Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 In Deltona half way between Orlando and Daytona Beach. In a message dated 2/15/2008 1:00:45 P.M. Eastern Standard Time, c.raniolo@... writes: where in Florida are you? I have a compassionate, well spoken RA specialist in St sburg. Mandi P <_MLH951@..._ (mailto:MLH951@...) > wrote: Hi everyone this is my first post here! A little background on me three weeks ago I was diagnosed with Stills disease although the first symptoms began in June of 06. Due to the pain and inflammation I have been experincng in my wrists among other places I was sent for an MRI on my Right wrist (the worst off of all my joints) And here are the results given to me by my RU yesterday and the report findings: 1. Findings suggestive of extensive erosive arthritis is noted throughout the wrist. Diffuse marginal erosions and three compartment joint effusions are identified 2. No fractures noted throughout the right wrist 3. Small tendon sheath fluid collections scattered throughout the extensor tendons, suggestive of diffuse tenosynovitis. The doctor seemed worried that the damage was so extensive and said very aggressive treatment would have to be done. He prescribed me Methotrexate 2.5mg but only wants me to take 4 tablets instead of the six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice daily. See him again in six weeks. He says I have Rheumatoid Arthritis although I did test RA negative 2 weeks ago so I'm confused on that. When I asked him how all this relates to Stills he said " Stills is not important " I was like a deer in the headlights and could not think to ask the right questions. He then just walked out of the room...I struggle to understand him any ways due to his accent and have booked an appointment with a new Dr. (March 17th) but in the mean time I'm wondering what all this means. As of yesterday my right foot is inflamed again and I'm having difficulty walking wondering if like my wrists I will have permanent damage in that as well...maybe the Methotrexate will stop that???? So I'm wondering if the little function I have remaining in my wrists and hands is all I will have with the possibility of it getting worse? Any thoughts on this would be great! Mandi Florida Raniolo [Non-text portions of this message have been removed] **************The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp00300000002565) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Hi everyone this is my first post here! A little background on me three weeks ago I was diagnosed with Stills disease although the first symptoms began in June of 06. Due to the pain and inflammation I have been experincng in my wrists among other places I was sent for an MRI on my Right wrist (the worst off of all my joints) And here are the results given to me by my RU yesterday and the report findings: 1. Findings suggestive of extensive erosive arthritis is noted throughout the wrist. Diffuse marginal erosions and three compartment joint effusions are identified 2. No fractures noted throughout the right wrist 3. Small tendon sheath fluid collections scattered throughout the extensor tendons, suggestive of diffuse tenosynovitis. The doctor seemed worried that the damage was so extensive and said very aggressive treatment would have to be done. He prescribed me Methotrexate 2.5mg but only wants me to take 4 tablets instead of the six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice daily. See him again in six weeks. He says I have Rheumatoid Arthritis although I did test RA negative 2 weeks ago so I'm confused on that. When I asked him how all this relates to Stills he said " Stills is not important " I was like a deer in the headlights and could not think to ask the right questions. He then just walked out of the room...I struggle to understand him any ways due to his accent and have booked an appointment with a new Dr. (March 17th) but in the mean time I'm wondering what all this means. As of yesterday my right foot is inflamed again and I'm having difficulty walking wondering if like my wrists I will have permanent damage in that as well...maybe the Methotrexate will stop that???? So I'm wondering if the little function I have remaining in my wrists and hands is all I will have with the possibility of it getting worse? Any thoughts on this would be great! Mandi Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 >HI MANDY,MY NAME IS MELYNDA & I TO HAVE RA.YOU DEFINALLY NEED A NEW DR. & YES MAYBE THINGS COULD GET WORSE BUT DONT GIVE UP!!GOOD LUCK AND GOD BLESS YOU..MELYNDA<MAPGAMEZ@...