rheumatology update...appt today....friday

[Guest guest]

Bed side manners decent enough. They are all knowlegeable. so that

was never the problem. They all seem to be in a hurry as well. I

did give her my list at the beginning. We didn't cover everything

but I am okay with what we covered this visit. She dictated her

report in the middle of the appt. She did ask me why didn't I go on

disability which is a first. No doctor has ever said that to me

before. So, I suppose she won't have a problem with writing a

letter to give to the disability folks. She also said she has never

had a case as severe as mine. i wasn't too happy about that. Not

that others aren't so bad off but that my condition was. She says I

have been on everything so I will be a challenge. She isn't a big

fan of rituxan but also recommended I have it done. She doesn't do

it at her location. In the meantime, we will restart the MTX at a

lower dose because of the increased liver enzymes with other doctor

and will watch closely. MTX can cause lung problems but since I had

the lung problems after being off MTX she does not think it was the

MTX. it still hurts to breath, however. Still taking short breaths

to avoid the pain. Not sure how I want to proceed because of this.

Will probably go on the rituxan as she suggested and have the hips

done and hopefully that will allow me to be a bit more independent.

I am practically housebound now. Now that that's out of the way,

on to pulmonary followup and cardiology followup. Hopefully all

good news and things can get back to some type of " normalcy. "

There is still the concern about enlarged lymph nodes, one is 4 cm,

pretty large. talk of another biopsy at last pulmonology visit. I

don't know about that. not right now. I need a breather from the

hospital stuff. Too much money and takes too much out of me to

recover.

Hanging in there, hope you guys are doing the same.

best wishes everyone.

Ebony

[Guest guest]

Hi Ebony!

I hope you find some relief soon! That is good that if

you ever have to file for SSDI you have the doctors

support. My doctor, actually handed me a form she had

completed before my visit (based on the visit the

month before) that she was putting me on medical

disability and she would not sign a release for me to

go back to work. This was based on my FMS, MPS, CFS,

my blood clotting disorder and all of the other fun

things I have. I had not yet been diagnosed with the

RA. She saw that I could barely function to get to

the appointments. I know it is not fun to be

housebound. I've been off since 2002 now. I try to

keep busy reading and have recently started a blog! I

am keeping you in my thoughts and prayers

--- Ebony <stillbreathing29@...> wrote:

> Bed side manners decent enough. They are all

> knowlegeable. so that

> was never the problem. They all seem to be in a

> hurry as well. I

> did give her my list at the beginning. We didn't

> cover everything

> but I am okay with what we covered this visit. She

> dictated her

> report in the middle of the appt. She did ask me

> why didn't I go on

> disability which is a first. No doctor has ever

> said that to me

> before. So, I suppose she won't have a problem with

> writing a

> letter to give to the disability folks. She also

> said she has never

> had a case as severe as mine. i wasn't too happy

> about that. Not

> that others aren't so bad off but that my condition

> was. She says I

> have been on everything so I will be a challenge.

> She isn't a big

> fan of rituxan but also recommended I have it done.

> She doesn't do

> it at her location. In the meantime, we will

> restart the MTX at a

> lower dose because of the increased liver enzymes

> with other doctor

> and will watch closely. MTX can cause lung problems

> but since I had

> the lung problems after being off MTX she does not

> think it was the

> MTX. it still hurts to breath, however. Still

> taking short breaths

> to avoid the pain. Not sure how I want to proceed

> because of this.

> Will probably go on the rituxan as she suggested and

> have the hips

> done and hopefully that will allow me to be a bit

> more independent.

> I am practically housebound now. Now that that's

> out of the way,

> on to pulmonary followup and cardiology followup.

> Hopefully all

> good news and things can get back to some type of

> " normalcy. "

> There is still the concern about enlarged lymph

> nodes, one is 4 cm,

> pretty large. talk of another biopsy at last

> pulmonology visit. I

> don't know about that. not right now. I need a

> breather from the

> hospital stuff. Too much money and takes too much

> out of me to

> recover.

>

> Hanging in there, hope you guys are doing the same.

>

> best wishes everyone.

> Ebony

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

((()))

Thanks for prayers. I will keep you in my prayers as well.

I am doing all that I can to be healthy, functional independent.

Just a wake-up call when a doctor thinks you should go on

disability. I have been trying to avoid it. Not sure if I worked

enough quarters this time around. I work and stop work and stop,

depending on RA. We will see.

I will be okay emotion-wise. I do keep busy. I am blessed and

grateful for today and each day I am here. I will just keep

enjoying what I can, pay my bills off. Try to get things in order

and live my life. No worries. I have my beatiful backyard birds,

my digital camera, and you guys. Things can always be worse. Talk

to you soon. Is it okay to read your blog? I am still learning

about them. Don't have one yet. Leave your web site. thanks, take

care.

Blessings,

Ebony

>

> > Bed side manners decent enough. They are all

> > knowlegeable. so that

> > was never the problem. They all seem to be in a

> > hurry as well. I

> > did give her my list at the beginning. We didn't

> > cover everything

> > but I am okay with what we covered this visit. She

> > dictated her

> > report in the middle of the appt. She did ask me

> > why didn't I go on

> > disability which is a first. No doctor has ever

> > said that to me

> > before. So, I suppose she won't have a problem with

> > writing a

> > letter to give to the disability folks. She also

> > said she has never

> > had a case as severe as mine. i wasn't too happy

> > about that. Not

> > that others aren't so bad off but that my condition

> > was. She says I

> > have been on everything so I will be a challenge.

> > She isn't a big

> > fan of rituxan but also recommended I have it done.

> > She doesn't do

> > it at her location. In the meantime, we will

> > restart the MTX at a

> > lower dose because of the increased liver enzymes

> > with other doctor

> > and will watch closely. MTX can cause lung problems

> > but since I had

> > the lung problems after being off MTX she does not

> > think it was the

> > MTX. it still hurts to breath, however. Still

> > taking short breaths

> > to avoid the pain. Not sure how I want to proceed

> > because of this.

> > Will probably go on the rituxan as she suggested and

> > have the hips

> > done and hopefully that will allow me to be a bit

> > more independent.

> > I am practically housebound now. Now that that's

> > out of the way,

> > on to pulmonary followup and cardiology followup.

> > Hopefully all

> > good news and things can get back to some type of

> > " normalcy. "

> > There is still the concern about enlarged lymph

> > nodes, one is 4 cm,

> > pretty large. talk of another biopsy at last

> > pulmonology visit. I

> > don't know about that. not right now. I need a

> > breather from the

> > hospital stuff. Too much money and takes too much

> > out of me to

> > recover.

> >

> > Hanging in there, hope you guys are doing the same.

> >

> > best wishes everyone.

> > Ebony

> >

> >

>

>

>

>

_____________________________________________________________________

_______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>