000000025

> > > 48)

> > >

February 13, 2008

I work in Dallas and commute from Kaufman County, otherwise known as

The Sticks! Nice to meet you!

> > >

> > > I am in the Austin area. A group would be nice. Not sure if I

> > would ever be

> > > able to attend. Between work and an hour commute one way to get

> > there...I am

> > > pretty exhausted by the end of the day and still have to go

home

> > to take care

> > > of my family.

> > >

> > > The choices of rheummies here is very limited. I have seen most

> > and I have

> > > not pleased by the care of any so far. I could write a book on

> > issues I have

> > > had with doctors in this area.

> > >

> > > Toni

> > >

> > > **************Biggest Grammy Award surprises of all time on AOL

> > Music.

> > > (http://music.aol.com/grammys/pictures/never-won-a-grammy?

> > NCID=aolcmp003000000025

> > > 48)

> > >

February 13, 2008

Debbie,

I think they are in the same office. Its really sad....the poor choices in

rheumatology here. I got similar treatment at and White with Dr.

Abercrombie. She is no longer there...thank god...she retired.

There is a new doc. Sharon hubby is seeming him and says he is wonderful.

If scott and white did not have soooo many billing issues I would jump over

there.

I really do not know who to tell you too see...Dr Fung is very good...but he

is in Waco. He is the only one I would really recommend.

Dr. Jundt is OK...a bit too much of a drama queen to be a doc....but he was

kind and patient. He will give pain meds and meds that he feels you need.He

does not draw lab in office. You have to go to independent lab and xray. He

does do bone density in office.

I just wish someone would open a clinic with a good rheummy, pain management

and primary care. I would jump on it!

Toni

_New RA Group in Austin, TX _

( /message/109180;_ylc=X3oDMTJyNHIwaHZ2BF\

9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAzE3

MDUwNjE0OTgEbXNnSWQDMTA5MTgwBHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyMDI5MDQxMDg-)

Posted by: " deebs87 " _dlohf@... _

(mailto:dlohf@...?Subject= Re:New%20RA%20Group%20in%20Austin,%20TX)

_deebs87 _

(deebs87)

Tue Feb 12, 2008 2:15 pm (PST)