> > Hi everyone this is my first post here! A little background on me > three weeks ago I was diagnosed with Stills disease although the > first symptoms began in June of 06. Due to the pain and inflammation > I have been experincng in my wrists among other places I was sent for > an MRI on my Right wrist (the worst off of all my joints) And here > are the results given to me by my RU yesterday and the report > findings: > > > > 1. Findings suggestive of extensive erosive arthritis is noted > throughout the wrist. Diffuse marginal erosions and three > compartment joint effusions are identified > > 2. No fractures noted throughout the right wrist > > 3. Small tendon sheath fluid collections scattered throughout the > extensor tendons, suggestive of diffuse tenosynovitis. > > The doctor seemed worried that the damage was so extensive and said > very aggressive treatment would have to be done. He prescribed me > Methotrexate 2.5mg but only wants me to take 4 tablets instead of the > six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice > daily. See him again in six weeks. > > He says I have Rheumatoid Arthritis although I did test RA negative 2 > weeks ago so I'm confused on that. When I asked him how all this > relates to Stills he said " Stills is not important " I was like a > deer in the headlights and could not think to ask the right > questions. He then just walked out of the room...I struggle to > understand him any ways due to his accent and have booked an > appointment with a new Dr. (March 17th) but in the mean time I'm > wondering what all this means. As of yesterday my right foot is > inflamed again and I'm having difficulty walking wondering if like my > wrists I will have permanent damage in that as well...maybe the > Methotrexate will stop that???? > > So I'm wondering if the little function I have remaining in my wrists > and hands is all I will have with the possibility of it getting > worse? > > Any thoughts on this would be great! > > Mandi > Florida > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 where in Florida are you? I have a compassionate, well spoken RA specialist in St sburg. Mandi P <MLH951@...> wrote: Hi everyone this is my first post here! A little background on me three weeks ago I was diagnosed with Stills disease although the first symptoms began in June of 06. Due to the pain and inflammation I have been experincng in my wrists among other places I was sent for an MRI on my Right wrist (the worst off of all my joints) And here are the results given to me by my RU yesterday and the report findings: 1. Findings suggestive of extensive erosive arthritis is noted throughout the wrist. Diffuse marginal erosions and three compartment joint effusions are identified 2. No fractures noted throughout the right wrist 3. Small tendon sheath fluid collections scattered throughout the extensor tendons, suggestive of diffuse tenosynovitis. The doctor seemed worried that the damage was so extensive and said very aggressive treatment would have to be done. He prescribed me Methotrexate 2.5mg but only wants me to take 4 tablets instead of the six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice daily. See him again in six weeks. He says I have Rheumatoid Arthritis although I did test RA negative 2 weeks ago so I'm confused on that. When I asked him how all this relates to Stills he said " Stills is not important " I was like a deer in the headlights and could not think to ask the right questions. He then just walked out of the room...I struggle to understand him any ways due to his accent and have booked an appointment with a new Dr. (March 17th) but in the mean time I'm wondering what all this means. As of yesterday my right foot is inflamed again and I'm having difficulty walking wondering if like my wrists I will have permanent damage in that as well...maybe the Methotrexate will stop that???? So I'm wondering if the little function I have remaining in my wrists and hands is all I will have with the possibility of it getting worse? Any thoughts on this would be great! Mandi Florida Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 I do not know physicians in that area. I am quite sure there will be good choices available. Perhaps you can find a family physician. Tell him your wish list in choosing a specialist and he/she can match you up. I am very,very pleased with Dr. at the St sburg Arthritis Center. Nova north Eastern is an osteopathic medical school in Davie, florida. They have alumni all over the state. It may be worth a phone call. MLH951@... wrote: In Deltona half way between Orlando and Daytona Beach. In a message dated 2/15/2008 1:00:45 P.M. Eastern Standard Time, c.raniolo@... writes: where in Florida are you? I have a compassionate, well spoken RA specialist in St sburg. Mandi P <_MLH951@..._ (mailto:MLH951@...) > wrote: Hi everyone this is my first post here! A little background on me three weeks ago I was diagnosed with Stills disease although the first symptoms began in June of 06. Due to the pain and inflammation I have been experincng in my wrists among other places I was sent for an MRI on my Right wrist (the worst off of all my joints) And here are the results given to me by my RU