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My name is Jan and I just turned 45 in January. I was diagnosed with

RA about 6 months ago, but have some health problems that complicate

my treatment. I was hoping I might get some advice or suggestions

from all of you that have been dealing with this longer than myself.

Right now my doctor is treating me with Mobic and Minocycline and

recently started Oxycontin for the pain. I also take 4-8mg of

prednisone daily. Well, this is not helping me. I also have an

immune deficiency that makes me suceptible to infections, I have a

tracheostomy due to an airway obstruction and I am diabetic. I also

have a very long list of allergies to antibiotics and other meds.

Because of the immune problem and the allergies my doctor wanted to

be conservative with treatment. He didn't want to kill me right off

the bat. LOL. So he said we'd try this drug regimine for 6 months.

Well it has been that long and I am not able to sleep more than 3-4

hours a night due to the pain and my hands are so bad I can't cut my

own food right now. The doc had talked about the TNF drugs like

remicade and Humira but since they can have such serious side

effects he didn't want to try them in case I died from a bad

reaction.

Can anyone make any treatment suggestions? I should add that over

the past few years I have been on about every anti inflammatory drug

and stuff like Methotrexate, Sulfasalazine, etc and none worked.

(They initially diagnosed me with AS.)

I would appreciate any suggestions!Even about how to deal with the

pain.

Thanks,

Jan

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