worst nightmare

[Guest guest]

I was scared that the Dr we see today would try to talk my husband

out of surgery.

Guess what it came true. I am sitting here typing this and can barly

breath. He kept saying that it is so small, there is so little, you

are so young, it will probably never grow, if it does it will never

effect you. He kept saying, " lets do another PSA and biopsy " to check

again. Ok. What the @#$# is the dr looking for? A biopsy can give

false negatives. He may not biopsy the exact are or spot the other dr

did prior. And the pain was in after the biopsy and the blood.

I cannot watch him go through that again. It is too hard. I have

trouble sleeping at night. Dreams he is dead from this. Just to wait

for more test results. Even a PSA can be false. I know you all will

say, more tests the better, it is his body. Well after 18 years he is

a part of me so in a sence it is my body as well.

Ok, then after I ran out of the room cause I could not listen anymore

to him talking my husband into this. He said yes active servaliance

and surgery are the only options. But he only was stressing the

active sevailance one. Kept going on and on and on till I could not

take it anymore. Anyways I basically RAN out of the room, to the

social worker and had a nervious breakdown. To me active servailance

is watching a person die slowly. I know, no one will agree. Of course

my husband was eating it up and happy with the dr's talking. Anyways

after 1/2 hour in the workers office I came out and there was .

was ticked that I left, and did not stay and listen. said there

was GOOD news. That he is doing another PSA (that could come back

normal, but that means nothing to me). Then he said the dr said that

with the cancer being so small .4mm, that the biopsy probably removed

the cancer......OOOOOOOHHHHHH MY G. I could not decide whether to

laugh or cry. So I walked away. Did NOT want to hear more of what Dr

said. " biopsy probably removed the cancer " . But what about the other

1.3mm? He did not mention that. What about the high grade PIN. That

usually turns to cancer? Hummm no mention of either. but " biopsy

probably removed the cancer " . I cannot get that out of my

head..... " biopsy probably removed the cancer " . WOW maybe all guys

should have a biopsy as treatment or an option to remove cancer. A

person diagnosed with cancer has cancer.. that is it...period. And I

will not trust any tests this Dr does. Cause PSA can go up and down

with cancer. ANd a biopsy of the prostate is like throwing darts at a

pea in a pillow and hoping to hit it. That is why there are false

negatives.

SO now what. I can't do this. It is sooo hard. Especially when you do

not trust the dr. I cannot just watch and wait for it to go sevirior.

Or terminal. It is like watching a flower die. But in the end

said " I am PENCILED in for surgery in February " . Ok is that an actual

date or is it just a note for the month? What am I suppose to do?

Honestly I just want to curl up somewhere and cry and scream. I

cannot help how I feel. And I feel bad that I feel I cannot do this

with him. But that is how I feel. Why would I want to just sit back

and say.. ohh yippy " biopsy probably removed the cancer " , lets just

do another blood test and biopsy even though they could come back

false negative...

[Guest guest]

Active Surveillance may or may not be the best option, at this point, but you

and your husband need to have further tests done to help you in decisions. This

does not necessarily mean another immediate biopsy. You do not need to rush

into surgery immediately. Life after surgery will never be the same, especially

in regard to impotence.

The tests to which I refer include a 2nd opinion on the biopsy, blood tests, an

endorectal MRSI, color doppler ultrasound, and possibly Combidex. If these test

results all come out okay, you may want to do AS and follow a lifestyle,

including dietary intake, that may (or may not) stop cancer growth.

If you can afford the cost, I suggest you contact Dr. Strum, who has

practiced prostate oncology exclusively for the last 25 years. By email and

phone, he can help guide you through the maze. There are probably several other

" artist " prostate oncologists in the U.S.

You were referred to Terry Herbert's site in one email response and he can be of

great help to you.

I hope you can have additional, indicated, valid testing done so that you can

make the most-informed decision about how to proceed. Life for you and your

hausband is not over--it is changing. You are so fortunate that the cancer was

found early.

Ted

[Guest guest]

Active Surveillance may or may not be the best option, at this point, but you

and your husband need to have further tests done to help you in decisions. This

does not necessarily mean another immediate biopsy. You do not need to rush

into surgery immediately. Life after surgery will never be the same, especially

in regard to impotence.

The tests to which I refer include a 2nd opinion on the biopsy, blood tests, an

endorectal MRSI, color doppler ultrasound, and possibly Combidex. If these test

results all come out okay, you may want to do AS and follow a lifestyle,

including dietary intake, that may (or may not) stop cancer growth.

If you can afford the cost, I suggest you contact Dr. Strum, who has

practiced prostate oncology exclusively for the last 25 years. By email and

phone, he can help guide you through the maze. There are probably several other

" artist " prostate oncologists in the U.S.

You were referred to Terry Herbert's site in one email response and he can be of

great help to you.

I hope you can have additional, indicated, valid testing done so that you can

make the most-informed decision about how to proceed. Life for you and your

hausband is not over--it is changing. You are so fortunate that the cancer was

found early.

Ted

[Guest guest]

Active Surveillance may or may not be the best option, at this point, but you

and your husband need to have further tests done to help you in decisions. This

does not necessarily mean another immediate biopsy. You do not need to rush

into surgery immediately. Life after surgery will never be the same, especially

in regard to impotence.

The tests to which I refer include a 2nd opinion on the biopsy, blood tests, an

endorectal MRSI, color doppler ultrasound, and possibly Combidex. If these test

results all come out okay, you may want to do AS and follow a lifestyle,

including dietary intake, that may (or may not) stop cancer growth.

If you can afford the cost, I suggest you contact Dr. Strum, who has

practiced prostate oncology exclusively for the last 25 years. By email and

phone, he can help guide you through the maze. There are probably several other

" artist " prostate oncologists in the U.S.

You were referred to Terry Herbert's site in one email response and he can be of

great help to you.

I hope you can have additional, indicated, valid testing done so that you can

make the most-informed decision about how to proceed. Life for you and your

hausband is not over--it is changing. You are so fortunate that the cancer was

found early.

Ted