yesterday and the report findings: 1. Findings suggestive of extensive erosive arthritis is noted throughout the wrist. Diffuse marginal erosions and three compartment joint effusions are identified 2. No fractures noted throughout the right wrist 3. Small tendon sheath fluid collections scattered throughout the extensor tendons, suggestive of diffuse tenosynovitis. The doctor seemed worried that the damage was so extensive and said very aggressive treatment would have to be done. He prescribed me Methotrexate 2.5mg but only wants me to take 4 tablets instead of the six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice daily. See him again in six weeks. He says I have Rheumatoid Arthritis although I did test RA negative 2 weeks ago so I'm confused on that. When I asked him how all this relates to Stills he said " Stills is not important " I was like a deer in the headlights and could not think to ask the right questions. He then just walked out of the room...I struggle to understand him any ways due to his accent and have booked an appointment with a new Dr. (March 17th) but in the mean time I'm wondering what all this means. As of yesterday my right foot is inflamed again and I'm having difficulty walking wondering if like my wrists I will have permanent damage in that as well...maybe the Methotrexate will stop that???? So I'm wondering if the little function I have remaining in my wrists and hands is all I will have with the possibility of it getting worse? Any thoughts on this would be great! Mandi Florida Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hi Mandi My RA factor is negative as well. My RA was found on an MRI of my hands and wrist. My Dr told me that MTX can slow the process of errosion but I am not sure if it will reverse damage already done.Welcome to the group and I hope you get some relief soon. Heidi M On Feb 15, 2008 1:42 PM, CATHERINE RANIOLO <c.raniolo@...> wrote: > I do not know physicians in that area. I am quite sure there will be > good choices available. Perhaps you can find a family physician. Tell him > your wish list in choosing a specialist and he/she can match you up. I am > very,very pleased with Dr. at the St sburg Arthritis Center. > Nova north Eastern is an osteopathic medical school in Davie, florida. They > have alumni all over the state. It may be worth a phone call. > > MLH951@... <MLH951%40aol.com> wrote: In Deltona half way between > Orlando and Daytona Beach. > > > In a message dated 2/15/2008 1:00:45 P.M. Eastern Standard Time, > c.raniolo@... <c.raniolo%40verizon.net> writes: > > where in Florida are you? I have a compassionate, well spoken RA > specialist > in St sburg. > > Mandi P <_MLH951@... <_MLH951%40aol.com>_ (mailto:MLH951@...<MLH951%40aol.com>) > > wrote: Hi everyone this > is my first post here! A little background on me > three weeks ago I was diagnosed with Stills disease although the > first symptoms began in June of 06. Due to the pain and inflammation > I have been experincng in my wrists among other places I was sent for > an MRI on my Right wrist (the worst off of all my joints) And here > are the results given to me by my RU yesterday and the report > findings: > > 1. Findings suggestive of extensive erosive arthritis is noted > throughout the wrist. Diffuse marginal erosions and three > compartment joint effusions are identified > > 2. No fractures noted throughout the right wrist > > 3. Small tendon sheath fluid collections scattered throughout the > extensor tendons, suggestive of diffuse tenosynovitis. > > The doctor seemed worried that the damage was so extensive and said > very aggressive treatment would have to be done. He prescribed me > Methotrexate 2.5mg but only wants me to take 4 tablets instead of the > six. Folic Acid 1mg daily and to continue the Prednisone 5mg twice > daily. See him again in six weeks. > > He says I have Rheumatoid Arthritis although I did test RA negative 2 > weeks ago so I'm confused on that. When I asked him how all this > relates to Stills he said " Stills is not important " I was like a > deer in the headlights and could not think to ask the right > questions. He then just walked out of the room...I struggle to > understand him any ways due to his accent and have booked an > appointment with a new Dr. (March 17th) but in the mean time I'm > wondering what all this means. As of yesterday my right foot is > inflamed again and I'm having difficulty walking wondering if like my > wrists I will have permanent damage in that as well...maybe the > Methotrexate will stop that???? > > So I'm wondering if the little function I have remaining in my wrists > and hands is all I will have with the possibility of it getting > worse? > > Any thoughts on this would be great! > > Mandi > Florida > > Raniolo > > Quote Link to comment Share on other sites More sharing options...
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