Re: Update on Bob and I

[Guest guest]

Pat: So sorry you are having all these troubles. They sound pretty typical

of what I went through with my husband sometimes--listless, uninterested in

anything, just way out of it. I have no answers for you unfortunately. All

the time he was in the nursing home, this is usually what we saw. I think

that maybe the trauma of the hospital (although Ray had no operation) and

subsequent placement in the home just was completely devastating to him.

Still we kept seeing him every day and once in a while he would perk up and

do some unusual things, he was very subdued and quiet most of the time.

While this was hard to see, it was better than the terrors and panic

attacks, the sleepless nights we had at home. Perhaps these will pass for

you as all the effects of the different hospital meds leave his system. I

think ultimately they will find that our LBD patients, for whatever reason,

are so intolerant of some of these meds they use on people undergoing pain,

surgery etc. Like I say, I don't have any answers, only a lot of compassion

for all you are going through. Try to find more help. (right tho, thank God

for the SIL--mine refused to help)

Someone from Occupational therapy or physical therapy should be willing to

help with training on the lift.

Doesn't it drive you nuts? Liability issues, indeed!! I bought a new

refrigerator from Sears. They came to install it but wouldn't hook up the

ice maker because of liability issues. Ridiculous!!

Good luck my thoughts and prayers are with you and other members of this

group daily. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'